He rite tō tātou pūnaha io ki tētahi pūnaha waea uaua. Mā roto i ēnei waea ka haere ngā karere mai i tō tātou roro ki ngā wāhanga katoa o te tinana. Nō reira, he iti nei te 'puranga' o ēnei 'waea', arā, ngā pūtau io '(Neurons), hei tiaki. Ka karangatia tēnei ko '(Myelin) . He rite tēnei ki te puranga kirihou i runga i te waea hiko. Ko tēnei puranga '(Myelin)' te mea e tiaki ana i ngā pūtau io, ā, e āhei ai ngā karere hiko te haere tere mā roto. Whakaarohia, mēnā kua pakaru tetahi mea i roto i tēnei puranga '(Myelin)', ka pakaru ngā karere e haere ana i roto i ō tātou io, pērā i te waea kua pakaru te puranga kirihou. Koinei te mea e karangatia ana e tātou ko '(Demyelinating Disease)' .
He aha te Mate Demyelinating?
He whakarāpopototanga noa iho, ko te mate demyelinating he mate e kino ai te myelin i roto i tō roro, tō taurakira, me ngā io . E ai ki taku kōrero i mua ake nei, ko te myelin te papa tiaki e karapoti ana i ngā neuron i roto i tō tātou pūnaha io matua me te pūnaha io taha. Ka whakapakari, ka tiaki, ka ārai hoki tēnei papa myelin i ngā pūtau io. Ehara i te mea koinā anake, engari ka āwhina anō hoki i ngā hikohiko kia haere i waenga i ngā pūtau.
Nō reira, ki te pāngia koe e te mate demyelinating, koinei te mea ka tupu: ka whakaekea e tō pūnaha ārai mate tēnei pūkahukahu myelin, ngā pūtau rānei e hanga ana i te myelin. Whakaarohia he rite ki tō tātou pūnaha ārai mate, he rite ki te pūnaha parepare o tō tātou tinana, e whakaeke ana i ōna ake tāngata. Ka huri tēnei i te huarahi e kōrero ai ngā io tetahi ki tetahi, te huarahi e mahi ai rātou, ā, ka tīmata te puta mai o ngā tohu rerekē .
He aha ngā momo mate demyelinating?
He rerekē ngā āhua o ēnei mate whakakore i te myelination. Ka taea te whakarōpū i ēnei hei mate e pā nui ana ki te pūnaha io matua (arā, te roro me te taurakira) me ērā e pā ana ki te pūnaha io taha (arā, ngā io kē atu e puta ana i te roro me te taurakira).
Ngā mate demyelinating noa e pā ana ki te pūnaha io matua:
- Te Mate Pūkahukahu Maha (MS) : Koinei te mate e kitea nuitia ana o tēnei momo kua rongohia e te tini o te tangata.
- Mate Pūtaiao o te Neuromyelitis Optica Spectrum (NMOSD)
- Te Mielitis Whakawhiti (TM)
- Te Encephalomyelitis Horahia Whakapeka (ADEM)
- Te Pūnaha Leukoencephalopathy Matatini-ā-Ahunga Whakamua (PML)
- Te Myelinolysis Pontine Waenga (e kiia ana ko te Osmotic Demyelination Syndrome)
Ngā mate demyelinating noa e pā ana ki te pūnaha io peripheral:
- Te Mate Guillain-Barré (GBS)
- Te Mate Charcot-Marie-Tooth (CMT)
- Te Polyneuropathy Demyelinating Inflammatory Mau tonu (CIDP)
"Ina kīia te 'Mate Whakaiti i te Myelination', ko te tikanga tonu ko te '(MS)'?"
Kāore, ehara. He maha atu anō ngā mate e uru ana ki te wāhanga o ngā Mate Whakaiti i te Myelination. Heoi, i ngā whenua pēnei i Amerika Te Raki, ko te MS te mea tino kitea o ēnei.
He pēhea te noa o ēnei mate?
Ko te Multiple Sclerosis tētahi o ngā mate tino noa e whakakorengia ai te myelination o te uaua. I kitea i roto i tētahi rangahau i te tau 2019 e tata ana ki te kotahi miriona tāngata i te United States anake e noho ana me te MS. He tāngata kei Sri Lanka anō hoki e pāngia ana e tēnei mate, engari he uaua ki te kimi tatauranga tika mōna.
He aha ngā tohu o te mate demyelinating?
Ka rerekē rawa ngā tohu o ēnei mate, ā, ka rerekē anō hoki i runga i te momo mate. Anei ētahi tohu noa o te mate demyelinating e pā ana ki te pūnaha io matua:
- Ngā Huringa Tirohanga: Te tirohanga pōuri, te kore e taea te wehewehe i ngā tae (ina koa ko te whero me te kakariki), te mamae i te nekehanga o ngā kanohi, te kite rānei i ngā mea e rua i te wā kotahi (tirohanga takirua).
- Te ngoikore, te ngaro rānei o ngā kare ā-tinana i ētahi wāhanga. Me te mea kua whakangātia ō ringaringa, ō waewae rānei e tetahi.
- Ko te āhua e mōhiotia ana ko te 'awhi a MS': Ko tōna tikanga he rite ki te mea kei te awhi pūmau koe i tētahi, i tō uma rānei, i tō puku rānei.
- Ngenge: Te ngenge noa iho , kāore he take.
- Ngā raruraru mimi me te whēkau: Te uaua ki te mimi, te hiahia ohorere rānei ki te mimi (arā, me tere te haere ina hiahia koe ki te haere), te mate pāwera, me ētahi atu.
- Ina piko koe i tō kaki ki mua, ka rongo koe i te ngau kino pērā i te hiko e rere ana i tō tuara, ringa, me ō waewae.
- Te uaua ki te hikoi. Ka raranga ngā waewae, te āhua nei kua ngaro te taurite.
- Te ngoikore o te uaua, te pakari rānei.
Tērā pea ka pāngia koe e tētahi o ēnei tohumate, ka pāngia rānei koe e ētahi i te wā kotahi. Waihoki, ka rerekē te kaha o ēnei tohumate i roto i te wā.Arā, i ētahi wā, ka kino haere ngā tohu (ka kaha ake te ahua), kātahi ka memeha haere mō tētahi wā.
He aha ngā take o te mate Demyelinating?
Ko te tino take o ēnei mate ko te kino o te myelin me ngā pūtau e hanga ana i te myelin. E ai ki taku kōrero i mua, ka puta tēnei kino nā te mea ka whakaekea hētia e tō tātou ake pūnaha ārai mate te myelin hauora. I te nuinga o te wā, ka tiakina e tō tātou pūnaha ārai mate te tinana mai i ngā mate pēnei i te huakita me te huaketo. Engari i ētahi wā, me te kore he tohutohu tika, ka kitea hētia e tēnei pūnaha ārai mate ō tātou ake pūtau myelin he kino ki te tinana. Ina tupu tēnā, ka puta te mumura ki aua wāhi, ka puta ai ngā tohu o te mate demyelinating.
He maha atu anō ngā āhuatanga ka whai wāhi ki te whanaketanga o te mate demyelinating:
- Nā te mate huaketo, kitakita rānei .
- Te āheinga ira (arā, ko ētahi huringa i roto i tō DNA ka whakanui ake i tō tūponotanga ki te whakawhanake i tētahi mate pūnaha ārai mate).
- Nā ētahi atu āhuatanga hauora, pērā i te korenga o ngā huaora .
I ētahi wā, kāore e kitea he tino take mō ēnei mate . Kei te whakahaerehia he rangahau anō mō tēnei.
Me pēhea te tautuhi i te mate Demyelinating?
Mena kei a koe ēnei tohu, me toro atu koe ki tētahi tākuta i te tuatahi. Ka whakarongo ia ki ō tohu, ā, ka tirotirohia hoki e ia tō tinana. Ka tangohia hoki e ia he hītori hauora katoa. Mena kei te whakapae ia kei a koe he mate demyelinating, ka tukuna pea koe ki tētahi tākuta neurologist . Ko te tākuta neurologist he tākuta kua whai whakangungu motuhake ki ngā mate o te pūnaha io.
Ka whakahaerehia e te tākuta roro he whakamātautau roro, ā, ki te tika, ka tonoa he whakamātautau atu. Kāore he whakamātautau kotahi hei tātaritanga i te demyelination. Ka whakamahia e tō tākuta tētahi, ētahi rānei o ngā whakamātautau e whai ake nei hei whakakore i ētahi atu āhuatanga he rite ngā tohu, ā, ka tae atu ki te tātaritanga tika:
- Matawai MRI (Whakaahua Āhua Aukume): Ka taea e tēnei te whakaputa whakaahua taipitopito o te roro me te taurakira.
- Te Wero i te Lumbar Pēke, te Tākaro Tuaiwi rānei: Ko te tikanga tēnei ko te tango i tētahi wai cerebrospinal iti mai i te taurakira ka tirotirohia.
- Tomography Whārite Ātaahua (OCT): Mā tēnei ka tirohia te io whatu.
- Te whakamātautau hiko-mio (EMG):Ka ine tēnei i te ngohe hiko o ngā uaua me ngā io.
- Ngā Whakamātautau Toto: Tirohia mēnā kei roto i a koe ētahi atu mate hauora, ā, tirohia hoki ētahi taumata huaora.
- Whakamātautau Pūmanawa Whakaara: Ka ine i te tere o te haere o ngā tohu hiko mā roto i ngā io.
Me pēhea te tātaritanga o te mate Demyelinating mā te MRI?
He whakamātautau te MRI e whakamahi ana i te aukume me ngā ngaru reo irirangi hei hanga pikitia o tō roro me tō taurakira. Mā tēnei ka pai ake te tirohanga a tō tākuta ki ngā mea e tupu ana i roto i tō tinana. Mena he mate whakaheke-myelination tōu, ka taea e te matawai MRI te whakaatu i ngā wāhi kua pakaru (e kiia ana he whara) i roto i tō roro me tō taurakira.
Me pēhea te rongoā i te mate Demyelinating?
He rerekē te maimoatanga mō te mate demyelinating i runga i te momo mate kei a koe . Ka mahi tahi tō tākuta me koe ki te āwhina i te whakahaere i ō tohumate, ā, i ētahi wā, ka whakaroa i te horapa o te mate. Ko ētahi o ngā kōwhiringa maimoatanga ko:
- Ngā Rongoā: Ngā rongoā hei whakaiti i te mahi a te mate, hei whakahaere i ngā tohu, hei whakarerekē rānei i te mahi a te pūnaha ārai mate.
- Whakaora Tinana me te Whakaora Mahi: Āwhina i ngā āhuatanga pēnei i te uaua ki te hikoi, te ngoikore o te uaua, me te āwhina i a koe ki te mahi i ngā mahi o ia rā kia māmā ake.
Mā tō tākuta e whakatau te mahere maimoatanga pai rawa atu i runga i ō tohu me tō āhua. I mua i te tīmatanga o te maimoatanga, akohia ngā pānga taha me ngā mea hei tumanako atu . Mena ka puta he tohu hou, ka kino haere rānei i muri i te tīmatanga o te maimoatanga, me kōrero tonu atu ki tō tākuta. Ko te wawe o te tīmatanga o te maimoatanga, ko te pai ake o ngā hua.
He aha te tirohanga/matapae mō ēnei mate?
He rerekē rawa te tirohanga i runga i te mate demyelinating e puta ai ō tohu. Ka pāngia pea koe e ēnei mate e ngā āhuatanga maha o tō oranga, tae atu ki tō whakaaro, tō nekehanga, me tō kare ā-roto. Hei tauira, tera pea ka uaua ki a koe te hikoi, te mahi rānei i ngā mahi o ia rā. Tērā pea ka hiahia ētahi tāngata ki te āwhina a ngā mema o te whānau kia noho haumaru ai rātou.
Mō ētahi tāngata, he tino ngawari ngā tohu, ā, kāore he pānga mō te wā roa . Mō ētahi atu, he kino ngā tohu, ā, he nui te pānga ki te oranga o ia rā . He rerekē te āhua o te katoa. Kāore he rongoā mō ēnei āhuatanga , engari ka taea e tō tākuta te āwhina i a koe ki te whakahaere i ō tohu puta noa i tō oranga.
Ka Hurihia e te Mate Demyelinating te Roanga o te Oranga?
Ka pā pea te mate whakaheke-myelination ki tō roanga o te ora, engari kāore te nuinga o ngā mate e pā tika ana ki te roa o tō oranga . I te nuinga o te wā, e kī ana ētahi rangahau he poto ake te roanga o te ora o te tangata whai mate whakaheke-myelination mā te torutoru tau i te tangata kāore i te mate. Engari kei runga tēnei i te nui o te kino kua pā ki ō pūtau io. He rerekē i ia tangata, i ia tangata. Ka taea e tō tākuta te whakautu pai i tēnei pātai i runga i tō āhuatanga motuhake.
Āhea ahau me toro atu ki te tākuta?
Mena kei a koe ētahi o ēnei tohu o te mate demyelinating, me toro atu ki te tākuta tonu:
- Ngā huringa tirohanga
- Te ngoikore, te ngaro rānei o te kare ā-roto
- Mahi uaua
- Ngā raruraru mimi, te tutae rānei
- Te uaua ki te hikoi
- Te pakari o te uaua, te ngoikore rānei
He aha ngā pātai me pātai atu e au ki taku tākuta?
Ina kitea e koe he mate whakaheke-mīere tōu, tera pea he maha āu pātai. Kaua e mangere ki te pātai atu ki tō tākuta i ēnei pātai:
- He aha te momo mate demyelinating kei a au?
- Ka kino haere rānei tēnei mate (arā, ka "haere whakamua")?
- He aha te momo maimoatanga e taunaki ana koe?
- He pānga taha kei te rongoā?
- Kei te pēhea taku matapae?
He wāhanga tino nui te Myelin o tō tinana. Ka tiakina e ia ō pūtau io, ā, ka mahi tika tonu. Ki te pakaru, ka pāngia pea koe e ngā tohu pēnei i te mamae, te uaua ki te neke, me te uaua ki te whakaaro mārama. Ka taea e te tākuta te tātaritanga me te rongoā i te mate demyelinating e pā ana ki a koe. Nā te mea kāore he rongoā mō ēnei mate, me whakahaere e koe ō tohu puta noa i tō oranga me te āwhina a tō tīma hauora. Kōrero tonu ki tō tākuta mō tō mate, ngā kōwhiringa maimoatanga, ngā tohu hou, mēnā rānei kei te kino haere ō tohu.
Ko te mea tino nui me mōhio koe (Karere hei tango ki te kāinga)
Nō reira, ko te Mate Whakakorenga Myelin he āhuatanga e puta ana ina pakaru te pūkahukahu myelin i roto i tō tātou pūnaha io. Tērā pea he whakamataku tēnei, engari kia mahara, ehara i te mea ko koe anake. Ka rerekē ngā tohu i ia tangata, i ia tangata, me te pānga o te mate. Ko te mea nui, ki te mea kei a koe tētahi o ngā tohu kua whakahuatia i roto i tēnei tuhinga, kaua e warewarehia, engari me toro atu ki te tākuta i te wā e taea ai. Ki te kite wawe koe i te mate, ā, ka tīmata tika te maimoatanga, ka taea e koe te whakahaere i ō tohu me te noho i te oranga noa, pai. Ka noho tō tākuta me tō whānau hei tautoko nui i tēnei haerenga.
` Te Mate Whakakorenga Myelin, Myelin, Pūnaha Io, Multiple Sclerosis, MS, Ngā Tohu, Te Maimoatanga
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