Koj lub ntsej muag puas o tam sim ntawd? Koj tus nplaig puas tawg? Puas yog Melkersson-Rosenthal Syndrome (MRS)?

Koj puas tau pom, lossis tau ntsib, qhov o ntawm ib sab ntawm koj lub ntsej muag, daim di ncauj o, qhov mob tingling ntawm ib sab ntawm koj lub ntsej muag, lossis txawm tias muaj qhov tawg txawv txawv hauv koj tus nplaig? Tej zaum cov no tsis yog ib qho xwm txheej ib txwm muaj. Tej zaum lawv yog cov tsos mob ntawm ib qho mob tsis tshua muaj uas peb tab tom tham txog.

Melkersson-Rosenthal Syndrome yog dab tsi?

Zoo, yog li cia peb saib seb Melkersson-Rosenthal Syndrome yog dab tsi, lossis luv luv MRS. Hais yooj yim, nws yog ib qho mob hlwb tsis tshua muaj. Ntawd yog, nws feem ntau cuam tshuam rau lub paj hlwb hauv peb lub ntsej muag. Cov tsos mob tseem ceeb ntawm tus mob no yog lub ntsej muag o, cov kab nrib pleb txawv txawv hauv tus nplaig (zoo li cov qhov tob), thiab lub ntsej muag tuag tes tuag taw, uas yog kev poob haujlwm ntawm ib lossis ob sab ntawm lub ntsej muag. Xav txog, tam sim ntawd, lub ces kaum ntawm lub qhov ncauj raug rub thiab koj tsis tuaj yeem kaw koj lub qhov muag kom raug.

Qhov mob 'MRS' no tej zaum yuav yog ib qho cim qhia txog tej yam mob yav tom ntej, xws li mob Crohn's (mob o ntawm txoj hnyuv) lossis mob sarcoidosis (mob uas ua rau muaj pob me me o ntawm ntau qhov ntawm lub cev). Cov kws kho mob tej zaum hu qhov mob no ua "Orofacial Granulomatosis" . Nws yog ib qho mob uas ua rau muaj pob me me hu ua granulomas, uas nrog rau o ntawm lub ntsej muag thiab qhov ncauj.

Leej twg thiaj muaj tau tus mob 'MRS' no? Nws tshwm sim ntau npaum li cas?

Tam sim no tej zaum koj yuav xav tias, "Leej twg thiaj li tau qhov no?" Qhov tseeb, tus mob no hu ua 'MRS' tuaj yeem tshwm sim thaum twg los tau. Txawm li cas los xij, nws feem ntau tshwm sim rau cov tub ntxhais hluas, feem ntau yog thaum lawv muaj hnub nyoog 20 xyoo, thaum cov tsos mob pib tshwm sim.

Tiam sis thaum nws los txog rau qhov nws tshwm sim ntau npaum li cas, MRS yog ib qho mob tsis tshua muaj . Lawv hais tias nws cuam tshuam rau feem pua ​​​​​​me me ntawm cov pej xeem, kwv yees li 0.08%. Tab sis cov kws tshawb fawb ntseeg tias vim tias cov tsos mob zoo ib yam li lwm yam kab mob, tej zaum yuav muaj ntau tus neeg uas tsis tau kuaj pom. Qhov no txhais tau tias tej zaum yuav muaj ntau tus neeg raug kev txom nyem los ntawm tus mob no dua li tus lej no. Yog li ntawd, yog tias koj muaj cov tsos mob zoo li no, tsis txhob tso tseg kev xav, "Qhov no tshwm sim rau ob peb tus neeg, tsis muaj txoj hauv kev uas kuv yuav tau txais nws." Qhov tseem ceeb tshaj plaws yog nrhiav kev pab tswv yim los ntawm kws kho mob.

Dab tsi yog cov ua rau muaj 'MRS'?

Zoo, tam sim no cia peb saib seb dab tsi ua rau muaj tus mob 'MRS' no. Yog hais qhov tseeb, cov kws tshawb fawb tseem tsis tau nrhiav tau qhov ua rau muaj tseeb . Tab sis muaj ob peb yam uas xav tias yuav ua rau muaj tus mob no:

• Kab mob Crohn: Raws li kuv tau hais ua ntej lawm, qhov no yog ib qho mob o ntawm txoj hnyuv mus ntev. Tau pom tias cov neeg uas muaj kab mob no muaj feem yuav mob MRS ntau dua.
• Kev txais caj ces los ntawm noob caj ces: Qhov no txhais tau tias nws tuaj yeem kis tau los ntawm ib tiam mus rau ib tiam. Yog tias ib tug neeg hauv tsev neeg tau muaj tus mob no, qhov ntawd kuj tuaj yeem yog ib qho laj thawj. Tab sis qhov no tseem tsis tau muaj pov thawj.
• Kev ua xua ntau dhau: Qhov no yog thaum peb lub cev tiv thaiv kab mob ua rau muaj kev ua xua ntau dhau (uas peb hu ua 'antigen' lossis 'allergen' - txhais tau tias nws tuaj yeem yog qee yam uas ua rau muaj kev ua xua). Nws zoo li kev ua xua, tab sis nws nyuaj me ntsis.
• Sarcoidosis: Qhov no kuj yog ib yam kab mob uas ua rau muaj cov pob me me (granulomas) nyob rau ntau qhov ntawm lub cev. Cov kab mob no kuj xav tias muaj feem cuam tshuam nrog MRS.
• Kev kis kab mob los yog kab mob bacterial: Muaj qee tus neeg xav tias qhov mob no qee zaum tuaj yeem tshwm sim tom qab kev kis kab mob los ntawm kab mob virus lossis kab mob bacterial.

Puas yog 'MRS' yog '(Kab mob Autoimmune)'?

Tam sim no tej zaum yuav muaj ib txhia neeg xav paub tias, "Qhov no puas yog ib qho '(Kab mob Autoimmune)'?" Yog li ntawd, puas yog ib qho mob uas peb lub cev tiv thaiv kab mob tawm tsam peb cov hlwb noj qab haus huv? Qhov tseeb, 'MRS' tsis suav tias yog '(Kab mob Autoimmune)'.

Qhov no raug cais ua ib qho kev mob hlwb . Qhov ntawd txhais tau tias nws yog ib qho teeb meem nrog lub hlwb lossis lub paj hlwb. Nws tseem hu ua granulomatous disorder . Qhov ntawd txhais tau tias nws yog ib qho mob ntev, o, thiab mob pob (granuloma) uas tsim nyob rau hauv lub cev cov nqaij. Koj puas tau txais nws? Yog li nws tsis poob ncaj qha rau hauv pawg ntawm "autoimmune."

Cov tsos mob ntawm 'MRS' yog dab tsi?

Zoo, yog li cia peb saib cov tsos mob ntawm tus mob 'MRS' no, lossis tus mob '(Orofacial Granulomatosis)' uas kuv tau hais ua ntej. Muaj peb yam tsos mob tseem ceeb uas pom hauv qhov no. Cov no hu ua 'classic triad of symptoms' .

1. Mob ntsej muag tuag tes tuag taw: Qhov no yog ib qho mob uas muaj qhov tsis muaj zog lossis loog ntawm ib sab ntawm lub ntsej muag, qee zaum ntawm ob sab. Qhov no yuav tsis tshwm sim thaum ntxov, tab sis yuav tshwm sim rau theem tom qab. Thaum tus kab mob loj zuj zus, lub sijhawm ntawm qhov mob tuag tes tuag taw no yuav ntev zuj zus. Xav txog, tam sim ntawd tsis tuaj yeem txav ib sab ntawm koj lub qhov ncauj, muaj teeb meem kaw koj lub qhov muag, lossis muaj ib lub ces kaum ntawm koj lub qhov ncauj ntws tawm thaum haus dej.

2. Lub ntsej muag o: Cov neeg uas muaj MRS feem ntau yuav muaj lub ntsej muag o (Orofacial edema). Qhov o ntawm daim di ncauj (Cheilitis granulomatosis) yog qhov tshwm sim ntau heev. Daim di ncauj sab saud feem ntau o ua ntej daim di ncauj sab hauv qab. Daim di ncauj yuav qhuav, tawg, mob, thiab tej zaum yuav liab-xim av. Rau qee tus neeg, daim di ncauj yuav tawv li pob zeb. Tsis yog daim di ncauj xwb, tab sis kuj tseem muaj lub puab tsaig, qhov muag, thiab qee zaum txawm tias lub taub hau kuj yuav o. Qhov o no tuaj yeem hnyav dua thiab kav ntev dua thaum tus kab mob rov qab los.

3. Tus nplaig uas muaj qhov ntxhib:Qhov no ua rau muaj cov kab nrib pleb tob zoo li qhov zawj rau saum tus nplaig. Cov kws kho mob kuj hu qhov no ua "Tus nplaig Scrotal" lossis "Lingua plicata". Feem ntau qhov no tsis mob, tab sis qee tus neeg yuav o, khaus, thiab kub hnyiab ntawm tus nplaig. Nws kuj tseem ua rau tsis hnov ​​​​​​qab thiab ua rau muaj kab mob hauv qhov ncauj.

Qhov tseem ceeb yog tias tsis yog txhua tus muaj tag nrho peb yam no. Tej zaum ib txhia neeg tsuas muaj ib lossis ob yam ntawm peb yam no xwb. Lwm tus neeg kuj muaj tag nrho peb yam no.

Cov tsos mob no tsis yog tas li. Lawv tuaj thiab mus. Thawj zaug, lawv tsuas kav ob peb teev xwb. Tab sis thaum lawv rov qab los tom qab, lawv yuav hnyav dua thiab kav ntev dua.

Lwm cov tsos mob

Ntxiv rau cov tsos mob tseem ceeb no, tej zaum yuav muaj ntau lwm cov tsos mob:

• kiv taub hau
• Mob taub hau migraine
• Suab nrov hauv pob ntseg (tinnitus) lossis hnov ​​​​​​lus tsis zoo
• Tom qab tus kab mob hnyav zuj zus thiab zoo lawm, tej zaum yuav muaj cov qhov txhab tshwm sim rau ntawm lub ntsej muag .
• Nyuaj nqos
• Teeb meem pom kev: Qhov muag qhuav, pom kev tsis meej, thiab qhov muag o (uveitis).

Yuav kuaj mob MRS li cas?

Tam sim no tej zaum koj yuav xav tias, "Kuv yuav paub tseeb li cas tias qhov no yog 'MRS'?" Qhov tseeb, 'MRS' nyuaj me ntsis rau kev kuaj mob. Vim tias nws cov tsos mob tuaj yeem tsis meej pem nrog lwm yam mob. Piv txwv li, nws cov tsos mob tuaj yeem zoo ib yam li 'Kev ua xua' lossis 'Bell's palsy', lwm yam mob uas ua rau lub ntsej muag tuag tes tuag taw.

Feem ntau tus kws kho mob yuav kuaj mob MRS los ntawm kev saib koj keeb kwm yog tias koj muaj tsawg kawg yog ob ntawm peb yam tsos mob uas kuv tau hais ua ntej. Qee zaum, txhawm rau kom paub meej tias koj tau kuaj mob thiab tshem tawm lwm yam mob, yuav muab ib daim nqaij me me ntawm koj daim di ncauj coj mus kuaj (ua ib qho biopsy). Qhov no yuav nrhiav seb puas muaj granulomas.

Tsis tas li ntawd xwb, tus kws kho mob kuj yuav xa koj mus rau ntau tus kws kho mob tshwj xeeb, vim qhov no tuaj yeem cuam tshuam rau ntau lub cev. Cov no suav nrog:

• Kws Kho Mob Txog Kev Ua Xua
• Kws Kho Mob Tawv Nqaij
• Kws Kho Mob Plab Hnyuv - Saib cov khoom zoo li tus kab mob Crohn.
• Kws kho mob tiv thaiv kab mob
• kws kho qhov muag

Puas muaj tshuaj kho tau tus kab mob 'MRS'? Cov kev kho mob yog dab tsi?

Zoo, lo lus nug loj tshaj plaws uas ntau tus neeg muaj tam sim no yog, "Puas muaj kev kho kom tiav rau qhov mob 'MRS' no?" Tu siab, tseem tsis tau muaj kev kho mob rau 'MRS'.

Qee zaum cov tsos mob ploj mus yam tsis tau kev kho mob, tab sis lawv tuaj yeem rov tshwm sim dua.

Yog li, koj yuav kho nws li cas? Yog tias cov tsos mob rov tshwm sim thiab ua rau koj ntxhov siab, muaj ntau txoj kev kho mob uas tuaj yeem pab txo qhov mob, tiv thaiv kev kis kab mob, thiab txhim kho qhov tsos. Lawv yog:

• Tshuaj tua kab mob: Yog tias muaj kab mob bacterial.
• Cov Tshuaj Antihistamines: Txo cov tsos mob zoo li ua xua thiab o.
• Cov tshuaj Corticosteroids: Cov no yog cov tshuaj muaj zog uas txo qhov o thiab o. Lawv tuaj yeem muab tau los ntawm kev txhaj tshuaj ncaj qha rau hauv qhov chaw o, lossis ua cov tshuaj ntsiav.
• Cov tshuaj tiv thaiv kab mob (immunosuppressants): Cov no pab txo qhov o los ntawm kev tswj me ntsis kev ua haujlwm ntawm lub cev tiv thaiv kab mob.
• Methotrexate: Qhov no kuj yog ib hom tshuaj uas tswj kev tiv thaiv kab mob thiab txo qhov o.
• Cov tshuaj nonsteroidal anti-inflammatory drugs (NSAIDs): Txo qhov mob thiab o (piv txwv li, Ibuprofen, Diclofenac).
• Kev Phais Mob: Qee zaum kev phais mob yuav ua tau kom txo qhov o ntawm daim di ncauj uas o heev lossis kom txo qhov kev nyem rau ntawm cov hlab ntsha ntawm lub ntsej muag. Txawm li cas los xij, qhov no tsis tshua muaj neeg ua.
• Cov tshuaj TNF-alpha inhibitors: Cov no kuj yog ib hom tshuaj tshwj xeeb uas pab tiv thaiv kev o. Feem ntau lawv muab rau yog tias lwm yam kev kho mob tsis ua haujlwm.

Cov kev kho mob no yog tsim los tswj cov tsos mob thiab txo qhov tsis xis nyob. Koj tus kws kho mob yuav txiav txim siab seb txoj kev kho mob twg zoo tshaj plaws rau koj.

Puas tiv thaiv tau tus mob 'MRS'?

Puas tiv thaiv tau tus mob 'MRS' no? Qhov tseeb, vim tias cov kws tshawb fawb tseem tsis tau nkag siab tag nrho txog qhov ua rau muaj qhov no, tseem tsis tau muaj txoj hauv kev los tiv thaiv nws. Yog li ntawd, peb yuav tsum tsom mus rau kev paub txog cov tsos mob thaum ntxov thiab nrhiav kev kho mob kom zoo.

'MRS' yuav zoo li cas? Nws puas yuav zoo?

Yav tom ntej yuav zoo li cas rau ib tus neeg uas muaj MRS? Qhov no yeej txawv ntawm ib tus neeg mus rau ib tus neeg. Ib txhia neeg muaj cov tsos mob me me xwb, xws li ib zaug txhua ob peb xyoos, thiab lawv ploj mus lawv tus kheej. Rau lwm tus, cov tsos mob yuav tshwm sim ntau zaus dua, xws li txhua ob peb hnub, thiab tej zaum yuav hnyav zuj zus txhua zaus.

Tus mob no yuav nyob mus ib txhis, thiab qhov o tuaj yeem nyob mus ib txhis. Tab sis cov kws tshawb fawb tsis xav tias tus kab mob no cuam tshuam rau lub neej. Qhov ntawd txhais tau tias koj tuaj yeem ua neej nyob ib txwm nrog nws, tab sis koj yuav tsum nyob nrog cov tsos mob. Yog li ntawd, kev nyob ruaj khov ntawm lub hlwb kuj tseem ceeb heev.

Cov lus nug uas yuav tsum nug koj tus kws kho mob

Yog tias koj muaj Melkersson-Rosenthal Syndrome, lossis xav tias koj muaj nws, nws yog ib lub tswv yim zoo los nug koj tus kws kho mob cov lus nug no:

• Koj yuav hais li cas kom paub tseeb tias qhov no yog Melkersson-Rosenthal Syndrome? Puas yog lwm yam?
• Kuv yuav tsum mus ntsib kws tshwj xeeb twg ntxiv? (piv txwv li, kws kho mob tawv nqaij, kws kho mob hlwb, thiab lwm yam)
• Yog tias cov tsos mob rov tshwm sim dua, kuv yuav tsum nrhiav kev pab kho mob thaum twg? Kuv yuav tsum txhawj xeeb txog cov tsos mob twg?
• Puas yuav tsum kuaj mob Crohn's lossis sarcoidosis?
• Kuv yuav tsum ua li cas thiaj li tiv thaiv tau kev kis kab mob, o mus tas li, thiab caws pliav?
• Koj puas pom zoo kom kuaj noob caj noob ces? Nws qhia tau dab tsi rau koj?
• Koj puas paub txog cov pab pawg txhawb nqa uas pab cov neeg uas muaj cov mob no? Puas yuav muaj txiaj ntsig dab tsi yog tias kuv koom nrog lawv?

Yog li ntawd, yam tseem ceeb tshaj plaws uas peb yuav tsum coj los tsev los ntawm zaj dab neeg no yog dab tsi?

Melkersson-Rosenthal Syndrome (MRS) yog ib yam mob tsis tshua muaj uas cuam tshuam rau cov hlab ntsha ntawm lub ntsej muag. Yog tias koj lub ntsej muag o sai sai, lub ntsej muag tuag tes tuag taw, lossis muaj cov kab nrib pleb txawv txawv hauv koj tus nplaig, koj yuav tsum mus ntsib kws kho mob.

Txawm hais tias tsis muaj kev kho mob tshwj xeeb rau qhov no, muaj cov kev kho mob zoo los tswj cov tsos mob, txo qhov tsis xis nyob, thiab tiv thaiv cov teeb meem. Yog li ntawd, tsis txhob txhawj. Yog tias koj kuaj pom thaum ntxov thiab kho kom zoo, koj tuaj yeem nyob zoo nrog tus mob no. Koj tsis nyob ib leeg, thiab koj cov kws kho mob thiab cov neeg koj hlub tuaj yeem pab koj.

` Melkersson-Rosenthal syndrome, MRS, o ntawm lub ntsej muag, lub ntsej muag tuag tes tuag taw, tus nplaig tawg, neuropathy, orofacial granulomatosis