Yu dɔn gɛt smɔl rɛd blista wantɛm wantɛm na yu bɔdi, mɔ na yu leg dɛn, we kin tɔn kwik kwik wan to big wund we dip, ɛn we kin mek yu fil pen bad bad wan? Yu kin tink se dis na nɔmal wund, ɔ sɔm insɛkt dɔn bit yu. Bɔt sɔntɛnde, i kin kɔmplikt smɔl pas dat, ɛn i kin nid fɔ pe atɛnshɔn mɔ pan am. Tide wi de tɔk bɔt wan sik wae nɔr kin bɔrku na Sri Lanka, bɔt i impɔtant fɔ no bɔt. Dat na Pyoderma Gangrenosum we dɛn kɔl Pyoderma Gangrenosum .
Fɔ tɔk am simpul wan, wetin na Pyoderma Gangrenosum?
Pyoderma Gangrenosum (dεn kin kɔl am: pyo-der-ma gane-gra-no-sum) na wan sik we kin de fɔ lɔng tɛm ɛn we kin kam bak na di skin. Wetin kin apin na dat, fɔs, wan smɔl bɔmp we nɔ gɛt kɔlɔ (rɛd, pepul, blu) ɔ wan blista ɔ bulla we ful-ɔp wit wata, kin apia na yu skin. Dɔn, i kin gro kwik kwik wan we yu nɔ go biliv, i kin skata, ɛn bi wan opin, dip wund (ɔlsa) we kin brok tru di skin.
Wan ɔ mɔ pan dɛn lɛsin ya kin kam na di bɔdi. If di sik nɔr tu bad, na wan lɛsin nɔmɔ kin de. Bɔt if i siriɔs, bɔku bɔku lɛsin dɛn kin kam. Dɛn lɛsin ya kin rili pen .
di imכtant tin na dat, Pyoderma Gangrenosum kin apin bכku tεm wit כda mεdikal kכndyushכn dεm na di bכdi. Dis min se e kin apin as sayn fɔ ɔda sik pas fɔ bi sik fɔ insɛf.
Udat kin gɛt dis sik pas ɔlman?
Pan ɔl we dis sik kin apin ɛni ej, i nɔ kin bɔku pan yɔŋ pikin dɛn. I kin mɔs pan uman dɛn we ol bitwin 20 ɛn 50. Dɔn bak, if yu gɛt dɛn kayn mɛrɛsin ya, yu risk fɔ gɛt Pyoderma Gangrenosum kin bɔku smɔl.
- Rimatɔyd Atraytis: Dis na sik we de mek di jɔyn dɛn swel ɛn fil pen.
- Ulcerative Colitis : Na wan sik we di layn na di big intestin de inflamed.
- Crohn’s Disease: Na ɔda sik we kin mek pɔsin inflamɛns ɛnisay na di dijestiv trakt.
- Sɔm kayn kansa: mɔ di kansa dɛn we gɛt fɔ du wit blɔd lɛk lukimiya ɔ limfoma.
Dis sik nɔr kin bɔrku na Sri Lanka. Fɔ tɔk smɔl, na kɔntri lɛk Amɛrika, dɛn kin ripɔt dis sik pan lɛk wan pan ɛvri ɔndrɛd tawzin pipul dɛn. Bɔt i nɔ fayn fɔ lɛ wi nɔ no bɔt dis bikɔs i nɔ kɔmɔn.
Wetin na di men sayn dɛm fɔ Pyoderma Gangrenosum?
Pan ɔl we dis sik kin apin ɛnisay na di bɔdi, dɛn kin si am mɔ na di leg, anklɛ, ɛn fut. I kin apin bak na di an, nɛk, ɛn di bɔdi we gɛt bɔdi. Naw lɛ wi si us sayn dɛm wae yu kin gɛt wit dis sik.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Skin kin chenj | Fɔs, i kin apia lɛk smɔl, rɛd, pepul, blu, ɔ blak bɔmp ɔ pus-ful blista na di skin. Dɛn tin ya kin gro kwik kwik wan. |
| Wund dɛn we opin (Ɔlsa) . | Da smɔl blista de kin skata kwik kwik wan, ɛn i kin tɔn to dip wund we opin ɛn we kin te di skin. Di ed dɛn fɔ dɛn wund dɛn ya kin ɔp ɛn dɛn kin si am klia wan. |
| Pen ɛn swɛlin | Di wund ɛn di say we de rawnd am kin swel ɛn i kin mek i fil pen, ɛn i kin pas di nɔmal wund. |
| Ɔda tin dɛn we de apin | Sɔm pipul kin gɛt jɛnɛral simptom dɛm bak lɛk fiva ɛn joyn pen. |
Wetin mek sɔntin lɛk dis kin apin? Wetin na di rizin?
Infakt, dɔktɔ dɛn stil nɔ ebul fɔ no di rayt tin we mek pɔsin gɛt Pyoderma Gangrenosum, bɔt bɔku pipul dɛn biliv se na bikɔs wi imyun sistɛm nɔ de wok fayn.
Fɔ tɔk am simpul wan, wi bɔdi in difɛns sistɛm, di imyun sistɛm, kin mistek bigin fɔ atak wi yon wɛlbɔdi skin tisu. Wi kin kɔl dɛn kayn sik ya ɔtoimyun sik.
Wan ɔda tin we rili impɔtant na dat, sɔntɛnde, smɔl injuri na di skin, lɛk we dɛn kɔt, skrap, ɔ ɔpreshɔn, kin mek ɔ mek Pyoderma Gangrenosum wɔs. Insay mɛrɛsin, wi kin kɔl dis ‘pathergy’ . Dis na spɛshal tin fɔ dis sik. Fɔ ɛgzampul, afta dɛn dɔn ɔpreshɔn, dɛn wund ya kin apin bak rawnd wan say we di stoma de.
Dis na sik we pɔsin kin pas?
Nɔto so i bi atɔl. Dis na sɔntin we wi fɔ mɛmba klia wan.
Pyoderma Gangrenosum nɔto sik we pɔsin kin gɛt. I nɔ de skata frɔm pɔsin to ɔda pɔsin bay we i tɔch am ɔ ɛni ɔda we.
Aw dɔktɔ kin no di sik we dɛn kɔl Pyoderma Gangrenosum kɔrɛkt wan?
Dis na wan pan de big big prɔblɛm wit dis sik. Bikɔs no wan tɛst nɔ de we go kɔnfirm se, ‘Yɛs, na dis.’ Na dat mek dɔktɔ dɛn kin mek shɔ fɔs se ɔda sik dɛn we de mek pɔsin gɛt am. Dat min se dɛn kin pul ɔda tin dɛn we kin mek dɛn gɛt dɛn lɛsin ya wan bay wan.
Yu dɔktɔ go tray fɔ pul tin dɛn lɛk:
- Baktri ɔ fɛns infɛkshɔn
- Kansa na di skin
- Inflammatory kondishכn dεm na di bכdi vεsul dεm
- Ɔda sik dɛn we pɔsin kin gɛt we i de fɛt insɛf, lɛk lupus
Fɔ kɔnfirm dɛn tin ya, yu kin nid fɔ du sɔm tɛst dɛn lɛk dɛn wan ya:
- Blɔd tɛst: Chɛk fɔ si if yu gɛt inflamɛns ɛn ɔda sik dɛn na di bɔdi.
- Bayopsi: Dɛn kin tek wan rili smɔl pat pan di skin frɔm di say we di bɔdi gɛt ɛn dɛn kin chɛk am wit maykroskɔp.
- Bon mכro sεmpl: If dεn sכspεkt kכndyushכn lεk blכd kεnsar.
- Spɛshal kεmεra tεst dεm: Tεst dεm lεk ``(Colonoscopy)`` fכ egzamin di kכlon if dεn sכspεkt wan kכndyushכn lεk Crohn in sik.
Wetin na di tritmɛnt dɛm fɔ dis?
Bɔku tritmɛnt dɛn de fɔ Pyoderma Gangrenosum. Yu dɔktɔ go disayd aw fɔ trit yu bay aw yu sik bad.
Fɔ smɔl smɔl tin dɛn we kin apin
We di sik bigin ɔ if di sik nɔ tu bad, di dɔktɔ kin gi yu krim ɔ ɔnt fɔ put am na di wund.
- Kɔtikosterɔyd krim: Dɛn wan ya na pawaful mɛrɛsin dɛn we de kɔntrol di inflamɛns ɛn swel. Dɛn kin put dɛn dairekt pan di wund.
If di tin siriɔs
If di lɛsin dɛn big, bɔku pan dɛn de, ɔ di pen rili bad, dɛn kin nid fɔ tek mɛrɛsin ɔ ɔda spɛshal tritmɛnt dɛn.
- Kɔtikosterɔyd tablɛt dɛn:Mεdikeshכn dεm lεk prεdnisכn de kכntrכl inflameshn כlsay na di bכdi.
- Immunosuppressant medications: Dɛn mɛrɛsin ya de wok bay we dɛn de ridyus di wok we wi imyun sistɛm de du, ɛn stɔp am fɔ mek i nɔ pwɛl wi yon bɔdi. Sayklɔspɔrin na wan pan dɛn mɛrɛsin dɛn de.
- Bayolojikal ejen dεm: Dis na nyu, advans dεm we de tכk to spεshal protin dεm na di bכdi we de mek inflameshn.
- Debridement: Sɔntɛnde, if yu du ɔpreshɔn fɔ pul di day tisu na wund, dat kin ɛp. Bɔt dis na risky. Bikɔs ɔf di sik we dɛn kɔl ‘pathergy’ we wi bin dɔn tɔk bɔt, dis kayn we aw di skin kin pwɛl kin mek di sik wɔs. So dɛn fɔ jɔs tek tɛm du dis ɛn ɔnda spɛshal pɔsin in sɔpɔtishɔn.
Wetin a nid fɔ no we a de liv wit dis sik?
Fɔ liv wit Pyoderma Gangrenosum kin tranga, bɔt if yu de manej am fayn , yu kin kɔntrol am.
Fɔ kia fɔ wund
- Nɔ pwɛl di skin: Tek tɛm as yu ebul fɔ kɔt, skrap, ɛn brus. Ivin we yu skrach smɔl, dat kin mek nyu wund bigin.
- Kip di wund klin: Wash di wund wit klin wata ɛn sop lɛk aw yu dɔktɔ tɛl yu. Dis na impɔtant tin fɔ mek yu nɔ gɛt di sik.
- Bandej kɔrɛkt wan: Yuz spɛshal bandej dɛn we nɔ de stik to di wund. Fɔ sɔm bad bad wund dɛn, yu dɔktɔ kin tɛl yu fɔ yuz spɛshal dresin, lɛk haydrokɔlɔyd. Yu dɔktɔ in advays na di tin we impɔtant pas ɔl.
Taim fɔ wɛl
Dis sik kin tek sɔm wik, ivin sɔm mɔnt fɔ mek i wɛl. So i impɔtant fɔ peshɛnt ɛn nɔ ɛkspɛkt fɔ gɛt rizɔlt wantɛm wantɛm.
Mental wɛlbɔdi biznɛs
Na nɔmal tin fɔ fil pwɛl hat ɛn strɛs wae yu de dil wit wan sik wae de kam fɔ lɔng tɛm, wae de mek yu fil pen lɛk dis. Tɔk to yu famili ɛn dɔktɔ bɔt aw yu de fil. Go to ɛp frɔm pɔsin we de advays yu bɔt mental wɛlbɔdi biznɛs if nid de.
Fɔ tɛl ɔda dɔktɔ dɛn
If yu gɛt Pyoderma Gangrenosum, mek shɔ se yu tɛl yu dɔktɔ if yu si am fɔ ɛni ɔda rizin (lɛk fɔ pul yu tut ɔ fɔ du smɔl ɔpreshɔn), bikɔs ɛnitin we yu du to yu skin kin mek di sik kam bak.
Ustɛm yu nid fɔ go to dɔktɔ?
Bɔku tin dɛn de we yu fɔ go to yu dɔktɔ wantɛm wantɛm.
- If yu gɛt risk kondishɔn lɛk at at sik ɔr Crohn’s disease ɛn yu gɛt blista ɔ sore na yu skin we de gro kwik kwik wan.
- If yu wund luk infεkt (e.g., rεd, pepul kכla we de arawnd di wund, swεla bכku, כ fכ smel).
- If yu gɛt nyu sayn dɛn.
- If di mɛrɛsin dɛn we dɛn kin yuz fɔ tritmɛnt kin mek yu gɛt siriɔs sayd ɛfɛkt.
Mɛsej we dɛn kin kɛr go na os
- Pyoderma Gangrenosum nɔto jɔs wan kɔmɔn wund. Na wan sik wae nɔr kin bɔrku bɔt wae kin gɛt siriɔs skin wae kin mek pɔrsin fil pen.
- Dis nɔ kin pas pɔsin. So nid nɔ de fɔ mek pɔsin we sik nɔ de nia ɔda pipul dɛn ɔ fɔ fred am.
- Bɔku tɛm dis kin gɛt fɔ du wit prɔblɛm wit yu imyun sistɛm ɛn ɔda sik dɛn lɛk at at.
- Ivin smɔl injuri na di skin kin mek di sik wɔs (Pathergy). So, i rili impɔtant fɔ protɛkt yusɛf frɔm injury.
- Fɔ no di sik kin kɔmpleks ɛn di tritmɛnt kin tek lɔng tɛm. I rili impɔtant fɔ peshɛnt ɛn fala di advays dɛn we di dɔktɔ de gi.
- If yu gɛt Pyoderma Gangrenosum, i impɔtant fɔ tɛl yu dɔktɔ bifo yu du ɛni ɔpreshɔn ɔ tritmɛnt we gɛt fɔ du wit yu skin.
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