Yu tink se sɔntɛnde yu smɔl pikin kin bigin fɔ laf lawd wan wantɛm wantɛm fɔ natin? Yu tink se da laf de nɔ go ebul fɔ stɔp, lɛk fit fɔ fit? Ɔ yu gyal pikin ɔ yu bɔy pikin de sho sayn dɛn we de sho se i dɔn bɔn bifo tɛm? Na nɔmal tin fɔ mek yu, as mama ɔ papa, fil bɔku fred ɛn wɔri we yu si dɛn tin ya. Tide wi de tɔk bɔt wan sik wae nɔr kin bɔrku, bɔt wae rili impɔtant fɔ no, wae kin kam wit dɛn kayn sik ya.
Wetin rili na Hypothalamic Hamartoma (HH)?
Fɔ tɔk am simpul wan, na wan tכmכro we nכ de kכnsεr lεk tכmכro we de divεlכp dip insay wi bren, insay wan rili imכtant pat we dεn kכl di haypothalamus, we di sayz lεk wan almכnd.
Tink bɔt di haypothalamus as di men kɔntrol sɛnta fɔ wi bɔdi. i de ple big pat fכ kip כltin in bεlε (homכstasis), fכ kכnekt כl tu di כmon sistεm εn di nεv sistεm na wi bכdi.
Sɔm pan di tin dɛn we di haypothalamus de kɔntrol na:
- Blɔd prɛshɔn
- Di tɛmpracha na di bɔdi
- Filin fɔ strɛs, wɔri
- Angri ɛn tɔsti
- di rilis fכ di כmon dεm frכm di pituitary gland
- Slip ɛn wek saykl dɛn
dis HH tכmכro de bigin fכ divεlכp we di pikin stil de na di bεlε . As di pikin in bren de gro, dis tumbu de gro smɔl smɔl. Bɔt nɔ wɔri, i nɔ de skata to ɔda pat dɛn na di bren ɔ ɔda pat dɛn na di bɔdi. Bɔku tɛm, na wan tumbu nɔmɔ kin de, bɔt nɔto ɔltɛm i kin gɛt sɔm.
Di bɛst tin na dat naw, gud tritmɛnt dɛn de fɔ kɔntrol di sayn dɛm wae dis sik kin kam wit.
Wetin na di sayn dɛm fɔ dis sik?
Dɛn sayn ya nɔr kin bi di sem fɔ ɔl pikin ɛn dɛn kin difrɛn frɔm wan pikin to ɔda wan. Bɔt, tri men grup de fɔ di sayn dɛm wae yu kin si.
1. Prɛkɔs Puberty
Dis na wan pan de men sayn dɛm fɔ dis sik. Fɔ tɔk am simpul wan, di pikin in bɔdi kin bigin fɔ machɔ pan mami ɛn dadi biznɛs kwik kwik wan pas di nɔmal ej. dis dεn kכl am ``Sεntral Prεkoshכn Puberty''. Dis kin apin bikɔs di bren kin sɛn signal fɔ mek dɛn mek sɛks ɔmon dɛn kwik kwik wan.
Jɛnɛral wan, if gyal pikin sho sayn dɛn fɔ bi yɔŋ pɔsin bifo i ol 8 ia ɛn bɔy pikin bifo i ol 9 ia, wi fɔ wɔri.
| Di kwaliti dɛn we dɛn kin si pan gyal pikin dɛn | Di kwaliti dɛn we dɛn kin si pan bɔy pikin dɛn |
|---|---|
| divεlכpmεnt fכ di brεst | Di vɔys we de ala/dip |
| di ia we de gro na di armpit dεm εn di prayvet εria dεm | Di ia we de gro na di fes, di armpit, ɛn di say dɛn we pɔsin kin si in prayvet pat |
| Menstruation (menstruation) . | di tεstikul dεm εn di penis we de big |
| Akni we gɛt akni | Akni we gɛt akni |
2. Di sik we de mek pɔsin sik
Di sik kin kam bak pan dis sik. Wan spɛshal ɛn kɔmɔn kayn sik de bak pan dis sik. Dɛn kɔl am Gelastic seizure .
Jɛlastik sik na wan abnɔmal ilɛktrik aktiviti na di bren we de mek pɔsin laf we pɔsin nɔ ebul fɔ kɔntrol fɔ no rizin. I tan lɛk se pɔsin we fit fɔ laf.
Dis laf nɔto sɔntin we kin mek pɔsin gladi. I kin jɔs las fɔ sɔm sɛkɔn, bɔt i kin apin bɔku tɛm insay di de, ɛn insay sɔm kayn bad bad tin dɛn, bɔku tɛm insay wan awa. Bɔku tɛm, dis kayn sik kin bigin bifo di pikin ol wan ia . Bɔt i kin go dɔŋ smɔl smɔl afta i dɔn ol 10 ia.
Apat frɔm dat, dɛn kin si ɔda kayn sik dɛn bak we kin mek pɔsin sik.
- Atonic seizures (drop attacks): I nɔ kin ebul fɔ kɔntrol di bɔdi wantɛm wantɛm, di mɔsul dɛn kin wik, ɛn i kin fɔdɔm na grɔn.
- Dacrystic seizures: Nɔr kin kɔntrol, kin kɔntinyu fɔ kray fɔ natin, i fiba fɔ laf.
- Tonic-clonic seizures: As wi ɔl no, na big big sik wae de mek yu nɔr no natin ɛn yu bɔdi de jɔk.
3. Nyurolɔjik Simptom ɛn Biheviɔral Chenj
Bikɔs di haypothalamus na pat pan di bren we de ɛp fɔ kɔntrol di we aw wi de fil ɛn aw wi de biev, HH kin afɛkt di we aw pikin de biev, aw i de fil, ɛn aw i de lan. Prɔblɛm dɛn we kin apin na:
- I nɔ kin izi fɔ pe atɛnshɔn ɛn fɔ du bɔku tin (Attention-deficit/hyperactivity disorder - ADHD) .
- Bad, naughty bihayvya `(Kɔndɔkt dizayd)`
- Intɛlektual disabiliti
- Dizayd we pɔsin kin gɛt we i de fil
- Dizayd we de agens di we aw pipul dɛn de agens dɛnsɛf
- Riaktiv bihayvya
- Prɔblɛm dɛn we pɔsin kin gɛt we i de mɛmba tin fɔ shɔt tɛm
Yu tink se kayn haypothalamic hematomas de?
Yes, dis tכmכro kin sheb to tu men tכp dεm dipכnt pan di say we i de na di haypothalamus εn di simptom dεm we i de kכz.
1. Intrahypothalamic lesion: insay dis tכp, di tכmכro de bihayn di haypothalamus. Dis kin ambɔg di ilɛktrik wok na di bren, ɛn dis kin mek i gɛt bɔku prɔblɛm wit di we aw i de biev .
2. Parahypothalamic lesion (pedunculated lesion): na ya di tכmכro de bifo di haypothalamus. Dis na di men sayn we dɛn kin si bikɔs ɔf di tɛm we pɔsin kin bɔn kwik kwik wan .
Sɔm pikin dɛn kin gɛt ɔl tu di kayn dɛn togɛda.
Wetin na di rizin we mek dis kayn tin de apin?
No patikyula rizin nɔ de fɔ dis yet . Ɛn no we nɔ de fɔ mek i nɔ apin. Bɔku tɛm, i kin apin bay wilful. Dat min se i nɔ kin apin we pɔsin gɛt frɔm in mama ɛn papa. Di chans fɔ mek yu pikin gɛt am rili smɔl bikɔs sɔmbɔdi na yu famili gɛt am.
bכt risεch we dεn jכs du dεn sho se sכm chenj dεm de na di jin `GLI3` insay di tisu fכ dεn tכmכro dεm ya. Risach stil de go bifo pan dis.
dεn dכn fכ no bak se wan jεnεtik kכndyushכn we dεn kכl ``Pallister-Hall syndrome (PHS)'' kin gεt sכm kכnεkshכn wit HH.
Aw fɔ no dis sik kɔrɛkt wan?
I go mɔs bi se yu dɔktɔ go ɔda fɔ mek dɛn du MRI (Magnetic Resonance Imaging) skan na yu bren fɔ no if yu gɛt di sik. MRI kin mek yu pikchɔ dɛn we rili klia ɛn we gɛt ditayli bɔt di bren.
Dɛn kin nid fɔ gi yɔŋ pikin dɛn layt mɛrɛsin fɔ mek dɛn nɔ muv we dɛn de du di MRI, bikɔs we dɛn de muv, dat kin mek di pikchɔ dɛn we de na di skan nɔ klia.
If yu pikin gɛt sik we de mek i sik, i kin fayn fɔ mek dɛn du EEG (Electroencephalogram) tɛst bak. Dis de tɛst di ilɛktrik wok we di bren de du.
Apat frɔm dat, dɛn kin du nyurolɔjik tɛst fɔ no aw di pikin de tink, lan, ɛn mɛmba, ɛn dɛn kin du blɔd tɛst fɔ chɛk di ɔmon lɛvɛl. Di infɔmeshɔn frɔm dɛn tɛst ya kin rili ɛp fɔ plan di tritmɛnt.
Aw dɛn kin trit am?
Tu men gol dɛn de fɔ trit HH. Wan na fɔ kɔntrol di pikin we i de bɔn kwik kwik wan, ɛn di ɔda wan na fɔ kɔntrol di sik we pɔsin kin gɛt we i de sik.
- Fɔ di fɔs tɛm we dɛn de bɔn pikin: Dɛn kin yuz mɛrɛsin fɔ dis. Dɛn kin gi di ɔmon agonist dɛm we de rilis gonadotropin as injɛkshɔn ɛvri mɔnt. Dis de kɔntrol di we aw di ɔmon dɛn de kɔmɔt ɛn i de kɔntrol di sayn dɛn we de sho se pɔsin de bɔn pikin. We di pikin rich di ej we di pikin fɔ bɔn, di dɔktɔ go stɔp di mɛrɛsin.
- Fɔ sik wae de mɛk yu sik: Di ‘Gelastic seizures’ wae wi bin dɔn tɔk bɔt nɔr de ansa fayn to standad antiseizure mɛrɛsin dɛm. So , bɔku tɛm dɛn kin nid fɔ du ɔpreshɔn ɔ ɔda spɛshal tin dɛn .
Dis dɔŋ ya na sɔm pan di men we dɛn we dɛn kin yuz fɔ pul ɔ pwɛl di ɛmatoma fɔ kɔntrol di sik we pɔsin kin gɛt.
| Di we aw dɛn kin trit am | Fɔ ɛksplen am simpul wan |
|---|---|
| Gamma Naif ɔpreshɔn we dɛn kin du | Dis nɔto rili ɔpreshɔn. Dɛn nɔ kin kɔt di skin. wan pawaful bim fכ enεji (rεdyushכn) de aim כnli di say we di bren tכmכro de εn i de pwεl am. |
| Risekshɔn (ɔpareshɔn fɔ pul am) . | di dɔktɔ we de du di ɔpreshɔn kin pul di tɔŋ bay we i de opin di skel (craniotomy), ɔ mek smɔl ol na di skel, ɛn put inschrumɛnt lɛk ɛndoskɔp insay. |
| Stiriotaktik laser ablashɔn | Dis na wan we bak we nɔ kin tek bɔku pipul dɛn. Dɛn kin sɛn lɛsa bim tru wan fayv ɔptik kebul fɔ pwɛl di tumbu. |
| Stiriotaktik tɛmoablɛshɔn | Dis we ya de yuz ɔt fɔ pwɛl di tumbu. dεn kin put tin instrכmεnt dεm tru di sכl εn hεt dεm wit redio wev fכ pwεl di tכmכro tisu. |
Apat frɔm dat, dɛn kin gi spɛshal ɛdyukeshɔn sɔpɔt, bihayvya tɛrapi, ɛn mɛrɛsin na skul fɔ sɔlv di pikin in bihayvya ɛn lanin prɔblɛm dɛn.
Ustɛm yu fɔ go to dɔktɔ?
As mama ɔ papa, na yu sabi yu pikin pas ɔlman. So, if yu notis ɛni chenj ɔ sɔm kayn sayn dɛn we nɔ kɔmɔn pan yu pikin, nɔ ignore dɛn. If yu pikin gɛt ɛni wan pan dɛn sik ya, go to dɔktɔ wantɛm wantɛm.
- Seizure: Ɛspɛshali fit fɔ laf fɔ natin.
- Sayn dɛn we de sho se pɔsin dɔn yɔŋ: As wi bin dɔn tɔk bɔt, tin dɛn lɛk we in ia kin gro ɛn in vɔys kin chenj.
- Prɔblɛm fɔ lan: nɔ ebul fɔ pe atɛnshɔn, chenj na di mɛmori.
- Di chenj we yu de biev: Fɔ vɛks pan smɔl smɔl tin, fɔ bi agresiv.
- di hכmon imbalans: i de tכsti pasmak, i de chenj di angri, di mכd de chenj wantɛm wantɛm.
Yu kin fil bad bad wan we yu kam fɔ no se yu pikin gɛt HH. Bɔt mɛmba se naw, tritmɛnt dɛn de we rili fayn fɔ dis. Tɔk to yu dɔktɔ ɛn pik di tritmɛnt we go fayn fɔ yu pikin.
Mɛsej we dɛn kin kɛr go na os
- Hypothalamic Hamartoma (HH) na wan tכmכro we nכ de fכm na di bren we dεn bכn am.
- di tu men sayn dεm fכ dis na jεlastik sik dεm εn fכ bכn bifo tεm.
- Di men tɛst we dɛn kin yuz fɔ no if pɔsin gɛt di sik na we dɛn kin du MRI skan na di bren.
- Dɛn kin ebul fɔ kɔntrol di pikin we i de bɔn bifo tɛm bay we dɛn de tek mɛrɛsin, ɔpreshɔn fɔ mek i gɛt ɛpilepshi, ɔ ɔda spɛshal we dɛn.
- If yu gɛt smɔl saspek se yu pikin gɛt dɛn sik ya, duya go to dɔktɔ we de mɛn pikin dɛn ɔ dɔktɔ we de mɛn nyuro ɛn nɔ de te.
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