Yu ɔ yu pikin gɛt thalassemia? Lɛ wi tɔk bɔt Beta Thalassemia

Yu kin fil taya ɛn taya ɔltɛm? Sɔntɛnde wi kin tink se dɛn tin ya na nɔmal tin, bɔt biɛn dɛn kin gɛt sik we gɛt fɔ du wit blɔd. Beta Thalassemia na sik we de pas frɔm jɛnɛreshɔn to jɛnɛreshɔn na wi jin, bɔt dɛn kin trit am. Bɔku pipul dɛn kin fred ɛn dawt bɔt dis. So tide, lɛ wi tɔk bɔt dis klia wan ɛn simpul wan.

Fɔ tɔk am simpul wan, wetin na beta thalassemia?

I rili simpul. Wi gɛt sɛl dɛn na wi blɔd we dɛn kɔl rɛd blɔd sɛl. Dɛn sɛl ya de kɛr ɔksijɛn go na ɔl di pat dɛn na wi bɔdi. Wan spɛshal prɔtin de we de ɛp di rɛd blɔd sɛl dɛn fɔ du dis wok fayn fayn wan, we dɛn kɔl ɛmoglobin .

Naw, pan pɔsin we gɛt beta thalassemia, di bɔdi nɔ de mek dis prɔtin we dɛn kɔl ɛmoglobin inof. Wetin kin apin da tɛm de? Di rɛd blɔd sɛl dɛn nɔ kin ebul fɔ du dɛn wok fayn, ɛn dɛn kin pwɛl kwik kwik wan.

We di rɛd blɔd sɛl dɛn we gɛt wɛlbɔdi nɔ de, di bɔdi nɔ kin gɛt di ɔksijɛn we i nid. Wi kin kɔl dis kɔndishɔn anemia . Anemia kin mek yu fil taya, wik, ɛn yu nɔ kin ebul fɔ blo fayn. If dis sik kɔntinyu, i kin pwɛl impɔtant ɔgan dɛn na wi bɔdi bak.

Wetin na di men kayn beta thalassemia?

Tri men kayn beta thalassemia de, i go dipen pan aw dɛn siriɔs. I rili impɔtant fɔ ɔndastand dis kɔrɛkt wan.

Wetin na di sayn dɛm fɔ dis sik?

Di sayn dɛm kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin, i kin dipen pan di kayn thalassemia wae yu gɛt ɛn aw i tranga.

• Pɔsin we gɛt thalassemia minor nɔ kin gɛt ɛni sayn.
• Pipul wae gɛt thalassemia intermedia ɛn major kin gɛt wan ɔr mɔr pan dɛn sik ya:
• Pale skin: Di skin kin tan lɛk pale ɛn chenj in kɔlɔ bikɔs i nɔ gɛt blɔd.
• Taya pasmak ɛn wik: I kin fil lɛk se yu taya, yu kin taya ɔltɛm.
• di bכdi blo: di bכdi de kכmכt fכ go bifo biכs di כgan dεm lεk di liva εn di splin de big.
• Urin we gɛt dak kɔlɔ: Yurin kin gɛt dak kɔlɔ.
• Di growth retardation: di pikin dεm fכ divεlכpmεnt de apin sloslo pas כda pikin dεm.
• Facial bon diformities: Insay sɔm bad bad kes dɛm, i kin chenj di shep fɔ di fes bon dɛm.
• Jandis: Di skin kin yɔlɔ ɛn di yay kin wayt.

Aw fɔ no bɔt dis sik?

Bɔku tɛm dɛn kin no dis sik bitwin 6 ɛn 12. Dɛn kin no am bay chans we yu go to dɔktɔ bikɔs ɔf di sayn dɛm we de sho se yu nɔ gɛt blɔd, ɔ we yu de du blɔd tɛst ɔltɛm fɔ ɔda rizin.

Sɔntɛnde, we yu si blɔd, yu kin mistek tink se di tin we kin mek yu gɛt am na we yu nɔ gɛt ayɔn. If yu gi yu ayɛn tablɛt da kayn tɛm de, i kin ambɔg pɔsin we gɛt thalassemia. So, i rili impɔtant fɔ go to dɔktɔ we de mɛn blɔd fɔ no di sik kɔrɛkt wan.

Bikɔs i kin rɔn na famili, pipul dɛn kin de we gɛt thalassemia na yu famili ɔ yu fambul dɛn. Dɔn bak, dis sik kin mɔna pipul dɛn we kɔmɔt na kɔntri dɛn lɛk Eshia, Midul Is, Itali, ɛn Gris.

Sɔm pan di men tɛst dɛm wae dɛn kin yuse fɔ no di sik na:

• Kɔmplit Blɔd Kɔnt (CBC): Dis de chɛk di nɔmba, saiz, ɛn machɔ rɛd blɔd sɛl dɛn, wayt blɔd sɛl dɛn, ɛn pletlɛt dɛn we de na yu blɔd.
• Hemoglobin electrophoresis: Dɛn kin yuz dis fɔ no uskayn kayn ɛmoglobin de na yu blɔd ɛn us kwantiti.
• Tεst fכ mama dεm we gεt bεlε: If bεlε mama gεt thalassemia kεriכ stet, dεn kin du tεst lεk Chorionic villus sampling (CVS) כ Amniocentesis fכ no if di pikin we de insay di bεlε dεn bin afekt am bak.

Wetin na di tritmɛnt dɛn?

Di tritmɛnt we yu go gɛt go dipen pan di kayn thalassemia we yu gɛt ɛn aw i siriɔs.

• Fɔ di wan dɛn we gɛt mild kɔndishɔn (Smɔl): Dɛn nɔ go nid ɛni tritmɛnt.
• Fɔ pipul dɛm wae gɛt intamɛdiet kɔndishɔn: Sɔntɛnde, lɛk wae sik ɔr infekshɔn kam, dɛn kin nid fɔ transfyushɔn blɔd.
• Fɔ di wan dɛn we gɛt siriɔs kɔndishɔn (Major): Bikɔs dɛn pipul ya gɛt siriɔs anemia, i impɔtant fɔ mek dɛn transfyushɔn blɔd ɔltɛm .

If yu gi blɔd bɔku tɛm, dat kin mek yu gɛt ayrɔn we nɔ nid fɔ bɔku na yu bɔdi. dis dεn kכl am ``Iron overload.'' Dis εksyכs ayron kin bכku insay כgan dεm lεk di at εn liva εn pwεl dεm. Fɔ mek dis nɔ apin, dɛn kin du wan tritmɛnt fɔ pul di aynɔ we pasmak na di bɔdi. Dɛn kɔl am ayɔn chɛleshɔn tɛrapi . Dɛn kin gi dis as pil ɔ injɛkshɔn.

Apat frɔm dat, yu kin yuz dɛn tritmɛnt ya lɛk aw yu dɔktɔ tɛl yu:

• Ɔpreshɔn fɔ pul di splin.
• Fɔ transplant bon mɛrɔ .
• Mɔdan tritmɛnt dɛn lɛk jin tɛrapi.

Aw fɔ liv wɛl wit thalassemia?

Pan ɔl we fɔ liv wit thalassemia kin tranga, bɔku tin dɛn de we yu kin du fɔ kia fɔ yusɛf.

Tin dɛn we yu go ebul fɔ du

• It fayn fayn it: It mɔ frut ɛn vɛjitebul. Bɔt aks yu dɔktɔ if yu fɔ stɔp fɔ it tin dɛn we gɛt ayɔn (mit, fish, sɔm vɛjitebul dɛn, ɛn tin dɛn we gɛt ayɛn) .
• Ɛksesaiz ɔltɛm: Du ɛksɛsayz saful saful lɛk fɔ waka ɛn bayk.
• Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn: Fɔ fala di de we yu fɔ gi yu blɔd ɛn di tɛm we yu fɔ tek di mɛrɛsin. Si yu dɔktɔ di de dɛn we dɛn dɔn sɛtul.
• Protɛkt yusɛf frɔm infɛkshɔn: Was yu an ɔltɛm. Stay away frɔm pipul dɛn we sik.
• Gɛt di vaysin: Gɛt ɔl di vaysin dɛn we yu dɔktɔ tɛl yu fɔ gi, lɛk di flu vaysin, di rayt tɛm.
• Tink bɔt yu maynd wɛl bɔdi: E kin tranga fɔ go tru dis joyn yu wan. Tɔk to yu fambul ɛn padi dɛn. If nid de, go to dɔktɔ we de mɛn pipul dɛn we gɛt sik ɔ pɔsin we de stɔdi bɔt pɔsin in maynd fɔ ɛp yu.

Advays fɔ di wan dɛn we de kia fɔ dɛn

If yu na di pɔsin we de kia fɔ pikin ɔ famili we gɛt thalassemia, yu wok rili impɔtant.