I ētahi rā, ka tino kino te āhua, ka kino haere tō tirohanga, ka ngoikore tō tinana... Engari i muri i tētahi wā, ka pai ake ēnei mea katoa. I muri i tētahi wā, ka puta anō ēnei tohu. Kua pāngia koe e tēnei wheako? Koinei te āhua o te RRMS, te momo tino noa o te Multiple Sclerosis (MS). Nā te āhua o ēnei tohu, he mea noa te nui o te manukanuka me te mataku i ētahi wā. Me kōrero noa tātou mō tēnei, i roto i tētahi huarahi e mārama ai koe.
He aha te tikanga māmā o te RRMS?
Ko te RRMS he whakarāpopototanga mō te `(Relapsing-Remitting Multiple Sclerosis)`. Koinei te momo `(Multiple Sclerosis)`, MS rānei, e tino kitea ana. Tata ki te 80 ki te 85 i roto i te 100 ngā tūroro MS e pāngia ana e tēnei mate.
He tikanga tō tēnei i roto i tōna ingoa.
- Te hokinga mai anō: E pā ana tēnei ki te putanga ohorere mai o ngā tohu hou, te kino haere rānei o ngā tohu o mua. Ka roa pea tēnei mai i ētahi rā ki ētahi wiki. Ka kiia hoki tēnei he "whakapūngā" he "whakanui haere" rānei.
- Te Whakaora: Koinei te wā ka memeha haere ngā tohu o te mate i kino haere, ka memeha haere rānei i roto i te wā. I tēnei wā, ka taea e koe te noho noa me te kore he tohu.
Whakaarohia he rite ki te tupuhi. Kātahi ka puta ngā tohumate, pērā i te tupuhi, ā, ka whakamā koe. Kātahi ka marino te tupuhi, kātahi ka marino anō mō tētahi wā. Koinei te āhua o te RRMS.
Ka whakarōpūtia te mate i tēnei ara hei āwhina i a koe me tō tākuta ki te mārama ki te ahunga o te mate, me te whiriwhiri i te maimoatanga e tino tika ana māu.
He aha ngā tohu e kitea whānuitia ana i roto i te RRMS?
Ka rerekē ngā tohu o te RRMS i ia tangata, i ia tangata, engari he iti noa ngā tohu e kitea whānuitia ana. Me titiro tātou ki ēnei tohu.
| Tohu | He whakamārama māmā |
|---|---|
| Ngā huringa tirohanga | Ngā āhuatanga pēnei i te tirohanga pōuri, te kore e puta tika mai o ngā tae, te tirohanga takirua, me te mamae i te wā e nekehia ai ngā kanohi. |
| Te wiri, te ngaro rānei o te kare ā-roto | He kare ā-tinana e mākūkū ana, pērā i ngā ringa, ngā waewae, me te mata. I ētahi wā, kāore pea he kare ā-tinana e pāngia ana e aua wāhi. |
| Te kikī o te uma/puku | E rite ana ki te mea kei te awhi pūmau koe i tō uma, i tō puku rānei. E kīia ana tēnei e ētahi he "awhi MS". |
| Ngenge e kore e taea te whakaaro | He ngenge nui, e kore e taea te kōrero, ahakoa kua moe pai koe. He rerekē rawa tēnei i te ngenge noa. |
| Ngā raruraru mimi me te whēkau | Ngā raruraru pēnei i te kore e taea te mutu ina hiahia koe ki te mimi (whakahāwea), te uaua rānei ki te tīmata ina hiahia koe ki te mimi (whakaroa). |
| He kare ā-roto e rite ana ki te ru hiko. | Ina piko tō kaki ki mua, tera pea ka rongo koe me te mea he ru hiko e heke ana i tō tuaiwi. |
| Te uaua ki te hikoi me ngā raruraru uaua | Ka ngaro tō taurite i a koe e hikoi ana, ka ngoikore ō uaua, ka mārō rānei koe. |
| Ngā raruraru ki te mahara me te aro | Ka uaua te maumahara ki ngā mea, ā, kāore e taea te arotahi ki tētahi mea. Ka kiia hoki tēnei ko te "kohu roro". |
I te wā e pā mai ana te mate, ka puta tahi pea ētahi o ēnei tohu. Mō ētahi tāngata, ka ngaro katoa ēnei tohu i te wā e māhorahora ana. Mō ētahi atu, ka mau tonu pea ētahi tohu. Kaua e manukanuka , kei reira ngā maimoatanga e wātea ana hei whakahaere i ēnei tohu pumau.
He aha ngā āhuatanga e whai wāhi ana ki te pikinga ake o ēnei tohu?
I ētahi wā, ka kitea pea e koe ētahi mea ka kino ake ō tohu. Ka kiia ēnei e mātou he "Pūtake". Engari kia maumahara, ko te mea e pā ana ki tētahi tangata, kāore pea e pā ki tētahi atu.
- Taumahatanga: Ka puta pea ngā tohu i ngā wā tino taumahatanga.
- Te pāmahana: Ka taea e te wera nui, me te makariri rawa i ētahi wā, te whakanui ake i ngā tohu.
- Ngā Mate Pukupuku: Ahakoa he mate iti noa iho, pērā i te makariri, i te mate mimi rānei, ka taea e ia te hoki mai anō o ngā tohu MS tawhito.
- Te kai hikareti: Ko te whakamahi i ngā hua tupeka tetahi o ngā tino take o te kaha haere o te mate.
- Te korenga o te huaora D: Ka pāngia hoki te tinana e te iti o te huaora D.
He aha te take e puta ai te MS? He aha te take?
Kāore anō kia mōhiotia te tino pūtake o te MS, engari e kiia ana he mate pūnaha ārai mate .
Ki te kī ngāwari, ka whakaekea e te pūnaha ārai mate o tō tātou tinana ngā wāhanga hauora o tō tātou tinana. I roto i te MS, ka anga atu tēnei whakaeke ki tō tātou pūnaha io matua (te roro me te taurakira).
Hei whakamārama tika, kua pakaru te hipoki tiaki e karapoti ana i ngā io o te roro me te taurakira. Ka kiia tēnei ko te "Myelin". He rite ki te hipoki kirihou e karapoti ana i te waea hiko. Ina pakaru tēnei hipoki, kāore e tika te haere o ngā karere io. Koinei te wā e puta ai ngā tohu kua kōrerohia e tātou.
Kua kitea e ngā rangahau tera pea he pānga o te āheinga ira me ngā āhuatanga taiao pēnei i te huaketo Epstein-Barr ki tēnei.
Me pēhea te tautuhi i te RRMS?
He uaua pea te tātaritanga i te MS nā te mea kāore he whakamātautau kotahi, he whakamātautau tino tika. Ka whakamahia e tō tākuta ō tohu, tō hītori hauora, me ngā hua o ētahi whakamātautau hei whakatau i tētahi take.
- Matawai MRI: Ka taea e tēnei te tirotiro i ngā wāhi kua pakaru (ngā whara/ngā koha) ki te pūtu io (myelin) i roto i te roro me te taurakira.
- Te Wero i te Lumbar: Ko te tikanga o tēnei ko te tango i te wai tuaiwi me te rapu i ngā tohu o ngā whitiki oligoclonal rite ki te MS. Ka taea e ēnei te whakaatu mēnā he mumura kei roto i te roro/taura tuaiwi.
- Ngā whakamātautau toto: Ka āwhina ēnei ki te whakakore i ētahi atu mate he rite ngā tohu ki te MS.
- Matawai OCT (Optical Coherence Tomography): He whakamātautau kore mamae tēnei e matawai ana i ngā io kei muri o te kanohi (te retina). Ka taea te tirotiro mō ngā kino ki ngā io whatu nā te MS.
He aha ngā maimoatanga mō te RRMS?
Ahakoa kāore anō kia kitea he rongoā hei whakaora katoa i te MS,He tino whai hua ngā maimoatanga o ēnei rā hei whakahaere i te mate me te whakarerekē i te ahunga o te mate.
Ko ngā whāinga matua o ēnei maimoatanga ko:
- Te whakaiti i te maha o ngā hokinga mai.
- Te whakaiti i ngā kino hou ki te pūnaha io.
- Te whakaroa i te tere o te kino haere o ngā tohu.
He maha ngā momo rongoā e wātea ana, tae atu ki ngā werohanga, ngā rongoā ā-waha, me ngā werohanga ā-uaua, pērā i te tote.
Ko ēnei rongoā e kiia ana ko ngā "Disease-Modifying Agents" (DMT). Ka mahi rātou mā te whakarerekē i te āhua o te mate me te ārai i ngā kino o te pūnaha io a muri ake nei. Nō reira , he mea tino nui kia tīmata wawe te maimoatanga.
Kia tino kōrero mārire koe ki tō tākuta mō te maimoatanga e pai ana mōu me ngā pānga taha. Māna e hoatu ki a koe te otinga pai rawa atu.
Ka pēhea rā te āhua o te oranga me tēnei mate?
He mea noa te mataku me te manukanuka ina rongo koe kei a koe tētahi mate pūmau pēnei. Engari ko te pono, ahakoa kei a koe te MS, ka taea e koe te ora roa, te harikoa, me te angitu.
Kua nui ngā whanaketanga o ngā maimoatanga mō te MS i ngā tau kua pahure ake nei, ā, kua māmā ake te whakahaere i te ahunga whakamua o te mate.
I muri i te pānga o te RRMS ki ētahi tāngata mō tētahi wā, ka pāngia pea rātou e tētahi āhuatanga ka piki haere ngā tohu, engari ka heke te maha o ngā hokinga mai. Ka kiia tēnei ko te "Secondary Progressive Multiple Sclerosis (SPMS)". Heoi, mā te maimoatanga wawe me te tika, ka taea te ārai, te whakaroa rānei i tēnei āhuatanga.
Āhea koe me toro atu ki tō tākuta?
- Mena ka puta he tohu hou ki a koe, ka kino haere rānei ō tohu.
- Mena ka puta mai ngā pānga taha i te maimoatanga.
- Mena he pātai, he āwangawanga rānei āu mō te mate.
Karere Tangohia ki te Kāinga
- Ko te RRMS te momo MS tino noa, ā, ko ōna āhuatanga he huringa o te hokinga mai me te murunga.
- He rerekē ngā tohu i ia tangata, i ia tangata. He mea noa te raru o te tirohanga, te ngau kino, me te tino ngenge.
- Ahakoa kāore he tino take mō tēnei, e kiia ana he mate pūnaha ārai mate.
- Ahakoa kāore e taea te whakaora katoa i te mate, he tino whai hua ngā maimoatanga (DMT) i ēnei rā hei whakahaere i te mate me te ārai i te kino o ngā io.
- He mea tino nui te tautuhi me te maimoatanga wawe mō te heke mai.
- Kōrero noa ki tō tākuta mō tō āhua, te maimoatanga, me ō pātai katoa.
- He uaua pea te noho me te mate pūmau. Kaua e mangere ki te rapu tautoko i tētahi tohunga hauora hinengaro mēnā e tika ana.
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