Sɔntɛnde, wi kin gɛt ed pen, nɔto so? Wi nɔ no usay di pen bin go we wi tek wan pil ɔ slip fɔ sɔm tɛm. Bɔt imajin se di sem say na yu ed de at nɔ-stɔp... nɔto fɔ wan ɔ tu dez, bɔt fɔ mɔnt. Sɔntɛnde, di pen kin bi tin we pɔsin nɔ kin ebul fɔ bia. Dis na di kayn spɛshal ed we wi go tɔk bɔt tide we dɛn kɔl Hemicrania Continua. Pan ɔl we dis na nem we yu nɔ yus fɔ yɛri, pipul dɛn de na wi sosayti we de sɔfa wit dis sik. So, fɔ no dis kin rili impɔtant to yu ɛn di wan dɛn we yu lɛk.
Fɔ tɔk am simpul wan, wetin na Hemicrania Continua?
Dis nem kin tan lɛk se i kɔmplikt smɔl, bɔt di minin we i gɛt rili simpul. Na tu Latin wɔd dɛn mek am. "Hemicrania" min "af pan di ed." "Kɔntinyu" min "kɔntinyu." So, fɔ tɔk am simpul wan, na "pen we de kɔntinyu na wan say na di ed."
Dɔktɔ dɛn kɔl dis prɛmiam ed pen . Dis min se no ɔndalayn mɛdikal kɔndishɔn nɔ de (lɛk bren tumbu ɔ infɛkshɔn) we de mek di ed at. Na wan sik wae de stat as ed wae de at. So i nɔto natin fɔ fred, bɔt i rili impɔtant fɔ no am ɛn mek dɛn trit am fayn.
Tu men kayn dis de.
Hemicrania Kɔntinyu ed pen kin kam insay tu men we dɛn.
- Krεse kayn: Na dis kayn, yu kin gɛt ed pen ɔltɛm, ɔltɛm. Di pen kin de ɔltɛm ɛn i nɔ kin mek i fil fayn.
- Rimit tayp: Na dis kayn, ed kin at ɛvride fɔ lɛk siks mɔnt, dɔn i kin go wik ɔ mɔnt we nɔ kin gɛt ɛni pen. Di ed pen kin bigin bak. I tan lɛk se i de kam ɛn go.
Wetin na di sayn dɛm fɔ dis ed we de at?
Bɔku patikyula tin dɛn de we kin mek dis ed pen difrɛn frɔm ɔda kɔmɔn ed pen. A go put dɛn na tebul lɛk dis fɔ mek i izi fɔ ɔndastand.
| Di kayn we aw di kwaliti de | Tɔk bɔt |
|---|---|
| Di men sayn dɛn we de sho se i gɛt dis sik | |
| Pen na wan say | Di pen kin apin ɔltɛm na di sem say na di ed ɛn fes. If i de na di rayt say, i de na di rayt say ɔltɛm, ɛn if i de na di lɛft say, i de na di lɛft say ɔltɛm. Di sayd nɔ de swich. |
| Pen we i de fil ɔltɛm | Dis pen fɔ las fɔ at le tri mɔnt. Dɛn kin fil am ɔltɛm lɛk se i nɔ kin fil bad ɛn nɔ kin fil pen. |
| Siriɔs pen atak dɛn | Pan tap da kɔnstant dull pen de, wan shap, stab pen de tri to fayv tɛm insay di de. Dis kin las fɔ sɔm minit ɔ sɔm awa. |
| Ɔda sayn dɛm wae kin kam wit de ed pen (dεn kin apin bak na di sem say wit de pen) . | |
| Di sayn dɛm we gɛt fɔ du wit di yay | - Rɛdnɛs na di yay na di sayd we di pen de. - Kray wata de kɔmɔt na da yay de. - Aylid we de drɔp (Ptosis). - I nɔ izi fɔ si layt (fotophobia). |
| Simptom dɛm we gɛt fɔ du wit nos | - Nasal kɔnjɛshɔn na di sayd we di pen de. - Nɔs we de rɔn na da say de. |
| Ɔda tin dɛn we de apin | - Nɔs ɛn vɔmit. - I nɔ izi fɔ yɛri lawd nɔys. |
Wetin na de situeshɔn wae de pen kin bɔrku?
If yu gɛt Hemicrania Continua, sɔm tin dɛn kin mek yu maygren kin kam tranga wan wantɛm wantɛm. Di tu men tin dɛn na:
- Fɔ drink rɔm
- Fɔ du tin dɛn we de mek yu bɔdi tranga
Tink bɔt am, ɔda kayn ed pen kin wɔs we yu strɛs de bɔku, ɔ we yu nɔ de slip fayn, nɔto so? Bɔt i sɔprayz fɔ no se dɛn tin ya nɔ kin gɛt bɔku ifɛkt pan Hemicrania Continua ed pen. Dis na impɔtant pɔynt wae de ɛp fɔ no dis kayn ed wae de at.
Wetin mek dis kayn ed kin at?
Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek dɛn ed pen ya, bɔt risach dɔn sho sɔm tin dɛn.
- Inflammation of the cavernous sinus: Dis na wan spes insay wi bren we de protɛkt impɔtant blɔd vesel dɛm, nerves dɛm, ɛn tin dɛm lɛk di pituitary gland. Dɛn kin tink se inflamɛns na dis eria kin bi di kɔz.
- Di at dɛn we de wayd: Di blɔd vesel dɛn we de gi blɔd to di bren kin big, ɛn dis kin mek di nerv dɛn kɔmpreshɔn.
- wan prכblεm wit di wok we di trigeminal nerve de wok: Dis na di men nerve we de kכri sens dεm frכm wi fes to di bren. Dɛn kin sɔprayz se dis pen kin bi bikɔs ɔf sɔm kayn we aw i nɔ de wok fayn.
Pan ɔl we dis sik kin apin to ɛnibɔdi, i kin apin mɔ pan uman dɛn .
Aw di dɔktɔ kin no bɔt dis?
We yu go to dɔktɔ wit dɛn sik ya, di fɔs tin we i go du na fɔ tek tɛm chɛk yu ɛn aks yu bɔt yu sik dɛn. I go aks yu kwɛstyɔn dɛn lɛk usay i de at, aw lɔng i dɔn de, aw de pen de fil, ɛn aw ɔltɛm de pen kin tranga.
Yu dɔktɔ kin aks yu fɔ kip wan dayari fɔ ed we de at fɔ ɛp yu. I rili impɔtant. Rayt dɛn tin ya insay de:
- Di de ɛn di tɛm we di ed bin de at.
- Jɔs usay i de at na di ed.
- A de wɔnda if di pen bin bɔku afta a dɔn du sɔntin.
- Aw lɔng di bad bad pen bin las?
- Ɛni ɔda sayn dɛn de lɛk fɔ nɔs ɔ fɔ gɛt wata na yu yay wit di ed we de at?
Wit dis infɔmeshɔn, yu dɔktɔ kin gɛt bɛtɛ aidia bɔt yu sik. Apat frɔm dat, dɛn kin ɔda fɔ mek dɛn du CT skan (kɔmpyuta tomografi skan) ɔ MRI skan (magnetic resonance imaging scan) fɔ mek shɔ se no ɔda prɔblɛm nɔ de wit yu bren.
Wetin na di bɛst tritmɛnt fɔ Hemicrania Continua?
Di bɛst tin bɔt dis ed we de at na dat i gɛt tritmɛnt we rili fayn. Di men ɛn di bɛst mɛrɛsin fɔ dis na Indomethacin .
Indometasin na wan drɔg we de insay wan klas ɔf drɔgs we dɛn kɔl nonsteroidal anti-inflammatory drugs (NSAIDs). I de wok bay we i de ridyus di inflamɛns ɛn pen na di bɔdi.
Bɔrku tɛm, di dɔktɔ go tɛl yu fɔ tek dis mɛrɛsin insay smɔl doz tri tɛm insay di de. I rili impɔtant fɔ tek dis mɛrɛsin wit it . If nɔto dat, tin dɛn lɛk we yu bɛlɛ kin at kin apin. I sɔprayz fɔ no se insay wan ɔ tu dez we dɛn bigin fɔ tek dis mɛrɛsin, bɔku pipul dɛn kin lɛf fɔ fil pen. Yu kin rili ɛkspɛkt gud rizulyt insay wan wik.
We yu ed pen dɔn dɔn, yu dɔktɔ go ridyus di doz fɔ yu mɛrɛsin smɔl smɔl. In gol na fɔ gi yu di doz we smɔl pas ɔl we go kɔntrol yu sik dɛn.
Lɛ wi no bak bɔt di sayd ɛfɛkt dɛm we Indomethacin gɛt.
Lɛk ɔl di mɛrɛsin dɛn, dis wan kin gɛt smɔl smɔl sayd ɛfɛkt dɛn, bɔt nɔto ɔlman kin gɛt dɛn.
| Di sayd ɛfɛkt dɛn we Indomethacin gɛt | |
|---|---|
| Di sayd ɛfɛkt dɛn we dɛn kin si bɔku tɛm | |
| Banbɛlɛ | Rɔnbɛlɛ |
| Diziz we pɔsin kin gɛt | I de ring na yu yes |
| Fɔ vɔmit | |
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ tek tɛm tink bɔt ɛn ripɔt to di dɔktɔ wantɛm wantɛm | |
| Di at rit we de go ɔp | Bak pen |
| I nɔ izi fɔ blo (dyspnea) . | Fiva |
| Pen we yu de pis (dysuria) . | Skin rash , it, blista |
| Bɛlɛ pen bad bad wan | Di bɔdi we de swel |
| Vishɔn kin chenj | |
Ɔda opshɔn dɛn de if Indomethacin nɔ de wok?
Bɔku tɛm, indomɛtasin kin kɔntrol dis sik. Bɔt sɔm pipul dɛn nɔ kin ebul fɔ tek am bikɔs ɔf di sayd ɛfɛkt dɛn. If na so i bi, yu dɔktɔ kin tɛl yu fɔ tek ɔda mɛrɛsin dɛn.
- Amitriptaylin we dɛn kɔl
- Kɔtikosterɔyd dɛn
- COX-2 inhibito dεm (e.g. sεlεkכksib) .
- Gabapentin bin de du am
- Melatonin we dɛn kɔl
- Topiramat we gɛt di sik
- Naproxen we dɛn kin yuz
Apat frɔm dɛn mɛrɛsin ya, sɔm tɛm dɛn de, di dɔktɔ kin tink bak bɔt ɔda tritmɛnt dɛn lɛk fɔ injɛkshɔn wit botulinum toxin-A ɛn fɔ mek di vagus nerve stimulation.
Yu tink se dis tin we de apin denja? Wetin na di tin dɛn we wi go si?
Dis na di tin we impɔtant pas ɔl. Hemicrania Continua nɔto denja ɔr layf de pan denja. Dɔn bak, i nɔto sayn fɔ ɛni ɔda siriɔs sik. So nɔ fred am.
Bɔt na di wan dɛn nɔmɔ we dɔn gɛt dis kayn pen ɔltɛm no aw i nɔ kin izi fɔ liv wit. I kin tranga fɔ du di wok we yu de du ɛvride ɛn tink gud wan. If yu de fil pen ɔltɛm, dat kin afɛkt yu maynd wɛlbɔdi bak.
Fɔ liv wit dis pen ɔltɛm kin rili mek yu at pwɛl. Sɔntɛm yu nɔ go fil fɔ grap na bed, go wok, ɔ laf ɛn tɔk to yu padi dɛn. Ivin fɔ du simpul wok kin fil lɛk se yu fɔ wok tu tɛm pas aw yu de fil we yu de fil pen.
Bɔt di gud nyus na dat dis na sik we pɔsin kin rili trit . If yu wok wit yu dɔktɔ fɔ fɛn di rayt tritmɛnt ɛn di doz fɔ yu, yu kin go bak to yu nɔmal layf ɛn nɔ go ambɔg yu.
Mɛsej we dɛn kin kɛr go na os
- Hemicrania Continua na pen we de kɔntinyu fɔ de, we de blo na wan say na di ed. I kin kam wit bad bad atak dɛn .
- Dɛn kin si sɔm sayn dɛm lɛk wae yu yay rɛd na di sayd we yu de fil, yu de kray, ɛn yu nos de rɔtin bak wit dis.
- Dis sik nɔr de mek pɔrsin in layf de pan denja, ɛn i nɔr de sho se pɔrsin gɛt ɔda siriɔs sik.
- Di men ɛn di bɛst tritmɛnt fɔ dis na di mɛrɛsin we dɛn kɔl Indomethacin.
- If yu gɛt ed pen ɔltɛm lɛk dis, duya nɔ ignore am ɛn go to kwalifay dɔktɔ, ɔ yu "dɔkta." If yu no di sik ɛn trit yu fayn fayn wan, yu kin wɛl ful wan.
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