Nu nih i beisei lai tluka nunah hian hun duhawm zawk a awm lo mai thei. Nu tin hian thla sawm chhung zet a pum chhunga naute lo seilian tur chu mumang neiin engkim a tha vek ang tih beiseiin an mumang a ni. Mahse, a chang chuan Doctor hnen atangin beisei loh thu kan hre thin. A bik takin naupai lai ultrasound scan hnuah naute hian piansualna engemaw zat a nei tih hmuhchhuah a nih chuan nu leh pate’n an hriat natna leh mangang lutuk chu tawngkam hmanga sawi chhuah a harsa thin. Vawiin hian ‘Spina Bifida’ chungchang kan sawi dawn a, natna khirh tak a ni a, mahse tunah chuan enkawlna thar a awm tawh avangin beiseina engemaw zat a awm ta.
A awlsam zawngin, Spina Bifida chu eng nge ni?
Spina bifida hi piansualna a ni a, naute dam chhung kar hmasa berah a awm thin. Kan ruhro hi kan taksa pum pui thunun theitu, ruhro (spinal cord) humhimtu venhimna kawr angin han ngaihtuah teh. Spina bifida-ah chuan ruh ruhte chu a khar tha lo va, ruhroah hawnna emaw, khur emaw a awm thin.
He hawnna hian ruhro leh a inzawm nerve te a tichhia a ni. He chhiatna hian harsatna lian tak a thlen thei a, chu chuan naupang chu an dam chhung zawngin a nghawng thei a ni.
- Paralysis: Ke pahnih a hnathawh a bo vek emaw, a then emaw.
- Bowel leh bladder control chungchanga harsatna: I duh huna bowel leh bladder control theih lohna.
- Zirna lama harsatna nei: Naupang thenkhat chuan zir harsa an nei thei.
- Hydrocephalus : Hei hi harsatna lian tham ber a ni. A awlsam zawngin sawi ila, thluaka tui awmkhawmin thluaka pressure a siam a ni. Hei hi enkawlnaah chuan surgery hmanga tui tam lutuk paih chhuah nan shunt an tih tube bik dah a ni tlangpui.
Fetal Surgery - Eng nge ni tak tak?
Thuthlung hluiah chuan naute spina bifida vei a pian chuan darkar 48 chhungin operation an ti a, a hnungzang hliam inhawng chu khar a ni. Mahse chutih lai pawh chuan nerve chhiatna thenkhat chu a thleng tawh ngei ang.
Mahse kum 1990 chho tawp lam atang khan United States-a damdawi in engemaw zatah doctor pawl pakhat chuan thil danglam tak, thil hmasawn zawk tak chu an enchhin tan ta a ni. Chu chu naute pian hma, nu pum chhunga a la awm laiin, naute hnungzang hliam chu khar turin operation an ti a ni. Hei hi ‘fetal surgery’ emaw ‘fetal surgery’ emaw an ti a.
He surgery hian a tum ber chu nerve chhiatna lo thleng tawh chu tihdanglam a ni lo. Chu chu tih theih a ni lo. Mahse, a tum ber chu naute pum chhunga a awm chhung zawnga hliam chu a inhawng reng avangin chhiatna dang thleng thei tur tihtawp emaw, tihtlem emaw a ni.
Ngaihtuah teh, heng nerve te hi naute chu a pum chhunga a awm laiin a hual veltu amniotic fluid a inhriat hian a tichhe zual sauh a ni. Chuvangin, doctor-te chuan hei hi khar hmasak a nih chuan chu chhiatna chu a tlem thei hle niin an ngai.
Hei hi ‘magic’ a ni lo - eng nge a hlauhawmna leh a rah chhuah?
Hei hian beiseina ropui tak a siam a, mahse hei hi mi zawng zawng tana rah chhuah inang, risk awm lo pe thei tur ‘magic’ a ni lo tih kan hriatthiam a ngai. Hei hi surgery buaithlak tak leh risky tak a ni a, research stage-ah a la awm reng a ni.
Naupang thenkhat chuan he surgery an neih hnuah hian hmasawnna mak tak tak an nei thin. Entirnan, operation nei Nicholas hi kum hnih mi lek a nih laiin tanpuina nei lovin a kal a, a thluaka shunt a mamawh lo. A nu chuan operation hi nei lo se chuan a fapa hi hetiang hian a kal ngai lovang a ti.
Mahse, thawnthu zawng zawng hi chutiang chuan a hlimawm vek lo. Naupang dang ‘Nathan’ chu kar 7 a nihin a thluaka shunt dah a ngai a, kum hnih a nih meuh chuan a la kal thei lo. Amaherawhchu, a rilru lama hmasawnna leh a finna hi a kum a zirin level tha takah a awm a ni.
Chuti a nih chuan i hmu a ni lawm ni? Mi tinah result a inang lo hle. Chuvangin he surgery i neih hma hian a hlauhawmna i hriat chian a ngai a ni.
| Nausen surgery avanga hlauhawm ber berte | |
|---|---|
| Nu tan risk a awm | Naute tana hlauhawm thei tur |
| Surgery hian nausen pum a tichhia thei a, thisen a chhuah nasa lutuk thei bawk. | Prematurity tih a ni. Hei hi risk lian ber a ni. Nausen tam tak chu a hun hmaa piang an ni a, chu chuan hriselna lama harsatna dang a thlen thei a ni. |
| Hri kai theihna dinhmun lo awm. | Surgery neih lai emaw, operation hnu emawa harsatna a awm chuan naupang nunna pawh a tichhe thei tih hi a tlem hle. |
| Nau piang hmasa control nana damdawi pek avanga side effects. | |
| Pawimawh tak: He operation hnu hian nakin lawka naute lo piang tur zawng zawng chu cesarean section hmanga nau neih vek a ngai dawn a ni . | |
Chu thutlukna harsa tak chu nu leh pate siam a ni
Chûng zawng zawng chu hriain, engtin nge nu leh pate hian chutiang thu tlûkna chu an siam? A hmaa kan sawi tawh Kelly chanchin hi han thlir ila. Kar 17 mi lek a nih laiin scan atanga a naute hian spina bifida a vei tih a hriat chuan "second khat chhung" chauh nau pai chu a ngaihtuah a, mahse he surgery chungchang a hriat chuan risk zawng zawng chu la vek a, chu chu kalpui a tum ta a ni.
Surgery an neih hnu kar hnih hnuah chuan a hlauhawmna chu a lo lang tan tak zet a ni. A nausen pum chu amniotic fluid a leak tan ta. Chuvangin naute a pian hma chu damdawi inah a awm a ngai ta a ni. A pasal leh a fanu kum 7 mi chu weekend-ah chauh in lamah a hmu thei a ni.
Mahse heng lungngaihna zawng zawng karah hian thawnthu nghet tak a sawi a ni. "Hetiang surgery ka neih hi ka lawm hle. A chhan chu tunah chuan, 'Aw, chutih laia chutiang chu ti ta ila engtin nge ni ang?'
Hei hian damdawi lam thutlukna aiin thinlung taka thutlukna a ni zawk tih a tilang a ni. Hei hian naupang chu a tidam vek dawn lo tih an hria. Mahse naupang nunphung a tichangtlung thei a, a tawrhna a tihziaawm thei a nih chuan chu nu leh pate chuan hun remchang pek chu an ngaihtuah nawn leh dawn lo.
Take-Home Thuchah a ni
- Spina Bifida hi nau piangsual na tak a ni a, mahse damdawi lam enkawlna leh taksa enkawlna tha tak a awm chuan naupang chu nun tha tak nei turin a pui thei a ni.
- Fetal surgery hi enkawlna kawng hmasawn tak a ni a, research stage-ah a la awm reng a ni. A tum ber chu natna tihdam a ni lo va, a chhiatna tih tlem a ni.
- He surgery hi nu leh naute tan pawh risky tak a ni. A bik takin nau piang hmasa hi hlauhawmna lian tak a ni.
- Surgery result hi mi hrang hrangah a inang lo hle. Naupang thenkhatin hmasawnna nasa tak an lantir laiin, mi zawng zawngin result inang an hmu vek lo.
- Nangmah emaw, i hriat mi emaw chuan hetiang dinhmun hi i hmachhawn a nih chuan, a ṭha ber chu i doctor nen inbiakna zau tak leh rei tak neih hi a ni . A ṭhatna, a ṭhat lohna, a hlauhawmna, leh i ngaihtuah tûr bik eng pawh chu chiang taka hriatthiam a pawimawh hle.
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