Yu smɔl pikin in jɔyn dɛn kin at ɔltɛm? Lɛ wi tɔk bɔt juvenile rheumatoid arthritis (JIA)!

Yu pikin de kɔmplen se in jɔyn dɛn de pen? Sɔntɛnde, i kin gɛt prɔblɛm fɔ waka na mɔnin? If na so i bi, dis infɔmeshɔn go rili impɔtant to yu. Tide wi go tɔk bɔt wan sɔm kayn tin we kɔmplikt, bɔt we pɔsin kin ebul fɔ manej ɛn we kin afɛkt yɔŋ pikin dɛn. Dat na juvenile idiopathic arthritis, ɔ as wi dɔktɔ dɛn kin kɔl am, `(Juvenile Idiopathic Arthritis)` ɔ `(JIA)`.

Wetin na juvenail rεumatoid atraytis (JIA)? Lɛ wi ɔndastand am simpul wan!

Fɔ tɔk am simpul wan, `(JIA)` na di kayn at at sik we kin kam pan pikin dɛn. Na wan sik wae nɔr de mɛn , dat min se e kin afɛkt pikin fɔ lɔng tɛm. I kin afɛkt ɛni jɔyn na pikin in bɔdi.

Tink bɔt am, wi bɔdi gɛt wan imyun sistɛm. Na dat de protɛkt wi frɔm sik dɛn. Bɔt `(JIA)` na `ɔtoimyun sik` . dat min se di pikin in yon imyun sistεm de mistek atak pat dεm na in yon bכdi, spεshal wan di `(synovium)` tisu εn di joyn fכluid we de insay di jכint dεm. I tan lɛk se tifman de brok insay yu yon os.

biכs fכ dis impak, di sinovium de prodyuz mכr joyn fכluid. Dis na we di jɔyn dɛn kin swel, dɛn kin fil pen, ɛn fil se dɛn stif.

dis imyun sistεm rεspכns εn di inflameshn we de kכmכt kin afekt di tisu dεm we de rawnd am bak, we kin te go dεm di kכtilaj εn bon. Dis inflamɛns kin afɛkt ɔda pat dɛn na di pikin in bɔdi bak, mɔ di yay. If dɛn nɔ trit am, JIA kin ambɔg di pikin in nɔmal growth ɛn divɛlɔpmɛnt. Bɔt if dɛn trit pikin fayn, di kwaliti fɔ liv kin bɛtɛ pasmak.

JIA na di kayn at at sik we kin kam pan pikin dɛn. Dɛn se na lɛk wan pan ɛvri 1,000 pikin dɛn na Amɛrika nɔmɔ gɛt dis sik.

Wetin na di men kayn (JIA)?

Bɔku men kayn JIA dɛn de. Dɛn kin sheb dɛn tin ya bay di sayn dɛm ɛn di nɔmba fɔ di jɔyn dɛm we dɛn afɛkt. Lɛ wi tek wan luk pan wetin dɛn bi.

Oligoartikulɔr JIA

Dɛn kin kɔl dis bak `(Oligoarthritis)`. Insay dis kayn , nɔto fayv jɔyn dɛn kin afɛkt. Bɔku tɛm, di jɔyn dɛn lɛk di ni, anklɛ, ɛn ɛlb kin afɛkt. i kin afekt di yay dεm bak, we dεn kכl `(Uveitis)`. Sɔntɛnde, i nɔ kin izi fɔ no am if dɛn nɔ du ɛni ay ɛgzam. Na lɛk af pan di pikin dɛn we gɛt `(JIA)` de pan dis kayn. I kin apin mɔ pan gyal pikin dɛn. Bɔrku pikin dɛn kin pul dis sik bay di tɛm we dɛn dɔn big. Bɔt pan sɔm pikin dɛn, i kin skata to bɔku ɔda jɔyn dɛn.

Poliartikul JIA

Dɛn kin kɔl dis bak ``Polyarthritis``. Insay dis kayn , fayv ɔ mɔ jɔyn dɛn kin afɛkt.I kin afɛkt di sem jɔyn dɛn na di tu say dɛn na di bɔdi. I kin afɛkt bak di jɔyn dɛn na di nɛk, jaw, ɛn smɔl jɔyn dɛn na di an ɛn fut. I kin apin mɔ pan gyal pikin dɛn bak. Na lɛk 20% pan di sik pipul dɛm we gɛt `(JIA)` de pan dis kayn.

Psoriatic JIA we gɛt di sik

Dɛn kin kɔl dis bak `(Psoriatic Arthritis)`. dis min se di pikin gεt at at wit di skin sik `(Psoriasis)` (wan kכndyushכn we de mek rεd pat pan di skin, lεk silva skel dεm na di sεf na di skin). כltu, if di pikin nכ gεt `(Psoriasis)` bכt i gεt כda simptom dεm, fכ egzampl, fכ swel na in finga כ in fut, sכm chenj dεm na di nel dεm, כ if fכs digri fambul na di famili gεt `(Psoriasis), dεn kin no dis kכndyushכn as `(Psoriatic JIA)`.

Juvenile Spɔndyloarthritis we dɛn kin gɛt

dεn kכl dis bak `(Axial Spondyloarthritis).` Dis kayn at at kin afekt di spayna, di hip jכint dεm, εn `(Entheses)` (di ples dεm we di tεndon dεm εn ligament dεm de atak di bon dεm). I kin mek bak di yay rɛd ɛn pen. Dɛn kin si am mɔ pan bɔy pikin dɛn we dɔn pas 7 ia.

JIA we gɛt sistɛm

Sɔmtɛm dɛn kin kɔl am `(Juvenile Still's disease)`. Na lɛk 10% to 20% pan di pikin dɛn we gɛt `(JIA)` gɛt dis kayn. ``Sistemik`` min se di ol bכdi כ mכltipכl bכdi sistεm dεm kin afekt. Apat frɔm at at sik, sistɛm `(JIA)` kin mek yu gɛt ay fiva we nɔ de dɔn ɛn wan skin rash . Dɛn rash ya kin apin na di trɔnk, an, ɛn leg, mɔ we di fiva de. I kin afɛkt bak di ɔgan dɛn we de insay di bɔdi lɛk di at, di liva, di splin, ɛn di limf no dɛm. Dis kayn `(JIA)` nɔ kin rili afɛkt di yay. I kin afɛkt man ɛn uman ikwal.

Wetin na di sayn dɛm fɔ (JIA)?

Di sayn dɛm fɔ JIA kin difrɛn difrɛn wan bay di kayn. Di kɔmɔn sayn dɛm na:

• Rɛd, yu yay de pen, ɛn yu nɔ de si fayn (espɛshali if yu gɛt uveitis) .
• Taya ɔ yu kin vɛks ɔltɛm
• Fiva (especially in sistemik JIA) .
• Wach wit limp (bikɔs ɔf joyn pen) .
• Mɔnin jɔyn dɛn stiff (fɔ fil lɛk se i at fɔ bɛn yu jɔyn dɛn we yu fɔs wek na mɔnin)
• Pen, swel, ɔ fil fɔ wam na di jɔyn dɛn
• Rash na di skin
• Di limf no dɛm we dɔn swel
• We yu de lɔs yu wet ɔ yu nɔ de gro fayn

Mɛmba se nɔto ɔl dɛn kwaliti ya de insay ɛni pikin. Sɔm pikin dɛn kin gɛt smɔl pan dɛn.

Wetin kin mek pɔsin (JIA)?

Infakt, masta sabi pipul dɛn stil nɔ dɔn fɛn di rayt tin we mek pɔsin gɛt JIA. " Idiopatik " ."Di wɔd "idiopathic" min "of unknown cause" Bɔt sɔm tin dɛn de we dɛn tink se kin mek dis apin:

• Di tin dεm we de apin na di envayroment: Tin dεm na di envayroment we de afekt di pikin in imyun sistεm.
• Jɛnɛtik factors: Na prɛdispɔzishɔn we kɔmɔt frɔm ɛriti.
• Infεkshכn: dεn sכspεkt se dis kכndyushכn kin apin bikoz fכ chenj dεm na di imyun sistεm afta sכm infεkshכn dεm.

Wetin na di prɔblɛm dɛn we kin apin to (JIA) if dɛn nɔ trit am?

If dɛn nɔ trit di sik fayn, di pikin kin gɛt difrɛn prɔblɛm dɛn. Na dat mek i impɔtant fɔ no di sik ɛn bigin fɔ trit am kwik.

• At at sik we nɔ de dɔn ɛn we nɔ de wok fayn: Kɔntinyu fɔ gɛt pen na di jɔyn dɛn ɛn i nɔ kin izi fɔ du nɔmal tin dɛn.
• inflameshn fכ di mεmbran dεm we de rawnd di at (`Pericarditis`) כ inflameshn fכ di mεmbran dεm we de rawnd di lכng dεm (`Pleuritis`) .
• Di bon ɛn gro we di pikin nɔ de gro fayn.
• Di jɔyn dɛn we kin pwɛl ɔltɛm.
• di prכblεm dεm we yu de si: spεshal wan `(Uveitis)` (inflamεshכn insay di yay) εn di vishכn we de kכmכt lכs.

Aw dɛn kin no bɔt (JIA)?

If dɛn tink se yu pikin gɛt JIA, dis na aw dɔktɔ go aproch di diagnosis:

• Fɔ chɛk di pikin in jɔyn dɛn.
• Fɔ rivyu di pikin in kɔmplit mɛdikal istri.
• Fɔ tɔk bɔt di sayn dɛm wit yusɛf ɛn yu pikin.

No patikyula blɔd tɛst nɔ de fɔ no if yu gɛt JIA. So, di dɔktɔ nɔ gri wit ɔda tin dɛn we de apin ɛn i kam fɔ no se na JIA de mek i sik.

Apat frɔm dat, di dɔktɔ kin ɔda fɔ du tɛst dɛn lɛk:

• Imej tɛst: Yu kin yuz tɛst lɛk ɛkstrem rayt, ɔltra saund, ɔ magnɛtik rɛsɔnans imej (MRI) fɔ chɛk aw yu pikin in jɔyn dɛn de.
• Labɔrɔtɔri tɛst: Dɛn tin ya kin ɛp fɔ no di kayn at at sik bay we dɛn de chɛk blɔd, urine, ɛn/ɔ joyn wata ɛn luk fɔ ɔda tin dɛn lɛk infekshɔn, injuri, ɔ kansa.

Aw dɛn kin trit (JIA)?

Mεdikeshכn εn εksεsayz na dεn kin bi di men tin dεm fכ trit `(JIA)`. Di men gol dɛm fɔ tritmɛnt na:

• di mobiliti εn trεnk we de bכku na di joyn dεm.
• Fɔ mek di jɔyn nɔ pwɛl ɛn fɔ mek i nɔ gɛt prɔblɛm dɛn.
• Fɔ mek pɔsin nɔ fil pen.
• Fɔ ridyus di swɛlin.

Di mɛrɛsin dɛn we dɛn kin yuz

If dɛn no se yu pikin gɛt JIA, di dɔktɔ kin gi yu mɛrɛsin dɛn lɛk:

• Nonsteroidal anti-inflammatory drugs (NSAID): Dɛn mɛrɛsin ya kin ridyus di pen ɛn swel, bɔt dɛn nɔ kin afɛkt di kɔs ɔ di autkam fɔ JIA bad bad wan.
• Kɔtikosterɔyd: Bɔku tɛm, dɔktɔ dɛn kin gi dis mɛrɛsin as injɛkshɔn na wan jɔyn we dɔn afɛkt. Sɔntɛnde, if bɔku jɔyn dɛn afɛkt ɔ if di pikin gɛt sistɛm JIA, dɛn kin gi di stɛroyd bak as pil ɔ likwid fɔ tek bay mɔt.
• Disease-modifying anti-rheumatic drugs (DMARDs): Dɛn drɔgs ya de wok bay we dɛn de chenj di sik prɔses fɔ at at sik. di gol fכ DMARD tritmεnt na fכ sכpres di imyun sistεm in atak pan di pikin in bon dεm εn jכint dεm.
• bayolojikal modifying ejen dεm: dεn dכg dεm ya de tכk mכlikul כ protin dεm we de mek inflameshn. Bɔku tɛm dɛn kin advays dɛn tritmɛnt ya fɔ pikin dɛn we gɛt siriɔs sik we nɔ bin dɔn tek ɔda mɛrɛsin.

Ɛksasayz

Ɛksesaiz (we inklud fizik tritmɛnt ɛn ɔkupeshɔn tɛrapi) kin ɛp fɔ ridyus pen, kip mɔsul dɛn strɔng, mek yu ebul fɔ muv fayn, ɛn mek yu nɔ gɛt prɔblɛm dɛn we go de sote go. Sɔntɛnde, dɔktɔ kin yuz splint ɔ bres bak fɔ ɛp fɔ protɛkt di jɔyn dɛn we di pikin de gro.

Yu tink se dɛn kin ebul fɔ stɔp JIA?

Bikɔs dɔktɔ dɛn nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt JIA, naw, no we nɔ de fɔ mek i nɔ apin. Di masta sabi pipul dɛn de kɔntinyu fɔ du risach bɔt di tin dɛn we kin mek pɔsin gɛt JIA ɛn aw i kin mek i nɔ gɛt am.

Wetin na di fiuja fɔ pikin ɛn yɔŋ pipul dɛn we gɛt (JIA)?

JIA nɔ de afɛkt ɔl pikin di sem we. Fɔ sɔm pipul dɛn, na wan ɔ tu jɔyn dɛn nɔmɔ i kin afɛkt ɛn i kin izi fɔ mek dɛn ebul fɔ kɔntrol am. Fɔ ɔda pipul dɛn, JIA kin afɛkt bɔku jɔyn dɛn ɛn mek dɛn gɛt siriɔs ɔr we go de fɔ lɔng tɛm.

If dɛn no di sik kwik kwik wan ɛn trit dɛn, bɔku pikin dɛn we gɛt JIA kin kɔntrol dɛn at at sik, mek dɛn nɔ gɛt prɔblɛm wit dɛn jɔyn dɛn, ɛn dɛn kin kam bak to nɔmal ɔ nia nɔmal lɛvul fɔ wok.

Aw lɔŋ (JIA) kin las?

JIA kin las fɔ sɔm mɔnt ɔ ia. Sɔm pikin dɛn kin go na ful rɛmishɔn, ɛn ɔda wan dɛn kin gɛt di sayn dɛn te dɛn big. Dɔktɔ dɛn kin kɔl dis "aging out" fɔ JIA ɛn fɔ bi at at at sik we kin bigin fɔ big pipul dɛn. No we nɔ de fɔ tɔk ustɛm dis go rili apin. Bɔt yu dɔktɔ kin ɛp yu fɔ kɔntrol yu pikin in sik, fɛn tritmɛnt dɛn we go ɛp yu, ɛn ɛp yu fɔ sɛt fayn fayn tin dɛn tumara bambay.

Ustɛm a fɔ go to dɔktɔ?

If yu pikin gɛt dɛn sik ya fɔ siks wik ɔ mɔ , yu fɔ rili go to dɔktɔ:

• Pen na di jɔyn dɛn
• Di jɔyn dɛn we stif
• Swɛlin rawnd di jɔyn dɛn

Us advays yu kin gi pikin ɛn yɔŋ pipul dɛn we de liv wit (JIA)?

If yu pikin gɛt JIA, ɛnkɔrej am fɔ liv lɛk aw i fɔ liv. I impɔtant fɔ mek dɛn go skul, ple spɔt, tek pat pan tin dɛn we nɔ de na di skul, ɛn tek pat pan tin dɛn we dɛn kin du na dɛn famili. Sɔntɛnde, dɔktɔ dɛn kin tɛl dɛn fɔ gɛt spɛshal ples fɔ de fɔ ɛp dɛn fɔ bia wit di tin dɛn we at at sik ɛn skul wok nɔ kin ebul fɔ du.

Di tin we impɔtant pas ɔl fɔ no na dat, ɛksesaiz nɔ de mek di at at sik dɛn wɔs. Infakt, ɛksesaiz kin ɛp fɔ mek yu nɔ gɛt dikɔndishɔn ɛn i kin mek di mɔsul dɛn gɛt mɔ trɛnk ɛn ebul fɔ bia, we kin sɔpɔt di jɔyn dɛn.

We i kam pan di tin dɛn we pɔsin nid fɔ it, no pruf nɔ de fɔ se patikyula it plan dɛn kin ɛp fɔ gɛt at at sik. So, ɛnkɔrej yu pikin fɔ it tin dɛn we nɔmal ɛn we gɛt balans.

As mama ɔ papa, yu want mek yu pikin gɛt wɛlbɔdi ɛn nɔ gɛt pen. Bɔt fɔ tɛl yu pikin se yu gɛt JIA kin mek yu vɛks, mek yu at pwɛl – ɛn ivin nɔ fayn. Yu dɔktɔ de ya fɔ ɛp. If yu no se yu gɛt JIA, yu kin fil lɛk big bɔmp na di rod. Bɔt wit tritmɛnt, i tan lɛk spid bamp na rod. Na nɔmal tin fɔ fil lɛk se yu de shek smɔl fɔs. Trɔst se yu dɔktɔ go ɛp yu fɔ kɔntrol yu sik ɛn mek gud tritmɛnt plan fɔ mek yu pikin go na di rayt rod.

Di impɔtant tin dɛn we wi nid fɔ mɛmba frɔm dis stori (Take-Home Message) .

Okay, so na sɔm pan di impɔtant tin dɛn we wi fɔ mɛmba frɔm wetin wi dɔn tɔk bɔt tide:

• ``(JIA)`` na wan sik we de kam pan di joyn dεm we de kam pan pikin dεm. Na bikɔs di imyun sistɛm nɔ de wok fayn.
• Bɔrku kayn dis kin de, ɛn de sik kin difrɛn frɔm wan pikin to ɔda pikin.
• I rili impɔtant fɔ no di sik kwik kwik wan ɛn bigin fɔ gɛt di rayt tritmɛnt. Dis kin mek di jɔyn dɛn nɔ pwɛl ɛn i kin mek di pikin gɛt gud kwaliti layf.
• Mɛrɛsin ɛn ɛksesaiz na di men tritmɛnt.
• I impɔtant fɔ ɛnkɔrej pikin we gɛt JIA fɔ liv as nɔmal ɛn aktif layf as i pɔsibul.
• Nɔto yu wan de. Dɔktɔ dɛn, dɔktɔ dɛn we de mɛn yu pikin, ɛn bɔku ɔda pipul dɛn de fɔ ɛp yu ɛn yu pikin.

A op se dis infɔmeshɔn dɔn ɛp yu fɔ ɔndastand mɔ bɔt `(JIA)`. If yu pikin gɛt ɛni wan pan dɛn sik ya, duya go to dɔktɔ.

` Juvenile arthritis, JIA, joyn pen na pikin, joyn swel, at, pikin sik, autoimyun sik