Kei a koe ēnei tohu? Me kōrero tātou mō te sarcoidosis!

Kei te whakaaro koe i ētahi wā he mea rerekē kei roto i tō tinana, engari kāore e taea e koe te tino mōhio he aha te mea? Tērā ētahi mate ka puta ake i roto i tō tinana i ētahi wā, engari ki te mōhio pai koe ki aua mate, ka taea e koe te whakahaere. Ko te Sarcoidosis tētahi o aua mate. I tēnei rā, ka kōrerohia tēnei mea mā te ngāwari, i roto i tētahi huarahi e mārama ai koe.

He aha te Sarcoidosis?

I te whakarapopototanga, ko te sarcoidosis he āhuatanga e kaha rawa ai te pūnaha ārai mate o tō tinana, ā, ka puta he puku iti ki ngā wāhanga rerekē o te tinana. Ka kiia ēnei puku he granulomas . Ko ngā tohu e whakawhirinaki ana ki te wāhi e puta ai ēnei granulomas me tōna rahi. I ētahi wā, kāore pea he tohu, ka rerekē rānei mai i te mamae ngawari ki ngā tohu kino. Ko te mea morearea ake, i ētahi wā ka puta he whara kiko i ēnei granulomas, e kiia nei ko te fibrosis , ka taea te kino tonu i ngā pukahukahu, hei tauira.

Ka taea e ēnei granuloma te puta i ngā wāhi katoa o te tinana. Engari ko te nuinga o te wā ka kitea i roto i ngā pukahukahu me ngā kōpū lymph . Hei tāpiri, ka taea hoki e rātou te puta i roto i te kiri, i ngā kanohi, me ngā uaua, ka puta ai ngā tohu.

He aha te granuloma?

Ka taea e koe te whakaaro i tētahi pakanga iti kei roto i tō tinana? Ko te granuloma tonu tēnā. E whakaaro ana tō pūnaha ārai mate kua uru mai tētahi mea kino ki roto i tō tinana. Nō reira, ka huihui ngā pūtau toto mā ki taua mea kino, ka karapoti i a ia, ka wehea mai i te toenga o tō tinana. He rite ki te hopu i tētahi hoariri. Ka hangaia e tēnei puranga pūtau toto mā kua mau he paparanga kiko muka ki te taha. Koia te take e rite ana te granuloma ki tētahi puku iti ina pā atu koe.

Ko wai te mea tino pāngia e tēnei āhuatanga?

Ka pāngia te tangata katoa e te sarcoidosis, engari he nui ake te tūponotanga o ētahi tāngata ki te pāngia e tēnei mate. Hei tauira, he nui ake te kitea o tēnei mate i roto i te hunga mangu i te hunga mā. He paku nui ake hoki te pānga ki ngā wāhine i te hunga tāne. He maha tonu te kitea o tēnei mate i roto i te hunga i waenga i te 25 me te 40 tau te pakeke .

Ehara tēnei i te mate tuku iho. Arā, ehara i te mea e tukuna tika mai i te whaea ki te pāpā. Heoi, ki te pāngia tētahi whanaunga tata o tō whānau (ngā mātua, ngā tamariki, ngā tuākana/teina) e tēnei mate, kei te tūpono koe ki te pāngia anō hoki e tēnei mate.

E kiia ana te sarcoidosis he mate onge . Hei tauira, i te Hononga o Amerika, he iti iho i te rua rau mano ngā tūroro i tētahi wā.

He aha ngā tohu o te Sarcoidosis?

E ai ki taku kōrero i mua, ko ngā tohu e whakawhirinaki ana ki te wāhi o te tinana e puta ai ngā granuloma. Ko te nuinga o te tangata ka pāngia e ngā tohu i roto i ngā pukahukahu. Heoi, ka puta pea ēnei tohu i ngā wāhi katoa o te tinana, i roto i te kiri, i roto i ngā kanohi, i roto i ngā hononga, me te mea anō. I ētahi wā, ka kitea noa iho ngā tohu whānui, pērā i te ngoikore me te ngenge, kāore rānei he tohu i te katoa.

Ngā tohu e kitea whānuitia ana:

• Kirika
• Ngenge tonu, ngenge tonu
• Mamae hononga
• Mamae uaua, ngoikore rānei
• Te werawera i te pō
• Ngā kōpū lymph pupuhi
• Te ngaronga taumaha mō te kore take
• Te hanganga o ngā kohatu whatukuhu

Ngā tohu e pā ana ki te pūkahukahu:

• Maremare (he maremare maroke i te nuinga o te wā)
• Te uaua ki te manawa, te poto o te manawa (dyspnea)
• Mamae o te uma
• Te wheehe (te whiowhio) i te wā e manawa ana

Ngā tohu e pā ana ki te kanohi:

• Te tirohanga pōuri, te ngaronga katoa rānei o te tirohanga (nā ngā āhuatanga pēnei i te neuritis whatu)
• Mamae kanohi
• Te whero, te pupuhi rānei o ngā kanohi (ngā mate pēnei i te uveitis, te conjunctivitis rānei)
• Te aro ki te mārama (te kore e taea te titiro ki te mārama)

Ngā tohu e pā ana ki te kiri:

• He puku i raro i te kiri huri noa i ngā koha, i ngā moko rānei
• He mārama, he pōuri rānei ngā ira i runga i te kiri
• Ngā puku whero-papura, ngā whara rānei i te ihu, i ngā paparinga rānei (lupus pernio)
• He whero, he ngawari ngā puku i te rohe o te hope (erythema nodosum)

Ngā tohu e pā ana ki te ngākau:

• Mamae o te uma
• Te rongo i te pao o tō ngākau i te rerekētanga (palpitations)
• Te mate manawa o te ngākau (arrhythmia)
• Te ngoikore o te ngākau
• Te uaua ki te manawa

Ngā tohu e pā ana ki te pūnaha io:

• Te matewai pinepine, te mimi nui rānei (Diabetes insipidus)
• Te ngoikore, te pararutiki rānei o ngā uaua kanohi (Bell's palsy)
• Ānini
• Ngā mate hopuhopu

He aha ngā wāhanga o te sarcoidosis pūkahukahu?

Ko te Sarcoidosis, he mate e pā ana ki ngā pukahukahu, ka whakaahuahia i ētahi wā i roto i ngā wāhanga. Ka kiia tēnei ko te pūnaha whakarōpūtanga Siltzbach .

Engari he mea nui kia maumahara: Kāore ēnei wāhanga e tohu i te kaha o te mate. Kāore koe e hiahia kia puta katoa i a rātou. Ka whakarōpūtia ēnei i runga i te āhua o ō pukahukahu i runga i te hihi-X o te uma. Arā, ko te wāhi kei reira ngā granulomas.

Tērā pea ka hoki whakamuri, ka hoki whakamuri te tangata whai sarcoidosis i waenga i ēnei wāhanga, ka ngaro katoa rānei ngā granuloma. Ko te wāhanga tuawhā anake te wāhanga e kore e taea te whakatika. Koinei te wā ka puta ai te kino tuturu ki ngā pukahukahu, e kiia nei ko te pulmonary fibrosis.

• Wāhanga 0:Kāore he tohu o te sarcoidosis i roto i ngā pukahukahu i te whakamātautau X-ray. He āhua noa ngā pukahukahu me ngā kōpū lymph.
• Wāhanga 1: Kei roto noa i ngā kōpū lymph ngā granulomas.
• Wāhanga 2: Kei roto i ngā pūkahukahu me ngā pūkahukahu ngā granulomas.
• Wāhanga 3: Kei roto noa i ngā pukahukahu ngā granulomas.
• Wāhanga 4: Ka whakaatuhia e ngā hihi-X te fibrosis pūkahukahu, arā, he whara tuturu o ngā pukahukahu.

He aha ngā take o te sarcoidosis?

Kāore anō kia mōhiotia te tino take o tēnei mate. E ai ki ngā rangahau, nā te huinga o ngā āhuatanga ira me ngā āhuatanga taiao i puta ai. Ko te tikanga o tēnei, ka nui rawa te urupare a te pūnaha ārai mate o ētahi tāngata ki ētahi momo antigen , pērā i te huakita me te huaketo. Ahakoa kei roto te pūnaha ārai mate, kāore te sarcoidosis e kiia he mate pūnaha ārai mate .

I te mea kāore tātou i te tino mōhio ko ēhea ngā ira me ngā mea e whakaoho ana i tēnei, he uaua ki te matapae ko wai ka pāngia e tēnei mate.

He aha te mate Löfgren?

Ko te mate Löfgren he putanga ohorere mai o te sarcoidosis. E tohuhia ana e te huinga o ngā tohu e pā ana ki ētahi wāhanga o te tinana:

• Te rumatiki i roto i ētahi hononga.
• Te kirika.
• He puku whero, ngawari hoki i te rohe o te hope (erythema nodosum).
• Te pupuhi o ngā kōpū lymph i roto i te uma.

Ko te rongo pai, ka memeha haere te mate Löfgren i roto i ngā marama e 6 ki te 2 tau.

Me pēhea te tautuhi i te sarcoidosis?

He maha ngā wā ka tātaritatia te sarcoidosis e te tākuta e tirotiro ana i a koe ('whakamātautau tinana'), e mahi ana i ngā whakamātautau whakaahua pēnei i te hihi-X o te uma, ā, e tango ana i tētahi tauira iti o tētahi granuloma whakapae hei tirotiro (biopsy) . Nā te mea he rite ngā tohu o te mate ki ētahi atu mate, ka tono pea tō tākuta i ētahi atu whakamātautau hei whakakore i ētahi atu mate.

He aha ngā whakamātautau tātaritanga?

Ko ngā whakamātautau whakaahua me ngā koiora koiora ngā whakamātautau tino whakamahia hei tātaritanga i te sarcoidosis, engari ka tono pea tō tākuta i ētahi atu whakamātautau i runga i ō tohumate.

• Ngā whakamātautau whakaahua: Ka whakamahia e ēnei he mīhini motuhake hei tango pikitia o ngā mea i roto i tō tinana. Tērā pea ka tonoa e tō tākuta he hihi-X o te uma, he karapa CT, he MRI rānei.
• Ngā koiora:He rerekē te momo koiora e mahia ana i runga i te wāhi e whakapaetia ana te granuloma. Ehara i te mea nui ngā koiora mai i te kiri, te conjunctiva, me ētahi o ngā kōpū lymph, ā, ka taea te mahi me te kore e tapahia he wahi nui.

I ētahi wā, hei tango i tētahi wahi kiko mai i ngā pukahukahu, me whakamahi koe i tētahi tikanga uaua ake. Ka mahia tēnei mā te whakauru i ngā ngongo iti, ngā kāmera, me ngā taputapu koiora mā roto i te ihu, i te korokoro rānei, mā te tapahi iti rānei. Ngā tauira:

• ``Te mimiti ngira pai transbronchial e arahina ana e te ultrasound endobronchial (EBUS-TBNA)''
• ``Kohikohi whakawhiti-haupūngao-pūkahukahu''
• `Mediastinoscopy` (He tikanga hauora uaua ēnei, ā, mā te tākuta anake e mahi mēnā e tika ana)

Ētahi atu whakamātautau:

• Ngā whakamātautau mahi a ō pūkahukahu: Ka tirohia e ēnei te pai o te mahi a ō pūkahukahu. He whakamātautau māmā noa iho ēnei.
• Ngā whakamātautau toto me te mimi ('Ngā whakamātautau taiwhanga'): Tirohia me pēhea te mahi a ētahi atu okana, pērā i te ate me ngā whatukuhu.
• Te hiko o te manawa (EKG, ECG rānei): He whakamātautau auau e tirotiro ana i te ngohe hiko o tō ngākau.
• Ngā whakamātautau whakaahua karihi: Kei roto i ēnei ko ngā matawai PET me ngā matawai gallium. Ka whakamahia e ēnei whakamātautau he iti noa te rauemi irahiko hei rapu i te mumura i roto i te tinana.
• Whakamātautau pūmua parakore (PPD): He whakamātautau kiri māmā tēnei. Ka tirohia mēnā kei te pāngia koe e te mate kohi (TB) rānei. He mea nui tēnei nā te mea i ētahi wā ka rite te TB ki te sarcoidosis.
• Whakamātautau rama-ā-ringa: Ka titiro te tākuta ki roto i tō kanohi kia kite ai mēnā kei te puta ngā raruraru kanohi i te sarcoidosis.

Me pēhea te rongoā i te sarcoidosis?

He maha ngā wā ka rongoatia te sarcoidosis hei whakahaere i ngā tohu me te ārai i te kino o ngā okana. Kia maumahara, ko ngā granulomas te take o te mumura i puta mai i ngā pūtau ārai mate. Nō reira, ko te maimoatanga he rongoā e whakarerekē ana, e whakahaere ana rānei i te pūnaha ārai mate. He rerekē te maimoatanga i runga i te wāhi kei roto i te tinana te granuloma.

Kāore he rongoā motuhake mō te sarcoidosis. Engari he maha ngā wā ka pai ake i a ia anō . Ki te kore ngā tohu e tino hoha, e mōrearea rānei ki te ora, i ētahi wā kāore te sarcoidosis e rongoātia tonutia. Engari, ka mahi tahi kōrua ko tō tākuta ki te aroturuki i ō tohu.

He aha ngā rongoā hei whakamahi mā te sarcoidosis?

Ko te mahi a ēnei rongoā mā te whakarerekē, te whakahaere rānei i te pūnaha ārai mate me te whakaiti i te mumura. Ko ētahi o ngā rongoā e whakamahia whānuitia ana ko:

• Ngā corticosteroids:Ngā rongoā pēnei i te prednisone me te cortisone. Ka whakaitihia e ēnei te mumura i roto i te tinana. Kei te wātea mai ēnei hei pire hei horomi, hei inhaler hei rehu ki roto i te waha, hei kirīmi rānei (mō te kiri, mō ngā kanohi rānei).
• Ngā rongoā ārai mate: Ka āwhina ēnei ki te aukati i te pūnaha ārai mate kei kino ngā whekau me te mumura. Ko te Methotrexate he momo rongoā e whakamahia whānuitia ana mō te sarcoidosis.
• Ngā paturopi ārai-pūkahukahu (anti-TNF-alpha antibodies): Ngā rongoā pēnei i te infliximab. Ka mahi ēnei mā te aukati i tētahi matū motuhake i roto i te pūnaha ārai mate hei whakaiti i te mumura. Ka hoatu ēnei rongoā e te tākuta hei werohanga (pēnei i te wai tote) ki roto i te uaua.
• Ngā Rongoā Ārai-Mumura Kore-Steroid (NSAID): Ka whakaora ēnei i ngā tohumate i puta mai i te mumura mō te wā poto, engari kāore i te nuinga o te wā ka tohua mō te wā roa.

He aha ngā raruraru/ngā pānga taha o te maimoatanga?

Ka taea e ngā corticosteroids te whakanui ake i tō tupono ki te pāngia e te mate. Ka taea hoki e rātou te whakaputa i ētahi pānga taha. Ko ētahi tauira ko:

• Te rahi rawa.
• Te kore moe.
• Pūngāwerewere.
• Te whakawhanake i te mate huka i roto i te hunga e pāngia ana e te mate huka.
• Te toto toto tiketike.
• Te karuākōma.
• Ngā katarata.
• Te angiangi o ngā wheua (Osteoporosis).
• Te pouri me te uaua ki te whakahaere i ngā kare ā-roto.
• He kiri e ngawari ana te maru.

Mō ēnei take, ka tūtohu noa ngā tākuta i te rongoā mō te sarcoidosis mēnā he nui ake ngā painga i ngā mōrearea.

Kia pēhea te tere o taku pai ake i muri i te maimoatanga?

Ka roa pea ētahi wiki ki ētahi marama ka pai ake ngā tohu i muri i te tīmatanga o te maimoatanga mō te sarcoidosis. Ka aroturukihia koe e tō tākuta, ā, ka whakahaerehia pea he whakamātautau whai muri hei tirotiro mēnā kei te whai hua te maimoatanga.

He aha ngā kai kāore e pai ana kia kainga ina pāngia koe e te sarcoidosis?

E kī ana ētahi rangahau ka taea e ētahi momo kai te whakaiti i te mumura i roto i te tinana. Mā te kai i ngā kai tipu pērā i ngā huawhenua me ngā hua , te whakawhāiti i te mīti me te tīhi, me te whakaiti i ngā warowaihā pērā i te huka me te taro ka āwhina pea i ō tohumate sarcoidosis. Engari kia tino pātai atu ki tō tākuta i mua i te tīmatanga o tētahi kai hou.

Ka taea te ārai i te sarcoidosis?

Nā te mea kāore i te mōhiotia te tino take, kāore he huarahi hei ārai i te sarcoidosis, hei whakaiti rānei i te tūponotanga o te whanaketanga. Heoi, mā te tango i ngā rongoā i whakaritea e tō tākuta ka āwhina i te whakaiti i te kino ki ngā whekau i puta mai i ngā granulomas.

He aha te tirohanga mō te sarcoidosis?

He rerekē te kaha o te sarcoidosis. Mō te nuinga o te tangata, he mate rangitahi tēnei ka ora ake i a ia anō , i te rongoā rānei. Mō ētahi, ka noho hei mate roa (he 'mate mau tonu') ka pā he kino tuturu.

Whakaarohia tēnei: ​​Tata ki te rua hautoru o te hunga e pāngia ana e te sarcoidosis ka ora katoa (arā, ka "whakakorengia" te mate) i roto i ngā tau e rua ki te toru. Ko te hunga e pāngia ana e te mate Löfgren kua whakahuatia ake nei he nui ake te tūponotanga kia ora, i roto i ngā marama e ono ki te rua tau.

Ko te hunga e pāngia tonutia ana e te sarcoidosis i muri i ngā tau e toru, ka nui ake te tūponotanga ka pāngia rātou e te mate mō te wā roa. Heoi, ahakoa i roto i te hunga e pāngia ana e te sarcoidosis mō te wā roa, 10% ki te 20% anake o te hunga ka pāngia e te kino tuturu o ngā okana. Ko te raruraru tino noa ko te whara o te pukahukahu.

He noa te roanga o te oranga o te nuinga o ngā tūroro sarcoidosis. He iti noa iho te ōrau (1% - 5%) e mate ana. Nō reira, kāore he mea hei manukanuka, he ngāwari noa iho tēnei mate.

Me pēhea taku tiaki i ahau anō i a au e noho tahi ana me te sarcoidosis?

Ko te mea pai rawa atu ka taea e koe ko te whai i ngā tohutohu a tō tākuta. Me tirotiro tonu i ō tohumate mō ngā huringa. Tangohia tō rongoā kia rite ki te mea i whakaritea. He mea nui anō hoki kia noho marino.

Āhea ahau me toro atu ki te tākuta?

Ki te puta he tohu hou ki a koe, ki te hoha ō tohu, ki te tango rongoā rānei koe, ā, kei te raru koe i ngā pānga taha, me toro atu ki tō tākuta tonu atu, me kōrero rānei ki a koe.

He aha ngā pātai me pātai atu e au ki taku tākuta?

He pai pea te pātai i ēnei pātai ina toro atu koe ki tō tākuta:

• He pai ake te rapu maimoatanga, te aroturuki rānei i aku tohumate?
• Kia pēhea te roa ka pai ake ai ngā tohu?
• Me pēhea taku mōhio kei te whai hua taku maimoatanga?
• Me hanga e au ētahi huringa ki tōku āhua noho?
• Āhea ahau me haere mai anō kia kite i a koe?

Hei whakarāpopototanga (Karere hei tango ki te kāinga)

He mate onge te Sarcoidosis, ā, ka puta mai ngā tohu maha. Kaua e manukanuka, i te nuinga o te wā ka memeha noa iho , ka rongoatia rānei. Ahakoa he roa te wā, ka taea te whakahaere pai mā te rongoā me te tohutohu hauora. Kia maumahara, i ētahi wā he pai ake te aroturuki noa i ō tohu me te kore maimoatanga. Ka taea e kōrua ko tō tākuta te whakatau ko tēhea te mea pai mōu. Nō reira, kia kaha, kia whai i ngā tohutohu a tō tākuta.

` Sarcoidosis, granuloma, pūnaha ārai mate, mate pūkahukahu, mate kiri, mate kanohi, mate ngākau, Sarcoidosis, granuloma, pūnaha ārai mate, mate pūkahukahu, mate kiri, mate kanohi, mate ngākau