Puas muaj leej twg hauv koj tsev neeg, lossis ib tug neeg uas koj paub, muaj teeb meem pom kev txij thaum yug los? Qee zaum cov no yog los ntawm cov kab mob caj ces uas tau kis mus rau ib tiam dhau ib tiam. Txhua hnub, kev pom kev tuaj yeem txo qis, thiab thaum kawg tsis pom kiag li. Yog li, hnub no peb yuav tham txog kev kho mob tshiab tshaj plaws hauv kev kho mob uas kho tus kab mob qhov muag uas tsis tshua muaj, uas tau los ntawm noob caj ces. Nws lub npe yog Voretigene Neparvovec.
Hais yooj yim xwb, Voretigene Neparvovec yog dab tsi?
Qhov no tsis yog tshuaj zoo li cov tshuaj ntsiav, tshuaj ntsiav me me, lossis tshuaj pleev uas peb feem ntau siv. Qhov no hu ua Gene Therapy . Lub npe lag luam ntawm qhov no yog LUXTURNA .
Kev kho mob no yog siv los kho qhov teeb meem pom kev tsis zoo uas cuam tshuam rau lub retina ntawm peb lub qhov muag. Tshwj xeeb, nws kho qhov teeb meem pom kev tsis zoo uas tshwm sim los ntawm qhov tsis zoo ntawm RPE65 gene hauv peb lub cev.
Yog li, qhov kev kho mob gene no yog dab tsi?
Xav txog tias muaj ib phau ntawv loj uas muaj cov lus qhia txog txhua yam hauv peb lub cev yuav tsum ua haujlwm li cas. Phau ntawv no yog peb cov noob caj noob ces . Qee zaum, ntawm ib nplooj ntawv ntawm phau ntawv no, uas yog, hauv ib qho noob caj noob ces, tuaj yeem muaj qhov yuam kev, qhov yuam kev. Qhov yuam kev hauv cov noob caj noob ces hu ua RPE65 yog ib qho zoo li ntawd.
Kev kho mob no, hu ua Voretigene Neparvovec, siv cov kab mob tsis muaj teeb meem ua tus nqa khoom los ntxig daim qauv raug ntawm cov noob caj noob ces rau hauv cov cell uas muaj cov noob caj noob ces tsis zoo. Nws zoo li hloov ib nplooj ntawv nrog cov lus qhia tsis raug nrog ib nplooj ntawv tshiab nrog cov lus qhia raug. Tom qab qhov no, cov cell qhov muag tuaj yeem ua haujlwm tau zoo dua, thiab los ntawm qhov no, qhov pom kev uas ploj lawm tuaj yeem rov qab tau qee yam lossis txawm tias tiv thaiv kev poob qhov muag ntxiv.
Qhov no yeej yog ib qho kev dhia loj heev hauv kev tshawb fawb txog kev kho mob. Tsuas yog tib txoj kev cia siab tias tam sim no muaj kev kho mob zoo rau tus mob uas yav dhau los kho tsis tau.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej koj yuav kho qhov teeb meem no
Vim tias qhov no yog kev kho mob tshwj xeeb heev, nws yog ib qho tseem ceeb uas koj tus kws kho mob paub txog koj keeb kwm kev noj qab haus huv tag nrho. Nco ntsoov qhia rau nws txog cov hauv qab no:
- Lwm yam kab mob qhov muag: Lwm yam kab mob qhov muag lossis teeb meem pom kev uas koj twb muaj lawm (piv txwv li cataracts, glaucoma).
- Kev Ua Xua: Thov qhia rau peb paub yog tias koj muaj kev ua xua rau cov tshuaj no (voretigene neparvovec), lwm yam tshuaj, khoom noj, xim, lossis cov tshuaj preservatives.
- Cev xeeb tub thiab pub niam mis rau menyuam:Yog tias koj cev xeeb tub, tab tom sim cev xeeb tub, lossis pub niam mis, nco ntsoov qhia rau koj tus kws kho mob.
Koj siv cov tshuaj no li cas?
Qhov no tsis yog tshuaj kho mob hauv tsev. Qhov no yog kev txhaj tshuaj rau hauv lub qhov muag . Qhov no yog ua los ntawm tus kws phais qhov muag uas tau kawm tshwj xeeb hauv ib qho chaw huv si thiab tswj tau zoo, zoo li chav phais hauv tsev kho mob. Yog li ntawd, tsis muaj dab tsi yuav txhawj txog, koj txoj kev nyab xeeb tau ua kom zoo tshaj plaws.
Qhov no puas muab tau rau cov menyuam yaus me?
Yog. Kev kho mob no muab tau rau cov menyuam yaus uas muaj ib xyoos xwb, nyob rau hauv tej yam xwm txheej uas tsim nyog. Txawm li cas los xij, qhov kev txiav txim siab zaum kawg txog nws yog los ntawm tus kws kho mob menyuam yaus thiab kws phais qhov muag uas yuav kuaj koj tus menyuam. Yog tias koj tab tom muab kev kho mob no rau ib tug menyuam, nws yog ib qho tseem ceeb heev uas yuav tsum tham nrog pab pawg kws kho mob txog nws kom meej thiab piav qhia txhua yam.
Yog koj noj tshuaj ntau dhau yuav ua li cas?
Vim tias qhov no yog muab rau hauv tsev kho mob, nyob rau hauv kev saib xyuas tag nrho ntawm cov kws kho mob, qhov muaj feem yuav 'dose' tshwm sim tsawg heev. Txawm li cas los xij, yog tias muaj kev xav tias muaj qhov zoo li no tau tshwm sim, cov neeg ua haujlwm hauv tsev kho mob yuav ua tam sim ntawd. Feem ntau, hauv qhov xwm txheej zoo li no , Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Colombo National Hospital lossis Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ze tshaj plaws yuav raug ceeb toom.
Tej yam yuav tsum xav txog thaum lub sijhawm kho mob thiab tom qab kho mob
Thaum lub sijhawm kho mob thiab tom qab kho mob, cov kws kho mob yuav saib xyuas koj ze. Koj kuj muaj lub luag haujlwm loj heev.
Yog koj pom muaj kev hloov pauv hauv koj qhov kev pom kev - xws li pom kev tsis meej, pom tsis meej, muaj cov xim dub nyob rau ntawm koj ob lub qhov muag, rhiab heev rau lub teeb, lossis mob qhov muag lossis liab - qhia rau koj tus kws kho mob tam sim ntawd . Qhov no tseem ceeb heev.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li kev kho mob twg los xij, muaj qee qhov kev phiv uas yuav tshwm sim tau. Yuav tsum ceev faj txog cov hauv qab no.
| Cov kev mob tshwm sim uas yuav tsum tau qhia rau tus kws kho mob tam sim ntawd | |
|---|---|
| Cov teebmeem sab nraud | Kev piav qhia |
| Kev ua xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub cev, tshwj xeeb tshaj yog ntawm lub ntsej muag, daim di ncauj lossis tus nplaig. |
| Los ntshav ntawm lub qhov muag | Los ntshav sab hauv lossis sab nraud lub qhov muag. |
| Kev hloov pauv ntawm qhov muag pom kev | Pom tsis meej, pom cov teev dub lossis cov ntaub thaiv dej ntab rau ntawm qhov muag, pom lub teeb ci ntsa iab. |
| Mob qhov muag | Mob qhov muag tas li lossis mob hnyav. |
| Siab ntawm qhov muag nce ntxiv | Xav tias muaj kev nias hauv lub qhov muag. Tus kws kho mob yuav kuaj xyuas qhov no. |
| Kab mob cataract | Pom kev tsis meej tom qab kho mob. |
Daim ntawv teev npe no yuav tsis suav nrog txhua yam kev mob tshwm sim. Yog tias koj muaj cov tsos mob txawv txawv, nrog koj tus kws kho mob tham txog lawv.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Voretigene neparvovec (LUXTURNA) yog ib txoj kev kho mob gene tshwj xeeb rau cov kab mob qhov muag uas tau los ntawm noob caj ces uas tshwm sim los ntawm qhov tsis zoo ntawm RPE65 gene.
- Kev kho mob no yog ua nyob rau hauv tsev kho mob los ntawm tus kws phais qhov muag tshwj xeeb, uas txhaj tshuaj rau hauv lub qhov muag .
- Ua ntej kho mob, muab rau tus kws kho mob piav qhia tag nrho txog koj cov mob, kev ua xua, thiab seb koj puas cev xeeb tub.
- Tom qab kho mob lawm, yog tias koj pom muaj kev hloov pauv ntawm qhov muag, mob qhov muag, lossis liab, qhia rau koj tus kws kho mob tam sim ntawd .
- Qhov no tsis yog kev kho mob rau txhua tus. Seb qhov kev kho mob no puas yog rau koj lossis tsis yog yuav txiav txim siab tom qab kuaj mob kom zoo.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus