I fa hian scoliosis a nei em? Neuromuscular scoliosis chungchang hi i zir dawn nia!

I fate hnungzang chu tlem a ben ang maiin, a sir khatah a rit ang tih i hre ngai em? Thut emaw, ding nghet emaw a harsat hmel em? A châng chuan naupangin borem vangin a ti niin kan ngai ṭhin. Mahse, heng thilte hnuaiah hian Neuromuscular Scoliosis tih natna a awm thei a ni. Ngaihtuah buai suh, vawiinah hian thumal awlsam takin engkim kan sawi dawn a ni.

Neuromuscular Scoliosis hi eng nge ni?

A awlsam zawngin sawi ila, hei hi kan naute ruhro chu a sir khatah kan hrual a ni. A tlangpuiin ruhro chu a laiah a dinglam tur a ni. Mahse hetiang dinhmunah hian ruhro (``Vertebrae'' kan ti) te chu a sir lamah tlem a inher a, chu chuan ruhro chu "C" emaw "S" angin a curve ta a ni Hei hi back bend mai ni lovin, naupang nervous system (chu chu thluak, spinal cord, leh nerve) leh muscle te nghawng thei underlying condition dang nen pawh a thleng ve bawk.

Tunah chuan han ngaihtuah teh, kan fate chu zanriah ei dawhkanah "an hnungzang ding nghet turin" kan ti thin a ni lawm ni? A nih loh leh "khumah chutiang chuan thu lo turin" kan vaukhân bawk. Mahse hetiang natna nei naupang tan chuan dinglam hawia thut hi thil harsa tak a ni. An tum pawhin a harsa thei a, a chang chuan a hrehawm pawh a ni thei. Chuvangin naupangin a thu a awih lo che tihna a ni lo va, an tih harsa tak tak vang chauh a ni.

He scoliosis hian i fa dinhmun chauh a nghawng lo. I fa thawmhnaw a in fit tawk lo tih i hmu mai thei. Kut pakhat chu a dang aiin a sei zawkin a lang thei a, a nih loh leh kawr button-te chu a inmil tawk lo thei bawk. Hei hi thawmhnaw silnaah a tlahniam vang emaw, puan siamtuin a tihsual vang emaw a ni lo. Hei hi ``Neuromuscular Scoliosis'' tih natna avanga lo awm a ni.

A tlangpuiin scoliosis symptoms hi puitlin laiin a lang a, chutih lai chuan naupang chu a sang chho nghal a ni. Mahse, chutiang a nih chuan a natna lan chhuahna chu a hma pawhin a lang thei .

Hun a kal zel a, he ruhro (spine) curvature hi a pung thei a ni. Chutiang a nih chuan natna leh harsatna dang a awm thei a ni. Mahse, heng dinhmunte hi enkawlna tha tak hmanga thunun theih a ni a, a chang chuan operation pawh tih theih a ni bawk.

He hnungzang natna hi a pung zauh zauh em?

Ni e, `(Neuromuscular Scoliosis)` hi natna zual zel a ni . Chu chu hun kal zelah ruhro (spine) curvature a na zual tihna a ni. He curvature hi naupan laiah a awm avangin naupang a lo seilian nghal (`(growth spurt)` kan tih) hian a pung chak thei hle. He curvature hi puitlin thlengin a pung zel thei a ni.

He dinhmun hi engtiang chiahin nge a darh?

Neuromuscular scoliosis hi natna dang, nervous system leh muscle tichhe thei te nen pawh a awm fo thin. Entirnan, muscular dystrophy, spinal muscular atrophy (SMA), leh cerebral palsy (CP) ang chi natna te nen hmuh tur a awm tlangpui.

Statistically chuan Duchenne Muscular Dystrophy vei zinga 90% vel leh Spinal Muscular Atrophy vei zinga 80% vel chuan scoliosis an vei a ni. Cerebral Palsy vei zinga 20% leh 70% inkar chuan scoliosis an nei thin.

Hei hi eng chhinchhiahna leh lanchhuahna nge ni?

Hetiang dinhmunah hian i fa atanga pawn lam chhinchhiahna i hmuh theih a awm a, chubakah naupangin a hriat theih tur chhinchhiahna a awm bawk.

Pawn lam thil hmuh theihte:

• Shoulders level inang lo a nih loh chuan. A ke pakhat chu a chho a, a dang chu a chhuk ang maiin a lang thei.
• Ribs hmalam hawia chhuak chu a sir khatah.
• Hips leh waist a tilt a.

Naupang wheelchair hmang i neih chuan hetiang hi i hmu mai thei:

• Hunched over-in a thu a, a sir khatah a innghat a.
• Pelvis chu a sir khatah tilt.
• Thut harsa (kut emaw, elbow emaw-a innghat chunga thut).
• Pressure sores (a hmun khata rei tak awm reng avanga vun chhiatna).

Naupang ruhro chu a sir khata hrual a nih bakah hian naupang ruhro curvature dang pawh hmuh tur a awm thei a, entirnan , hmalam pan (kyphosis) (hunchback ang chi) emaw hnunglam hawia inbeng (lordosis) (a pum chu hmalam pan a, ruh chu hnunglam a innghahna)

Naupangin a natna lan chhuah dan: 1.1.

Spine curvature a san chuan naupang chuan a hnuaia harsatnate hi a tawk thei a ni:

• Hnung lam natna.
• Thut laiin nuam lo tih hriat.
• Muscle chak lohna.
• Kut leh kea natna.
• Range of motion a tlem hle.
• Lu, zung leh kawr inthlau taka vawn leh an chezia thunun harsa.

Engvangin nge hetiang hi a lo awm? A chhan engte nge ni?

``Neuromuscular Scoliosis`` awm chhan ber chu naupang nervous system leh/ emaw muscle te tichhe thei damdawi lam dinhmun hnuaia awm a ni . Naupangin hetiang neuromuscular disease a neih hian an taksa chhunga thau thenkhat chu an thunun thei lo va, an che tha thei lo bawk. Hei hian ruhro vel a thau te chu a tichak lo va, ruhro chu a curve tan tir thin.

Hetiang back strain chi hrang hrang nena inzawm thei damdawi lam thil pawimawh thenkhat chu:

• Cerebral Palsy natna a ni
• Duchenne Muscular Dystrophy natna a ni
• Paralysis a awm
• Spina Bifida (na pian tirh atanga lo awm thin ruhro natna) .
• Spinal Muscular Atrophy a awm thin

Risk factors te chu engte nge ni?

I fa hian neuromuscular disorder a nei a,/ emaw, wheelchair hmanga kal a nih chuan Neuromuscular Scoliosis a vei theihna a sang zawk.

Hei hian eng harsatna nge a thlen theih?

Neuromuscular Scoliosis avanga ruhro (spine) curvature a nasat chuan, harsatna hrang hrang:

• Thâwk lama harsatna nei: 1.1.``Thoracic Insufficiency Syndrome'' ang chi natna, thawk harsatna leh rilru chhunga hmun awm lohna.
• Independent taka hnathawh harsa: Entirnan, incheina emaw, mahni chauha ei emaw harsatna.
• Mobility harsatna: Kea kal harsatna.
• Nerve tihchhiat a ni.
• Cardiovascular system lama harsatna awm thei.

Heng taksa lama harsatna bakah hian natna `(Neuromuscular Scoliosis)` leh a thlentu damdawi lam dinhmun hnuaia awmte hian naupangte zingah mahni inngaihsakna hniam tak a thlen thei bawk. Damdawi lam harsatna engemaw zat nen a ruala nun hi thil awlsam a ni lo. Hei hian naupang chu a lungngaihna a tipung a, `(Depression)` emaw `(Anxiety) ang chi natna a tuar thei a ni. Chuvang chuan naupang rilru hriselna enkawl a, a tul chuan rilru lam hriselna lama mithiamte thurawn lak a pawimawh hle.

Engtin nge hei hi i diagnose?

``Neuromuscular Scoliosis`` natna hriat chian nan doctor chuan taksa enfiahna a nei hmasa ang a, a natna lan chhuah dan a zawt ang. Naupang damdawi lam chanchin leh chhungkaw zingah hetiang dinhmun hi an nei tawh em tih an en bawk ang.

Enfiah chhung hian doctor chuan naupang ruhro, a dinhmun leh a balance te uluk takin a en ang. Tin, vun pawh pressure sores a awm leh awm loh enfiah a ni ang. Scoliometer an tih hmanrua hmangin ruhro (spine) curvature tehna hman theih a ni. Hei bakah hian imaging test X-ray emaw MRI scan emaw hmangin ruhro dinhmun chiang taka hriat theih a ni bawk.

Enkawlnate chu engte nge ni?

Doctor chuan he natna hi non-surgical treatment hmangin control a tum hmasa ang.

Nonsurgical hmanga enkawlna te

• Wheelchair siam danglam: I fain wheelchair a hman chuan doctor chuan wheelchair seat-ah custom seat backing emaw, lateral support emaw dah belh a rawt thei a, chu chuan awlsam zawka an balance theih nan a pui thei ang.
• Physical therapy: Physical therapist chuan i fate chu a natna vei taksa peng hrang hrangte tichak turin exercise a zirtir ang. Hei hian balance chungchanga harsatna awmte chinfelna kawngah a pui thei a, naupang chu mahni inrintawkna neia hnathawh theihna a tipung thei bawk.
• Back brace: Hei hi naupang dinhmun a zirin a tha thei a, a tha lo thei bawk. Entîr nân, wheelchair hmang naupang trunk-a brace bun chuan an ṭhut laiin an balance vawng reng thei a ni. Mahse, ruhro (spine) curvature tihpun chu a titawp dawn lo. Naupang kea kal tan chuan brace hi a tlangpuiin a him lo. An tlu leh balance hloh theihna a tipung thei a ni.

Pawimawh:Surgery ni lo enkawlna hian scoliosis natna a tikhawtlai thei a, a titawp thei bawk a, mahse ruhro (spine) curve chu a tidik vek thei lo.

Inzai

``Neuromuscular Scoliosis`` surgery hian curve a nasat loh nan a titawp thei a, ruhro a ti nghet thei bawk. Doctor chuan a hnuaia thil thlengah hian operation neih a ngaihtuah thei ang:

• Spine curvature chu degree 40 aia tam a nih a, a zual zel chuan.
• Naupang chu a na emaw, a nuam lo emaw a nih chuan.
• Lung emaw thinlung hnathawhna tichhe thei harsatna a awm chuan.

Doctor chuan operation chungchanga thutlukna a siam hmain naupang hriselna zawng zawng, a hnuaia neuromuscular disease chi hrang hrang, leh a hnungzang nasat dan te uluk takin a ngaihtuah ang. Naupang dinhmun enkawl dan him ber thlan a ni ang.

Neuromuscular dystrophy enkawlna chi hrang hrang:

Surgery hi chi hnih a awm a, chungte chu:

1. Spinal Fusion: He surgery-ah hian surgeon chuan naupang ruhro chu a siam thar leh a, ruhro natna (spinal joints) chu a fuse leh thin. Hei hian ruh graf, metal rod, leh screw hman a huam a ni . Chungte chu ruh pahnih chu pakhat anga an dam hma loh chuan ruhte chu an vawn tlat a ni. Mahse, he spinal fusion surgery hnu hian fused bone chu a lo thang lian ta a ni. Hei hian naupang chu a ti tawi thei hle.

2. Growing Rods: He surgery hi naupang la puitling tan chuan a tha ber. Surgeon chuan naupang ruhroah rod a dah a. He rod hian spine a stabilize a, curve a siam tha bawk. Naupang a lo puitlin chuan thla 6-8 danah rod hi a sei theih a, chu chu surgery tenau emaw, in-office magnetic lengthening procedure hmangin emaw a ni thei. Naupang chu skeletal maturity a thlen chuan, chu chu an sang chho tawh lo tihna a ni a, surgeon chuan rod chu a la chhuak a, spinal fusion a ti ta a ni.

Naupang ``Neuromuscular Scoliosis`` vei chu operation neih laiin harsatna, infection emaw nerve chhiatna emaw a neih theihna a sang zawk a, a chhan chu an underlying medical condition dang an enkawl vang a ni. Tin, surgeon chuan a rualin a ruhro hmun tam tak a enkawl a ngai a, chu chuan harsatna a thlen theihna a tipung a ni .

I fa medical team chuan operation hi a him em tih uluk takin an zirchiang ang a, an tih hmain side effect awm thei te an zirtir ang che a, chutiang chuan i fa enkawlna chungchangah thutlukna dik tak i siam thei ang.

Hetiang dinhmun hi eng nge a nih? (Prognosis) tih a ni.

Naupang thlirna chu thil engemaw zatah a innghat a:

• Naupang hriselna zawng zawng.
• Back natna thlentu underlying medical condition chi khat.
• Spine curvature nasat dan leh a san dan.
• Naupang dinhmun nena inmil tura enkawl dan tur.

Surgery hian scoliosis chu siamthat theih ni mahse, a hlauhawmna a awm. I fate damdawi lam team chuan i fa taksa leh rilru hriselna atan enkawlna him ber pek an tum reng ang. I fate thlirna chungchanga zawhna i neih chuan i doctor nen inbia ang che.

Nun rei zawng chu engtin nge ni ang?

Neuromuscular Scoliosis hian i fa nun a nghawng thei a, a nghawng lo thei bawk. Amaherawhchu, a nasat chuan harsatna a awm thei a, chu chuan thinlung leh lung a tichhe thei a ni. Chûngte chu nunna atana hlauhawm a ni thei. I fa chu harsatna lian tham a neih theihna tur a nih chuan i fa medical team chuan i beisei tur chungchang an hrilh ang che.

Hei hi ven theih a ni em?

Vanduaithlak takin ``Neuromuscular Scoliosis'' lo awm tur hi ven theih a ni lo. Mahse, natna hi hriat hmasak a nih a, enkawl tan a nih chuan , doctor-te chuan curve kal zel chu an tikhawtlai thei a, operation hmangin pawh an siam ṭha thei bawk.

Engtikah nge Doctor ka hmuh ang?

I fateah scoliosis chhinchhiahna i hmuh chuan, ṭhut harsatna, ke ruh a nghet lo, a nih loh leh pressure sores , doctor pan nghal rawh .

I fa chu Neuromuscular Scoliosis a vei tih hmuhchhuah a nih tawh chuan, natna, natna, thawk harsa, emaw, harsatna dang emaw ang chi symptoms a neih chuan doctor nen inbia ang che.

Doctor hnenah eng zawhna nge i zawh tur?

I fa doctor hnenah hetiang zawhna hi i zawt thei ang:

• Eng ang enkawlna nge i rawt?
• Ka fa hian operation a mamawh em?
• Enkawlna hian eng side effect nge a neih?
• Engtin nge ka naute hi him leh nuam ka tih theih ang?

I tan thuchah pawimawh tak (Take-Home Message) .

Nu leh pa angin i fain pakhat ni lovin, pahnih (underlying neuromuscular disease leh neuromuscular scoliosis) a nei tih i hriat hian i rilru a buai leh lungkham hi thil pangngai a ni. Nakin hun leh i fate rilru hahdam taka awmtir dan tur ngaihtuah tam tak i nei mai thei. Hei hi a buaithlak hle thei. Mahse, heng thilte chauh hi i hmachhawn a ngai lo tih hre reng ang che.

Neuromuscular scoliosis hi natna zual zel a nih avangin i fa medical team te i hmuh fo a ngai dawn a ni. Heng tlawhnaah hian doctor chuan i fate ruhro (spine) curvature chu a teh ang. Curvature a nasat chuan surgeon chuan operation avanga hlauhawmnain i fate tana hlawkna a neih aia tam a nih chuan operation neih a ngaihtuah thei ang.

I fate thlir dan tur emaw, in lama i tanpui theih dan tur emaw zawhna i neih chuan i doctor nen inbiakna neih hlau suh. I mamawh kaihhruaina an pe ang che. I fate chu a rah chhuah tha ber pe turin i thawk ho vek ang u.

`Neuromuscular Scoliosis, Back pain, Scoliosis, Naupang hriselna, Thluak lam natna, Musculoskeletal natna, Spine