Yu dɔn ɛva du MRI skan? Sɔntɛnde, di dɔktɔ kin se, ‘Wi nid fɔ gi yu wan kɔntrast day fɔ mek yu si klia wan bɔt di insay pat pan yu bɔdi,’ nɔto so? Bɔku tɛm, dis kin rili sef. Bɔt tide wi de tɔk bɔt wan prɔblɛm we rili, rili rare, mɔ fɔ pɔsin we gɛt kidni sik. Nɔ fred dis, bikɔs i so rare dat yu nɔ de si am igen. Bɔt i impɔtant fɔ no.
Fɔ tɔk am simpul wan, wetin na Nephrogenic Systemic Fibrosis (NSF)?
Nephrogenic Systemic Fibrosis (NSF) na wan sik we nɔ kin apin so ɔltɛm. i kin apin mכst pan pipul dεm we gεt kidni sik afta dεn gi dεm wan kayn kכntrast day we dεn kכl `gadolinium-based contrast agents (GBCAs). Gadolinium na wan kemikal we de insay dis day. Dɔktɔ dɛn kin yuz dis kɔntrast day fɔ gɛt klia pikchɔ dɛn we dɛn de skan lɛk Magnetic Resonance Imaging (MRI).
If yu gɛt damej na yu kidni, yu kidni dɛn kin gɛt prɔblɛm fɔ filta dɛn GBCA ya frɔm yu blɔd, na dat mek yu de pan risk fɔ NSF.
Dis sik kin mek yu skin tik, tayt, swel, ɛn it . sכmtεm, wan kכndyushכn we dεn kכl `jכyn kכntrakt` kin apin. dis min se yu mכsul dεm εn di tεndon dεm de lכk na wan posishכn (bεnt כ εksεnd). NSF kin afekt insay כgan dεm lεk yu at εn lכng dεm bak. Dis na bikɔs di tisu ɛn mɔsul dɛn na yu chɛst kin stif. Naw, no mɛrɛsin nɔr de fɔ stɔp dis sik fɔ go bifo ɔr fɔ rivɛns di tin dɛm wae i de du.
Bɔt mɛmba dis: Naw we ɔlman dɔn no bɔt dis risk, dɛn dɔn stɔp fɔ gi pipul dɛn we gɛt kidni sik we gɛt denja kɔntrast day. Na dat mek i dɔn lɛf smɔl fɔ lɛ dɛn nɔ yɛri dis sik naw.
Aw dis sik rili bɔku?
Dis na sik we nɔ kin apin so ɔltɛm. Infakt, dɛn nɔ dɔn ripɔt ɛni nyu pɔsin we gɛt dis sik fɔ pas 10 ia. Afta 2006, we di mɛdikal kɔmyuniti bin no bɔt di link bitwin GBCA ɛn kidni sik, di nɔmba fɔ di wan dɛn we gɛt dis sik bin go dɔŋ bad bad wan. So, dis sho se nid nɔ de fɔ fred dis igen.
Wetin na di sayn dɛm fɔ NSF?
Di sayn dɛm kin apia di sem de we dɛn gi di kɔntrast day ɔ sɔm mɔnt afta dat. Bɔrku tɛm, di sayn dɛm kin sho insay sɔm wiks.
Lɛ wi tek wan luk pan di men sayn dɛm.
| Kategori fɔ di simptom dɛn | Fɔ ɛksplen |
|---|---|
| Skin kin chenj | Yu skin kin swel, tayt, ɛn tik. Dis kin apin mɔ na di an, di leg, ɛn di bɔdi. Di fes nɔ kin rili afɛkt. |
| Di we aw di skin de luk | Dak spat ɔ bɔmp na di skin. As tɛm de go, di skin kin tan lɛk dimpled, we tan lɛk ɔrɛnj peel. |
| Skin sɛnseshɔn | Skin de it, bɔn, ɔ pen. |
| I nɔ izi fɔ muv | As di skin de tik ɛn swel, di mɔsul ɛn jɔyn dɛn nɔ kin ebul fɔ muv nɔmal wan. |
| Influɛns dɛn we de insay pɔsin in os | Di mɔsul dɛn kin wik bad bad wan. di mכsul dεm stiff de mek di limb nכ ebul fכ bεnd כ strεt fayn fayn wan (Lכs fכ rεnj fכ muv). |
As di fibrosis de go bifo, i kin mek di skata tisu dɛn fɔm na di mɔsul dɛn, di lɔng dɛn, di εsophagus, di yay dɛn, ɛn di at. Dis kin mek dɛn ɔgan ya nɔ wok fayn. I kin mek pɔsin gɛt disabled fɔ lɔng tɛm ɛn fɔ ɔltɛm, ɛn pan sɔm pipul dɛn, i kin kil pɔsin.
Wetin mek dis NSF sityueshɔn kin apin?
Mɔs kes dɛm fɔ NSF dɔn ripɔt afta dɛn dɔn ɛkspos to gadolinium-based contrast agents (GBCAs). I stil nɔ klia bɛtɛ bɛtɛ wan aw di kemikal gadolinium de mek NSF. Bɔt klia link de bitwin kidni sik ɛn GBCA. Dɔn bak, i tan lɛk se di risk go bɔku if dɛn gi yu bɔku bɔku gadolinium ɔ if yu yuz sɔm (ol) GBCA dɛn.
Dis kכndyushכn kin apin bכku pan pipul dεm wae gεt krεse sik (CKD) כ dεn wan dεm wae de du dayalaysis.
Bɔt a de se bak, una nɔ fred. Nɔr nyu kes nɔr dɔn de fɔ dis fɔ lɛk 15 ia so. Di rizin na dat, dɔktɔ dɛn dɔn rili no bɔt dis prɔblɛm naw. Na dat mek dɛn nɔ de gi ol, risky GBCA to pipul dɛn we gɛt kidni sik. Naw dɛn de yuz tin dɛn we rili sef ɛn we nyu we de mek difrɛns de.
Wetin na di tritmɛnt dɛm fɔ NSF?
Naw, no patikyula tritmɛnt nɔ de we dɛn dɔn gri fɔ fɔ NSF. Bikɔs dis sik nɔ kin bɔku, dɛn nɔ kin du bɔku risach bɔt aw fɔ mɛn am. Bɔt sɔm tritmɛnt dɛn de we dɔn mek sɔm pipul dɛn fil fayn:
- Dayalaysis: Dayalaysis de ɛp fɔ pul gadolinium na yu bɔdi afta yu dɔn du MRI. Dis kin ɛp fɔ pipul dɛm wae gɛt kidni sik. Bɔt, no garanti nɔ de fɔ se dis go stɔp NSF fɔ divɛlɔp.
- Fizik Tɛrapi: Fizik tritmɛnt kin ɛp fɔ mek yu jɔyn dɛn ebul fɔ muv ɛn ebul fɔ chenj.
- Kidni Transplant: Dis kin bi opshɔn fɔ sɔm NSF pasɛnt dɛn.
Di tin we impɔtant pas ɔl na fɔ avɔyd fɔ gɛt gadolinium if yu gɛt sik na yu kidni. Bɔt sɔntɛnde, gadolinium kin nid fɔ gɛt di bɛst pikchɔ dɛn frɔm MRI. If na so i bi, yu dɔktɔ go wej di bɛnifit dɛn we di MRI go gi yu ɛn di smɔl smɔl prɔblɛm dɛn we gadolinium kin gɛt .
Ustɛm a fɔ go to di dɔktɔ?
Wit di sefty mɛsej dɛm we de naw, yu chans fɔ divɛlɔp NSF dɔn ɔlmost ziro. Bɔt if yu gɛt sik na yu kidni ɛn yu dɔn arenj fɔ mek dɛn du MRI, i go fayn fɔ mek yu tɔk to yu dɔktɔ bɔt am.
Na di tɛm dɛn we yu fɔ go to yu dɔktɔ.
| Pozishɔn | Wetin fɔ du |
|---|---|
If yu gɛt sik na yu kidni ɛn yu gɛt dɛn sik ya afta yu dɔn gɛt kɔntrast day fɔ MRI:
| Si yu dɔktɔ wantɛm wantɛm. Tɔk bɔt yu sik dɛn klia wan. |
| If yu gɛt kidni sik ɛn yu dɔktɔ ɔda fɔ mek dɛn du MRI wit kɔntrast day. | Tɔk to yu dɔktɔ bɔt di risk fɔ NSF. Aks, "Risk de wit dis kɔntrast bikɔs a gɛt kidni prɔblɛm?" Tɛl am yu ful wɛlbɔdi istri. |
Pan ɔl we di nyu GBCA dɛn nɔ gɛt pɔyzin ɛn i tan lɛk se dɛn sef, i fayn ɔltɛm fɔ sheb yu wɛlbɔdi istri wit yu dɔktɔ ɛn tɔk bɔt ɛni prɔblɛm we kin apin.
Mɛsej we dɛn kin kɛr go na os
- Nephrogenic Systemic Fibrosis (NSF) na wan sik wae nɔr kin bɔrku naw wae kin kam wae dɛn kin gi pipul dɛm wae gɛt kidni sik ol kɔntrast day fɔ MRI.
- Dis kin mek di skin tik ɛn at, ɛn i kin afɛkt di jɔyn dɛn ɛn di ɔgan dɛn we de insay di bɔdi.
- Bikɔs dɔktɔ dɛn dɔn no mɔ bɔt dis risk naw ɛn dɛn de yuz sef, nyu kɔntrast day, dɛn nɔ dɔn ripɔt ɛni nyu kes fɔ NSF insay pas 10 ia.
- Bikɔs no patikyula tritmɛnt nɔ de fɔ dis, fɔ mek dɛn nɔ gɛt dis sik na di tin we impɔtant pas ɔl.
- If yu gɛt sik na yu kidni ɛn yu nid fɔ du MRI wit kɔntrast day, tɔk to yu dɔktɔ ɔltɛm bɔt di prɔblɛm dɛn we kin apin.
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