Imajin se yu ɔ yu pikin gɛt kɔmɔn kol ɔ flu ɛn i kin wɛl insay sɔm dez. Pan ɔl we ɔlman gladi, afta da sik de dɔn stɔp, wan nyu sik kin bigin wantɛm wantɛm insay lɛk wan ɔ tu wiks so. Wantɛm wantɛm, yu nɔ gɛt trɛnk igen, yu nɔ de si bɛtɛ, i nɔ kin izi fɔ yu fɔ tɔk, yu ed kin at bad bad wan ɛn yu kin bigin fɔ vɔmit. Aw wi go fred if sɔntin lɛk dis apin? Tide, wi de tɔk bɔt wan siriɔs sik we pɔsin kin sɔprayz pan dis kayn tɛm, pan ɔl we i nɔ kin apin so ɔltɛm, i nid fɔ gɛt tritmɛnt kwik kwik wan. Dɛn kɔl dis sik ADEM (Acute Disseminated Encephalomyelitis) .
Wetin na ADEM (Acute Disseminated Encephalomyelitis) we pɔsin kin gɛt?
Fɔ tɔk am simpul wan, ADEM na we wi sɛntral nɛvɔs sistɛm , dat na di bren ɛn di spɛshal kɔd we kin inflamɛns ɔ we kin swel wantɛm wantɛm. I tan lɛk bren fiva.
Lɛ wi ɔndastand dis smɔl mɔ simpul wan. Di nɛv fayv dɛn na wi bɔdi tan lɛk ilɛktrik waya. Plastik de kɔba rawnd di ilɛktrik waya dɛn, nɔto so? Na dat de mek di ilɛktrishɔn ebul fɔ travul kɔrɛkt wan ɛn kwik ɛn i de protɛkt di waya. semweso, wan sεf de we de protεkt, wan kכva we dεn kכl "myelin" rawnd wi nεv fayb dεm. dis maylin sεt na in de alaw mεsej dεm (sayn dεm) fכ travul kwik εn kכrekt tru di nεv dεm frכm wan pat na di bכdi to כda pat.
insay ADEM, wi yon imyun sistεm de mistek atak dis maylin sεt. Dɔn i kin bigin fɔ pwɛl ɛn pwɛl. Jɔs lɛk aw di plastic we de pan ilɛktrik waya dɔn kɔmɔt. Dɔn di nerve mɛsej dɛn nɔ de travul fayn. Na dat mek sayn dɛm lɛk fɔ nɔr de fil fayn na yu an ɛn fut, yu nɔr de si fayn, ɛn yu nɔr kin ebul fɔ tɔk.
Dɛn kɔl dis sik ‘acute’ bikɔs di sayn dɛm kin kam wantɛm wantɛm, insay sɔm dez. I kin apin bak wan tɛm nɔmɔ insay yu layf. Bɔt, i nɔ kin rili apin bak.
ADEM na sik we nɔ kin bɔku. Sɔv dɛn sho se na lɛk wan pan ɛvri 150,000 pipul dɛn na kɔntri lɛk Amɛrika kin gɛt dis sik. So nid nɔ de fɔ fred dis tumɔs, bɔt i rili impɔtant fɔ no.
Wetin na di sayn dɛm fɔ ADEM?
Di sayn dɛm fɔ ADEM kin difrɛn bad bad wan, i kin dipen pan us pat pan di nervɔs sistɛm we dɛn afɛkt. Bɔt dɛn kin apin lɛk wan ɔ tu wiks afta we di vayral ɔ baktriyal infɛkshɔn (lɛk di flu, mizɛl, ɔ chukchuk) dɔn stɔp.
Fɔ mek i izi fɔ ɔndastand, lɛ wi sheb dɛn tin ya to tu pat.
| Tayp fɔ di simptom | Sɔm sayn dɛn we kin apin |
|---|---|
| Jɛnɛral kwaliti dɛn |
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| Di kwaliti dɛm we gɛt fɔ du wit di nervɔs sistɛm |
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Aw dis sik kin tranga kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Fɔ sɔm, dɛn kin nɔr kin tranga ɛn kin go fɔ dɛnsɛf, bɔt fɔ ɔda pipul dɛn, dɛn kin tranga pasmak ɛn dɛn kin nid fɔ go na ɔspitul.
Wetin mek sɔntin lɛk dis kin apin?
Dɛn nɔ stil no 100% di rayt tin we kin mek pɔsin gɛt ADEM, bɔt dɔktɔ ɛn sayɛnsman dɛn biliv se na bikɔs wi yon imyun sistɛm nɔ de wok fayn .
Lɛ wi ɔndastand dis dis we. Wi imyun sistɛm tan lɛk di ami na wi kɔntri. Di wok we dis ami de du na fɔ no ɛn atak ɛnimi dɛn lɛk vayrɔs ɛn baktri dɛm we de kɔmɔt na do, ɛn protɛkt wi frɔm sik. Bɔt wetin de apin na ADEM na dat dis ami de mek smɔl mistek. Afta dɛn dɔn fɔ fɛt ɛnimi we dɔn kam na di kɔntri (fɔ ɛgzampul, wan flu vayrɔs), dɛn kin bigin fɔ atak di maylin sheath na wi yon nervɔs sistɛm, tink se na ɛnimi. I tan lɛk se yu atak sojaman dɛn na yu yon kɔntri, yu tink se na ɛnimi ami. dis dεn kכl am ‘autoimmune reaction’ . Dis atak kin mek di nervɔs sistɛm inflamɛns ɛn swel.
Bitwin 70% ɛn 80% pan di ADEM pasɛnt dɛn gɛt infɛkshɔn bifo di simptom dɛn apia. Di infεkshכn dεm we kin kכmכn bifo ADEM na:
- Influɛnsa (Flu) .
- Mizɛl
- Mumps we de mek pɔsin gɛt bɔdi
- Rubɛla we de na di wɔl
- Chikinpoks we de mek pɔsin gɛt sik
- Epstein-Barr vayrɔs we dɛn kɔl Epstein-Barr
Wan ɔda tin we dɛn jɔs dɔn fɛn na dat sɔm pikin dɛn kin gɛt ADEM.i posibul bak se wan kכndyushכn we dεn kכl MOGAD (Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease) kin bi di kכz. Dis na ɔda patikyula kɔndishɔn we gɛt fɔ du wit di imyun sistɛm.
Aw dɛn kin no bɔt ADEM?
Yu dɔktɔ go aks yu fɔs wan ditayl kwɛstyɔn bɔt yu sik dɛn ɛn du yu nyurolɔjik ɛgzam. Dɔn dɛn go du sɔm tɛst fɔ kɔnfɔm di diagnosis fɔ ADEM ɛn pul ɔda kɔndishɔn dɛn we kin mek pɔsin gɛt di sem kayn sik.
Di men tɛst dɛn we dɛn kin du na:
1. MRI skan (Magnetik Rizɔnans Imej) .
MRI na tɛst we dɛn kin yuz strɔng magnɛtik fil ɛn redio wev fɔ tek pikchɔ dɛn we rili ditayli bɔt wi bren ɛn spɛnal kɔd. I nɔ de yuz ɛkstrem rayt. pan MRI skan fכ pכsin we gεt ADEM, dεn kin si di εria dεm we di maylin sεt (lεshכn) dεm we dεn dכn pwεl klia wan as wayt spat dεm. Di dɔktɔ go luk di say ɛn di kayn we aw dɛn spat ya de fɔ no if na ADEM.
2. Spinal Tap / Lumbar pankshכn
Di nem kin mek sɔm pipul dɛn fred, bɔt na tɛst we yu dɔktɔ go tek tɛm du. I min se yu fɔ tɔn yu na yu sayd ɛn put smɔl nidul na yu bɔdi we de dɔŋ fɔ tek smɔl smɔl wata we de rawnd yu bren ɛn yu spɛnal kɔd , we dɛn kɔl sɛribrospaynal fluid (CSF) . Pipul dɛn we gɛt ADEM gɛt bɔku bɔku imyun sistɛm sɛl dɛn, mɔ di wayt blɔd sɛl dɛn. Dis kin rili ɛp fɔ kɔnfirm di sik.
Apat frɔm dat, dɛn kin du blɔd tɛst bak.
Wetin na di tritmɛnt dɛm fɔ ADEM?
di men gol fכ trit ADEM na fכ ridyus di inflameshn na di bren εn spεnal kכd kwik kwik wan εn stכp di imyun sistεm fכ nכ wok fayn. Yu dɔktɔ kin yuz bɔku tritmɛnt dɛn fɔ mek yu ebul fɔ du dis.
| Di we aw dɛn kin trit am | Wan simpul ɛksplen |
|---|---|
| Steroid Mɛdikeshɔn dɛn | Dis na di men tritmɛnt we dɛn kin gi fɔs. Dɛn kin gi bɔku bɔku stɛroyd drɔgs insay di bɛlɛ fɔ sɔm dez. Dis de stɔp di imyun sistɛm ɛn i de ridyus di swel kwik kwik wan. Afta dɛn dɔn stɔp di tritmɛnt we dɛn de gi yu na yu bɛlɛ, dɛn kin aks yu fɔ tek tablɛt dɛn we yu kin it fɔ sɔm tɛm. |
| IVIG (Imyun Globulin we dɛn kin put insay di bɛlɛ) . | Dɛn kin gi dis tritmɛnt to pipul dɛm wae nɔr de ansa fayn to stɛroyd. I min fɔ gi di bɔdi di antibodi dɛn we dɛn tek frɔm di blɔd plasma fɔ bɔku bɔku pipul dɛn we gɛt wɛlbɔdi tru wan vein. Dis kin ɛp bak fɔ kɔntrol wi imyun sistɛm, we nɔ de wok fayn. |
| Plasma Ɛkshɛnj / Plasmafɛrɛsis | Dis na tritmɛnt we kɔmplikt smɔl. Dɛn kin du am fɔ pipul dɛn nɔmɔ we gɛt siriɔs sik. Na ya, dɛn kin pas di pɔsin in blɔd tru wan mashin, ɛn dɛn kin separet di blɔd plasma (di pat we gɛt wata) ɛn pul am. Na bikɔs di rɔng antibodi dɛn de insay dis plasma. Dɔn dɛn kin put klin plasma bak insay di blɔd sɛl dɛn. Dis kin stɔp di imyun sistɛm fɔ atak. |
Aw lɔng i go tek fɔ mek i wɛl? Wetin na di tin dɛn we wi go si?
Dis na di big kwɛstyɔn we de na ɔlman in maynd. Di bɛst nyus bɔt ADEM na dat, bɔrku pipul dɛm wae dɛn kin no se gɛt dis sik kin wɛl ɔl ɔr kin dɔn wɛl .
Bɔrku pipul kin bigin fɔ fil fayn insay sɔm dez wae dɛn bigin fɔ gɛt tritmɛnt. Bɔt i kin dipen pan aw di sik kin tranga, i kin tek sɔm mɔnt, sɔm tɛm dɛn kin tek 6 mɔnt fɔ mek i wɛl ɔl. Na smɔl tɛm nɔmɔ, sɔm pipul dɛn kin kɔntinyu fɔ gɛt smɔl prɔblɛm wit dɛn yay ɔ dɛn kin gɛt swɛ.
Na smɔl tɛm nɔmɔ, ɛn na if di inflamɛns rili bad, i kin mek pɔsin in layf de pan denja. So, i impɔtant fɔ go to dɔktɔ jɔs afta yu si di sayn dɛn.
Ustɛm yu fɔ go to dɔktɔ?
If yu ɔ sɔmbɔdi na yu famili, mɔ di pikin, gɛt di sayn dɛm we wi dɔn tɔk bɔt afta yu dɔn wɛl frɔm infekshɔn lɛk kol ɔ flu, go to dɔktɔ wantɛm wantɛm ɛn nɔ de te.
- I nɔ kin no natin wantɛm wantɛm
- Nɔ ebul fɔ waka ɔ fɔ stɔp
- I nɔ de si fayn ɔ i nɔ de si fayn igen
- I nɔ izi fɔ tɔk
- Seizures we nɔ gɛt ɛni rizin
If yu gɛt dɛn sik ya, nɔ jɔs de na os ɛn tink se na nɔmal tin. Di bɛst tin fɔ du na fɔ go na ɔspitul, mɔ na Imejɛnsi Tritmɛnt Yunit (ETU), kwik kwik wan. Bikɔs pan dɛn kayn sik ya, di mɔ we dɛn bigin fɔ trit am kwik, na di chans fɔ mek i wɛl.
Mɛsej we dɛn kin kɛr go na os
- ADEM na wan inflamɛns we de apin wantɛm wantɛm na di nervɔs sistɛm we kin apin afta we pɔsin gɛt vayral ɔ baktriyal infɛkshɔn.
- dis kin bi we wi yon imyun sistεm de mistek atak di protεktiv maylin sεt na di nεv dεm.
- Dɛn kin si dis mɔ pan pikin ɛn yɔŋ pipul dɛn.
- If yu gɛt sɔm sayn dɛm lɛk wae yu nɔr de no natin wantɛm wantɛm, yu nɔr de si fayn fayn wan, ɔr yu nɔr kin ebul fɔ waka, nɔr ignore dɛm. Go to dɔktɔ wantɛm wantɛm.
- Dɛn kin no di sik kɔrɛkt wan wit MRI ɛn spɛnal fluid tɛst.
- If dɛn bigin fɔ trit am (lɛk stɛroyd) kwik, bɔku pipul dɛn we gɛt ADEM go wɛl ɔlmost.
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