We yu dɔktɔ gi yu Nitisinone fɔ yu ɔ yu pikin we yu lɛk, i nɔmal fɔ gɛt bɔku kwɛstyɔn. Dis na bikɔs i nɔto mɛrɛsin fɔ wan kɔmɔn sik we ɔlman kin gɛt. So tide, lɛ wi tɔk bɔt dis mɛrɛsin we dɛn kɔl Nitisinone, wetin i rili de du, aw fɔ yuz am, ɛn wetin yu fɔ tek tɛm wit, ɔl dis na wan rili simpul we we yu go ɔndastand.
Us kayn mɛrɛsin dis? Wetin kin apin wit Nitisinone?
Fɔ tɔk am simpul wan, Nitisinone na wan mɛrɛsin we de slo ɛn kɔntrol di rit we wi bɔdi de brok wan amino asid we dɛn kɔl tayrosin. Tink bɔt tayrozin as bildin blɔk we dɛn kin yuz fɔ mek prɔtin na wi bɔdi.
Dɛn kin yuz dis mɛrɛsin spɛshal wan fɔ trit wan sik we nɔ kin bɔku, we dɛn kin gɛt frɔm dɛn mama ɛn papa we dɛn kɔl Hereditary Tyrosinemia Type I. Insay pipul dɛn we gɛt dis sik, di bɔdi nɔ kin ebul fɔ brok (mɛtabolayz) tayrosin fayn fayn wan. Dɔn i kin gɛda na di bɔdi ɛn tɔn to pɔyzin we kin pwɛl di liva, di kidni, ɛn di nervɔs sistɛm. So wetin Nitisinone de du na fɔ stɔp dɛn bad bad tin dɛn de fɔ mek dɛn nɔ mek dɛn.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu bigin dis mɛrɛsin, yu fɔ ɛksplen dɛn tin ya klia wan to yu dɔktɔ. Dis rili impɔtant fɔ mek yu sef.
- If yu gɛt alɛji fɔ Nitisinone ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ.
Aw a fɔ yuz dis mɛrɛsin?
I rili impɔtant fɔ tek di mɛrɛsin jɔs lɛk aw di dɔktɔ tɛl yu fɔ tek am, insay di rayt doz.
- Aw fɔ tek am: Sɔntɛnde yu kin sɔlv di pil insay smɔl wata ɛn gi am to yu pikin yuz sirinj we yu kin it. Ɔ, yu kin krɔs di pil ɛn miks smɔl wit sɔntin lɛk apul ɛn gi yu pikin. Bɔt ilɛk wetin yu du, yu fɔ yuz di mɛrɛsin wantɛm wantɛm afta yu dɔn mek am.
- Na di rayt tɛm: Mek am yu abit fɔ tek yu mɛrɛsin di sem tɛm ɛvride. Nɔ tek am bɔku tɛm pas aw yu dɔktɔ tɛl yu fɔ tek am.
- Nɔ stɔp fɔ tek dis mɛrɛsin wantɛm wantɛm: Nɔ ɛva stɔp fɔ tek dis mɛrɛsin if yu dɔktɔ nɔ advays yu. If yu du dat, dat kin mek yu sik wɔs.
Yu tink se dɛn kin gi dis mɛrɛsin to smɔl pikin dɛn?
Yɛs, dɛn kin gi dis mɛrɛsin ivin to pikin we dɛn jɔs bɔn wit dis sik. Bɔt dɛn fɔ du am ɔnda di wan we de kia fɔ pikin dɛn gud gud wan. Sɔm spɛshal tin dɛn de we yu fɔ tink bɔt we yu de gi pikin dɛn.
Impɔtant notis: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin.
Speshal pɔynt dɛn we yu fɔ tink bɔt we yu de tek di mɛrɛsin
Tu impɔtant tin dɛn de we yu fɔ pe atɛnshɔn to we yu de tek dis mɛrɛsin.
1. Tɛst ɛn chɛk-ap dɛn we dɛn dɔn sɛtul
I impɔtant fɔ go na di klinik fɔ chɛk-ap lɛk aw yu dɔktɔ tɛl yu fɔ du. We yu de tek dis mɛrɛsin, yu go nid fɔ mek dɛn du sɔm impɔtant blɔd tɛst dɛn ɔltɛm fɔ chɛk yu blɔd kɔnt ɛn aw yu liva de wok. Nɔ skip dɛn tɛst ya.
2. Spɛshal it fɔ it
Dis na di tin we impɔtant pas ɔl . Fɔ fala spɛshal it impɔtant lɛk, ɔ ivin impɔtant pas fɔ tek dis mɛrɛsin.
Yu go nid fɔ fala spɛshal it we yu de tek dis mɛrɛsin. Yu go nid fɔ stɔp di amino asid dɛn we dɛn kɔl Tyrosine ɛn Phenylalanine na yu it. Tɔk to yu dɔktɔ bɔt dis ɛn if nid de, tɔk to pɔsin we sabi bɔt it na gɔvmɛnt ɔspitul, ɛn fala dɛn instrɔkshɔn dɛn gud gud wan. If yu nɔ fala dis it fayn, yu nɔ go gɛt di ful bɛnifit fɔ di mɛrɛsin.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, Nitisinone kin mek sɔm sayd ɛfɛkt. Lɛ wi sheb dɛn tin ya to tu kategori.
| Sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
|---|---|
| Di sayn dɛn we de sho se pɔsin gɛt alɛji | Skin de rɔsh, it, swel na yu fes, lip, ɔ tong. |
| Di chenj dɛn we de apin na di yay | di vishכn de chenj, di yay dεm de rεd, di yay de pen, di sεnsitiv to layt. |
| Liva prɔblɛm dɛn | di yay ɔ di skin we de yɔlɔ, di urine we dak, di stɔl we gɛt tar, pen na di ɔp rayt say na di bɛlɛ. |
| Ɔda siriɔs sayn dɛn | Brus ɔ blɔd we nɔ kɔmɔn, taya pasmak, fil fiva, nɔ want fɔ it, nɔs, ɛn tin dɛn we de mek yu fil pen na yu an ɛn yu fut dɛn we de mek yu fil pen. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
|---|---|
| Rɔnbɛlɛ | Go pan wan loose stuol |
| Dray skin | Dray skin |
| Di ia we de lɔs | Di ia we de lɔs |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛni ɔda tin we nɔ kɔmɔn, tɔk to yu dɔktɔ.
Wetin fɔ du if yu mis wan doz ɛn drink tumɔs?
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dɛbul doz fɔ mek di doz we yu dɔn fɔgɛt.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ, go na di ɔspitul Imejɛnsi Yunit (ETU) we de nia yu kwik kwik wan.
Aw a fɔ kip di mɛrɛsin?
- Kip am usay pikin dɛn nɔ go ebul fɔ rich .
- Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs).
- Trowe di mɛrɛsin we dɔn pas.
Mɛsej we dɛn kin kɛr go na os
- Nitisinone na spɛshal mɛrɛsin we yu fɔ tek lɛk aw dɔktɔ tɛl yu fɔ tek am ɛn di we aw yu fɔ tek am.
- Apat frɔm we yu tek dis mɛrɛsin, i impɔtant bak fɔ fala spɛshal it (we nɔ gɛt bɔku tayrozin ɛn fɛnylalanin) we gɛt fɔ du wit am.
- Nɔ ɛva stɔp fɔ tek mɛrɛsin if yu nɔ gɛt dɔktɔ advays.
- Atɛnd klinik dɛn di de we dɛn dɔn sɛtul ɛn mek dɛn du ɔl di blɔd tɛst dɛn we yu nid.
- If yu notis ɛni siriɔs sayd ɛfɛkt, lɛk fɔ yɔlɔ na yu yay ɔ fɔ brus we nɔ kɔmɔn, tɛl yu dɔktɔ wantɛm wantɛm.
- Kip di mɛrɛsin dɛn na say we sef usay pikin dɛn nɔ go ebul fɔ rich.
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