Sɔm pan wi pikin dɛn, ɛn big pipul dɛn kin gɛt fɔ gɛt blɔd ɔltɛm bikɔs ɔf sik dɛn lɛk Thalassemia. We wi kɔntinyu fɔ gi blɔd dis kayn we, wi bɔdi kin gɛda bɔku bɔku ayɛn we i nɔ ebul fɔ ol. Wi de kɔl dis ‘Ayɔn Ɔvalod’. So, wan spɛshal mɛrɛsin we dɔktɔ dɛn kin gi fɔ pul di aynɔ we pasmak we kin gɛda dis we na di bɔdi, dɛn kɔl am Deferasirox. Yu kin sabi dis mɛrɛsin wit di brand nem Jadenu. So, lɛ wi tɔk bɔt dis mɛrɛsin tide.
Wetin na Deferasirox?
Fɔ tɔk am simpul wan, Deferasirox na ‘iron chelator’ kayn mɛrɛsin. Dis min se dis mɛrɛsin de wok bay we i de kech di ayɔn patikyula dɛn we pasmak na yu blɔd, tay dɛn, ɛn pul dɛn na yu bɔdi na yu stɔl. Tink bɔt am lɛk magnet, we de pul di ayɛn we yu nɔ want. Fɔ pul di ayɛn we pasmak dis we rili impɔtant. Bikɔs if tumɔs ayɔn gɛda na di bɔdi, i kin pwɛl impɔtant ɔgan dɛn lɛk di liva ɛn di at.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin fɔ tek dis mɛrɛsin, i rili impɔtant fɔ gi yu dɔktɔ kɔmplit diskripshɔn bɔt yu wɛlbɔdi kɔndishɔn. Bikɔs dɛn fɔ gi dis mɛrɛsin to pipul dɛn we gɛt sɔm kayn mɛrɛsin, i impɔtant mɔ fɔ tɛl dɛn if yu gɛt ɛni wan pan dɛn sik ya:
- If yu gɛt kansa ɔ yu de du tritmɛnt fɔ kansa.
- If yu gɛt ɛni sik na yu liva ɔ yu kidni .
- If yu nɔ de si fayn ɔ yu gɛt ay sik (e.g. katarakt).
- If yu gɛt ɛnitin we nɔ de yɛri fayn .
- If yu gɛt histri bɔt blɔd sik . Fɔ ɛgzampul, wan sik we di wayt blɔd sɛl, rɛd blɔd sɛl, ɔ pletlɛt dɛn we de na di blɔd nɔ bɔku.
- If yu gɛt alɛji to dis Deferasirox mɛrɛsin ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ .
Fɔ tɛl yu dɔktɔ bɔt dɛn tin ya ɛn nɔ ayd dɛn rili impɔtant fɔ mek yu sef.
Aw a fɔ yuz di mɛrɛsin?
Yu dɔktɔ go ɛksplen klia wan aw fɔ yuz dis mɛrɛsin. I impɔtant fɔ fala dɛn instrɔkshɔn dɛn de di rayt we.
- Di tɛm: Dɛn fɔ tek dis mɛrɛsin ɔltɛm we yu ɛmti bɛlɛ . Dat min se at le 30 minit bifo ɔ 2 awa afta yu it . If yu tek am wit it, dat kin mek di mɛrɛsin nɔ wok fayn. I bɛtɛ fɔ mek yu gɛt di abit fɔ tek am di sem tɛm ɛvride.
- Di we aw dɛn kin tek am:Dis na mɛrɛsin we kin kam insay granul fɔm. Bɔku tɛm, dɛn kin gi am bay we dɛn sɔlv am na sɔntin lɛk wata, apul jus, ɔ ɔrɛnj jus ɛn drink am. Du am lɛk aw yu dɔktɔ tɛl yu.
- Stɔp: Nɔ ɛva stɔp fɔ tek dis mɛrɛsin wantɛm wantɛm if yu dɔktɔ nɔ advays yu. If yu du dat, dat kin mek yu ayɛn lɛvɛl go ɔp bak kwik kwik wan.
- If dɛn gi am to pikin dɛn: Sɔm tɛm dɛn de we dɛn kin gi dis mɛrɛsin to pikin dɛn we dɔn pas 2 ia. Bɔt dɛn fɔ du am ɔnda di spɛshal pɔsin we de kia fɔ am. Mek shɔ se yu no di doz ɛn di we aw dɛn fɔ gi di pikin.
- If yu mis wan doz: If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Impɔtant: If yu aksidɛntli tek bɔku mɛrɛsin, nɔ ignore am. Wantɛm wantɛm kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
We yu de tek dis mɛrɛsin, yu dɔktɔ go de chɛk yu blɔd tɛst ɔltɛm, yu yay, ɛn aw yu de yɛri. Nɔ skip dɛn tɛst ya. Apat frɔm dat, na fɔ no bɔt dɛn sayn ya.
- Siriɔs riakshɔn na dɛn skin: Sɔm pipul kin gɛt siriɔs riakshɔn na dɛn skin sɔm wiks afta dɛn dɔn bigin dis mɛrɛsin. If yu gɛt fiva, yu bɔdi de at, ɛn yu gɛt rɛd ɔ pepul spat na yu skin we leta blista ɛn pul, yu fɔ tɛl yu dɔktɔ wantɛm wantɛm. Dɔn bak, if yu gɛt rɛd rash na yu skin ɛn swɛlin limf no dɛm na yu fes, lip, ɔ nɛk/armpit, dat na siriɔs sayn bak.
- Blɛdi we de kɔmɔt: If yu stɔl blak tarry ɔ yu vɔmit sɔntin we tan lɛk kɔfi grɔn , i kin bi se yu de blɔd bikɔs ɔf ɔlsa na yu bɛlɛ ɔ yu intestinal. Dis na imejensi, so go to dɔktɔ wantɛm wantɛm.
- Diziz: Dis mɛrɛsin kin mek sɔm pipul dɛn gɛt diziz. So, nɔ du tin dɛn we denja lɛk fɔ drayv ɔ fɔ yuz mashin te yu no aw di mɛrɛsin de afɛkt yu. Ɛspɛshali if yu dɔn ol, nɔ grap wantɛm wantɛm we yu sidɔm.
- Pikin dɛn we nɔ gɛt wata na in bɔdi: If yu pikin gɛt bad bad dayarɛa, i de vɔmit, ɔ i de swet bɔku, i kin bi se i de lɔs bɔku wata na in bɔdi. Dis kin denja we yu de tek dis mɛrɛsin. So tɛl yu dɔktɔ bɔt am if dis kayn tin apin.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Deferasirox kin mek yu gɛt sayd ɛfɛkt. Nɔto ɔlman kin gɛt dɛn, bɔt i impɔtant fɔ no bɔt dɛn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Sivɛri Alɛji Riakshɔn | Skin rash, it, swel na di fes/lip/tɔng, i nɔ izi fɔ blo. |
| Chenj we yu de si ɔ yɛri | I nɔ kin si fayn, i kin chenj di kɔlɔ we i de si, ɛn i nɔ kin yɛri bɛtɛ igen. |
| Di sayn dɛm we de sho se di liva dɔn pwɛl | Dak yɔlɔ/brawn urine, yu yay ɔ skin de yɔlɔ, pen na di ɔp rayt pat na di bɛlɛ, nɔs, taya pasmak. |
| Ifekt pan di kidni dɛm | di urine autput dεm dεn dכn כ i at fכ urine. |
| Blɔd we de kɔmɔt | Blak, tar stɔl, vɔmit we tan lɛk kɔfi grɔn, ɛn random brus ɔlsay na di bɔdi. |
| Tɛl yu dɔktɔ if i kɔntinyu fɔ de ɔ i de mɔna yu. | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Bɛlɛ de at, nɔs, vɔmit, dayarɛa. |
| Prɔblɛm dɛn we pɔsin kin gɛt we i de slip | Nɔr kin slip ɔr nɔr kin slip fayn. |
Dis kin intarakt wit ɔda mɛrɛsin dɛn?
Yɛs, dis rili impɔtant. Deferasirox kin mek yu gɛt prɔblɛm we yu tek am wit sɔm ɔda mɛrɛsin dɛn. So tɛl yu dɔktɔ bɔt ɛni mɛrɛsin, vaytamɛn, ɛbul mɛrɛsin, ɔ sɔpɔtmɛnt we yu de tek.
Yu fɔ tek tɛm mɔ we yu de tek Deferasirox wit dɛn mɛrɛsin ya:
- Ɔda pils ɔ supamakit dɛn we gɛt ayɛn: Dɛn kin tek dis mɛrɛsin fɔ pul di ayron we pasmak, so if yu tek ayɔn pils nɔ go ɛp.
- Antasid dɛm: Antisid dɛm we gɛt aluminiɔm we dɛn kin yuz fɔ gas ɛn at bɔn kin ridyus di absɔpshɔn fɔ Deferasirox.
- Sɔm mɛrɛsin dɛn we gɛt kɔlɔstrel: Mɛrɛsin dɛn lɛk Cholestyramine ɛn Colestipol.
- Sɔm pen kil dɛm: NSAID-tayp pen kil dɛm (e.g. Ibuprofen, Naproxen).
- Pils dɛn we dɛn kin yuz fɔ kɔntrol pikin.
- Mɛrɛsin dɛn we de mek blɔd nɔ klot, lɛk Warfarin .
- Steroid mɛrɛsin dɛn lɛk Prednisone .
Dis list nɔ kɔmplit, so i go fayn fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek .
Mɛsej we dɛn kin kɛr go na os
- Deferasirox na wan impɔtant mɛrɛsin we dɛn kin gi fɔ pul di aynɔ we pasmak na di bɔdi bikɔs ɔf sik dɛn lɛk thalassemia.
- Ɔltɛm tek dis mɛrɛsin na ɛmti bɛlɛ, di tɛm ɛn di doz we yu dɔktɔ tɛl yu fɔ tek.
- I rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn sɔpɔtmɛnt dɛn we yu de tek.
- If yu notis ɛni siriɔs sayn lɛk bad bad skin rash, vɔmit we tan lɛk kɔfi grɔn, tar stɔl, ɔ yu si chenj, nɔ ignore am ɛn go to dɔktɔ wantɛm wantɛm.
- Nɔ ɛva stɔp fɔ tek mɛrɛsin ɔ chenj di doz if yu dɔktɔ nɔ advays yu.
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