We yu yɛri dis nem, yu go mɔs tink bɔt Poem, nɔto so? Bɔt dis nɔto stori bɔt poem. POEMS syndrome na wan sik wae nɔr kin bɔrku pan blɔd wae kin afɛkt wi bɔdi in nerv dɛm, difrɛn ɔgan dɛm, ɔmon sistɛm, ɛn skin di sem tɛm. I kin kɔmplikt smɔl fɔ no, bikɔs di sayn dɛm wae gɛt fɔ du wit am kin tan lɛk de sayn dɛm fɔ bɔrku ɔda sik dɛm. Na dat mek i rili impɔtant fɔ no bɔt dis.
Wetin mek dɛn kɔl dis POEMS?
I gɛt in nem frɔm di fɔs lɛta dɛn na fayv pan di men sayn ɛn sayn dɛm fɔ dis sik. Lɛ wi si wetin dɛn bi.
| Lɛta | Minin ɛn simpul diskripshɔn |
|---|---|
| P | Polyneuropathy: Dis kin min fɔ pwɛl di nerv dɛm ɔlsay na di bɔdi, mɔ na di limb dɛm. |
| O | Ɔrganomegaly: Na we sɔm ɔgan dɛn na di bɔdi, lɛk di liva, splin, ɔ limf no dɛn, big pas di nɔmal saiz. |
| E | Endocrinopathy: Na dizayd we di gland dεm (endocrine system) de wok na wi bכdi we de mek כmon dεm. |
| M | monoklonal protin: Dɛn kin kɔl am bak M-protɛin. di ay lεvεl dεm fכ wan abnכmal protin na di bכdi. |
| S | Di chenj dɛn we de apin na di skin:Tin dɛm lɛk we di skin kin chenj ɛn di skin kin tik. |
Sɔmtɛm wae e kin tek sɔm mɔnt fɔ tɛst fɔ no dis sik, bikɔs dɛn kin kɔnfyus dɛn sik ya izi wan wit bɔrku ɔda sik dɛm wae dɛn tek dɛn wan wan.
Wetin na di sayn dɛm fɔ POEMS syndrome?
Naw lɛ wi luk ditayli pan di sayn dɛm fɔ ɛni pat pan di POEMS we wi dɔn tɔk bɔt ɔp.
- P - Nεv dεm we dεn dכn pwεl (Polyneuropathy): Dis na di fכs tin we bכku pipul dεn kin notis. Di fut finga ɛn fut dɛn kin fil lɛk se dɛn nɔ gɛt bɛtɛ trɛnk, dɛn kin gɛt tik, ɛn dɛn kin fil lɛk se dɛn de bɔn ɔ dɛn kin fil shap pen . As tɛm de go, dis sik kin pas to di an. Di trɛnk we de na di an dɛn kin go dɔŋ, ɛn yu nɔ kin ebul fɔ ol ɛnitin na yu an. If tin tranga, i kin tranga fɔ tinap, waka, ɛn ivin blo.
- O - Organomegaly: Yu liva, splin, כ limf no dεm kin swεla. Dis kin mek yu gɛt sɔm sayn dɛm lɛk fɔ fil ful, yu bɛlɛ de pen ɔ yu de blo, ɛn yu taya pasmak .
- E - Hכmon chenj (Endocrinopathy): כmon chenj kin mek tin dεm lεk we i nכ want fכ du mami εn dadi biznεs, milk we de kכmכt na di brεst (fכ uman εn man), εn di an εn fut dεm we de swel .
- M - abnכmal M-protein: dis protin kin bכku insay di b כdi εn mek di bon dεm wik כ dεn de pwεl , we kin mek di bon dεm pen.
- S - Skin de chenj: Di skin kin dak pas aw i kin bi. Sɔntɛnde, di skin kin tik, ɛn rɛd spat dɛn kin apia na di chɛst. I kin bak se di ia kin gro mɔ ɛn mɔ na di fes ɛn leg, ɛn di nel dɛn kin tɔn wayt .
Wetin mek sɔntin lɛk dis kin apin?
Dɛn nɔ no yet wetin mek dis kin apin, bɔt dɔktɔ dɛn ɛn pipul dɛn we de stɔdi bɔt dis biliv se i gɛt fɔ du wit di we aw wan kayn sɛl na wi bɔdi we dɛn kɔl plasma sɛl nɔ de wok fayn .
Fɔ tɔk am simpul wan, dɛn plasma sɛl dɛn ya we nɔ de na di bɔdi kin pul di M-protɛin we wi bin tɔk bɔt insay di blɔd. dis abnכmal sεl dεm εn di M-protein de kam togεda fכ pwεl difrεn pat dεm na di bכdi. Apat frɔm dat, dɛn sik pipul ya gɛt bɔku bɔku prɔtin we dɛn kɔl Vascular Endothelial Growth Factor (VEGF) bak na dɛn blɔd. dis VEGF protin de mek wata lik frכm di bכdi vεsul dεm to di tisu dεm we de rawnd. Dis ekstra wata kin mek yu swel, di ɔgan dɛn kin big, ɛn di nerv dɛn kin pwɛl.
Yu tink se dis tin we de apin kin rili siriɔs?
Yɛs, sɔntɛnde, POEMS sindrom kin tranga kwik kwik wan, ɛn dis kin mek i gɛt prɔblɛm dɛn we kin mek pɔsin in layf de pan denja.
Sɔm pan dɛn na:
- Capillary Leak Syndrome: di כgan dεm we de fεil kin apin bikoz fכ di wata we de lik pasmak frכm di bכdi vεsul dεm.
- Restrictive Lung Disease: I nɔ kin izi fɔ blo bikɔs di lכng nɔ kin ebul fɔ ɛkspɛn fayn fayn wan.
- Pulmonary Hypertension: Prɛshɔn pasmak na di blɔd vesel dɛm we de kɛr blɔd go na di lɔng dɛm.
So, if yu gɛt sɔm sayn dɛm, i rili impɔtant fɔ go to dɔktɔ ɛn bigin fɔ trit yu kwik kwik wan.
Aw dɔktɔ kin fɛn dis?
We yu go to dɔktɔ, i go tek tɛm lisin to yu sayn dɛn. Dɔn i go chɛk yu bɔdi ɛn tɛl yu fɔ du bɔku tɛst fɔ no if yu gɛt di sik.
| Tɛst | Wetin yu de chɛk? |
|---|---|
| Blɔd ɛn urine tɛst | di M-protein כ VEGF lεvεl dεm dεn de chεk fכ abnכmal plasma sεl dεm. |
| Test fɔ imej (X-ray, CT skan) . | Dɛn de luk fɔ si if di M-protɛin dɔn mek di bon dɛn pwɛl. |
| Bɔn mɛrɔ bayɔpsi | i de chεk fכ abnכmal plasma sεl dεm na di bon mכro. |
| Ilɛktrɔmayogram (EMG) . | Dɛn de mɛzhɔ di we aw yu nerv de wok. |
Apat frɔm dat, dɛn kin du tɛst fɔ brith, ɛkokardiogram, ɛn ɔmon tɛst dipen pan di sayn dɛn we yu gɛt.
Wetin na di tritmɛnt dɛm fɔ dis?
Di men gol fɔ tritmɛnt na fɔ kɔntrol di sayn dɛm ɛn di abnɔmal plasma sɛl dɛm. Difrɛn tritmɛnt dɛn de fɔ dis.
- Kimotɛrapi: Dis tritmɛnt de pwɛl di plasma sɛl dɛn we nɔ de wok ɔ i de stɔp dɛn fɔ gro.
- Immunotherapy: Dɛn mɛrɛsin ya kin ɛp fɔ yuz yu yon imyun sistɛm fɔ pwɛl di plasma sɛl dɛn we nɔ de wok fayn.
- Radieshɔn tɛrapi: Radieshɔn tɛrapi de pwɛl di plasma sɛl dɛn we nɔ de wok.
- Autologous stem cell transplant: Dis min se yu fɔ pul di abnɔmal plasma sɛl dɛn na yu bɔdi ɛn put stem sɛl dɛn we gɛt wɛlbɔdi.
- Fizik tritmɛnt: Di nerve we de pwɛl kin mek i nɔ izi fɔ waka ɛn du tin dɛn we pɔsin kin du ɛvride. Fɔ ɛksesaiz fɔ yuz yu bɔdi kin ɛp yu fɔ gɛt trɛnk bak.
- Saikɔlɔjik sɔpɔt: Fɔ liv wit wan sik wae nɔr kin bɔrku, wae nɔr kin mɛn lɛk dis kin tranga na yu maynd. Dis kin mek yu gɛt tin dɛn lɛk fɔ wɔri ɛn pwɛl hat. If yu go to pɔsin we de advays yu fɔ ɛp yu, dat kin ɛp yu fɔ kɔntrol dis strɛs.
Aw lɔŋ yu kin liv wit dis sik?
Dis na prɔblɛm we bɔku pipul dɛn gɛt. If dɛn no di sik kwik kwik wan ɛn trit am fayn, bɔku pipul dɛn kin liv 10 ia ɔ pas dat afta dɛn dɔn no se dɛn gɛt am. Nyu mɛrɛsin dɛn de naw fɔ mɛn dis sik. Bɔt dis kin difrɛn frɔm wan pɔsin to ɔda pɔsin. De bɛst pɔrsin fɔ gɛt di bɛst ɛksplen ɛn ɔndastandin bɔt yu sik na yu dɔktɔ. So tɔk to am opin wan bɔt am.
Mɛsej we dɛn kin kɛr go na os
- POEMS syndrome na wan sik wae nɔr kin bɔrku bɔt wae gɛt siriɔs blɔd sik wae kin afɛkt sɔm bɔdi sistɛm dɛm.
- dis nem kכmכt frכm di fכs lεta dεm fכ in men fכm dεm: Polyneuropathy , Organomegaly , Endocrinopathy , M -protein, εn Skin chenj.
- If yu leg dɛn de swɛla ɔltɛm, yu de swel, ɔ yu skin de chenj, nɔ ignore dɛn.
- Fɔ no di sik kin tranga ɛn i kin tek bɔku tɛm, bɔt naw dɛn gɛt tritmɛnt dɛn we rili fayn fɔ kɔntrol di sik.
- If yu gɛt ɛni sayn we yu nɔ biliv, go to yu dɔktɔ wantɛm wantɛm fɔ advays.
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