Koj puas tau xav txog seb peb lub cev tiv thaiv kab mob, uas zoo li ib tug tub rog tiv thaiv peb ntawm cov kab mob, qee zaum tuaj yeem mus yuam kev thiab tawm tsam peb cov khoom noj qab haus huv li cas? Hmoov tsis zoo, qhov no yog ib qho kab mob uas tshwm sim hauv peb lub cev. Txawm hais tias qhov no yuav zoo li nyuaj me ntsis, cia peb ua kom yooj yim vim nws tseem ceeb heev uas yuav tsum paub txog nws.
MOGAD yog dab tsi tiag?
Hais yooj yim xwb, MOGAD yog ib yam mob autoimmune . Tam sim no tej zaum koj yuav xav paub tias nws yog dab tsi. Lub luag haujlwm tseem ceeb ntawm peb lub cev tiv thaiv kab mob yog tiv thaiv peb ntawm cov kab mob los ntawm kev tawm tsam cov kab mob, cov kab mob me me, thiab cov kab mob uas los ntawm sab nraud. Qhov no tau pab los ntawm ib hom protein tshwj xeeb hu ua antibodies . Tab sis qee zaum, lub cev tiv thaiv kab mob no mus tsis raug. Tom qab ntawd lawv pib paub peb cov hlwb thiab cov nqaij noj qab haus huv ua yeeb ncuab thiab tawm tsam lawv. Qhov ntawd yog qhov peb hu ua mob autoimmune.
Qhov ntawd yog qhov tshwm sim hauv MOGAD. Ntawm no, peb lub cev tiv thaiv kab mob tawm tsam cov ntaub thaiv tiv thaiv nyob ib puag ncig peb lub paj hlwb hauv nruab nrab (CNS) , uas yog lub hlwb, cov hlab ntsha caj qaum, thiab cov hlab ntsha optic hauv peb lub qhov muag. Cov ntaub thaiv tiv thaiv no hu ua myelin . Xav txog nws zoo li lub hnab yas nyob ib puag ncig cov xov hluav taws xob. Cov myelin no tiv thaiv cov hlab ntsha thiab pab cov teeb liab ntawm cov hlab ntsha mus tau zoo.
Yog li, thaum cov tshuaj tiv thaiv kab mob tuaj thiab ua puas rau cov myelin no, peb hu nws tias demyelination . Ib yam li thaum cov yas npog ntawm cov hlau ntawd puas lawm, lub teeb tsis tig kom raug, thaum myelin puas lawm, cov lus los ntawm lub hlwb mus rau lwm qhov ntawm lub cev tsis mus kom raug. Qhov no yog vim li cas MOGAD ua rau muaj ntau yam tsos mob.
Cov tsos mob uas pom ntau muaj xws li pom tsis meej lossis pom tsis meej (Optic Neuritis) , cov leeg tsis muaj zog (Transverse Myelitis) , thiab tsis sib npaug (Acute Disseminated Encephalomyelitis - ADEM) . Yog tias tus kws kho mob hu koj los ntawm cov npe no, koj yuav paub lawv txhais li cas.
Puas muaj cov hom MOGAD tseem ceeb?
Yog, peb tuaj yeem pom ob hom MOGAD tseem ceeb:
1. Monophasic MOGAD: Hauv qhov no, koj tsuas pom cov tsos mob ib zaug xwb. Uas yog, thaum koj kis tus kab mob thiab kho lawm, cov tsos mob yuav tsis tshwm sim dua.
2. Rov Mob MOGAD Dua: Qhov no txawv me ntsis. Cov tsos mob yuav ploj mus ib pliag (peb hu qhov no ua kev zam txim) , tab sis tom qab ntawd rov tshwm sim dua. Nws zoo li yog ib qho mob ntev.
MOGAD puas yog ib yam kab mob tsis tshua muaj?
MOGAD txhais li cas tiag?Ib qho mob demyelinating uas tsis tshua muaj . Tab sis thaum muaj kev paub txog tus kab mob no ntau zuj zus, cov kws kho mob ntseeg tias tus naj npawb ntawm cov neeg mob yuav nce ntxiv yav tom ntej. Raws li cov ntaub ntawv tam sim no, kwv yees tias muaj li ib mus rau peb tus neeg ntawm ib lab tus neeg muaj tus kab mob no txhua xyoo. Qhov ntawd txhais tau tias nws tsis yog ib qho mob uas pom ntau heev.
Cov tsos mob ntawm MOGAD yog dab tsi?
Cov tsos mob ntawm MOGAD tuaj yeem cuam tshuam rau ntau qhov ntawm koj lub cev. Cov tseem ceeb yog qhov muag, tus txha caj qaum (cov hlab ntsha hauv tus txha caj qaum), thiab lub hlwb.
Cov tsos mob cuam tshuam rau lub qhov muag (Optic Neuritis)
Peb hu qhov mob no ua Optic Neuritis . Nws tuaj yeem cuam tshuam rau ib lossis ob lub qhov muag.
- Pom kev tsis meej
- pom ob sab
- Kev poob ib feem lossis tag nrho ntawm kev pom kev
- Mob qhov muag , tshwj xeeb tshaj yog thaum txav koj lub qhov muag
- Kev tsis pom kev xim
Xav txog seb, koj cia li poob koj lub zeem muag hauv ib lub qhov muag, lossis txhua yam tsis meej. Qhov ntawd yog qhov kev paub dhau los.
Cov tsos mob cuam tshuam rau cov hlab ntsha hauv lub paj hlwb (Transverse Myelitis)
Qhov no hu ua transverse myelitis . Qhov no yog o ntawm cov hlab ntsha qaum.
- Cov leeg tsis muaj zog , tej zaum txawm tias tsis muaj peev xwm taug kev
- Kev tsis muaj zog lossis tsis hnov lus zoo hauv qee qhov ntawm lub cev
- Tsis muaj peev xwm tswj tau txoj hnyuv lossis zais zis (piv txwv li, tsis muaj peev xwm tuav zis, tsis muaj peev xwm tswj tau txoj hnyuv)
- Nyuaj siab tso zis tag nrho
- Cov leeg nqaij tawv lossis ntswj (spasticity)
- Mob ntse, mob tapped los yog tingling hauv caj dab, nraub qaum, lossis plab .
Qhov no zoo li kev puas tsuaj rau lub xov hlau tseem ceeb uas nqa cov lus hauv peb lub cev.
Cov tsos mob cuam tshuam rau lub hlwb (ADEM)
Peb hu cov tsos mob uas cuam tshuam rau lub hlwb ua Acute Disseminated Encephalomyelitis (ADEM) .
- Kev tsis meej pem , xav tias koj lub siab xav mus ncig
- Kev poob ntawm kev sib npaug thiab kev sib koom tes , tej zaum yuav co zoo li ib tug neeg qaug cawv
- Mob taub hau
- Kev hloov pauv tus cwj pwm , xws li ua chim siab lossis ntxhov siab
- Kev poob siab
- Cov tsos mob ntawm qaug dab peg (Qaug dab peg) , uas yog, qaug dab peg.
Cov tsos mob ntawm MOGAD tuaj yeem rov qab los dua. Uas yog, tej zaum yuav muaj lub sijhawm uas tsis muaj tsos mob thiab tom qab ntawd cov tsos mob mam li rov tshwm sim (rov qab los).
Cov tsos mob ntawm MOGAD puas txawv rau cov neeg laus thiab cov menyuam yaus?
Yog, txoj kev uas cov tsos mob tshwm sim yuav hloov me ntsis nrog hnub nyoog.
Feem ntau, thaum cov menyuam yaus muaj MOGAD, nws feem ntau cuam tshuam rau lub hlwb (ADEM mob). Tom qab ntawd cov tsos mob uas tau hais ua ntej, xws li kev tsis meej pem thiab kev poob qhov sib npaug, feem ntau pom. Qee zaum, teeb meem pom kev (Optic Neuritis) kuj tuaj yeem tshwm sim tib lub sijhawm.
Thaum cov neeg laus muaj MOGAD, feem ntau nws tsom mus rau cov hlab ntsha caj qaum (Transverse Myelitis) thiab lub qhov muag (Optic Neuritis). Yog li ntawd, lawv feem ntau muaj cov tsos mob xws li qaug zog, loog, thiab pom kev tsis meej.
Dab tsi ua rau muaj kev tsim MOGAD?
Yog hais qhov tseeb, qhov ua rau MOGAD tseem tsis tau pom . Tam sim no ntseeg tias qhov no tsis yog kab mob los ntawm noob caj noob ces lossis kab mob los ntawm noob caj noob ces. Kuj tseem muaj kev tshawb fawb txog seb nws puas pib vim muaj kev hloov pauv hauv lub cev tiv thaiv kab mob, xws li tom qab kis tus kab mob viral. Tab sis tseem tsis tau hais meej tias qhov no yog qhov ua rau.
Tej yam teeb meem uas yuav tshwm sim ntawm MOGAD yog dab tsi?
Kev puas tsuaj rau daim ntaub thaiv hu ua myelin tuaj yeem muaj kev cuam tshuam mus tas li rau peb lub cev ua haujlwm li cas. Qee qhov teeb meem uas qee zaum tshwm sim suav nrog:
- Ua neeg dig muag tag nrho
- Kev poob haujlwm ntawm lub zais zis lossis txoj hnyuv tas mus li
- Kev tuag tes tuag taw
- Mob ntev
- Mob qaug zog tas li , xav tias nkees txhua lub sijhawm
- Kev puas hlwb , uas txhais tau tias muaj teeb meem kawm, nco qab, thiab xav.
Nyob nrog MOGAD ib leeg xwb yeej nyuaj heev rau kev tswj hwm. Thaum cov tsos mob tshwm sim, lawv tuaj yeem coj koj mus deb ntawm tej yam koj nyiam ua thiab ua rau koj xav tias tsis muaj zog. Yog li ntawd, ntau tus neeg uas muaj MOGAD kuj raug kev txom nyem los ntawm cov teeb meem kev noj qab haus huv xws li kev nyuaj siab. Yog li, yog tias koj xav li no, nws yog ib qho tseem ceeb uas yuav tsum tham nrog kws kho mob txog nws.
Yuav kuaj mob MOGAD li cas?
Tus kws kho mob yuav kuaj mob MOGAD los ntawm kev kuaj lub cev , kuaj lub paj hlwb , thiab lwm yam kev kuaj tshwj xeeb . Thaum lub sijhawm kuaj mob, nws yuav nug txog koj cov tsos mob thiab koj keeb kwm kev kho mob.
Cov kev kuaj mob uas pab lees paub qhov muaj tus kab mob MOGAD suav nrog:
- Xyuas seb cov qe ntshav dawb hauv cov ntshav puas tau nce ntxiv (qhov no yog ib yam dab tsi uas tshwm sim thaum muaj kev o).
- Seb puas muaj qhov txhab hauv lub hlwb lossis tus txha caj qaum (cov no tuaj yeem kuaj xyuas nrog MRI scans).
- Cov kab mob OligoclonalFeem ntau cov no tsis pom muaj nyob rau hauv MOGAD, tab sis pom muaj nyob rau hauv qee yam kab mob (piv txwv li, ntau yam sclerosis). Qhov no tuaj yeem pab cais ob hom kab mob.
Qee qhov kev kuaj mob uas muaj txiaj ntsig zoo rau kev kuaj mob MOGAD yog:
- Kev kuaj ntshav: Tshawb xyuas cov tshuaj tiv thaiv kab mob tshwj xeeb tawm tsam cov protein hu ua MOG (MOG-IgG antibodies).
- Kev kuaj pom kev: Xyuas seb puas muaj kev o ntawm cov hlab ntsha pom kev.
- Kev tho qhov ntawm lub duav: Qhov no suav nrog kev rho me me ntawm cov kua dej hauv lub hlwb los ntawm tus txha nqaj qaum thiab kuaj nws. Qhov no kuj hu ua "spinal tap."
- MRI (Magnetic Resonance Imaging): Qhov no tuaj yeem thaij duab kom ntxaws ntawm lub hlwb thiab tus txha caj qaum thiab nrhiav cov qhov txhab hauv myelin.
Qee zaum MOGAD nyuaj rau kuaj mob, vim nws cov tsos mob zoo ib yam li lwm yam kab mob ntawm lub paj hlwb, xws li ntau yam kab mob sclerosis (MS) . Yog li ntawd, nws yuav siv sijhawm thiab ntau qhov kev kuaj mob kom paub tseeb.
Feem ntau kuaj pom tias muaj tus kab mob MOGAD thaum muaj hnub nyoog li cas?
Feem ntau cov neeg raug kuaj pom tias muaj MOGAD thaum lawv muaj hnub nyoog nees nkaum lossis peb caug xyoo . Txawm li cas los xij, tus mob no tuaj yeem cuam tshuam rau txhua tus neeg txhua lub hnub nyoog. Feem ntau cov menyuam yaus raug kuaj pom ua ntej hnub nyoog 11 xyoos .
Puas kho tau MOGAD kom zoo tag nrho?
Tu siab kawg li, tsis muaj tshuaj kho tau tus kab mob MOGAD tam sim no . Yog li ntawd, tsis muaj tshuaj kho tau uas yuav tshem tau tus kab mob no tawm ntawm lub cev tag nrho. Tiam sis, tsis txhob ntshai! Muaj cov kev kho mob uas tuaj yeem pab tswj cov tsos mob, txo lawv qhov mob ntau zaus, thiab tswj tau lub neej zoo.
Yuav kho tus mob MOGAD li cas?
Thaum cov tsos mob MOGAD zuj zus tuaj (mob hnyav zuj zus), muaj ntau txoj kev kho mob:
- Cov tshuaj steroids, xws li methylprednisolone: Cov no raug muab rau hauv cov hlab ntsha rau peb txog tsib hnub. Qhov no pab txo qhov o thiab tswj cov tsos mob sai sai.
- Kev pauv ntshav hauv cov ntshav: Qhov no yog ib txoj kev kho mob uas nyuaj me ntsis. Hauv qhov no, lub tshuab tshem tawm cov kua ntawm koj cov ntshav hu ua plasma, cais nws tawm ntawm cov qe ntshav, thiab tom qab ntawd txhaj cov kua hloov, nrog rau koj cov qe ntshav, rov qab rau hauv koj lub cev. Qhov no pab tshem tawm cov tshuaj tua kab mob uas ua rau puas tsuaj.
- Immunoglobulin txhaj rau hauv cov hlab ntsha (IVIG):Qhov no suav nrog kev hloov cov tshuaj tiv thaiv kab mob hauv koj cov ntshav nrog cov tshuaj tiv thaiv kab mob zoo los ntawm cov neeg pub dawb los ntawm cov leeg ntshav. Qhov no kuj tseem tuaj yeem tswj cov haujlwm ntawm cov tshuaj tiv thaiv kab mob uas ua haujlwm tsis zoo.
- Cov tshuaj tiv thaiv kab mob: Cov no yog muab ua cov tshuaj noj. Lawv txo qhov kev ua haujlwm ntawm lub cev tiv thaiv kab mob thiab pab tiv thaiv kev puas tsuaj ntxiv.
Qee cov tshuaj kuj siv los ua kev kho mob mus sij hawm ntev kom tiv thaiv kev rov tshwm sim ntawm cov tsos mob MOGAD:
- Cov tshuaj tiv thaiv kab mob (lwm hom tshuaj uas yuav tsum siv ntxiv)
- Mycophenolate mofetil
- Rituximab
- Azathioprine
- Kev txhaj tshuaj IVIG (immunoglobulin rau hauv cov hlab ntsha) lossis kev txhaj tshuaj immunoglobulin rau hauv qab daim tawv nqaij
Tag nrho cov kev kho mob no tuaj yeem muaj qee qhov kev phiv. Koj tus kws kho mob yuav piav qhia txhua yam no rau koj ua ntej koj pib kho mob. Nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob paub yog tias koj pom muaj dab tsi tshiab.
Qee zaum, yog tias tus kab mob ua rau muaj teeb meem, koj tus kws kho mob yuav pom zoo kom koj koom nrog cov kev pab cuam kho kom rov zoo . Piv txwv li, yog tias myelin puas tsuaj tau cuam tshuam rau koj qhov muag pom lossis kev taug kev, cov kev pab cuam kho kom rov zoo no tuaj yeem pab koj kawm ua cov haujlwm txhua hnub thiab mus ncig ua si ywj pheej.
Kev kwv yees ntawm tus kab mob MOGAD yog dab tsi?
Qhov kev kwv yees rau MOGAD tseem tab tom kawm. Txawm li cas los xij, feem ntau cov neeg mob qhov kev cia siab zoo . Qee tus neeg yuav muaj kev hloov pauv qhov muag tas mus li. Tsis tas li ntawd, qee qhov kev kho mob (xws li kev siv tshuaj tiv thaiv kab mob mus sij hawm ntev) tuaj yeem ua rau koj muaj kev pheej hmoo ntawm cov kev mob tshwm sim xws li kev kis kab mob. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum ua raws li koj tus kws kho mob cov lus qhia thiab kuaj xyuas tsis tu ncua.
MOGAD puas cuam tshuam rau lub neej?
MOGAD tsis cuam tshuam ncaj qha rau koj lub neej . Muaj ntau lwm yam uas cuam tshuam rau tus neeg lub neej. Nyob ntawm koj qhov xwm txheej, koj tuaj yeem tau txais cov ntaub ntawv tshiab tshaj plaws txog qhov no los ntawm koj tus kws kho mob.
Puas tiv thaiv tau MOGAD?
Tu siab kawg li, tsis muaj ib txoj kev twg uas paub los tiv thaiv MOGAD . Qhov no tseem tab tom raug tshawb nrhiav. Koj tus kws kho mob yuav qhia kom koj koom nrog kev sim tshuaj kom paub txog kev kho mob tshiab thiab cov txheej txheem tiv thaiv.
Kuv yuav tsum mus ntsib kws kho mob thaum twg?
Yog koj muaj ib qho ntawm cov hauv qab no, mus ntsib kws kho mob tam sim ntawd:
- Yog tias cov tsos mob tshwm sim sai sai.
- Yog koj pom kev hloov pauv hauv koj qhov muag pom kev.
- Yog tias koj muaj teeb meem nrog koj lub peev xwm taug kev thiab txav mus los.
- Yog tias cov tsos mob hnyav zuj zus tom qab kho mob.
- Yog tias koj muaj kev phiv los ntawm kev kho mob.
Koj paub koj lub cev zoo tshaj plaws. Yog tias muaj qee yam tsis zoo, tsis txhob yig nrog koj tus kws kho mob tham txog qhov ntawd.
Yog koj muaj cov tsos mob ntawm tus mob qaug dab peg (qaug dab peg) thawj zaug, hu rau chav kho mob ceev tam sim ntawd.
Kuv yuav tsum nug kuv tus kws kho mob li cas?
Nws yog ib qho ib txwm muaj ntau cov lus nug hauv koj lub siab thaum koj tau txais kev kuaj mob ntawm MOGAD.
- "Kuv xav kom koj kho hom kev kho mob twg?"
- Kuv puas xav tau kev kho mob mus sij hawm ntev?
- Cov kev mob tshwm sim ntawm kev kho mob yog dab tsi?
- Kuv yuav ua li cas yog tias kuv cov tsos mob hnyav zuj zus tuaj?
Tsis txhob ntshai nug cov lus nug no. Tom qab tau txais kev kuaj mob MOGAD, nws yog ib qho ib txwm muaj uas yuav xav tias ntxhov siab los ntawm kev xav zoo li, "Yuav ua li cas tom ntej?" thiab "Thaum twg cov tsos mob yuav rov qab los?" Thaum koj nyob nrog tus mob uas tsis paub qhov ua rau, qhov kev tsis paub meej ntawd tuaj yeem ua rau koj lub hlwb puas tsuaj. Txawm hais tias muaj ntau yam tsis paub meej, nco ntsoov tias koj pab neeg kho mob nyob ntawd los pab txo koj qhov kev ntshai thiab teb koj cov lus nug. Lawv tuaj yeem pab koj tswj koj cov tsos mob thaum lawv tshwm sim thiab ua cov kauj ruam los txo koj qhov kev pheej hmoo ntawm kev rov tshwm sim yav tom ntej.
Peb xav coj dab tsi los ntawm zaj dab neeg no (Cov Lus Qhia Txog Kev Coj Mus Tsev)
MOGAD yog ib yam kab mob uas nyuaj thiab tsis tshua muaj. Tab sis nws yog ib qho tseem ceeb kom paub txog nws thiab nkag siab txog cov tsos mob. Nco ntsoov, qhov no tsis yog ib yam kab mob uas yog koj qhov txhaum.
- Yog koj pom kev hloov pauv sai sai, tsis muaj zog, lossis tsis hnov lus , mus ntsib kws kho mob tam sim ntawd.
- Yog kuaj mob thiab kho kom zoo, cov tsos mob ntawm MOGAD tuaj yeem tswj tau zoo.
- Txawm hais tias tsis muaj kev kho mob los xij, muaj ntau txoj hauv kev los tswj kom muaj lub neej zoo nrog tus kab mob no.
- Yog koj xav tias koj nyuaj siab los yog nyuaj siab, nrog kws kho mob lossis ib tus neeg uas koj ntseeg siab tham txog qhov no. Koj tsis yog tib tug xwb.
Vam tias cov ntaub ntawv no tau pab koj nkag siab txog MOGAD. Nyob kom noj qab nyob zoo!
👩🏽⚕️ Cov Lus Nug Ntxiv (FAQs)
💬 Postprandial Hypotension puas yog ib yam kab mob uas ntshav siab poob qis/zoo li tsaug zog tom qab noj mov?
Nws yog ib qho ib txwm muaj uas yuav xav tias hnyav thiab tsaug zog tom qab noj mov. Tab sis 'Postprandial Hypotension' yog ib qho mob txaus ntshai dua. Hauv qhov no, tsis pub dhau 15 feeb txog 2 teev tom qab noj mov (tshwj xeeb tshaj yog ib qho uas muaj ntau cov carbohydrates), tus neeg mob cov ntshav siab 'cia li poob qis sai sai' (kwv yees li 20 mmHg), ua rau tsaus muag thiab vau.
💬 Vim li cas cov ntshav siab thiaj poob qis tom qab noj mov?
Thaum peb noj ib pluag mov loj, yuav luag tag nrho cov ntshav hauv lub cev ntws mus rau txoj hnyuv kom zom nws. Tom qab ntawd cov ntshav mus rau lub plawv thiab lub hlwb txo qis. Ib tug neeg lub plawv tam sim ntawd nce thiab sib npaug. Tab sis rau cov neeg laus thiab cov neeg uas muaj Parkinson's/ntshav qab zib, qhov no tsis tshwm sim vim tias cov hlab ntsha tsis muaj zog. Yog li ntawd, lub hlwb poob ntshav thiab qhov kiv taub hau/tsaus muag no tshwm sim.
💬 Ua li cas koj thiaj tsis qaug zog tom qab noj mov?
Kev hloov koj cov zaub mov noj yog qhov zoo tshaj plaws thiab tsuas yog txoj kev daws teeb meem rau qhov no xwb! Tsis txhob noj ib pluag mov loj rau pluag mov sawv ntxov/pluas su, koj yuav tsum faib ua 5 lossis 6 pluag mov me me (Pluas Mov Me/Feem Ntau). Tsis tas li ntawd, noj cov khoom noj muaj protein es tsis txhob noj cov carbohydrates xws li mov/mov ci, thiab haus ib khob dej ua ntej noj mov yuav pab tiv thaiv kom tsis txhob poob phaus.
MOGAD , cov kab mob autoimmune, myelin, lub paj hlwb, optic neuritis, transverse myelitis, ADEM
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus