Yu pikin gɛt lupus? Wetin yu nid fɔ no as mama ɔ papa

Yu pikin nɔ de fil fayn ɔltɛm? Dɛn jɔyn dɛn kin at? Sɔntɛnde, dɛn fes kin gɛt rɛd, we tan lɛk bɔtaflay? If yu nɔr jɔs gɛt wan ɔr tu pan dɛn sik ya, bɔt yu gɛt sɔm pan dɛn wan ya, yu kin wɔri. Tide wi de tɔk bɔt wan sik wae kin mek bɔrku pan dɛn sik ya kam togɛda, ɛn kin kɔmplikt smɔl, bɔt dɛn kin ebul fɔ mɛn am fayn fayn wan . Dat na lupus na pikin dɛn.

Fɔ tɔk am simpul wan, wetin na lupus pan dɛn pikin ya?

Lupus na wan sik wae de mek pɔrsin ebul fɔ fɛt insɛf ɛn kin afɛkt pipul dɛm wae gɛt ɛni ej. Fɔ tɔk am simpul wan, di men wok we wi imyun sistɛm de du na fɔ protɛkt wi frɔm ɔda tin dɛn we de kam insay wi, lɛk jem ɛn vayrɔs dɛn we de mek wi gɛt sik. Bɔt pɔsin we gɛt lupus gɛt wan sik we rili bad. Dis imyun sistɛm kin go fayn. i de stat fכ si in yon hεlty sεl dεm εn tisu dεm as "di εnimi." Dɔn i kin bigin fɔ atak dɛn wɛlbɔdi sɛl dɛn de. I tan lɛk se wi yon ami de atak wi yon pipul dɛn instead fɔ atak fɔrina invayda dɛn.

We dɛn no di sik bifo i ol 18 ia, wi kin kɔl am "juvenile lupus." Lupus na pikin kin tranga smɔl pas lupus na big pipul. Dis min se:

• Mɔr aktif sik: Inflameshɔn ɛn ɔda tin dɛn we gɛt fɔ du wit am kin notis mɔ.
• Di risk fɔ mek di bɔdi we de insay di bɔdi pwɛl: Di impɔtant pat dɛn, mɔ di kidni, di at, di lɔng, ɛn di bren, kin afɛkt.
• Nid fɔ gɛt mɔ pawaful tritmɛnt: Dɛn kin nid fɔ ad di doz fɔ di mɛrɛsin.
• Di bad tin dɛn we kin apin we yu yuz mɛrɛsin fɔ lɔng tɛm: Yu fɔ no di bad tin dɛn we kin apin we yu tek mɛrɛsin, mɔ di stɛroyd (kɔtikosterɔyd), fɔ lɔng tɛm.

di kayn lupus we kin kכmכn pan pikin dεm na Systemic Lupus Erythematosus (SLE) . We pɔsin se "lupus," dɛn kin min dis kayn SLE. Dɛn kin kɔl am bak `Childhood-onset SLE` ɔ `Juvenile-onset SLE`. Bɔrku tɛm, di sayn dɛm kin bigin fɔ sho arawnd di ej 12. Bɔt dɛn kin bigin kwik ɔr leta. I nɔ kin izi fɔ mek pikin we nɔ rich 5 ia yet gɛt lupus.

Wetin na di sayn dɛm wae de sho se pikin gɛt lupus?

Wan pan di spɛshal tin dɛm bɔt lupus na dat nɔto ɔl pikin gɛt di sem sɛt fɔ simptom dɛm. Sɔm pipul dɛn kin gɛt wan sɛt pan di sayn dɛm, ɛn ɔda wan dɛn kin gɛt difrɛn wan dɛm. Na dat mek dɔktɔ dɛn kin kɔl dis "lupus fingerprint" - we min se ɛnibɔdi gɛt in yon patɛn fɔ di sayn dɛm.

Lɛ wi sheb dɛn sik ya to tu pat.

Simptom dɛm wae yu pikin de fil ɛn yu de si

Dis na di tin dɛm wae yu kin si ɛn ɛkspiriɛns na yu pikin in ɛvride layf.

Dɛn sayn ya kin apin smɔl smɔl as tɛm de go, ɔr kin apin wan tɛm. Mɛmba se nɔr tink se yu pikin gɛt lupus jɔs bikɔs i gɛt wan pan dɛn sayn ya. Fɔ ɛgzampul, bɔku ɔda rizin dɛn kin de we kin mek pɔsin gɛt fiva. Dɔktɔ go sɔprayz fɔ gɛt lupus we sɔm pan dɛn sayn ya de sho togɛda .

Sayn dɛn we dɛn kin sho bay we dɛn de du mɛdikal tɛst

Dis na di tin dɛm wae yu kin no tru tɛst wae di dɔktɔ kin du, mɔr lɛk blɔd ɛn urine tɛst.

• Di nɔmba fɔ di blɔd sɛl dɛn we de go dɔŋ:
• Rɛd blɔd sɛl dɛn we de go dɔŋ (anemia) .
• di pletlet dεm we de kכmכt sכmtεm (trombocytopenia) .
• Di wayt blɔd sɛl dɛn we de go dɔŋ (leukopenia) .
• Antinuclear Antibodies (ANA): dis kayn antibodi we dεn kכl `ANA` dεn kin si am bכku tεm na di bכdi fכ pikin dεm we gεt lupus. Bɔt if yu du `positiv` ANA tɛst nɔ min se yu gɛt lupus. Pipul wae gɛt wɛl bɔdi kin bi `positiv` bak sɔmtɛm. So, yu dɔktɔ go ɛksplen to yu wetin di ripɔt min.

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt lupus?

Di rayt tritmɛnt kin ridyus di risk fɔ dɛn kayn prɔblɛm ya bad bad wan, bɔt sɔm pikin dɛn kin stil gɛt dɛn kayn tin ya.

• di kidni dεm we de pwεl (Lupus Nephritis): Dis na di mכst siriכs kכmplikεshכn we pikin dεn kin gεt. di imyun sistεm de atak di kidni dεm, we kin mek di kidni dεm nכ wok fayn. di pikin kin gεt sכmtεm dεm lεk in leg dεm we swεla εn fכm urine bikoz fכ di protin we de insay di urine.
• di ifekt dεm na di lכng εn at: inflameshn na di layn na di lכng (pleurisy) כ inflameshn na di sak we de rawnd di at (pericarditis) kin apin. Dɛn tu tin ya kin mek yu gɛt shap pen na yu chɛst .
• di ifekt dεm na di sεntri nεv sεstem: If di bren εn di spεnal kכd dεn afekt, kכndishכn dεm lεk ed we de at bad bad wan, chenj dεn bihayvya, εn sik kin apin.
• Blɔd we de klɔt: Blɔd kin klɔt insay di blɔd vesel dɛn, mɔ na di leg dɛn. Di sayn dɛm na di pen, swel, ɛn rɛd na di leg we di sik afɛkt.

Wetin mek pikin dɛn kin gɛt lupus?

Nɔr wan, patikyula kɔz nɔr de fɔ dis yet, bɔt sɔm pipul dɛm wae de stɔdi bɔt dis biliv se na sɔm tin dɛm wae kin kam wit am.

1. Jɛnɛtiks: If pɔsin na di famili gɛt lupus ɔ ɔda ɔtoimyun sik, di pikin kin gɛt smɔl prɛdispɔzishɔn bak fɔ gɛt di sik. Bɔt if dɛn gɛt dɛn jin dɛn de, dat nɔ min se dɛn go gɛt lupus.

2. Envayrɔmɛnt Trig: Pikin we gɛt jɛnɛtik prɛdispɔzishɔn kin gɛt di sik bikɔs ɔf wan ɛksternal trig. Dɛn kayn tin dɛn ya we kin mek pɔsin want fɔ du sɔntin na:

• Wan vayral infɛkshɔn
• We yu de na strɔng san layt (UVA/UVB rayt) .
• di chenj dεm we de apin na di כmon dεm (especially di tεm we i de bכn) .

Fɔ tɔk am simpul wan, jin dɛn tan lɛk gɔn we ful-ɔp wit gɔnpawda. Bɔt if pɔsin nɔ pul di triga (triga), di bulɛt nɔ go ɔf. Lupus na so i bi.

Aw dɔktɔ kin no bɔt dis sik?

Fɔ no if yu gɛt lupus na kɔmplikɛt prɔses bikɔs nɔr wan tɛst nɔ de we spɛshal fɔ am. Di dɔktɔ go jɔyn bɔku tin dɛn fɔ mek dɛn no se i gɛt di sik.

• Fɔ tɔk to yusɛf ɛn yu pikin: Aks yu pikin ditayli bɔt in sik, lɛk ustɛm i bigin ɛn aw lɔng i dɔn de.
• Fɔ du kɔmplit ɛgzam na yu bɔdi: Fɔ chɛk fɔ si if yu skin gɛt lɛsin, yu jɔyn dɛn swel, ɛn yu mɔt gɛt sɔl.
• Blɔd ɛn urine tɛst: As wi bin dɔn tɔk, dɛn tɛst ya de chɛk bɔku tin, lɛk di `ANA` tɛst, di blɔd sɛl kɔnt, ɛn di kidni we de wok.
• Famili istri: Aks if ɛnibɔdi na di famili gɛt lupus ɔ ɔda kayn sik.

Na afta yu dɔn tink bɔt ɔl dis, na in di dɔktɔ disayd if yu gɛt lupus ɔ yu nɔ gɛt am.

Wetin na di tritmɛnt fɔ lupus?

Naw, no mɛrɛsin nɔ de fɔ mɛn lupus. Bɔt nɔ wɔri. Bɔku fayn tritmɛnt dɛn de we kin ɛp fɔ kɔntrol di sik ɛn ɛp yu pikin fɔ liv nɔmal layf. Di men gol dɛm fɔ tritmɛnt na:

• Fɔ ridyus di pikin in sik dɛn.
• Fɔ stɔp di imyun sistɛm fɔ pwɛl di bɔdi in ɔgan dɛm.
• Fɔ mek di pikin gɛt ɔl in bɔdi ɛn maynd wɛlbɔdi na gud lɛvɛl.

Wan tim we gɛt spɛshal pipul dɛn kin kam togɛda fɔ mek wan tritmɛnt plan we dɛn mek fɔ di pikin. Dis tim kin gɛt dɔktɔ we de mɛn pikin dɛn , nɔs dɛn, dɔktɔ dɛn we de mɛn dɛn bɔdi, ɛn pipul dɛn we sabi bɔt mental wɛlbɔdi biznɛs.

Bɔku men kayn mɛrɛsin dɛn de we dɛn kin yuz:

• Kɔtikosterɔyd: Fɔ ɛgzampul, na wan mɛrɛsin we dɛn kɔl `Prednisone`. Dɛn tin ya kin kɔntrol di inflamɛns na di bɔdi kwik kwik wan.
• Haydroksiklɔrokin: .Pan ɔl we dis na mɛrɛsin fɔ malaria, i kin rili ɛp fɔ kɔntrol di lupus flare.
• Immunosuppressants: Dɛn mɛrɛsin ya de wok bay we dɛn de slo di imyun sistɛm we de wok pasmak. Drug dεm lεk `Azathioprine`, `Mycophenolate mofetil`, `Methotrexate` de fכl insay dis kεtכgrεf.
• Di mɛrɛsin dɛn we de mek pɔsin fil pen: Dɛn kin gi mɛrɛsin lɛk `Ibuprofen` ɔ `Naproxen` fɔ di pen na di jɔyn dɛn.
• Kalsiɔm ɛn vaytamɛn D: Dɛn kin gi dɛn tin ya fɔ mek yu nɔ gɛt ɔstioporosis, bikɔs i kin mek yu bon tan we yu tek stɛroyd fɔ lɔng tɛm.

Lɛ wi no bak bɔt di bad tin dɛn we di tritmɛnt dɛn kin du.

Lɛk ɔl di mɛrɛsin dɛn, lupus mɛrɛsin kin gɛt sayd ɛfɛkt. Di dɔktɔ kin no dis ɔltɛm ɛn i kin du di tɛst dɛn we i nid we i de du di tritmɛnt.

• Prɛdnison (steroid): If yu yuz am fɔ lɔng tɛm, i kin mek yu gɛt mɔ wet, yu kin strɛch mak, yu blɔd prɛshɔn, yu bon dɛn kin tan, yu gɛt pwɛl hat, yu gɛt shuga, ɛn yu kin gɛt katarakt.
• Hydroxychloroquine: Na smɔl tɛm nɔmɔ, i kin mek di retina na di yay pwɛl. So, ɔl pikin dɛn we de tek dis mɛrɛsin fɔ de chɛk dɛn yay ɔltɛm to dɔktɔ we de mɛn dɛn yay.
• Immunosuppressants: Dɛn mɛrɛsin ya kin mek di wayt blɔd sɛl nɔ bɔku ɛn mek di liva inflamɛns. Dɛn kin stɔp bak di imyuniti, we kin mek di risk fɔ gɛt infɛkshɔn bɔku. So, dɛn kin du blɔd tɛst ɔltɛm fɔ chɛk if dɛn tin ya de.

Aw mi, as mama ɔ papa, go ɛp mi pikin?

Yu kɔntribyushɔn fɔ dis waka rili valyu. Bɔku tin dɛn de we yu kin du fɔ kia fɔ yu pikin di bɛst we.

1. Protɛkt frɔm di san: San layt na big tin we kin mek pɔsin gɛt lupus. So, put sanskrin we gɛt SPF 30 ɔ pas dat pan yu pikin in skin ɛvride. Dɛn fɔ du dis ivin pan de dɛn we klawd kin kam. Wear hat ɛn klos we gɛt lɔng sliv we yu de go na do. Nɔ mek yu nɔ gɛt strɔng san bitwin 10:00 a.m. ɛn 4:00 p.m.

2. Gi fayn fayn slip: Taya na wan big sayn fɔ lupus. So, mek say we yu pikin go ebul fɔ slip fayn.

3. Protɛkt frɔm infɛkshɔn: Bikɔs di pikin de tek mɛrɛsin we de stɔp di imyun sistɛm, i kin izi fɔ gɛt sik. Tich am fɔ was in an wit sop ɛn wata ɔltɛm. Kip am fa frɔm pipul dɛn we sik.

4. Fɔ liv fayn layf:I impɔtant fɔ mek yu it fayn ɛn du ɛksɛsayz we fit yu ej. We yu de du ɛksasaiz, dat kin mek yu mɔsul dɛn strɔng. Bɔt if yu pikin taya, lɛ dɛn rɛst.

5. Tich yu pikin bɔt di sik: Ɛksplen di sik to yu pikin na simpul we we go fit in ej ɛn aw i ɔndastand am. Dis go ɛp dɛn fɔ tek rispɔnsibiliti fɔ dɛn yon bɔdi.

6. Gi sɔpɔt pan aw i de fil: Fɔ liv wit sik we nɔ de mɛn kin tranga fɔ di pikin in filin. Alaw dɛn fɔ tɔk bɔt aw dɛn de fil, lɛ dɛn pul dɛn at pwɛl, ɛn mek dɛn vɛks. If nid de, aks pɔsin we de advays yu fɔ ɛp yu.

7. Infɔm di skul: Tɛl di ticha ɛn administreshɔn na di pikin in skul bɔt dis sityueshɔn ɛn gi di tin dɛn we dɛn nid.