Yu lɔng dɛn de tayt ɛn at fɔ blo? (Pulmonary Fibrosis) Lɛ wi tɔk bɔt am!

Sɔntɛnde, yu kin fil lɛk se yu de blo we yu de klaym stej ɔ we yu de waka fɔ shɔt tɛm? Ɔ yu kin fil lɛk se yu nɔ taya lɛk aw yu bin de du trade, ɛn naw yu kin rili taya ivin we yu de du smɔl smɔl wok dɛn? Wan rizin fɔ dɛn tin ya kin bi we yu lɔng dɛn chenj. Na so i bi, Pulmonary Fibrosis, na wan sik we de mek di lɔng dɛn at smɔl smɔl ɛn mek i nɔ izi fɔ blo, na in wi go tɔk bɔt tide.

Wetin rili na Pulmonary Fibrosis?

Fɔ tɔk am simpul wan, Pulmonary Fibrosis na di skata ɛn tik we di tisu we de insay yu lɔng dɛn de tik. Tink bɔt am lɛk skata na di skin we yu gɛt injuri, sɔntin lɛk dis kin apin insay di lɔng. Dis de pan wan grup pan di lכng sik dεm we dεn kכl intastitial lכng sik. wetin de apin ya na di sכm sכm εya sak dεm na wi lכng dεm, di ples dεm we כksijεn de kam insay we wi de brith, wi de kכl dεm `(alveoli)`, εn di tisu we de rawnd dεn `(alveoli)` dεm de pwεl. Naw luk, di lɔng dɛn tan lɛk spɔnj. Dɛn kin blo we wi de blo, ɛn dɛn kin kɔntrakt we wi de blo. bכt we dis kכndyushכn (Pulmonary Fibrosis) apin, di tisu dεm na di lכng dεm kin stif εn at, so dεn nכ kin ebul fכ inflate כ kכntrakt lεk aw dεn bin de bifo. Na da tɛm de i kin at fɔ blo, ɛn yu kin tek yu briz . Ivin di wok dɛn we pɔsin kin du ɛvride we bin izi fɔ du, kin rili taya naw.

De tin wae impɔtant pas ɔl na dat dis sik wae dɛn kɔl (Pulmonary Fibrosis) na pɔrmɛnt , wae min se i nɔr kin izi fɔ wɛl ɔl. Dɔn bak, i kin wɔs smɔl smɔl as tɛm de go (smɔl smɔl i kin wɔs) . wi kכl dat `(progrεsiv pulmonary fibrosis)`.

Yu tink se di lɔng dɛn kin stif fɔ natin? Wetin na Idiopatik Pɔlmonari Faybrosis?

Yɛs, sɔntɛnde dɛn nɔ kin fɛn di tin we kin mek pɔsin gɛt dis sik na in lɔng . Na dat wi kin kɔl `(Idiopathic Pulmonary Fibrosis)` fɔ dɛn kayn kes ya. Di wɔd "idiopathic" min "we dɛn nɔ no bɔt di rizin." Bɔrku tɛm, bɔrku pan di sik pipul dɛm wae gɛt (Pulmonary Fibrosis) kin gɛt dis `(Idiopathic Pulmonary Fibrosis)` kɔndishɔn.

Aw yu go no if yu gɛt Pulmonary Fibrosis? Wetin na di sayn dɛm we de sho se yu gɛt dis sik?

De sayn dɛm fɔ dis sik kin difrɛn smɔl frɔm wan pɔrsin to ɔda pɔrsin, bɔt sɔm kɔmɔn sayn dɛm de:

• Shortness of breath : I nɔ kin izi fɔ blo, mɔ we yu de du ɔ afta yu de du layt ɛksesaiz, we yu de du wan wok, ɔ afta yu dɔn dɔn.
• Shɔt, shalɔ briz: Tek kwik, smɔl briz, lɛk se yu nɔ ebul fɔ ful yu chɛst.
• Persistent dry cough : Na kɔf we nɔ de mek mɔkus ɛn we nɔ de stɔp as tɛm de go.
• Taya fɔ no rizin (Taya: Yu kin fil taya ɔltɛm, ilɛksɛf yu slip fayn ɔ yu nɔ de du bɔku wok.
• Unexplained weight loss : Na jɔs fɔ lɔs yu wet we yu nɔ de it.
• Klɔb finga: Sɔm pipul dɛn finga ɛn fut finga kin swel ɛn big, i kin tan lɛk drɔmstik.
• Di kɔlɔ we di skin kin chenj (Cyanosis): We ɔksijɛn nɔ de na di blɔd, di lip dɛn, rawnd di yay, ɛn di finga nel dɛn kin tɔn blu, grey, ɔ wayt.

If yu gɛt wan ɔ mɔ pan dɛn sayn ya, i go fayn fɔ mek yu go to dɔktɔ.

Wetin mek dis (Pulmonary Fibrosis) kin apin? Wetin na di tin dɛn we kin mek i apin?

di masta sabi pipul dεm biliv se pulmonary fibrosis kin apin we di lכng dεm dכn pwεl כ inflam, εn di prכsεs nכ de hεl fayn fayn wan. Dis min se we di lכng dεm de tray fכ hεl dεm sεf, sכmtin de go rכng εn di ska tisu de fכm. Bɔku patikyula tin dɛn de we kin mek dis apin:

• Kɔnɛktiv tisu sik dɛn : If yu gɛt sik dɛn lɛk Rimatɔyd Atraytis (RA), Lupus, ɔ Sklerodama, dɛn tin ya kin afɛkt yu lɔng dɛn bak .
• Di envayrɔmɛnt we pɔsin kin gɛt: If pɔsin de pan sɔm dɔst ɛn kemikal dɛn fɔ lɔng tɛm, i kin pwɛl di lɔng dɛn. Sɔm ɛgzampul dɛn na asbest, silika, ɛn bɛriliɔm. Hypersensitivity pneumonitis, we na alɛji to sɔm mold, baktri, bɔd fɛda, ɔ dander, kin mek bak dis sik.
• Granulomatous sik dεm: kכndishכn dεm lεk sarkoidosis כ Langerhans sεl histiocytosis.
• Sɔm mɛrɛsin ɔ tritmɛnt: Sɔm mɛrɛsin lɛk amiodarone fɔ at sik, nitrofurantoin fɔ urinary tract infection, methotrexate fɔ kansa ɛn at at sik, ɛn redyushɔn tɛrapi fɔ kansa kin pwɛl di lɔng dɛn bak.
• Smok: Smok kin rili bad fɔ di lɔng. Na wan big tin bak we kin mek pɔsin gɛt Pulmonary Fibrosis.

Bɔt, lɛk aw wi bin dɔn tɔk, bɔku tɛm, dɛn nɔ kin ebul fɔ no wan patikyula tin we mek i apin.

Udat de pan ay risk fɔ gɛt Pulmonary Fibrosis?

Apat frɔm di rizin dɛn we wi dɔn tɔk bɔt, sɔm ɔda pipul dɛn kin gɛt dis sik smɔl:

• Fɔ di wan dɛn we dɔn pas 65 ia.
• Fɔ man dɛn, pas fɔ uman dɛn.
• If pɔsin na di famili gɛt Pulmonary Fibrosis, i kin bi se i gɛt sɔntin fɔ du wit in jɛnɛtiks.
• Fɔ pipul dɛm wae gɛt sɔm kayn jɛnɛtik kɔndishɔn (DNA chenj) wae kin mek pɔrsin gɛt sik. Fɔ ɛgzampul, wan sik we nɔ kin apin na di bon mɛro we dɛn kɔl dyskeratosis congenita.

Us ɔda kɔmplikɛshɔn dɛn kin apin bikɔs ɔf Pulmonary Fibrosis?

we di lכng tisu dεm dכn pwεl, i nכ kin ebul fכ gi כksijεn fayn fayn wan to di rεst כf di bכdi. Dis kin mek wi at wok tranga wan. Dis kin mek yu gɛt difrɛn prɔblɛm dɛn:

• di כksijεn lεvεl dεm na di bכdi de dכn (hypoxemia) εn כksijεn nכ de na di tisu dεm (hypoxia).
• Pulmonari haypatɛyshɔn.
• Di lɔng we dɔn fɔdɔm.
• Infεkshכn dεm na di lכng bכku tεm.
• Kɔmplit respiratory failure.
• At we nɔ de wok fayn.

Dis na wae mek e fayn fɔ go to dɔktɔ kwik kwik wan ɛn go to tritmɛnt if yu gɛt sɔm kayn sik.

Aw yu kin no se yu gɛt pulmonary fibrosis? Us tɛst dɛn dɛn kin du?

sεvεra tεst dεm nid fכ kכnfכm di diagnosis fכ pulmonary fibrosis. Yu dɔktɔ go fɔs lisin to yu lɔng ɛn aks bɔt yu sik dɛn. Dɔn dɛn go du tɛst fɔ si aw yu lɔng dɛn de wok fayn. Dɛn go chɛk bak fɔ ɔda at ɔr lɔng kɔndishɔn wae kin de kɔz yu sik. Di tɛst dɛn we dɛn kin du mɔ na:

• Chɛst X-ray: Chɛk di jenɛral kɔndishɔn na di lɔng dɛn.
• High-resolution CT (HRCT) scan: Dis kin sho di skata na di lכng dεm rili klia wan.
• Pulmonary function tests (PFTs): Dɛn wan ya de mɛzhɔ aw yu kin blo fayn fayn wan ɛn kɔmɔt na do, ɛn aw bɔku briz yu lɔng dɛn kin ol.
• Blɔd tɛst: Tɛst lɛk di atria blɔd gas fɔ chɛk di ɔksijɛn lɛvɛl na di blɔd, ɛn bak fɔ chɛk fɔ ɔda sik dɛn.
• Bronchoscopy: Na tɛst we dɛn kin put smɔl kamɛra we gɛt tiub we dɛn tay pan am tru di nos ɔ mɔt fɔ luk insay di lɔng dɛn. dεn kin tek tisu sεmpl (bayopsi) bak dis tεm.
• Bayopsi: Dɛn kin tek wan smɔl pat pan di tisu frɔm di lɔng dɛn ɛn chɛk am wit maykroskɔp.

Sɔntɛnde, yu dɔktɔ kin tɛl yu bak fɔ du ɛkokadiogram fɔ chɛk fɔ si if yu gɛt at prɔblɛm.

Yu tink se Pulmonary Fibrosis kin wɛl ɔltogɛda? Us tritmɛnt dɛn de we pɔsin kin gɛt?

Bɔt i sɔri fɔ no se naw, no mɛrɛsin nɔ de fɔ di pulmonary fibrosis. Bɔt nɔ wɔri. Di tritmɛnt dɛn we yu de gi naw kin ɛp fɔ kɔntrol di sik dɛn, fɔ mek di sik nɔ go bifo kwik kwik wan, ɛn fɔ mek yu liv bɛtɛ layf . Di men tritmɛnt dɛn we dɛn kin yuz na:

• Antifibrotic mεdikeshכn dεm: Mεdikeshכn dεm lεk Nintedanib (OFEV®) כ Pirfenidone (Esbriet®) de εp fכ slo di rεt fכ di lכng skata εn kip di lכng fכnshכn.
• Kɔtikosterɔyd: Sɔntɛnde dɛn kin yuz dɛn tin ya fɔ ridyus di inflamɛns na di lɔng dɛn.
• Ɔksijɛn tɛrapi: If yu blɔd ɔ yu tisu nɔ de gɛt bɛtɛ ɔksijɛn, yu dɔktɔ kin tɛl yu fɔ tek ɔda ɔksijɛn. Dɛn kin gi dis tru wan kanula na di nos ɔ wan fes mask.
• Pulmonary rehabilitation: Dis kin min fɔ du spɛshal ɛksesaiz fɔ blo ɛn fɔ du ɛksɛsayz fɔ yu bɔdi we de ɛp fɔ mek yu lɔng dɛn strɔng ɛn mek i izi fɔ blo.
• Lɔng transplant: Sɔm pipul dɛn we gɛt Pulmonary Fibrosis kin tink bɔt fɔ transplant dɛn lɔng if di sik rili bad.
• Klinik trial: If yu intres, yu kin tek pat bak pan risach stɔdi bɔt nyu mɛrɛsin ɛn tritmɛnt. Aks yu dɔktɔ bɔt dis.

pan tap dat, if כda sik de we de mek di divεlכpmεnt fכ Pulmonary Fibrosis (e.g., `(autoimmune disease)`), i go nid fכ trit am, כ if kכndishכn dεm de we de mek di lכng kכnjεshכn wכs (e.g., `(GERD)` - gastric distress), yu go nid fכ tek mεdikeshכn bak fכ dat.

If a gɛt Pulmonary Fibrosis, aw a fɔ tek kia ɔf misɛf?

(Pulmonary Fibrosis) E kin tranga smɔl fɔ pɔrsin wae gɛt pulmonary fibrosis fɔ fɛt di infɛkshɔn ɛn wɛl. So, i rili impɔtant fɔ was yu an ɔltɛm wit sop ɛn wata, kip di tin dɛn we de arawnd yu klin, ɛn nɔ de fa frɔm ples dɛn we pipul dɛn kin bɔku as yu ebul (especially in flu and cold season and during the COVID pandemic). Dɔn bak, i impɔtant fɔ mek yu gɛt di vaysin dɛn we yu dɔktɔ tɛl yu fɔ gi yu. Dɛn vaysin ya de ɛp fɔ protɛkt yusɛf frɔm sik dɛn lɛk nyumonia, influenza, RSV, ɛn COVID.

Ustɛm a fɔ go to dɔktɔ?

If i nɔ izi fɔ yu fɔ blo ɔ yu fil se yu taya pas aw i bin de bifo, go to dɔktɔ wantɛm wantɛm. Bikɔs if yu no ɛn bigin fɔ trit dɛn kayn tin ya kwik, yu kin slo fɔ mek di sik go bifo.If yu dɔn gɛt kɔnektiv tisu sik ɔ granulomatous sik, tɔk to yu dɔktɔ bɔt aw fɔ ridyus yu risk fɔ gɛt pulmonary fibrosis.

Ustɛm yu nid fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) ?

If ɛni wan pan dɛn sayn ya apin, kɔl 911 ɔ go na di imejensi rum we de nia yu wantɛm wantɛm:

• Wantɛm wantɛm, i nɔ kin izi fɔ yu fɔ blo.
• Bɔrku pen na yu chɛst.
• Kɔnfyushɔn ɔ chenj di we aw pɔsin de tink.
• Wan blu we de chenj di kɔlɔ na di skin, di lip, ɔ di finga nel.

Wetin a fɔ aks mi dɔktɔ?

I go fayn fɔ mek yu aks dɛn kwɛstyɔn ya we yu go to dɔktɔ:

• "Dɔkta, wetin de mek mi lɔng dɛn tayt lɛk dis?"
• "Us tritmɛnt opshɔn dɛn a gɛt?"
• "Aw a fɔ yuz dɛn mɛrɛsin ya?"
• "Wetin a fɔ kam si di dɔktɔ nɛks?"
• "A fit fɔ gɛt lɔng transplant?"

I rili impɔtant fɔ aks kwɛstyɔn dɛn lɛk dis ɛn ɔndastand yu sityueshɔn fayn fayn wan.

Yu tink se dɛn kin mek yu nɔ gɛt Pulmonary Fibrosis?

Wi nɔ kin ebul fɔ stɔp bɔku pan di tin dɛn we kin mek pɔsin gɛt pulmonary fibrosis. Bɔt sɔm tin dɛn de we wi kin du fɔ ridyus di damej we di lɔng dɛn kin pwɛl bikɔs ɔf di tin dɛn we de arawnd wi:

• Stay away frɔm tin dɛm we de ambɔg di lכng (e.g. asbestos, mεtal dכst, kεmεkal) as mכch as yu ebul. If yu rili nid fɔ wok wit dɛn kayn tin ya, yuz spɛshal mashin fɔ blo.
• Stay away frɔm tin dɛm wae kin mek yu gɛt alɛji fɔ lɔng tɛm (e.g., hay, grens, bɔd dɔti, fɛda, ɛn sɔm ɛya kondishɔn sistɛm dɛm). Yuz respirator if yu de wok wit dis.
• If yu de smok, stɔp wantɛm wantɛm, ɔ nɔ ɛva bigin.

If a gɛt Pulmonary Fibrosis, wetin a fɔ ɛkspɛkt?

Dis skata na di lכng dεm kin kכlכsכl fכ de (eksept insay rεre kes dεm, we i kכz fכ wan dכg εn kech am kwik). If yu gɛt ɔda sik we de ɔnda yu, if yu kɔntrol da sik de, dat kin ɛp fɔ mek yu lɔng dɛn nɔ pwɛl mɔ. If dɛn nɔ ebul fɔ fɛn ɛni rizin, yu dɔktɔ go tray fɔ trit yu sik dɛn ɛn i de tray fɔ mek yu nɔ pwɛl mɔ. I nɔ kin izi fɔ mek dɔktɔ dɛn no aw di pulmonary fibrosis go go bifo. Fɔ sɔm pipul dɛm, de sik kin kam smɔl smɔl fɔ sɔm ia. Fɔ ɔda pipul dɛn, di sik kin go bifo kwik kwik wan ɛn i kin tranga insay sɔm mɔnt.

Aw lɔŋ yu kin liv wit Pulmonary Fibrosis?

di avrej layf εkspεktεns fכ pכsin we gεt di mכst kכmכn kכndyushכn, ``Idiopathic Pulmonary Fibrosis,'' na bin tri to fayv ia. Bɔt wit di tin dɛn we dɛn dɔn du dis biɛn tɛm pan tritmɛnt, di layf we pipul dɛn we gɛt Pulmonary Fibrosis kin liv dɔn go ɔp smɔl. So nɔ wɔri.

Stej dεm de fכ Pulmonary Fibrosis?

nכ כfishal rεkכgnεshכn "staging" sistεm de fכ pulmonary fibrosis. Bɔt sɔm dɔktɔ dɛn kin kɔl di sik "mild," "moderate," "severe," ɔ "very severe" bay di sayn dɛm we yu gɛt, di rizɔlt fɔ tɛst fɔ di lɔng wok, ɛn skan.

Na us ej Pulmonary Fibrosis kin bigin?

Pulmonary Fibrosis kin bi pan pipul dɛm wae dɔn pas 65 ia.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Fɔ no se yu gɛt Pulmonary Fibrosis kin chenj yu layf. I kin tranga ɛn nɔ kin shɔ bɔt tumara bambay. At tɛm lɛk dis , fɔ gɛt sɔpɔt sistɛm frɔm yu pipul dɛn we yu lɛk, yu fambul, ɛn ɔda pipul dɛn we gɛt di sem sik kin rili impɔtant.

De impɔtant tin na dat ɔl pɔrsin wae gɛt pulmonary fibrosis difrɛn. Nɔbɔdi nɔ go ebul fɔ tɔk klia wan aw yu tumara bambay go tan lɛk. Di tritmɛnt dɛm wae de naw kin ɛp fɔ mek di sik nɔr de go bifo kwik kwik wan, fɔ kɔntrol di sayn dɛm, ɛn fɔ mek yu liv bɛtɛ layf. So, tɔk tru to yu dɔktɔ bɔt wetin fɔ ɛkspɛkt ɛn wetin yu go du bɔt yu sik. I impɔtant bak fɔ de tink gud wan.

Pulmonary Fibrosis, Lɔng Kɔnjɛshɔn, Difikulti fɔ Brith, Dray Kɔf, Lɔng Sik, Respiratory Disease, Idiopathic Pulmonary Fibrosis, Lɔng Scarring