Pob zeb hauv lub raum yog ib yam dab tsi uas ua rau peb txhua tus ntshai me ntsis, puas yog? Tej zaum koj twb tau hnov txog qhov mob ntawd lawm. Tab sis koj puas paub tias muaj ntau hom pob zeb hauv lub raum? Hnub no peb yuav tham txog ib hom pob zeb uas tsis tshua muaj tab sis tseem ceeb heev. Ntawd yog pob zeb cystine. Cia peb saib seb vim li cas lawv thiaj tsim, cov tsos mob yog dab tsi, thiab yuav ua li cas rau lawv.
Hauv lwm lo lus, pob zeb cystine yog dab tsi?
Cov pob zeb cystine kuj yog ib hom pob zeb hauv lub raum. Cov pob zeb hauv lub raum yog cov qauv tawv, zoo li pob zeb uas tsim los ntawm kev sib sau ua ke ntawm ntau yam tshuaj lom neeg hauv peb cov zis. Cov pob zeb cystine yog ua los ntawm cov tshuaj hu ua cystine . Cystine yog ib qho amino acid tseem ceeb rau peb lub cev. Yog xav kom meej meej, nws yog ib feem me me ntawm cov protein uas pab tsim cov leeg thiab kho cov ntaub so ntswg hauv peb lub cev.
Feem ntau, peb lub raum rov nqus cov cystine no rov qab rau hauv lub cev. Tab sis rau qee tus neeg, cov txheej txheem no tsis ua haujlwm zoo. Tom qab ntawd, cov cystine uas tsis tuaj yeem nqus tau yuav sib sau ua ke hauv cov zis thiab, dhau sijhawm, tsim cov pob zeb. Cov pob zeb cystine no tuaj yeem loj me ntsis dua li lwm cov pob zeb raum. Yog li qee zaum lawv yuav tsum tau phais tshem tawm los ntawm kev phais kom tiv thaiv kev puas tsuaj rau lub raum lossis txoj hlab zis.
Yog li ntawd, cystinuria yog dab tsi?
Qhov ua rau muaj cov pob zeb cystine no yog ib yam mob uas muaj los ntawm noob caj noob ces hu ua cystinuria . Qhov no yog ib yam mob uas tsis tshua muaj, uas yog los ntawm noob caj noob ces. Yog hais yooj yim xwb, yog tias koj muaj cov mob no, koj lub cev yuav tsis yaj cov tshuaj hu ua cystine tau zoo. Yog li ntawd, nws yuav sib sau ua ke hauv koj cov zis thiab ua rau muaj pob zeb.
Qhov tseem ceeb yog tias cystinuria yog ib yam mob uas yuav kho tau mus ib txhis. Tsis muaj tshuaj kho tau. Tab sis nrog kev kho mob zoo, koj tuaj yeem tswj tau qhov mob no zoo thiab ua neej nyob li qub .
Vim qhov no yog ib qho mob caj ces, ib tug me nyuam yuav tsum tau txais cov noob caj ces los ntawm lawv niam thiab txiv kom muaj nws . Ib tug neeg uas muaj mob no yuav muaj pob zeb cystine ntau zaus thoob plaws hauv lawv lub neej.
Tus mob no feem ntau tshwm sim li cas? Cov tsos mob yog dab tsi?
Qhov no tsis yog ib yam dab tsi uas tshwm sim rau txhua tus, nws yog qhov tsis tshua muaj. Feem ntau, yog tias koj coj 1 lossis 2 ntawm 100 tus neeg uas muaj pob zeb hauv lub raum, tsuas yog ib lossis ob ntawm lawv yuav muaj pob zeb cystine. Tab sis qhov xav tsis thoob, qhov mob no pom ntau dua rau cov menyuam yaus thiab cov tub ntxhais hluas . Kwv yees li 80% ntawm cov neeg uas muaj pob zeb cystine tsim lawv thawj pob zeb ua ntej hnub nyoog 20 xyoo. Txawm li cas los xij, cov pob zeb no tuaj yeem tsim tau thaum twg los tau.
Hais txog cov tsos mob, lawv zoo ib yam li lwm cov pob zeb hauv lub raum. Feem ntau cov tsos mob tsis hnov txog thaum pob zeb tshwm sim.
| Cov tsos mob | Kev piav qhia |
|---|---|
| Mob hnyav heev rau sab nraub qaum lossis lub duav | Nws yuav zoo li mob ntse heev uas raug muab chob rau. Feem ntau qhov no yuav hnov rau ib sab. |
| Mob hauv plab qis lossis qhov chaw mos | Thaum lub pob zeb txav mus rau hauv txoj hlab zis, yuav hnov mob hauv plab qis. |
| Ntshav nyob rau hauv cov zis | Cov zis yuav zoo li xim liab, liab, lossis xim av. |
| Ntuav thiab xeev siab | Xeev siab thiab ntuav yuav tshwm sim nrog rau qhov mob hnyav. |
| Mob thaum tso zis | Thaum lub pob zeb nyob ze rau lub zais zis, koj yuav hnov mob kub hnyiab lossis mob thaum tso zis. |
Qee zaum, cov pob zeb cystine no tuaj yeem loj txaus los thaiv txoj hlab zis thiab ua rau muaj kab mob hauv txoj hlab zis (UTI) .
Muaj teeb meem dab tsi tshwm sim tau?
Cystinuria yog ib yam mob uas yuav tsum tau kho mus tas li, thiab yog tias tsis kho kom zoo, nws yuav ua rau muaj teeb meem. Nws yog ib qho tseem ceeb uas yuav tsum nrog koj tus kws kho mob tham txog qhov teeb meem no.
Tej teeb meem uas yuav muaj xws li:
- Kev kis kab mob raum: Cov pob zeb tuaj yeem thaiv cov zis ntws thiab cia cov kab mob nkag mus rau hauv lub raum.
- Kev thaiv cov zis hauv lub raum: Lub raj uas nqa cov zis los ntawm lub raum mus rau lub zais zis (ureter) tuaj yeem raug thaiv los ntawm pob zeb.
- Muaj kab mob hauv txoj hlab zis (UTIs) ntau zaus.
- Kev puas tsuaj rau lub raum mus tas li:Yog tias tsis kho ntev, kev ua haujlwm ntawm lub raum yuav txo qis.
Tus kws kho mob kuaj mob li cas? Cov kev kho mob yog dab tsi?
Yog tias koj muaj cov tsos mob zoo ib yam li pob zeb hauv lub raum, koj tus kws kho mob yuav ua ntau qhov kev kuaj mob kom paub tseeb tias cov no puas yog pob zeb cystine.
Cov txheej txheem kuaj mob
- Nug koj cov lus qhia ntxiv: Tus kws kho mob yuav nug txog koj cov tsos mob thiab seb puas muaj leej twg hauv koj tsev neeg tau muaj teeb meem zoo sib xws.
- Kev kuaj: Tej zaum yuav muaj kev kuaj zis thiab kev kuaj duab xws li kev ntsuas ultrasound lossis CT scan .
- Kev kuaj pob zeb: Yog tias koj muaj pob zeb uas tau tawm hauv koj cov zis, nws tuaj yeem xa mus rau chav kuaj mob kom paub tseeb tias nws yog hom pob zeb dab tsi. Qhov no yog tib txoj kev los paub tseeb 100% tias nws yog pob zeb cystine.
Cov kev kho mob
Lub hom phiaj tseem ceeb ntawm kev kho cov pob zeb cystine yog tiv thaiv cov pob zeb tshiab kom tsis txhob tsim thiab tshem tawm cov pob zeb uas twb muaj lawm. Koj tus kws kho mob yuav tsim ib txoj kev npaj kho mob uas haum rau koj.
- Kev hloov pauv hauv kev ua neej thiab kev noj haus
- Haus dej ntau: Qhov no yog qhov tseem ceeb tshaj plaws. Koj tus kws kho mob yuav qhia koj kom haus tsawg kawg 3-4 liv dej ib hnub. Qhov ntawd txhais tau tias koj yuav tsum ua kom nws yog ib qho kev coj ua kom haus ib khob dej txhua teev. Tsis txhob xav tsis thoob yog tias koj sawv thaum hmo ntuj los haus dej. Dej ua rau koj cov zis tsis muaj zog thiab txo qhov kev sib sau ua ke ntawm cystine.
- Kev tswj ntsev (sodium): Txo cov ntsev uas koj ntxiv rau hauv koj cov zaub mov. Tsis txhob noj cov khoom noj xws li cov khoom noj hauv kaus poom thiab cov khoom noj khov lossis cov khoom noj ntim, uas muaj ntsev ntau.
- Txo cov protein ntawm tsiaj txhu: Koj tuaj yeem txo koj cov kev noj cov protein ntawm tsiaj txhu xws li nqaij, ntses, thiab qe thiab tsom mus rau cov protein uas yog los ntawm cov nroj tsuag xwb.
- Cov tshuaj kho mob
Yog tias koj mob vim yog pob zeb, koj tus kws kho mob yuav sau ntawv kom koj noj tshuaj tua kab mob. Tsis tas li ntawd xwb, muaj cov tshuaj tshwj xeeb uas tuaj yeem pab tiv thaiv cov pob zeb cystine tshiab kom tsis txhob tsim. Tiopronin thiab d-penicillamine yog cov tshuaj zoo li no. Cov no pab yaj cov cystine. Cov tshuaj no tsuas yog yuav tsum tau noj nyob rau hauv kev saib xyuas ntawm kws kho mob xwb .
- Kev phais mob
Yog tias cov pob zeb loj heev, thaiv txoj hlab zis, lossis ua rau mob hnyav, yuav tsum tau phais tshem tawm.
- Kev kuaj mob Ureteroscopy: Ib lub koob yees duab me me, yoog tau raug xa mus rau hauv txoj hlab zis kom nrhiav tau lub pob zeb thiab rhuav nws ua tej daim me me lossis tshem nws tawm tag nrho.
- Kev phais mob ntawm lub raum los ntawm kev siv txoj hlab ntsha me me (percutaneous nephrolithotomy):Ib txoj kev kho mob uas ua ib qho kev txiav me me rau ntawm daim tawv nqaij nraub qaum thiab muab ib lub raj xa mus rau hauv lub raum kom tshem tawm cov pob zeb. Feem ntau ua qhov no rau cov pob zeb loj heev.
Koj ua li cas nrog qhov xwm txheej no? Puas yog ib yam dab tsi uas yuav tsum ntshai?
Mob cystinuria yog ib yam mob uas yuav kho tau mus ib txhis. Tab sis yog tias kho tau zoo, ces tsis muaj dab tsi yuav txhawj txog. Mob no tsis tshua muaj peev xwm ua rau tuag taus. Yog tias kho tau zoo, ces tsis tshua muaj mob hnyav xws li mob raum tsis ua haujlwm.
Qhov tseem ceeb tshaj plaws yog kom muaj kev sib raug zoo ntawm koj thiab koj tus kws kho mob. Los ntawm kev ua raws li cov lus qhia kom meej thiab mus rau cov chaw kho mob raws sijhawm, koj tuaj yeem tswj tau qhov mob no zoo dua.
Yuav kom saib xyuas seb kev kho mob puas ua tiav, tus kws kho mob yuav kuaj zis tas li kom paub seb muaj cystine ntau npaum li cas hauv cov zis. Yog tias tsim nyog, txoj kev npaj kho mob yuav raug hloov kho raws li qhov tsim nyog. Vim tias qhov no yog ib qho mob caj ces, nws kuj tseem yuav yog ib lub tswv yim zoo los nrhiav kev sab laj txog caj ces yog tias koj tab tom npaj yuav pib tsev neeg.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Cov pob zeb cystine yog ib hom pob zeb hauv lub raum uas tshwm sim los ntawm ib qho mob tsis tshua muaj, caj ces hu ua cystinuria.
- Txawm hais tias tus mob no yuav kho tau mus ib txhis los xij, nws yeej kho tau zoo heev yog tias koj kho tau zoo thiab hloov koj txoj kev ua neej.
- Haus dej ntau thoob plaws hnub yog txoj hauv kev tseem ceeb thiab yooj yim tshaj plaws los tiv thaiv kev tsim pob zeb.
- Nws yog ib qho tseem ceeb heev uas yuav tsum ua raws li kev noj zaub mov uas tsis muaj ntsev thiab cov protein tsiaj tsawg.
- Yog tias koj muaj cov tsos mob xws li mob hnyav heev rau ntawm koj nraub qaum, lub duav, lossis lub plab qis, lossis muaj ntshav hauv koj cov zis, tsis txhob nkim sijhawm thiab mus ntsib kws kho mob tam sim ntawd .
- Ua raws li koj tus kws kho mob cov lus qhia thiab cov tshuaj raws nraim. Tsis txhob txhawj, koj tuaj yeem ua neej noj qab nyob zoo nrog tus mob no.
💬 Comments (0)
Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus