I kut leh keah hian rilru hah, tingling, emaw, kang emaw i nei fo em? A chang chuan heng hmunte hi a hring vek dawn niin i hria em? Heng chhinchhiahnate hi thil pangngai angin lang mah se, a châng chuan chhan lian tak a awm thei a ni. Vawiin hian damdawi pakhat, thisen kal tlanga inject a, chutiang dinhmun bik enkawlna atana hman thin chungchang kan sawi dawn a ni. Chu chu Patisiran a ni.
He Patisiran hi eng nge ni? Eng nge a awmzia?
A awlsam zawngin Patisiran hi vaccine a ni. Hei hi hereditary transthyretin-mediated amyloidosis (hATTR) tih hming pu genetic condition nei te thluak lama harsatna nei te enkawlna atan hman a ni.
Tunah chuan hATTR hi eng nge ni tih i ngaihtuah mai thei. A awlsam khawp mai. Kan taksaah hian protein kan nei vek a. Hetiang hATTR natna vei teah hian protein pakhat transthyretin an tih chu a inzawm sual a, a inzawm khawm a, mush ang maiin a insiam chhuak thin. He deposit hi nerve, thinlung leh taksa peng dangte chhehvelah a awm ber a ni. Chutiang a nih chuan chu taksa peng hrang hrangte, a bik takin nerve te chu a chhe tan ta a ni. Chuvang chuan a hmaa kan sawi tawh ang khan taksa peng hrang hranga natna lanchhuahna, ke ruh natna, natna leh inflammation te hi a lo lang thin.
Damdawi Patisiran hian chu protein fold dik lo siam chhuah chu a tihtlem avangin hna a thawk a ni. Chu chu he damdawi hi taksaa a luh chuan chu protein tha lo siam chhuahna chu a thunun tihna a ni. Tichuan, chu protein chu nerve chhehvela a khawlkhawm chu a tlahniam a, a natna lan chhuah dan chu zawi zawiin a thunun ta a ni. He damdawi hi ONPATTRO tih hming puin market ah a awm a .
He damdawi hi i ei hmaa i doctor hnena i hrilh tur thilte
Hei hi damdawi bik a nih avangin enkawlna i tan hmain i hriselna dinhmun kimchang i doctor hriattir hmasak a pawimawh hle. A hnuaia mite hi hrilh ngei ang che:
- Allergy: Patisiran chauh ni lovin, damdawi dang, ei tur, emaw, a humhalhtu thil dang emaw allergy i neih chuan min hrilh dawn nia.
- Naupai: Naupai, nau pai tum emaw, rai i rinhlelh emaw chuan enkawl tan hmain doctor hnenah hrilh hmasa phawt ang che.
- Nu naupai i nih chuan: Nu hnute petu i nih chuan Doctor hnenah pawh i hriattir tur a ni.
Heng thute a\ang hian doctor chuan he enkawlna hi i tan a tha em tih leh engtin nge i tih ang tih a rel ang.
Engtin nge he damdawi hi pek i nih ang?
Hei hi damdawi in lama hruai theih a ni lo. Patisiran hi thisen kal tlanga infusion a ni. Chuvangin damdawi inah emaw, clinic-ah emaw chauh pek a ni a, trained medical staff enkawlna hnuaiah pek a ni.
He enkawlna hi kar thum danah vawi khat pek thin a ni tlangpui. Damdawi taksaa inject tur hian darkar khat leh a chanve vel a ngai a ni.
Pawimawh: I enkawl tura ruahman i kal thei lo a nih chuan i doctor emaw clinic emaw hnenah hriattir nghal tur a ni. Treatment dose skip hi thil tha tak a ni lo.
Damdawi ka ei tam lutuk chuan engtin nge ni ang?
Hei hi damdawi inah pek a nih avangin hetiang thil thleng theihna chance hi a tlem hle. Mahse, thil thleng nia i hriat chuan National Hospital-a National Poisons Information Center-ah emaw, damdawi in hnai ber Emergency Treatment Unit (ETU) -ah emaw report nghal rawh.
Damdawi ei huna hriat reng tur thil
Inenkawl lai hian taksa enkawl that a pawimawh hle.
- Infusion Reactions: Mi thenkhat chuan he damdawi hi vein-a pek lai emaw, pek a nih hnu rei vak lovah emaw reaction an nei thei. Entîr nân, rilru na, thawk harsa, a nih loh leh luak chhuak. Hetiang hlauhawmna tihziaawm nan hian i doctor chuan Patisiran injection i dawn hmain damdawi dang (allergy damdawi ang chi) a pe thei che a ni. Chuvangin i doctor thupek ang chiah kha zawm rawh. Damdawi pek lai hian medical staff ten uluk takin an lo en reng ang che.
- Vitamin A level: Patisiran hian taksaa vitamin A level a tihniam thei a. Vitamin A hi kan mit, vun hriselna leh kan taksa hriselna atan a pawimawh hle. Chuvangin, i doctor chuan nitin vitamin A tablet ei turin a rawt mai thei. A sawi ang chiah chiah ei a pawimawh hle. Tin, i doctor nen vitamin A tamna ei tur (carrot, sweet potato, spinach, bawnghnute) chungchang sawipui bawk ang che.
- Mit hmuh dan inthlak danglamna: I mit hmuh danah danglamna i neih chuan, mit vawt ang chi hi doctor hnenah hrilh nghal rawh, hei hi vitamin A tlakchhamna chhinchhiahna a nih theih avangin.
- Regular check-up: I doctor chuan i symptoms a that leh that loh a enfiah fo ang che. Heng check-up-ah hian tel fo ang che.
He damdawi avanga side effects awm thei te
Damdawi dang ang bawkin Patisiran hian side effect engemaw zat a nei thei a ni. Mi zawng zawngin an hmu lo nachungin. Ṭhenkhat chu serious tak tak an ni a, ṭhenkhat chu common tak an ni.
| Patisiran hian side effect a neih theih dan | |
|---|---|
| Side effect na tak tak, doctor hnena hriattir nghal tur | |
| Allergic Reaction awm thei te | Vun vun rawng, hnim hring, hmai, hmui, lei emaw kawr emaw a hring. |
| Infusion avanga thil thleng | Chhung na, thawk harsa, muhil, luak chhuak. |
| Vitamin A tlakchhamna chhinchhiahna | Mit a inthlak danglam, mit a vawt, vun a vawt, natna hrik kai fo thin. |
| Side effect tlangpui, a awm reng emaw, a buaithlak emaw a nih chuan doctor hnenah hriattir tur a ni | |
| Harsatna tlangpui | Joint na, muscle na, ril na, pum na. |
He list-ah hian side effect awm thei zawng zawng a tel lo. Symptom danglam dang i neih chuan i doctor nen sawiho rawh.
Take-Home Thuchah a ni
- Patisiran hi vaccine a ni a, hATTR tih hming pu genetic condition bik avanga thluak lama harsatna awmte enkawlna a ni.
- Hei hi damdawi in emaw clinic emaw-ah chauh pek a ni a, damdawi lam enkawlna hnuaiah pek a ni.
- Damdawi ei lai hian infusion reaction awm thei te chu hre reng ang che.
- He damdawi hian taksaa vitamin A level a tihniam thei a, chuvangin i doctor-in a rawt vitamin A pill hi ei ngei ngei tur a ni.
- I doctor hnenah symptom danglam tak tak, side effects, harsatna i tawh theih te sawipui hlau suh. Inbiakpawhna \ha hi enkawlna hlawhtling tak neihna kawngkhar a ni.
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