Yu gɛt dɛn sayn ya? Lɛ wi tɔk bɔt sarkoidosis!

Sɔntɛnde yu kin fil lɛk se sɔntin strenj de na yu bɔdi, bɔt yu nɔ kin rili ebul fɔ no wetin i bi? Sɔm sik dɛn de we kin kam na yu bɔdi wan wan tɛm, bɔt if yu no dɛn gud gud wan, yu kin kɔntrol dɛn. Sarkoidosis na wan pan dɛn kayn tin ya. Tide, wi go tɔk bɔt dis simpul wan, di we we yu go ɔndastand.

Wetin na Sarkoidosis?

Fɔ tɔk am simpul wan, sarkoidosis na wan sik we yu bɔdi in imyun sistɛm kin wok pasmak ɛn mek smɔl smɔl tin dɛn na difrɛn pat dɛn na di bɔdi. Dɛn kɔl dɛn lumps ya granulomas . di sayn dεm de dipכnt pan usay dεn granulomas ya de fכm εn dεn saiz. Sɔntɛnde, nɔr kin gɛt ɛni sayn fɔ de atɔl, ɔr kin kɔmɔt frɔm wae yu nɔr kin fil fayn to wae yu nɔr kin fil fayn. Wetin denja pas ɔl na dat sɔmtɛm dɛn granuloma ya kin mek di tisu dɛn gɛt skata, we dɛn kɔl fibrosis , we kin pwɛl di lɔng dɛn fɔ ɔltɛm, fɔ ɛgzampul.

Dɛn granuloma ya kin rili fɔm ɛnisay na di bɔdi. Bɔt dɛn kin si dɛn mɔ na di lɔng ɛn di limf no dɛm . Apat frɔm dat, dɛn kin fɔm bak na di skin, yay, ɛn mɔsul dɛn, ɛn dis kin mek pɔsin gɛt sayn dɛn.

Wetin na granuloma?

Yu kin imajin se smɔl fɛt de apin insay yu bɔdi? Wan granuloma na jɔs dat. Yu imyun sistɛm tink se sɔntin bad dɔn kam insay yu bɔdi. So, wayt blɔd sɛl dɛn kin gɛda rawnd da bad tin de, rawnd am, ɛn ayd am frɔm di ɔda pat dɛn na yu bɔdi. I tan lɛk se yu de trap ɛnimi. Dis wayt blɔd sɛl we dɔn trɔp de mek wan layt we gɛt fayv tisu rawnd am. Na dat mek granuloma kin fil lɛk smɔl smɔl tin we yu tɔch am.

Udat dɛn dis kayn tin kin afɛkt mɔ?

Sarkoidosis kin afɛkt ɛnibɔdi, bɔt sɔm pipul dɛn kin gɛt am mɔ. Fɔ ɛgzampul, dis sik kin bɔku pan blak pipul dɛn pas wayt pipul dɛn. I kin afɛkt uman dɛn bak smɔl pas man dɛn. Bɔrku tɛm dɛn kin no bɔt am pan pipul dɛm wae ol bitwin 25 ɛn 40 ia .

Dis nɔto sik we pɔsin kin gɛt frɔm in mama ɛn papa. Dat min se, i nɔto sɔntin we dɛn kin pas dairekt frɔm mama to papa. Bɔt if yu fambul we de nia yu na yu famili (mama ɛn papa, pikin, brɔda ɛn sista) gɛt dis sik, yusɛf de pan sɔm risk fɔ gɛt dis sik.

Dɛn kin tek sarkoidosis as sik we nɔ kin bɔku . Fɔ ɛgzampul, na Amɛrika, i nɔ pas tu ɔndrɛd tawzin pipul dɛn we sik ɛnitɛm.

Wetin na di sayn dɛm wae de sho se yu gɛt Sarcoidosis?

As a bin dɔn tɔk bifo tɛm, di sayn dɛm de dipen pan usay na di bɔdi di granulomas de fɔm. Bɔrku pipul dɛn kin gɛt sɔm kayn sik na dɛn lɔng. Bɔt dɛn sik ya kin apin ɛnisay na di bɔdi, na di skin, na di yay, na di jɔyn dɛn, infakt. Sɔntɛnde, na jɔs di sayn dɛm nɔmɔ kin de, lɛk fɔ fil se yu wik ɛn taya, ɔr nɔr kin gɛt ɛni sayn atɔl.

Di sayn dɛm we dɛn kin si bɔku tɛm:

• Fiva
• I kin taya ɔltɛm, i kin taya
• Pen na di jɔyn dɛn
• Mɔsul dɛn kin pen ɔ wikɛd
• We yu de swet na nɛt
• Di limf no dɛm we dɔn swel
• We yu de lɔs yu wet fɔ natin
• Fɔmeshɔn fɔ di kidni ston dɛn

Di sayn dɛm we gɛt fɔ du wit di lɔng:

• Kɔf (bɔku tɛm na dray kɔf) .
• I nɔ izi fɔ blo, yu nɔ de blo fayn (dyspnea) .
• Chɛst de pen
• Wiz (wistling) we yu de blo

Di sayn dɛm we gɛt fɔ du wit di yay:

• Blɔr vishɔn ɔ kɔmplit lɔs fɔ si (bikɔs ɔf kɔndishɔn dɛn lɛk optik nyuraytis) .
• Ay pen
• di yay dεm we de rεd כ swεla (kכndishכn dεm lεk `uveitis` כ `conjunctivitis`)
• Sɛnsitiviti to layt (inability fɔ luk wan layt) .

Di sayn dɛm we gɛt fɔ du wit di skin:

• Lumps ɔnda di skin rawnd skata ɔ tatu
• Layt ɔ dak spat dɛn na di skin
• Rɛd-pɔpul bɔmp ɔ lɛsin dɛn na di nos ɔ di chɛst (`lupus pernio`) .
• Rεd, tεnda lumps na di groin εria (erythema nodosum) .

Di sayn dɛm wae gɛt fɔ du wit at:

• Chɛst de pen
• Fɔ fil se yu at de bit nɔrmal (palpitations) .
• Disɔda we de mek di at ritm (ari at) .
• At we nɔ de wok fayn
• I nɔ kin izi fɔ yu fɔ blo

Di sayn dɛm we gɛt fɔ du wit di nervɔs sistɛm:

• Fɔ tɔsti ɔltɛm ɔ fɔ pis pasmak (Diabetes insipidus) .
• Wik ɔ paralayz na di fes mɔsul dɛm (Bell’s palsy) .
• Ed de at
• Di sik dɛn we kin mek pɔsin sik

Wetin na di stej dɛm fɔ pulmonary sarcoidosis?

Sarcoidosis, na wan sik wae de afekt di lכng dεm, sכmtεm dεn kin dεskrεb am insay stej. Dɛn kɔl dis di Siltzbach klasifikeshɔn sistɛm .

Bɔt i impɔtant fɔ mɛmba: Dɛn stej ya nɔr kin sho aw di sik tranga. Yu nɔ nid fɔ go tru dɛn ɔl. Dɛn kin sheb dɛn bay aw yu lɔng dɛn de luk pan ɛkstrem rayt na yu chɛst. Dat na usay di granulomas de.

Pɔsin we gɛt sarkoidosis kin go bak ɛn kam bitwin dɛn stej ya, ɔ di granulomas kin dɔnawe wit am kpatakpata. Di onli stej we nɔ go ebul fɔ chenj na stej 4. dis na we di lכng dεm de damej fכ tεm, we dεn kכl pulmonary fibrosis.

• Stej 0: .we dεn egzamin di εks-ray, dεn nכ de sho nכ sayn fכ sarkoidosis na di lכng dεm. di lכng dεm εn di limf no dεm de sho se i nכmal.
• Stej 1: Granulomas de nכmכ na di limf no dεm.
• Stej 2: Granulomas de na di tu limf no dεm εn di lכng dεm.
• Stej 3: Granulomas de na di lכng dεm nכmכ.
• Stej 4: X-ray sho pulmonary fibrosis, we min se di lכng dεm de skata fכ tεm.

Wetin kin mek pɔsin gɛt sarkoidosis?

Dɛn nɔr no yet di rayt tin we kin mek dis sik kam. Risach dɔn sho se na bikɔs ɔf di tin dɛn we de na di bɔdi ɛn di tin dɛn we de apin na di say we dɛn de. Dis min se sɔm pipul dɛn imyun sistɛm kin ɔva riak to sɔm antijen dɛn , lɛk baktri ɛn vayrɔs. Pan ɔl we di imyun sistɛm de involv, dɛn nɔ kin tek sarkoidosis as ɔtoimyun disɔda .

Bikɔs wi nɔ no ustɛm us jin ɛn trig dɛn kin kam togɛda fɔ mek dis apin, i nɔ kin izi fɔ no udat go gɛt am.

Wetin na di sik we dɛn kɔl Löfgren?

Löfgren syndrome na we pɔsin kin gɛt sarkoidosis wantɛm wantɛm. I kin gɛt sɔm kayn sik dɛn we kin afɛkt sɔm pat dɛn na di bɔdi:

• Atraytis na sɔm jɔyn dɛn.
• Fiva.
• rεd, tεnda lכmp dεm na di groin εria (erythema nodosum).
• di limf no dεm na di chεst de swεla.

Di gud nyus na dat, di sik we dɛn kɔl Löfgren syndrome kin dɔn insay 6 mɔnt to 2 ia.

Aw dɛn kin no se pɔsin gɛt sarkoidosis?

Bɔku tɛm na dɔktɔ kin no se yu gɛt sarkoidosis we kin chɛk yu (`fyzikal ɛgzam`), kin du imej tɛst lɛk ɛkstrem rayt na yu chɛst, ɛn tek smɔl sɛmpul pan wan granuloma we yu tink se dɛn kin du fɔ ɛgzamin (bayɔpsi) . Bikɔs di sik kin gɛt di sem sayn dɛm lɛk ɔda sik dɛm, yu dɔktɔ kin tɛl yu fɔ du ɔda tɛst fɔ no ɔda tin dɛm.

Wetin na di tɛst dɛn we dɛn kin du fɔ no if pɔsin gɛt sik?

Imej tɛst ɛn bayɔpsi na di tɛst dɛn we dɛn kin yuz fɔ no if yu gɛt sarkoidosis, bɔt yu dɔktɔ kin ɔda fɔ du ɔda tɛst dɛn dipen pan di sayn dɛn we yu gɛt.

• Imej tɛst: Dɛn wan ya kin yuz spɛshal mashin fɔ tek pikchɔ fɔ tin dɛn we de insay yu bɔdi. Yu dɔktɔ kin ɔda fɔ mek dɛn tek ɛkstrem rayt na yu chɛst, CT skan, ɔ MRI.
• Bayɔpsi dɛn:di kayn bayopsi we dεn kin du kin difrεn dipכnt pan usay dεn sכspεkt di granuloma. Bayopsi frɔm di skin, kɔnjɔktiva, ɛn sɔm limf no dɛm nɔto so big tin ɛn dɛn kin du am we dɛn nɔ mek big say.

Sɔntɛnde, fɔ gɛt wan pat pan di tisu frɔm di lɔng, yu fɔ yuz wan we we kɔmplikt. Dɛn kin du dis bay we dɛn put smɔl smɔl tiub dɛn, kamɛra dɛn, ɛn bayɔpsi tul dɛn tru di nos ɔ trot, ɔ bay we dɛn kɔt smɔl say. Ɛgzampul dɛn:

• ``Endobronchial ultrasound-gayd transbronchial fayn nidul aspirashכn (EBUS-TBNA)''
• ``Bronkoskopik transbronchial bayopsi''.
• `Mediastinoscopy` (Dis na sɔm kɔmpleks mɛdikal prɔsidyu dɛm, ɛn na di dɔktɔ nɔmɔ kin du am if nid de)

Ɔda tɛst dɛn:

• Pulmonary function tests: Dɛn tin ya de chɛk aw yu lɔng dɛn de wok fayn fayn wan. Dis na simpul tɛst dɛn.
• bכdi εn urine tεst (`Lab tεst`): Chεk aw כda כgan dεm lεk di liva εn kidni dεm de wok.
• Ilɛktrokardiogram (EKG ɔ ECG): Na tɛst we dɛn kin du ɔltɛm we de luk aw yu at de wok wit ilɛktrik.
• Nyuklia imej tɛst: Dɛn tin ya na PET skan ɛn galiɔm skan. Dɛn tɛst ya kin yuz smɔl smɔl redioaktiv tin fɔ luk fɔ inflamɛns na di bɔdi.
• Purified protein derivative (PPD) test: Dis na simpul skin test. I de chɛk fɔ si if pɔsin gɛt ɔ infɛkshɔn wit TB (TB). Dis impɔtant bikɔs sɔmtɛm TB kin tan lɛk sarkoidosis.
• Slit-lamp egzamin: Di dɔktɔ de luk insay yu yay fɔ si if sarkoidosis de mek yu yay gɛt prɔblɛm.

Aw dɛn kin trit sarkoidosis?

Bɔku tɛm dɛn kin trit sarkoidosis fɔ kɔntrol di sayn dɛm ɛn fɔ mek di ɔgan dɛn nɔ pwɛl. Mɛmba se granulomas kin kam bikɔs ɔf inflamɛns we di imyun sɛl dɛn kin mek. So, di tritmɛnt involv mɛrɛsin dɛn we de chenj ɔ kɔntrol di imyun sistɛm. di tritmεnt kin difrεn dipכnt pan usay di granuloma de na di bכdi.

No patikyula mɛrɛsin nɔ de fɔ mek pɔsin gɛt sarkoidosis. Bɔt bɔku tɛm i kin bɛtɛ fɔ insɛf . If de sik nɔr de mɔna yu pasmak ɔr de put yu layf pan denja, sɔmtɛm dɛn nɔr kin trit sarcoidosis wantɛm wantɛm. Bifo dat, yu ɛn yu dɔktɔ go wok togɛda fɔ wach di sik dɛn we yu gɛt.

Wetin na di mɛrɛsin fɔ sarkoidosis?

Dɛn mɛrɛsin ya kin wok bay we dɛn kin chenj ɔ kɔntrol di imyun sistɛm ɛn ridyus di inflamɛns. Sɔm pan di mɛrɛsin dɛn we dɛn kin yuz mɔ na:

• Kɔtikosterɔyd dɛn:Mεdikeshכn dεm lεk prεdnison εn kכtison. Dɛn tin ya de ridyus di inflamɛns na di bɔdi. Dɛn kin gɛt dɛn as pils fɔ swɛla, as inhala fɔ sprɛy insay di mɔt, ɔ as krim we dɛn kin put pan pɔsin (fɔ di skin ɔ di yay).
• Immunosuppressants: Dɛn tin ya de ɛp fɔ stɔp di imyun sistɛm fɔ pwɛl di ɔgan dɛn ɛn mek di bɔdi inflamɛns. Methotrexate na wan kayn mɛrɛsin we dɛn kin yuz fɔ sarkoidosis.
• Anti-tכmכr nεkrכsis fכktכ-alfa antibodi dεm (anti-TNF-alfa antibodi dεm): Mεdikeshכn dεm lεk infliximab. Dɛn tin ya de wok bay we dɛn de blok wan patikyula kemikal na di imyun sistɛm fɔ ridyus di inflamɛns. Dɔktɔ kin gi dɛn mɛrɛsin ya as infushɔn (lɛk salin sɔlvushɔn) insay wan vein.
• Nonsteroidal Anti-Inflammatory Drugs (NSAIDs): Dɛn wan ya kin mek pɔsin fil fayn fɔ sɔm tɛm frɔm di sik dɛn we pɔsin kin gɛt we i gɛt inflamɛns, bɔt dɛn nɔ kin gi am fɔ lɔng tɛm.

Wetin na di kɔmplikɛshɔn/sayd ɛfɛkt dɛm fɔ di tritmɛnt?

Kɔtikosterɔyd kin mek yu gɛt mɔ sik. Dɛn kin mek bak sɔm bad bad tin dɛn apin. Sɔm ɛgzampul dɛn na:

• Fɔ bi pɔsin we tu big.
• Nɔ ebul slip.
• Akni we gɛt akni.
• Fɔ gɛt dayabitis pan pipul dɛm wae kin gɛt shuga.
• Di ay blɔd prɛshɔn.
• Glɔkoma we dɛn kɔl Glaukoma.
• Katarakt we pɔsin kin gɛt.
• Tin we di bon dɛn kin tan (Osteoporosis).
• Pwɛl hat ɛn i nɔ kin izi fɔ kɔntrol di we aw pɔsin de fil.
• Skin we kin brus izi wan.

Fɔ dɛn rizin ya, dɔktɔ dɛn kin jɔs tɛl yu fɔ tek mɛrɛsin fɔ sarkoidosis if di bɛnifit dɛn pas di prɔblɛm dɛn.

Aw kwik a go fil fayn afta dɛn dɔn trit mi?

I kin tek sɔm wik to sɔm mɔnt fɔ mek di simptom dɛn bɛtɛ afta dɛn dɔn bigin fɔ trit sarkoidosis. Yu dɔktɔ go wach yu ɛn i kin du fɔlɔp tɛst fɔ si if di tritmɛnt de wok.

Us it wae nɔr fayn fɔ it wae yu gɛt sarcoidosis?

Sɔm risach dɔn sho se sɔm it dɛn we pɔsin kin it kin mek di bɔdi nɔ gɛt inflamɛns. If yu it mɔ tin dɛn we gɛt plant lɛk vɛjitebul ɛn frut , yu nɔ it bɔku mit ɛn chiz, ɛn yu nɔ it bɔku tin dɛn we gɛt kabɔhaydrɛt lɛk shuga ɛn bred, dat kin ɛp fɔ gɛt yu sarkoidosis simptom. Bɔt mek shɔ se yu aks yu dɔktɔ bifo yu bigin fɔ it nyu it.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt sarkoidosis?

Bikɔs dɛn nɔ no di rayt tin we kin mek i gɛt dis sik, no we nɔ de fɔ mek pɔsin nɔ gɛt sarkoidosis ɔ fɔ mek i nɔ gɛt dis sik. Bɔt if yu tek mɛrɛsin lɛk aw yu dɔktɔ tɛl yu, dat kin ɛp fɔ mek yu nɔ pwɛl di ɔgan dɛn we granuloma kin mek yu gɛt.

Wetin na di lukin-grɔn fɔ sarkoidosis?

Sarkoidosis kin difrɛn pan aw i kin tranga. Fɔ bɔrku pipul, na sɔm kayn sik wae kin kam fɔ sɔm tɛm wae kin bɛtɛ fɔ insɛf ɔr wit tritmɛnt. Fɔ sɔm, e kin bi sik wae de teik lɔng tɛm (a `krεse sik`) ɛn kin mek pɔrsin gɛt damej fɔ ɔltɛm.

Tink bɔt dis: Na lɛk tu-tɛd pan di pipul dɛm we gɛt sarkoidosis go wɛl ful wan (i.e., di sik go go insay `rɛmishɔn`) insay tu to tri ia. Dɛn wan wae gɛt dis sik wae wi bin dɔn tɔk bɔt, kin gɛt bɔrku chans fɔ wɛl, bɔrku tɛm insay 6 mɔnt to 2 ia.

Pipul wae stil gɛt sarcoidosis afta tri ia kin gɛt dis sik fɔ lɔng tɛm. כltu, ivin pan dεn wan dεm we gεt lכng tεm sarkoidosis, na כnli 10% to 20% pan pipul dεm de gεt pεrmanεnt כgan dεm. Di prɔblɛm we kin apin mɔ na di skata na di lɔng.

Bɔrku pan di wan dɛm wae gɛt sarcoidosis de liv nɔrmal layf span. Na wan rili smɔl pasɛnt nɔmɔ (1% - 5%) de day. So, natin nɔ de fɔ wɔri bɔt, dis na kɔndishɔn we pɔsin kin manej.

Aw a kin tek kia ɔf misɛf we a de liv wit sarkoidosis?

Di bɛst tin we yu go du na fɔ fala wetin yu dɔktɔ tɛl yu fɔ du. Kɔntinyu fɔ chɛk yu sik dɛn ɔltɛm fɔ si if yu gɛt chenj. Tek yu mɛrɛsin jɔs lɛk aw dɛn tɛl yu fɔ tek am. I impɔtant bak fɔ mek yu nɔ gɛt wanwɔd.

Ustɛm a fɔ go to dɔktɔ?

If yu gɛt nyu sik, if yu sik kam de mɔna yu, ɔ if yu de tek mɛrɛsin ɛn yu de gɛt prɔblɛm wit di sayd ɛfɛkt, go ɔ tɔk to yu dɔktɔ wantɛm wantɛm.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

I go fayn fɔ aks dɛn kwɛstyɔn ya we yu de go to yu dɔktɔ:

• Yu tink se i go bɛnifit mi mɔ fɔ go to tritmɛnt ɔ fɔ wach di sik dɛn we a gɛt?
• Aw lɔng i kin tek fɔ mek di sayn dɛn we de sho se di sik bɛtɛ?
• Aw a go no if mi tritmɛnt de wok?
• A nid fɔ mek ɛni chenj na mi layf?
• Ustɛm a fɔ kam si yu bak?

Fɔ sɔmtin (Tek-Home Message) .

Sarcoidosis na wan sik wae nɔr kin bɔrku wae kin mek yu gɛt difrɛn kayn sayn dɛm. Nɔr wɔri, bɔrku tɛm e go go fɔ insɛf ɔr wit tritmɛnt. Pan ɔl we i kin tek lɔng tɛm, dɛn kin ebul fɔ mɛn am fayn fayn wan wit mɛrɛsin ɛn dɔktɔ advays. Mɛmba se, sɔm tɛm dɛn kin bɛtɛ fɔ jɔs wach yu sik dɛn we yu nɔ gɛt tritmɛnt. Yu ɛn yu dɔktɔ kin disayd wetin bɛtɛ fɔ yu. So, kɔntinyu fɔ strɔng ɛn fala yu dɔktɔ in advays.

` Sarcoidosis, granuloma, imyun sistεm, lכng sik, skin sik, yay sik, at sik, Sarcoidosis, granuloma, imyun sistεm, lכng sik, skin sik, yay sik, at sik