Yu dɔktɔ dɔn gi yu Luspatercept fɔ yu ɔ pɔsin na yu famili? If na so, i impɔtant fɔ mek yu no klia wan bɔt dis mɛrɛsin fɔ yu sef ɛn fɔ mek yu tritmɛnt go bifo. So tide, lɛ wi tɔk smɔl bɔt dis mɛrɛsin, wetin i de du, ɛn wetin yu nid fɔ no bɔt.
Us kayn mɛrɛsin na Luspatercept?
Fɔ tɔk am simpul wan, Luspatercept na wan mɛrɛsin we dɛn kin yuz fɔ mɛn sɔm tin dɛn we kin mek pɔsin gɛt anemia , we na wan sik we di bɔdi in rɛd blɔd sɛl dɛn nɔ kin bɔku. Dɛn kin yuz am mɔ fɔ trit anemia we kin kam wit tin dɛn lɛk beta thalassemia, we na wan kayn thalassemia, ɛn myelodysplastic syndromes .
Dis mɛrɛsin de ɛp wi bɔdi fɔ mek mɔ rɛd blɔd sɛl dɛn. I tan lɛk se wi de gi nyu layf to wi bɔdi in rɛd blɔd sɛl faktri. Dis mɛrɛsin kin kam ɔnda di brand nem `REBLOZYL`.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin dis tritmɛnt, i impɔtant fɔ ɛksplen dɛn tin ya klia wan to yu dɔktɔ, bikɔs dɛn rili impɔtant fɔ yu sef.
- If dɛn dɔn ɔpreshɔn yu fɔ pul yu splin .
- If yu gɛt ay blɔd prɛshɔn .
- If yu gɛt histri bɔt blɔd we de klɔt .
- If yu na pɔsin we de smok .
- If yu dɔn gɛt alɛji fɔ Luspatercept ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu de op fɔ gɛt bɛlɛ ɔ yu tink se yu dɔn ɔlrɛdi gɛt bɛlɛ . (Dis rili impɔtant!)
- If yu na mama we de gi pikin in bɛlɛ .
Na yu wok fɔ tɔk to yu dɔktɔ ɛn nɔ ayd ɛni wan pan dɛn tin ya. I go ɛp yu bad bad wan fɔ mek yu kɔndɔkt yu tritmɛnt sef wan.
Aw yu kin yuz dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. Luspatercept na injɛkshɔn ɔnda di skin . Na ɔspitul ɔ klinik nɔmɔ we gɛt trenin fɔ gi dis injɛkshɔn. So yu nɔ gɛt natin fɔ wɔri bɔt.
Dɛn nɔ dɔn gri fɔ yuz dis mɛrɛsin yet fɔ pikin dɛn.
Wetin fɔ du if di doz fɔ di mɛrɛsin go ɔp?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu fil se yu dɔn tek di mɛrɛsin pasmak pan ɛni we, go na ɔspitul wantɛm wantɛm.Go na di Imejɛnsi Tritmɛnt Yunit (ETU). Dɔn bak, if nid de, yu kin kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ gɛt advays.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
I rili impɔtant fɔ go to di dɔktɔ in apɔntinmɛnt ɛn tek yu mɛrɛsin jɔs di de dɛn we i gi yu. Nɔ skip dɛn apɔntin dɛn ya fɔ ɛni rizin. If fɔ sɔm rizin yu nɔ ebul fɔ go di de we dɛn dɔn sɛtul, kɔl yu dɔktɔ ɔ klinik wantɛm wantɛm ɛn tɛl dɛn.
Speshal pɔynt dɛn we yu fɔ no we yu de tek di mɛrɛsin
Yu dɔktɔ go wach yu sik gud gud wan we yu de tek dis mɛrɛsin. I impɔtant bak fɔ mek dɛn de du blɔd tɛst ɔltɛm, lɛk blɔd wok, di rayt tɛm.
Speshal wɔnin bɔt bɛlɛ ɛn fɔ gi pikin in bɛlɛ:
Dis rili impɔtant! If yu de plan fɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin, ɔ if yu tink se yu gɛt bɛlɛ, tɔk to yu dɔktɔ wantɛm wantɛm. Dis mɛrɛsin kin mek yu pikin we nɔ gɛt bɛlɛ gɛt siriɔs prɔblɛm wit yu pikin. So, tɔk to yu dɔktɔ bɔt aw fɔ yuz wan sef we fɔ kɔntrol bɔn pikin we yu de tek dis mɛrɛsin. Dɔn bak, nɔ gi pikin in bɛlɛ we yu de tek dis mɛrɛsin.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Luspatercept kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn tin ya kin siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Tayp fɔ di sayd ɛfɛkt | Diskripshɔn ɛn di simptom dɛm |
|---|---|
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Blɔd we de klɔt | Leg pen, swel ɔ wam, at fɔ blo, chɛst pen. |
| Blɔd prɛshɔn we de go ɔp | Siriv ed pen, diziz, vishɔn chenj. |
| Prɔblɛm dɛn we de na di nervɔs sistɛm | Bak pen bad bad wan, yu an ɛn fut dɛn kin swɛla ɔ wik, yu nɔ kin balans, yu nɔ kin ebul fɔ kɔntrol yu bɔdi ɔ yu blad. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Difrɛn pen dɛn | Bon pen, joyn pen, mɔsul pen, bɛlɛ pen. |
| Ɔda smɔl smɔl tin dɛn | Ed we de at, diziz, taya. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni ɔda sayn we nɔ kɔmɔn, duya tɛl yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Luspatercept na vaysin we de mek di bɔdi in rɛd blɔd sɛl dɛn bɔku ɛn i de trit anemia we kin kam bikɔs ɔf tin dɛn lɛk beta thalassemia ɛn myelodysplastic syndrome.
- Bifo yu bigin fɔ trit yu, mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔda mɛrɛsin dɛn we yu de tek.
- Dɛn kin gi dis mɛrɛsin na ɔspitul ɔ klinik ɛn nɔ de fɔ yuz na os.
- I rili impɔtant: Nɔ gɛt bɛlɛ ɛn avɔyd fɔ gi pikin in bɛlɛ ɔltogɛda we yu de tek dis mɛrɛsin.
- Go to dɔktɔ wantɛm wantɛm if yu gɛt ɛni siriɔs sayd ɛfɛkt, lɛk sayn dɛn we de sho se yu blɔd dɔn swɛla (we yu de swel na yu leg, yu chɛst de pen), ɔ yu de sho se yu gɛt siriɔs alɛji (we yu fes swel).
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