Wi ɔl dɔn gɛt bak pen sɔm tɛm na wi layf, nɔto so? If yu bɛn smɔl rɔng ɔ es ebi ebi tin, di pen go dɔn insay tu-tri dez. Bɔt... sɔm tɛm dis bak pen nɔ kin simpul so. E kin bi de biginin fɔ wan big prɔblɛm wae dɔn de mɔna yu fɔ lɔng tɛm ɛn nɔr kin ebul fɔ no fayn fayn wan. Tide wi de tɔk bɔt wan pan dɛn kayn tin ya. Dat na Ankylosing Spondylitis, ɔ AS fɔ shɔt.
Wetin na Ankylosing Spondylitis (AS) we pɔsin kin gɛt?
Fɔ tɔk am simpul wan, Ankylosing Spondylitis (AS) na wan kayn at sik we kin de fɔ lɔng tɛm ɛn we kin mek yu gɛt at at sik we kin afɛkt yu spayna mɔ . Wetin kin apin na we di bɔdi in imyun sistɛm kin mistek atak di jɔyn dɛn na yu spayna. as tεm de go, dis inflameshn kin mek di vεrbra dεm na yu spayna fכ fכs tכgeda, we de ridyus fכ fleksibul εn mek yu stכp.
Sɔm dɔktɔ dɛn se fɔ no bɔt dis sik tan lɛk we yu de luk fɔ nidul na say we dɛn kɔl haystack. Bɔku rizin dɛn de fɔ dat.
Wetin mek i nɔ izi fɔ no bɔt AS?
Stɔdi dɔn sho se i kin tek 7-10 ia frɔm di tɛm we di AS simptom dɛn bigin fɔ no di kɔrɛkt tin. Imajin aw lɔng dat go tek! Di men rizin dɛn fɔ dis na:
- Bak pen na kɔmɔn tin: As wi bin dɔn tɔk, bak pen kin rili kɔmɔn. So, bɔku pipul dɛn kin tink se na nɔmal tin ɛn dɛn nɔ kin pe atɛnshɔn to am.
- dilay in X-ray ripot: Insay AS, di damej pan di sacroiliac joyn dεm na di spayna εn pelvis de כnli sho pan X-ray afta di sik dכn go bifo sכmtεm.
- Di sayn dɛm kin difrɛn: AS kin afɛkt ɛnibɔdi difrɛn we. Sɔm pipul dɛn kin jɔs gɛt bak pen, ɛn ɔda wan dɛn kin gɛt prɔblɛm bak wit dɛn yay, il, ɛn ɔda jɔyn dɛn.
- Lak fɔ wan tɛst: Nɔto wan blɔd tɛst ɔ skan stil de we go ebul fɔ kɔnfɔm 100% se dis na AS.
Dis tebul go ɛp yu fɔ ɔndastand di difrɛns bitwin nɔmal bak pen ɛn pen we AS kin kam wit.
| Di kwaliti we pɔsin gɛt | Mekanikal Bak Pen | Bak pen na AS (Inflammatory Bak Pen) . |
|---|---|---|
| Di pen na di big wan. | Afta wok, na di ɛnd ɔf di de | Na mɔnin ɛn na nɛt, mɔ afta yu dɔn rɛst |
| We yu de rɛst | Di pen de go dɔŋ. | Pen ɛn stiffness de bɔku. |
| Ɛksesaiz/Muvmɛnt | Di pen kin bɔku. | Pen ɛn stiffness kin go dɔŋ |
| Mɔnin Stifnɛs | I nɔ kin tek 30 minit | I kin tek pas 30 minit (bɔku tɛm i kin pas wan awa) . |
Laif we dɛn spɛn bitwin misdiagnosis...
We wi yɛri de ɛkspiriɛns fɔ pipul dɛm wae gɛt dis sik, wi kin ɔndastand aw dis prɔblɛm siriɔs pasmak.
Don in stori: "I tan lek se di yay blaynd, bot di yay de si".
I tek Don 7 ia fɔ gɛt di diagnosis. Bɔt we i luk bak, i fil lɛk se i tek am 30 ia. We i bigin fɔ gɛt pen na in ni we i ol 10 ia, ɔlman kɔl am "pen we de gro."
Bɔt arawnd we i ol 40 ia, in layf bin tɔn to sɔntin we de mek i fred. Na da tɛm de i bin gɛt uveitis , we na wan inflammatory eye condition we kin bi siriɔs kɔmplikeshɔn fɔ AS. "A rili lɔs mi yay. A bin jɔs ebul fɔ si shep dɛn, ɛn a bin rili sɛnsitiv to layt. I bin tan lɛk se a blaynd, bɔt nɔto rili blaynd," na so Dɔn tɔk.
Pan ɔl we di ɔftalmɔlɔjis nɔ bin ebul fɔ fɛn di kɔz, dɛn bin tɔk se i kin bi "sɔm kayn ɔtoimyun sik." Bikɔs Dɔn nɔ bin gɛt klia ansa, i bin put dat na kɔna. Afta we i dɔn si pas 30 dɔktɔ dɛn fɔ lɔng tɛm ɛn dɛn bin de trit am fɔ ɔltin frɔm kansa to nyurolɔjik kɔndishɔn, dɛn bin dɔn kam fɔ no se i gɛt AS afta i dɔn go to dɔktɔ we de mɛn rεumatɔlɔji.
Charis in stori: "No bi sik we de afekt man onli".
Na in mama bin mɛn Charis. In papa bin gɛt AS. "A nɔ bin ivin no di nem fɔ di sik. Bɔt a bin no se a nɔ go gɛt am, bikɔs na 'man sik'," na so Charis tɔk.
Dis na mistek we bɔku pipul dɛn de tink. Pan ɔl we dɛn bin de tink bifo tɛm se AS kin afɛkt man dɛn nɔmɔ, di las data sho se uman dɛn bak kin afɛkt di sik pan wan impɔtant rit.
Charis bin de sɔfa wit pen na in ni ɛn ɔda jɔyn dɛn frɔm we i bin yɔŋ, bɔt i bin tink se na ɔda prɔblɛm we i de ple spɔt. Wan dɔktɔ bin tɛl am se na fɔ wɔri. Bɔt Charis nɔ bin biliv am. I bin tink se di sayn dɛn we de sho se di sik tan lɛk in papa in yon. Fɔ dɔn, afta i aks in papa, ɛn fala in advays, i go to dɔktɔ ɛn dɛn kam fɔ no se i gɛt AS.
כlmost 80%-95% pan di AS pasεnshכn dεm gεt di jin we dεn kכ l HLA-B27 . Dis kin bi frɔm mama ɛn papa to pikin dɛn. Bɔt nɔto ɔlman we gɛt dis jin go gɛt AS, ɛn i pɔsibul bak fɔ mek AS nɔ gɛt dis jin. So, dɛn nɔ go ebul fɔ no dis bay we dɛn de du di jenɛtik tɛst nɔmɔ.
Charis bin tɔk bɔt aw i bin de fil lɛk dis:
"Dipreshɔn ɛn krɛse sik tan lɛk kɔzin, dɛn kin ɔltɛm hang ɔut togɛda."
Di lɔng waka fɔ no di sik kin mek yu fil fayn. So if yu de go tru tin lɛk dis, nɔr shem fɔ tɔk bɔt am ɛn aks fɔ ɛp frɔm pɔrsin wae sabi bɔt mɛntɛl hεlth if nid de.
Wetin mek dɔktɔ dɛn kin mis AS?
Wan rizin fɔ dis na di smɔl tɛm we dɛn kin gɛt fɔ si di wan dɛn we sik. Wan spɛshal dɔktɔ se: “Jɔs 15 minit wit pɔsin we sik nɔ go du fɔ am.” Fɔ no bɔt wan kɔmpleks sik lɛk AS, yu nid fɔ tek tɛm lisin to wetin di pɔsin de tɔk ɛn aks di rayt kwɛstyɔn dɛn.
Dɔn bak, sɔmtɛm di sayn dɛm fɔ AS kin tan lɛk ɔda sik dɛm. Fɔ ɛgzampul:
- Pen na di bɔdi ɛn di il
- Psoriasis, we na wan sik we de na di skin
- Digεstiv sistεm sik dεm lεk Crohn’s disease כ ulcerative colitis
If jenɛral prɛktishɔn (GP) nɔ si bɔku AS pasɛnt dɛn na in prɛktis, i nɔ kin sɔprayz as AS we i si dɛn simptom ya.Na dat mek i impɔtant fɔ go to dɔktɔ we de mɛn yu bɔdi if yu gɛt lɔng tɛm bak pen, mɔ if i wɔs na mɔnin.
Di gud nyus na dat, dɔktɔ dɛn dɔn no mɔ bɔt di sayn dɛm fɔ AS pas aw dɛn bin de du trade. Dɔn bak, nyu tritmɛnt dɛn de (lɛk bayolojikal tritmɛnt) we kin rili ɛp fɔ kɔntrol di sik. So yu nɔ nid fɔ sɔfa lɛk aw yu bin de sɔfa trade. De tin wae impɔtant pas ɔl na fɔ no di sik insay tɛm ɛn bigin fɔ trit di rayt tritmɛnt.
Mɛsej we dɛn kin kɛr go na os
- If yu dɔn gɛt bak pen fɔ pas 3 mɔnt, nɔ ignore am.
- If yu bak pen kin tranga mɔ na mɔnin, i kin wɔs we yu de rɛst, ɛn i kin stɔp we yu de waka ɔ ɛksesaiz, i kin bi wan sayn fɔ AS.
- Yu fɔ no se yu bak ɛn yu jɔyn dɛn kin stiff mɔnin we kin las fɔ pas af awa .
- Apat frɔm bak pen, if yu gɛt sɔm sayn dɛn lɛk fɔ rɛd ɔ pen na yu yay (uveitis), yu il de pen, ɔ yu de swel na ɔda jɔyn dɛn, tɛl yu dɔktɔ bɔt am.
- Tɔk to yu jenɛral dɔktɔ bɔt yu sik dɛn. If nid de, aks fɔ mek dɛn kɛr yu go to dɔktɔ we de mɛn yu bɔdi .
- Nɔ giv ɔp di fɛt te yu gɛt di rayt diagnosis. Di tin we impɔtant pas ɔl na fɔ lisin to yu bɔdi.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt