Cysteamine capsule chungchang zawng zawng hi a awlsam zawngin i zir vek ang u.

Nangmah emaw i hriat mi emaw doctor-in cysteamine an tih damdawi a pe tawh em? Chutiang a nih chuan he damdawi chungchang hi tlem tal hriat a pawimawh. A hming i hriat chuan mak i ti deuh mai thei, mahse lungngai suh. I thianpa nena inbia ang maiin awlsam takin sawi ila.

Cysteamine hi eng damdawi nge ni?

A awlsam zawngin sawi ila, cysteamine hi kan taksaa thil awm cystine an tih chu a ti chhe thei a ni. A bik takin, nephropathic cystinosis tih natna enkawlna atan hman a ni. Hei hi naupang tê tê leh puitlingte pawh a vei thei a ni.

Ngaihtuah teh, kan taksaa thil awmte hian hna a thawk tha lo a nih chuan thil thenkhat chu a tam lutukin a pungkhawm thei a ni. Entirnan, Nephropathic cystinosis vei tan chuan amino acid cystine an tih chu taksaah a pungkhawm a, a bik takin kal (kidney)-ah a awm khawm thin. Hei hian kal (kidney) a tichhe thei a ni. Cysteamine hian cystine awm zat tihtlem nan a pui a ni.

Hriat reng tur pawimawh: He damdawi hi natna tihdamna famkim a ni lo. Mahse, natna chu a thunun thei a, a chhiatna a tihziaawm thei bawk. Chuvang chuan doctor-in a sawi ang chiaha hman a pawimawh.

He damdawi hi a chang chuan doctor-te chuan natna dang atan an pe thei bawk. Hemi chungchanga zawhna i neih chuan doctor emaw pharmacist emaw zawt la. He damdawi hi Cystagon tih brand name hnuaiah pawh a awm tlangpui bawk.

He damdawi hi ka hman hmain medical team te hnenah eng nge ka hrilh ang?

Cysteamine i hman tan hmain i doctor emaw healthcare team emaw hnenah hetiang hian hrilh hmasa phawt ang che:

• Heng zinga pakhat tal i neih chuan:
• Ruh lama harsatna (e.g., ruh chak lo, ruh tliak awlsam) .
• Depression emaw nervous system lama harsatna dang emaw a awm thei
• Thisen natna history i neih chuan
• Tun hmaa pum thisen chhuak i neih tawh chuan (history of stomach bleeding) .
• Liver natna - a chhan chu damdawi tam tak hi liver-in a process vang a ni.
• Seizures, epilepsy ang chi te
• Vun dinhmun emaw, sensitivity emaw
• Pum emaw, intestine emaw lama harsatna nei
• Hei hi allergy i neih chuan:
• Cysteamine atan chuan
• A damdawi chu penicillamine a ni
• Damdawi dang eng pawh, ei tur, dye emaw preservative emaw
• Naupai emaw, nau pai tum emaw i nih chuan.
• Nu hnute pe lai i nih chuan.

Heng zawng zawng hi i doctor hnenah hrilh vek a pawimawh hle a , a chhan chu chutih hunah chauh chuan he damdawi hi i tan a tha em tih emaw, a bik taka enkawl a ngai em tih emaw an rel thei dawn a ni.

He damdawi hi engtin nge ka hman ang?

He damdawi hi capsule angin a awm a, chu chu i ei a ni. Tui glass khat nen la rawh. I doctor-in a tih ang chiah khan prescription label-a thupekte chu zawm rawh.

• A chang chuan capsule chu hawngin damdawi chu powder food-ah i pawlh thei bawk. Mahse i tih hmain i doctor emaw pharmacist emaw hnenah zawt hmasa phawt ang che.
• Damdawi chu a hun takah, a zat dik takah ei rawh . I doctor-in a tih aia tam emaw, a tam emaw ei loh tur.

He damdawi hi naupangte hnena i pek chuan:

He damdawi hi naupang thlan bikte tan pawh pek a ni. Mahse, hei hi i naupang enkawltu nen sawiho la, a thupekte chu zawm ngei ang che. Naupangte damdawi pek dawnin fimkhur tur bik a awm thei.

Damdawi i ei tam lutuk chuan engtin nge i tih ang? (A tam lutuk): 1.1.

He damdawi hi i ei tam lutuk nia i hriat chuan poison control center emaw, emergency room hnai ber emaw call nghal rawh. Hun khawhral suh.

Pawimawh: He damdawi hi i tan chauh pek a ni. Midangte hnenah pawh share ngai suh, nangmahni symptoms ang chiah kha nei mahse.

Damdawi dose pakhat i ei loh chuan engtin nge i tih?

Dose i ei theihnghilh chuan i hriatreng veleh ei nghal rawh. Mahse, i dose leh tur thleng darkar 2 aia rei lo a nih chuan missed dose kha skip la, i dose leh tur chu a hun ruatah ei rawh. Double dose emaw extra dose emaw ei ngai suh.

He damdawi nen hian eng thil dang nge inzawm thei?

He damdawi hian inzawmna lian tham a thlen beisei a ni lo. Mahse, he list-ah hian inzawmna zawng zawng a awm lo mai thei.

Chuvangin, damdawi dang i ei zawng zawng (prescribed emaw over-the-counter emaw), herbs, leh dietary supplement te chu i doctor hnenah hrilh rawh. Tin, zu i in emaw, zu i in emaw, ruihhlo i hman emaw chuan i doctor hnenah hrilh bawk ang che. Thil thenkhat chu i damdawi nen a inzawm thei.

He damdawi hman lai hian eng thilte nge fimkhur tur?

• I doctor hnenah check-up neih fo tur a ni. He damdawi i ei lai hian i thisen zat enfiah nan thisen test neih fo a ngai dawn a ni.
• Mutthilh emaw, luak chhuak emaw i ti thin.I luak chhuak thei. He damdawi hian engtin nge a nghawng che tih chiang taka i hriat hma chuan lirthei khalh te, machinery hman te, fimkhur ngai thil eng pawh tih loh tur a ni.
• Ding leh thut thut suh, a bik takin tar i nih chuan. Hei hian luak chhuak leh tlu hlauhawmna a tiziaawm thei a ni.

He damdawi hian eng side effect nge a neih theih?

Damdawi dang ang bawkin cysteamine hian side effect engemaw zat a nei thei a ni. Ṭhenkhat chu serious an ni a, ṭhenkhat erawh chu an serious lo tlangpui.

Doctor emaw healthcare professional emaw hnena hriattir nghal tur side effects:

• Allergic reactions: vun rawng, vun hring emaw, hive emaw, hmai, hmui emaw lei emaw a hring.
• Ruh na emaw, ruh tliak emaw.
• Thâwk lama harsatna a awm.
• Mit hmuhna lama inthlak danglamna.
• Buaina, lungngaihna emaw, rilru natna dang emaw a awm thei.
• Zun dum.
• Mit na a na.
• Faint emaw lightheaded emaw tih hriatna, a tlu.
• Khawsik emaw, khawsik emaw, ril na ang chi symptoms te.
• General ill feeling emaw flu ang chi natna emaw a awm thei.
• Nausea, luak chhuak.
• Vun rawng dum (purple skin lesions) a awm.
• Beng ah chuan a ri ta.
• Seizures a awm thin.
• Zun chhuah harsatna emaw, zun tam dan inthlak danglam emaw.
• Thisen chhuah emaw, hliam emaw danglam tak.
• Thil danglam taka chak lohna emaw, chau emaw anga inhriatna.
• Mit emaw vun emaw a sen – Hei hi liver problem a ni thei.

Hetiang thil i hmuh chuan a rang thei ang bera doctor rawn la.

Side effects, a tlangpuiin damdawi lam pan ngai lo (mahse a awm reng emaw, a buaithlak emaw chuan doctor hnenah hriattir tur a ni):

• Constipation emaw riltam emaw.
• Mutthilh theih lohna.
• Lu na .
• Chaw ei chakna hloh.
• Pum a na.
• Thâwk nuam lo tak.

He list-ah hian side effect zawng zawng a tel lo mai thei. Thil danglam bik i hriat chuan doctor hnenah hrilh rawh. I duh chuan FDA (Food and Drug Administration) hnenah 1-800-FDA-1088 ah side effects i report thei bawk.

Engtin nge ka damdawi hi ka dahkhawm ang?

• Naupangte hmuh theih lohna hmunah dah rawh. Hei hi a pawimawh hle.
• Room temperature (20 leh 25 degree Celsius inkar, emaw 68 leh 77 degree Fahrenheit inkar) ah dah tur a ni.
• Hmun vawt takah dah la, direct light atanga hla takah dah rawh .
• Damdawi expire tawh chu hmang lovin paih mai rawh.

A tawp berah chuan thil hriat reng tur (Take-Home Message) .

Okay, chuvang chuan cysteamine chungchang hi kan sawi nasa hle. Hei hi damdawi pawimawh tak, nephropathic cystinosis an tih natna enkawlna atana puitu a ni tih hre reng ang che.

A pawimawh ber chu he damdawi hi i doctor-in a sawi ang chiah, a dose dik takah, a hun takah ei tur a ni. Dose thlak ngai suh la, nangmah chauhin damdawi ei kha bansan ngai suh.

• Zawhna emaw, ngaihtuahna emaw i neih chuan i doctor, pharmacist, healthcare provider emaw zawt hreh suh.
• Side effects te hi hre reng la, a bik takin kan sawi tawh side effects na tak tak i hriat chuan doctor lam pan nghal rawh.
• Medical checkup neih fo turin kal rawh.

He information sheet hi a tawi zawng chauh a ni. A chipchiar zawng zawng a huam lo mai thei. I doctor hi i dinhmun atana thurawn dik ber pe thei tur che a ni. Chuvangin, engkim chungchang sawipui la, chinfelsak rawh. Dam leh thuai turin duhsakna kan hlan e!

` Cysteamine, Nephropathic cystinosis, Cystine, Cystagon, Damdawi, Kal natna