We yu dɔktɔ tɛl yu ɔ pɔsin we de nia yu se yu gɛt Amyotrophic Lateral Sclerosis (ALS), i nɔmal fɔ fil ebi ebi lod pan yu at. Sɔm pipul dɛn kin kɔl dis sik bak ‘Lou Gehrig’s disease’. Dis na sik we gɛt fɔ du wit di nervɔs sistɛm we de mek di mɔsul dɛn na di bɔdi wik smɔl smɔl. Pan ɔl we no mɛrɛsin nɔ de fɔ dis sik, mɛrɛsin dɛn de we go ɛp fɔ kɔntrol di spid we i de spid ɛn mek layf izi smɔl. Riluzole na wan pan dɛn kayn mɛrɛsin dɛn de. So tide, lɛ wi tɔk bɔt dis Riluzole likwid mɛrɛsin (oral suspension) insay simpul wɔd dɛn.
Fɔ tɔk am simpul wan, wetin na Riluzole?
Riluzole na wan mɛrɛsin we de ɛp fɔ slo di prɔgrɛs fɔ Amyotrophic Lateral Sclerosis (ALS). I kin woke bay we i de slo fɔ mek di sik go bifo. Tink bɔt am lɛk se yu de slo motoka. I nɔ de mɛn di sik ɔltogɛda, bɔt i de ɛp di pɔsin fɔ du in ɛvride wok fɔ sɔm tɛm ɛn te to sɔm mak i de delay di biginin fɔ di sayn dɛm lɛk fɔ shɔt brith. Dis drɔg de bak ɔnda di brand nem Tiglutik.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu bigin fɔ tek Riluzole, i impɔtant fɔ mek yu dɔktɔ no yu kɔmplit wɛlbɔdi istri. Mek shɔ se yu tɛl yu dɔktɔ bɔt dɛn tin ya we yu nɔ ayd ɛnitin .
- If yu gɛt ɛni sik na yu liva .
- If yu bin dɔn gɛt alɛji fɔ Riluzole, ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ .
- If yu na mama we de gi pikin in bɛlɛ .
I rili impɔtant fɔ tɛl yu dɔktɔ dis infɔmeshɔn kɔrɛkt wan, fɔ yu sef ɛn fɔ gɛt di bɛst bɛnifit frɔm di mɛrɛsin.
Aw ɛksaktɔli yu kin yuz dis mɛrɛsin?
Fɔ mek yu go bɛnifit ɔl dis mɛrɛsin, i rili impɔtant fɔ yuz am kɔrɛkt wan.
- Dis na wata mɛrɛsin we dɛn kin tek bay mɔt. Yu fɔ shek di bɔtul fayn fayn wan bifo yu yuz am.
- Yuz di spɛshal spun ɔ drɔp nɔmɔ we de wit di mɛrɛsin fɔ mɛzhɔ am. Nɔ yuz ti spɔnj ɔltɛm frɔm yu kichin, bikɔs dɛn nɔ go gi yu kɔrɛkt mɛzhɔmɛnt.
- Dis na di tin we impɔtant pas ɔl: Dɛn fɔ tek dis mɛrɛsin we yu ɛmti bɛlɛ . Dat min se, at le wan awa bifo yu it ɔ tu awa afta yu it. If yu tek am wit it, dat kin mek di mɛrɛsin nɔ go insay di bɔdi.
- Tek di mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu, di tɛm we dɛn tɛl yu. Nɔ inkrisayz di doz ɔ tek am mɔ ɛn mɔ, ilɛksɛf yu fil se yu want am.
- Nɔ stɔp fɔ tek di mɛrɛsin wantɛm wantɛm if yu dɔktɔ nɔ advays yu.
- If yu de gi pikin dɛn dis mɛrɛsin, yu fɔ go to dɔktɔ we de mɛn pikin dɛn bɔt am. I kin nid spɛshal kia.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek di nɛks doz, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek tu doz wan tɛm fɔ mek di doz we yu dɔn fɔgɛt.
Wetin fɔ du if di mɛrɛsin doz go ɔp?
If yu tink se yu dɔn tek bɔku mɛrɛsin, go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu wantɛm wantɛm . Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Ɔda tin dɛn we yu fɔ no bɔt we yu de tek Riluzole
- Si yu dɔktɔ ɔltɛm: Si yu dɔktɔ pan di de dɛn we dɛn dɔn sɛtul fɔ si aw di mɛrɛsin de afɛkt yu.
- Tek tɛm wit infɛkshɔn: Yu bɔdi in ebul fɔ fɛt sik (immunity) kin ridyus smɔl we yu de tek dis mɛrɛsin. So, if yu gɛt sɔm sayn dɛn lɛk fiva, kol, bɔdi we de at, ɔ trot we de at, nɔ fɔ tek mɛrɛsin fɔ yusɛf ɛn go to dɔktɔ wantɛm wantɛm. Tray fɔ de fa frɔm pipul dɛn we sik.
- Tek tɛm wit mɛrɛsin dɛn we de mek yu fil pen: Nɔ tek mɛrɛsin dɛn we de mek yu fil pen lɛk aspirin, paracetamol, ɛn ibuprofen we yu nɔ go to yu dɔktɔ, bikɔs dɛn tin ya kin stɔp di sayn dɛn lɛk fiva.
- Drɔw ɛn diziz: Dis mɛrɛsin kin mek yu fil fɔ slip ɔr yu ed de tɔn. So, nɔ drayv, yuz mashin, ɔ du ɛnitin we nid fɔ pe atɛnshɔn te yu no gud gud wan aw dis mɛrɛsin de afɛkt yu. If yu na ol pɔsin, tinap smɔl smɔl, lɛk we yu grap na chia.
- Smok: Tɛl yu dɔktɔ if yu de smok. If yu smok, dat kin mek dis mɛrɛsin nɔ wok fayn. If yu de tink bɔt fɔ lɛf fɔ smok, tɔk to yu dɔktɔ bɔt dat.
Posisibul sayd effekt dεm εn di intarakshכn dεm we di dכg kin gεt
Lɛk ɔl di mɛrɛsin dɛn, Riluzole kin mek yu gɛt sayd ɛfɛkt. I pɔsibul bak se dis mɛrɛsin kin miks wit ɔda mɛrɛsin dɛn. I impɔtant fɔ no bɔt dis.
| Wetin fɔ pe atɛnshɔn to | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛn we nid fɔ go to dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na di fes, lip ɔ tong. |
| Simptom dɛm fɔ Liva Injury | Dak yɔlɔ ɔ brawn urine, yu yay ɔ skin de yɔlɔ, pen na di ɔp rayt pat na di bɛlɛ, yu nɔ de want fɔ it, yu nɔ de fil fayn, yu taya we yu nɔ kɔmɔn. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, ɛn trot we de at. |
| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Kɔmɔn sayd ɛfɛkt dɛn | Kɔf, ed pen, nɔs, vɔmit, bɛlɛ pen, taya. |
| Intarakshɔn wit Riluzole | |
| Ɔda drɔgs ɛn tin dɛn we dɛn kin yuz | Mɛrɛsin dɛm lɛk Allopurinol, bɔn kɔntrol pils, Ciprofloxacin, Fluvoxamine, Methyldopa, Sulfasalazine, ɛn ɔda tin dɛm Apat frɔm dat, tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin, vaytamɛn, tradishɔnal mɛrɛsin, rɔm, ɛn smok we yu de tek. |
Aw fɔ kip di mɛrɛsin?
- Kip am na say we sef we pikin dɛn nɔ go ebul fɔ rich .
- Nɔ put am na frij. Stɔr am na rum tɛmpracha (bitwin 15 ɛn 30 digri sɛlshiɔs) .
- I rili impɔtant:Trowe ɛni mɛrɛsin we lɛf 15 dez afta yu dɔn opin di bɔtul fɔs. Nɔ yuz am fɔ pas 15 dez.
Mɛsej we dɛn kin kɛr go na os
- Riluzole nɔto mɛrɛsin fɔ ALS, bɔt i de ɛp fɔ kɔntrol aw di sik de go bifo.
- Ɔltɛm tek dis mɛrɛsin wit ɛmti bɛlɛ, dat na wan awa bifo ɔ tu awa afta yu it.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn ɔda mɛrɛsin dɛn we yu de tek.
- Go to dɔktɔ wantɛm wantɛm if yu gɛt siriɔs sayd ɛfɛkt lɛk fiva, yu skin yɔlɔ, ɔ alɛji.
- Trowe ɛni mɛrɛsin we lɛf 15 dez afta yu opin di bɔtul.
- Nɔ ɛva stɔp fɔ tek mɛrɛsin ɔ chenj di doz if yu dɔktɔ nɔ advays yu.
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