Whakaarohia kei te uaua koe ki te whakatika ake i te tūru, i te wā rānei e hiki ake ai tō ringa ki te heru i ō makawe, ka rite ki te ngoikore o tō ringa. I taua wā anō, ka puta mai ngā ira papura iti huri noa i ō kanohi, i tō kaki, me tō uma. Kua pā tēnei ki a koe? Tērā pea ka whakaaro koe he ngenge noa iho tēnei. Engari i ētahi wā he tohu pea tēnei o tētahi mate kino, onge ake e kiia nei ko te Dermatomyositis . Kaua e manukanuka, ka kōrerohia e tātou ngā mea katoa i roto i ngā kupu māmā noa iho.
He aha te mate kiriuhi?
Ki te whakarapopoto, he mate onge te Dermatomyositis e ngoikore ai ngā uaua o te tinana, ā, ka puta ai ngā ponana kiri. Ko tētahi o ngā mate (myopathy) e pā ana ki ngā uaua. I ētahi wā ka puta he mate kino pēnei i te uaua ki te manawa me te horomi.
Tērā pea ka puta mārire ēnei tohu i roto i ngā marama mō ētahi tāngata. Engari mō ētahi atu, ka puta ohorere mai pea. Nō reira, ki te pāngia koe e tētahi o ēnei tohu, he mea nui kia toro atu koe ki tō tākuta i te wā e taea ai. Ko te wawe o te tīmatanga o te maimoatanga, ka nui ake te tūponotanga ki te karo i ngā raruraru nui.
He tino onge te mate, inā koa i roto i te tau tuatahi i muri i te tīmatanga o ngā tohu. Ka piki ake hoki te mōrearea o te whakawhanake i ētahi momo mate pukupuku.
He aha te rerekētanga i waenga i te Dermatomyositis me te Lupus?
Kua rongo pea koe i tētahi mate e kiia nei ko te lupus. He rite te Dermatomyositis ki te lupus me ētahi atu mate ārai-pūnaha. Heoi, he mārama ngā rerekētanga i waenganui i ngā mea e rua. Nā te mea kāore anō kia mōhiotia te pūtake tuturu o te dermatomyositis, kāore i te whakarōpūtia hei mate ārai-pūnaha.
Me titiro tātou ki tēnei ripanga hei whakamārama ake i te rerekētanga.
| Āhuatanga | Lupus | Te mate kiri |
|---|---|---|
| Ngā tohu matua | Mamae hononga, te kiri māuiui me te whēwhe, ngā pānga ki ngā whekau o roto (roro, pukahukahu, whatukuhu). Ka haere mai, ka haere atu ngā tohu. | Te ngoikore o te uaua me ngā ponana kiri motuhake. Te pakaru o te uaua. |
| Tātaritanga | I runga i ngā whakamātautau toto me ngā tohu motuhake. | Ngā whakamātautau toto, ngā koiora kiri me ngā uaua, me ngā matawai. |
He mea nui kia tātaritanga me te rongoā i ēnei āhuatanga e rua i te wā e taea ai. Mēnā ka puta he tohu hou, me toro atu ki te tākuta tonu.
Ko wai te mea tino tūpono ka pāngia e tēnei mate?
Ka taea e te tangata katoa te pāngia e te dermatomyositis, engari he nui ake te mōrearea o ētahi rōpū.
- Mō ngā tamariki i waenga i te 5 me te 15 tau te pakeke.
- Mō ngā pakeke i waenga i te 40 me te 60 tau te pakeke.
- He nui ake te tūponotanga ka pāngia ngā wāhine e tēnei mate i ngā tāne.
Engari kia maumahara, he mate tino onge tēnei. I te toharite, kotahi anake i roto i te kotahi rau mano tāngata ka pāngia e tēnei mate i ia tau.
He aha te pānga o tēnei mate ki te tinana me te mōrearea o te mate pukupuku?
He mate te kiriuhi kiri (dermatomyositis) ka pā ki a koe mō te toenga o tō oranga. Mēnā he kino rawa te kino o ō uaua, tērā pea kāore e taea e koe te whakamahi tika i tētahi wāhanga o tō tinana, ā, ka arahi pea tēnei ki tētahi momo hauātanga. I te nuinga o te wā ka puta tēnei i roto i ngā tau, engari mō ētahi tāngata, ka tere ake te puta o tēnei ngoikore o te uaua.
Hei tāpiri , ko te mōrearea nui rawa atu ko te mōrearea o te mate pukupuku.
E whakaatu ana ngā rangahau tata ki te 15% o te hunga e pāngia ana e te dermatomyositis ka tūpono ki te pāngia e tētahi momo mate pukupuku i muri mai i te ao.
Ko ngā momo mate pukupuku e kitea whānuitia ana me tēnei mate ko:
- Matepukupuku ovarian
- Matepukupuku pūkahukahu
- Lymphoma
- Matepukupuku ū
- Matepukupuku koroni
Nō reira, ki te mea kua tāpaetia koe kei te mate koe, he mea tino nui kia kōrero noa koe ki tō tākuta mō tō mōrearea mate pukupuku me ngā whakamātautau e tika ana kia mahia mōna.
He aha ngā tohu o te dermatomyositis?
Ko ngā tohu matua e rua o tēnei mate ko te ngoikore o te uaua me te mākūkū o te kiri.Mō ētahi tāngata, ka puta ngā tohu e rua i te wā kotahi. Mō ētahi atu, ka puta tētahi tohu i muri i ngā wiki, i ngā marama, i ngā tau rānei i muri i tētahi atu.
Kia tirohia ēnei āhuatanga me ētahi atu taipitopito.
| Momo āhuatanga | Whakaahuatanga me ngā tauira |
|---|---|
| ngoikore o te uaua | Ka taea e tēnei ngoikore te whakauaua i te mahi i ngā mahi o ia rā. Hei tauira:
|
| Ponana kiri | Ka puta ake ēnei whara i ngā wāhi e pāngia ana e te rā. He papura-māwhero te tae, ā, tera pea ka pupuhi paku. Ko ngā wāhi e tino kitea ana ko:
|
| Ētahi atu āhuatanga |
|
Ka pāngia ētahi tamariki e te mate, ā, ka ngaro katoa ngā tohu i a rātou e pakeke haere ana. Heoi, mō te 80% o ngā tūroro, he mate pumau (mo te wā roa). Ko te tikanga ka hoki anō ngā tohu i ētahi wā.
He aha te take o tēnei?
Ina hoki, kāore anō kia mōhiotia e ngā tohunga te tino pūtake o te dermatomyositis, engari he maha ngā āhuatanga e whakaarohia ana hei whai wāhi atu ki tēnei.
- Ngā āhuatanga ira: E whakaatu ana ētahi rangahau he āhuatanga ira pea tēnei e tukuna iho ana i tētahi whakatipuranga ki tētahi whakatipuranga.
- Ngā take ārai mate ā-tinana: E ai ki tā tātou i kōrero ai i mua ake nei, he rite tēnei ki ngā mate ārai mate ā-tinana. Ko te tikanga o tēnei, ka taea e te pūnaha ārai mate, e tiaki ana i tō tātou tinana, te whakaeke hē i ō tātou ake pūtau uaua me te kiri hauora.
- Ngā mate huaketo: E kī ana ētahi taunakitanga, ina memeha haere te mate huaketo, ka taea e ia te whakaoho i te whanaketanga o te Dermatomyositis.
- Ngā āhuatanga taiao: Kua kitea e ētahi rangahau ko te noho ki ngā wāhi he kino te kounga o te hau ka whai wāhi atu ki te whanaketanga o tēnei mate.
Me pēhea te tautuhi i te mate?
I muri i te whakarongo a tō tākuta ki ō tohu, ka whakaritea e ia ētahi whakamātautau hei whakaū i te mate.
| Tikanga whakamātautau | He aha tāu e kite ana i roto i tēnā? |
|---|---|
| Ngā whakamātautau toto | Ka rapua e rātou ngā taumata pikinga o ngā whākōkī e kohia ana i roto i te toto ina pakaru ngā uaua, tae atu ki ngā autoantibodies e tohu ana i te mahi a te pūnaha ārai mate. |
| Te koiora | Ka tangohia he wahi kiko iti rawa mai i te whara kiri me te uaua, ā, ka tirohia i raro i te karuārai. Mā tēnei ka taea te whakaū mēnā he mumura kei roto i te uaua. |
| Ngā whakamātautau whakaahua | Tērā pea ka mahia he matawai MRI (Magnetic Resonance Imaging) me te hihi-X o te uma hei tirotiro i te āhua o ngā uaua, ngā io, ngā pukahukahu me ētahi atu whekau. |
| Whakamātautau EMG | He whakamātautau te Electromyography (EMG) e ine ana i te ngohe hiko o ngā uaua me ngā io. Mā tēnei ka āwhina ki te whakatau mēnā ko te mate tonu te take o te ngoikore o te uaua, nā tētahi atu take rānei. |
He aha ngā maimoatanga mō te dermatomyositis?
Ahakoa kāore e taea te rongoā i te dermatomyositis, he maha ngā maimoatanga whai hua hei āwhina i te whakahaere i ngā tohu, te whakaiti i te kino o ngā uaua, me te āwhina i a koe kia ora noa. Ka whiriwhiria e tō tākuta te maimoatanga tino tika i runga i te āhua me te kaha o ō tohu.
- Corticosteroids: Ka whakaitihia e ēnei rongoā te mumura i roto i ngā uaua.
- Whakaora tinana: Mena kua pakaru ngā uaua, he mea tino nui te whakakori tinana me te whakaora tinana hei whakapakari anō i a rātou. Ka kaha ake ngā uaua, ka kaha ake te ātete ki ngā kino o te mate.
- Ngā rongoā ārai mate: Ka aukati ēnei rongoā i te pūnaha ārai mate kei whakaeke i ngā pūtau hauora.
- Immunoglobulin ā-uaua (IVIg): He maimoatanga tēnei e tukuna ai te immunoglobulin, he wāhanga o roto i ō tātou ake toto, ki waho o te tinana, pērā i te tote. Ka āwhina tēnei ki te whakahaere i te kore mahi a te pūnaha ārai mate.
- Whakaora kōrero: Mena he ngoikore ngā uaua o te korokoro, ā, he uaua ki te horomi, ka taea e te whakaora kōrero te whakapakari i aua uaua.
Me pēhea te whakahaere i ngā tohu?
He haerenga roa te noho tahi me tēnei mate, nō reira he mea tino nui te whakahaere i ngā tohu.
- Kaua e whakarērea te whakakori tinana: Mahia ngā whakakori tinana e tohutohu ana tō tākuta, tō kaiwhakaora tinana rānei, kia rite tonu ki tā rātou e tohutohu ai. Mā tēnei ka āwhina i a koe kia kaha tonu ō uaua.
- Whakamahia tika te rongoā: Tangohia te rongoā i tohua e tō tākuta kia rite ki te roa kua tohua.
- Tiakina koe i te rā: He mea tino nui tēnei. Ka taea e ngā hihi ultraviolet (UV) o te rā te whakararu i te kiri. Nō reira, whakawhāitihia tō wā i roto i te rā. Ki te haere koe ki waho,Whakamahia he pare-rā pai, he SPF 50+ te iti rawa. Tāpirihia anō i ia rua hāora.
- Tirohia tō tākuta i ia wā: Me toro atu koe ki te tākuta i ia wā hei aroturuki i ō tohumate, hei tirotiro hoki mēnā kei te huri haere tō āhua.
He nui ake ngā mea hei mōhio māu mō tēnei mate
He mea noa te mataku ina kitea he mate kiriuhi koe. He ohorere pea te mōhio he mate mō te wā roa, ā, ka mate pea. Engari kia mahara, ko te wawe o te kitenga i te mate me te tīmatanga o te maimoatanga, ka nui ake te tūponotanga ka ora pai koe.
Ahakoa kāore he rongoā mō tēnei mate, e 80% o te tangata e mau tonu ana te mate me ngā tohu. Heoi, mā te rongoā, tata ki te 20% o te tangata ka taea te whakatutuki i te murunga roa me te kore he tohu.
He iti iho i te 5% te mōrearea o te mate. Heoi anō, ka taea e ētahi āhuatanga te whakanui ake i tēnei mōrearea:
- Te whakaroa i te tīmatanga o te maimoatanga neke atu i te 6 marama.
- Neke atu i te 60 tau te pakeke.
- He nui ngā tohu.
- He mate e pā ana ki te korokoro, ki ngā pukahukahu, ki te ngākau rānei.
- Kei te pāngia koe e te mate pukupuku, kei te whanake rānei he mate pukupuku hou.
Āhea ahau me toro atu ki te tākuta?
Ki te pāngia koe e te ngoikore o te uaua hou, inā koa mēnā kei te haere tahi me te ponana kiri, me toro atu ki tō tākuta i taua wā tonu. E ai ki tā mātou i kōrero ai i mua, ko te wawe o te whiwhi maimoatanga, ko te wawe hoki o te karo i ngā raruraru nui.
Kaua e wareware ki te pātai i ēnei pātai ina kite koe i tō tākuta:
- He mate kiriuhi kiri tōku, he mate rānei tētahi atu?
- He aha ngā whakamātautau me mahi e au?
- He aha ngā maimoatanga e hiahiatia ana e au, ā, kia pēhea te roa e hiahiatia ai?
- Me tirotirohia ahau mō te mate pukupuku?
Whakaritea he mahere māu me tō tākuta mō tō haerenga maimoatanga. Mā tēnei ka pai ake tō māramatanga ki ngā mea ka tūponohia e whai ake nei, me ngā mea hei mahi mēnā ka kino haere ō tohu.
Karere Tangohia ki te Kāinga
- He mate onge te dermatomyositis e hua ai te ngoikore o te uaua me ngā whara kiri motuhake.
- He mea tino nui kia tere tonu te toro atu ki te tākuta mēnā ka kitea ngā tohu. Mā te maimoatanga tere ka ārai i ngā raruraru nui.
- I te mea he mate tēnei e pāngia ana mō te wā roa, me whai maimoatanga mō te wā roa.
- He mea nui kia tangohia ngā rongoā e ai ki ngā tohutohu a tō tākuta, kia mahi i ngā korikori tinana, ā, kia tiakina hoki koe i te rā.
- Ka taea e tēnei mate te whakanui ake i tō mōrearea ki te mate pukupuku, nō reira kōrero ki tō tākuta mō tēnei mate me ngā whakamātautau katoa e tika ana.
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