Kei te ahua taumaha tō uma i ētahi wā, he ahua pēhi i tō uma, he ahua ngoikore rānei ina piki koe i te arawhata, ina oma koe ki te pahi, kei te ahua ngoikore rānei koe? Tērā pea he ngenge noa iho tēnei, engari i ētahi wā he mate manawa pea e kiia nei ko te Hypertrophic Cardiomyopathy . Kaua e manukanuka, i tēnei rā kei te kōrero tātou mō tētahi pokanga tino angitu e kiia nei ko te Septal Myectomy , e mahia ana hei rongoā mō tēnei mate. Pērā i te whakamārama ki tētahi hoa, me kōrero tātou mō ngā mea katoa i roto i ngā kupu māmā.
Tuatahi, kia tirohia tātou he aha tēnei mea e kiia nei ko te Hypertrophic Cardiomyopathy?
Hei whakamārama māmā ake i tēnei, me whakarite tō tātou ngākau ki tētahi papu wai. Ko te mahi a te papu he kukume i te wai mā roto i ngā paipa ka tukuna puta noa i te whare. He pērā anō tō tātou ngākau, ko tana mahi matua he pupuhi i te toto puta noa i tō tātou tinana.
E whā ngā rūma matua o roto i tō tātou ngākau.
- Ka huaina e mātou ngā rūma o runga e rua ko te atria (matau me te maui).
- Ka karangatia ngā rūma e rua i raro i ngā ventricle o te ngākau (matau me te maui).
Hei whakamārama tika, he pakitara uaua kei reira e wehe ana i ngā rūma maui me te taha matau o raro. Ka kiia tēnei ko te septum . I roto i te hypertrophic cardiomyopathy, ka matotoru rawa atu tēnei septum, arā, tēnei pakitara i waenganui o te ngākau, i te mea noa.
Whakaarohia te mea ka tupu mēnā ka purua te paipa i roto i taua papu wai? Ka iti haere te wāhi e rere ai te wai, ā, me kaha te mahi a te papu ki te pana i te wai ki waho. Koinā hoki te mea e tupu ana i konei. Ka matotoru tēnei septum, ka puta ki roto i te ventricle maui. Kātahi ka purua te ara e rere ai te toto i waho o te ventricle maui, te ruma matua e pupuhi ana i te toto mai i te ngākau ki te tinana. Nā tēnei, me kaha ake te mahi a te ngākau (he nui rawa te mahi) i te tikanga ki te pupuhi i te nui o te toto e hiahiatia ana e te tinana katoa.
He mate manawa whānau tēnei mō ētahi tāngata. Ko te tikanga tēnei i whānau mai rātou me tēnei raruraru. Mō ētahi atu, ka pā mai pea i muri mai i te ao.
Nā, he aha te ingoa o tēnei pokanga ko te Septal Myectomy?
Ki te kī ngāwari, he pokanga ngākau tuwhera te Septal Myectomy e tapahia ai e te taote ngākau te wāhanga matotoru rawa o te pakitara ngākau (septum), ka tangohia.
Pērā i te whakawātea i te rori mā te tango i te aukati i roto i te paipa wai, i muri i tēnei pokanga, ka tangohia te aukati i te rere o te toto i roto i te ngākau. Kātahi ka taea e te ngākau te pupuhi ngāwari i te toto puta noa i te tinana me te kore he aukati. Koinei te kaupapa matua o tēnei pokanga.
Mā wai tēnei pokanga e tūtohu?
I te nuinga o te wā, kāore te tākuta e tūtohu tonu i tēnei pokanga. Ka ngana tuatahi rātou ki te whakahaere i ngā tohu mā te hoatu rongoā. Heoi anō,
- Mō te hunga kāore e taea te whakahaere i ō rātou tohumate (pēnei i te poto o te manawa, te mamae o te uma) mā te rongoā.
- Mō te hunga he matotoru rawa te pakitara o te taha maui o te ngākau, ka aukati nui i te rere o te toto .
- Ngā wāhine he Hypertrophic Cardiomyopathy e whakaaro ana kia hapu (ahakoa kāore i te kino ngā tohu, ka tūtohutia pea tēnei pokanga hei mahi ārai i te mea ka nui ake te taumahatanga o te manawa i te wā e hapu ana).
I ngā āhuatanga pēnei ka kōrero te tākuta ki a koe, ā, ka whakatau ko tēnei pokanga te kōwhiringa pai rawa atu.
Me aha koe i mua i te pokanga?
Mā tō tākuta koe e hoatu ki a koe ngā tohutohu katoa e hiahiatia ana e koe i mua i te pokanga. Kāore he mahi nui rawa atu, engari me mōhio koe ki ētahi mea.
- Mena kei te tango koe i ētahi rongoā, pērā i ngā rongoā whakaiti toto , ka tonoa pea koe kia mutu te tango i aua rongoā i ētahi rā i mua i te pokanga.
- Mena he kaipaipa koe , he mea tino nui kia ngana koe ki te whakamutu i mua i te pokanga, nā te mea ka whakararuraru te kaipaipa i te tukanga whakaora.
Hei tāpiritanga, ka whakahaerehia ētahi whakamātautau hei aromatawai tika i te āhua o tō ngākau. Ka mahia ēnei hei tirotiro i te rite o tō ngākau i mua i te pokanga.
| Whakamātautau | Hei whakarāpopototanga, he aha tāu e mahi ai ki taua mea? |
|---|---|
| Ngā Whakamātautau Toto | Ka tirohia ngā mea pēnei i tō hauora whānui, te mahi a tō whatukuhu me te ate. |
| X-ray o te uma | Mātakitaki i te āhua me te rahi o te ngākau me ngā pukahukahu. |
| Te hiko o te manawa (ECG) | Ka tirohia te ngohe hiko o te ngākau, arā, te manawataki o te pao o te ngakau. |
| Te Echocardiogram (Echo) | He rite tēnei ki te matawai ngākau. Ka kitea mārama te mahi a ngā rūma, ngā pakitara, me ngā takirere o te ngākau, te matotoru o ngā pakitara, me te mea kei reira ētahi ārai i te rere o te toto. |
| MRI o te ngākau | Ka mahia tēnei whakamātautau hei tiki whakaahua tino mārama, taipitopito hoki o te uaua o te ngākau. |
| Te Tātaritanga o te Ngākau | He whakamātautau e tukuna ai he ngongo iti mā roto i tētahi uaua i te ringa, i te waewae rānei ki roto i te ngākau hei tirotiro mō ngā aukati i roto i ngā oko toto o te ngākau me te pēhanga i roto i te ngākau. |
Me pēhea te mahi i te pokanga i te taahiraa i te taahiraa
Nā te mea he pokanga ngākau tuwhera tēnei, ka tukuna he rongoā whakamoe whānui ki a koe. Ko te tikanga tēnei kāore koe e rongo i te mamae, ka moe hōhonu koe. Kāore koe e rongo i tetahi mea mai i te tīmatanga o te pokanga tae noa ki te mutunga.
I muri i tō moe, ka whai te tīma pokanga i ēnei mahi:
1. Te urunga atu ki te ngākau: Ka tapahia poutū e te taote pokanga te waenganui o tō uma, ka wehea marietia te wheua uma (sternum) kia rua hei urunga atu ki te ngākau.
2. Te Hononga ki te Mīhini Ngākau-Pūkahukahu: Muri iho, ka honoa koe ki tētahi mīhini ngākau-pūkahukahu . He mīhini whakamiharo tēnei. I te wā o te pokanga, ka mahia te mahi a tō ngākau me ō pūkahukahu, e pupuhi ana i te toto huri noa i te tinana me te tāpiri hāora ki te toto, e tēnei mīhini mō tētahi wā poto. Mā tēnei ka taea e te taote pokanga te whakamutu i te ngākau me te mahi i te pokanga i roto i tētahi taiao marino, kore toto.
3. Te tango i te wāhanga matotoru: Nā, ko te wāhanga matua tēnei. Ka tino tapahia e te taote pokanga te wāhanga uaua tāpiri o te pakitara matotoru (septum) o te ngākau. Ka mahia tēnei ki te taumata e tika ana hei tango i te aukati i te rere o te toto.
4. Te whakamutu i te whāngai ū: Kia mutu te pokanga, ka momotuhia tō hononga mai i te mīhini ngākau-pūkahukahu, ā, ka tīmata anō tō ngākau ki te mahi takitahi.
5. Te kati i te tapahi:Hei whakamutunga, ka honoa anō te sternum, ā, ka katihia te tapahi o te uma ki ngā tuitui ka taea te rewa.
E toru, e whā rānei hāora te roa o te pokanga katoa.
He aha ngā mea ka tupu i muri i te pokanga?
I muri i te pokanga, ka whakaurua tika koe ki te Wāhanga Tiaki Kaha (ICU) , ka aroturukitia tō tere o te manawa me tō toto toto.
- Mō ngā haora 24-48 tuatahi, tera pea kei a koe he kati mimi me te ngongo waikeri uma hei tango i te wai nui. Kaua e manukanuka ki ēnei, he rangitahi noa iho.
- I muri i te 48 hāora, ka tīmata koe ki te hikoi pōturi me te awhina a te kaiwhakaora tinana.
- Ko te nuinga o te iwi ka noho ki te hōhipera mō ngā rā e rima, ā, i muri iho ka taea e rātou te hoki ki te kāinga.
He aha ngā painga me ngā mōrearea o tēnei pokanga?
Pērā i ngā pokanga katoa, he painga, he mōrearea iti anō hoki. Heoi, he tino angitu te pokanga Septal Myectomy, he iti hoki te mōrearea.
| Ngā painga matua o te pokanga | |
|---|---|
| Te ngaronga o ngā tohu | I muri i te pokanga, ka tata ngaro katoa ngā tohu pēnei i te poto o te manawa (dyspnea), te mamae o te uma (angina), me te ngoikore (syncope). Ka taea e koe te ora anō i tētahi oranga hohe. |
| He angitu teitei | He tino teitei te angitu o tēnei pokanga. E ai ki tētahi rangahau, 94% o te hunga i pokangahia i ora ake ō rātou tohumate. |
| Ngā hua mō te wā roa | He roa te wā e mau ai ngā hua o tēnei pokanga. I muri i te pokanga, kua kitea he rite te roanga o te oranga o ngā tūroro ki te roanga o te oranga o te tangata hauora noa. |
| Ngā raruraru pea (Ngā mōrearea) - (Ehara ēnei i te mea noa) | |
|---|---|
| Te kohikohinga wai huri noa i te ngākau, i ngā pukahukahu rānei | I ētahi wā ka puta he wai i te taha o te ngākau, o ngā pukahukahu rānei. I te nuinga o te wā ka taea te rongoā i tēnei. |
| Te Whakapūngao Atrial | He pāorooro o te manawa. Ka taea hoki te whakahaere i tēnei mā te rongoā. |
| Poraka Manawa | Ngā whakararuraru i ngā tohu hiko o te ngākau. Ka puta pea he pāheketanga o te ngakau (arrhythmias). I ētahi wā onge, me whakauru pea he taputapu whakatere hei rongoā. |
Kia maumahara, ka piki ake te mōrearea o ēnei raruraru i roto i te hunga whai mate ngakau kē atu, i te hunga kaipaipa, me te hunga neke atu i te 65 tau te pakeke. Mō te tangata hauora, he tino iti tēnei mōrearea.
Ka pēhea ōu kare ā-roto i te wā e ora ana koe?
Ka tīmata koe ki te pai ake i roto i ētahi rā, wiki rānei i muri i te pokanga. Ka kite koe i te rerekētanga i te ngaromanga o ngā āhuatanga pēnei i te poto o te manawa.
- I te tīmatanga, tera pea ka pāngia koe e te mamae iti, e te kikī rānei o tō uma, engari kaua e tino taumaha.
- He mea noa te ngenge me te ngoikore o te kaha i muri i te pokanga, engari ka hoki tō kaha ki te āhua noa i roto i ētahi wiki.
Āhea koe me toro atu ki te tākuta?
He mea tino nui kia aroturukihia tō whakaoranga i muri i tō hokinga ki te kāinga. Mēnā ka pāngia koe e tētahi o ngā tohu e whai ake nei, me whakapā atu koe ki tō tākuta tonu atu .
| Ngā tohu hei tūpato | |
|---|---|
| Ngā raruraru e pā ana ki te tapahi | Mena he whero rerekē, he pupuhi, he mahana rānei huri noa i te wāhi i pokangahia (tapahi). |
| Kirika | Ki te piki te pāmahana o te tinana ki runga ake i te 38 Celsius (100.4 Fahrenheit) . |
| Te pikinga o te taumaha | Ki te piki ohorere tō taumaha i te 2.5 kg (5 pauna) i roto i te wiki (he tohu pea tēnei kei te pupuri wai i roto i te tinana). |
| Te uaua ki te manawa | Mena ka pāngia koe e te uaua ki te manawa, ki te mamae rānei o te uma. |
He pokanga nui te Septal Myectomy. Engari he maimoatanga tino angitu, ā, he mea whakarerekē i te ora mō te Hypertrophic Cardiomyopathy. Whai muri i tēnei pokanga, ka taea e koe te noho i te oranga noa me te kore wehi, me te kore ngenge anō. Mena kei a koe ēnei tohu, kaua e mangere ki te kōrero ki tō tākuta, me whakahaere ngā whakamātautau e tika ana, me te pātai atu anō mō tēnei.
Karere Tangohia ki te Kāinga
- Ko te Septal Myectomy he pokanga ngākau tuwhera e mahia ana mō te mate Hypertrophic Cardiomyopathy , arā, he matotoru rawa te pakitara o te ngākau.
- Ko tēnei pokanga he tapahi i tētahi wāhanga tāpiri o te pakitara mātotoru o te ngākau, hei tango i te aukati i te rere o te toto i roto i te ngākau.
- Ko te tikanga o tēnei pokanga he mea tūtohu mā te hunga kāore e taea te whakahaere i ō rātou tohumate ki te rongoā.
- He tikanga tino angitu tēnei, he iti hoki te mōrearea. Ka tino ora te nuinga o te tangata i muri i te tikanga.
- E hia wiki te roa o te whakaoranga i muri i te pokanga, ā, he mea tino nui kia whai i ngā tohutohu hauora i taua wā.
- Ki te puta he tohu rerekē ki a koe, pērā i te pupuhi o te patunga, te kirika, te pikinga ohorere rānei o te taumaha, me whakamōhio tonu atu ki tō tākuta.
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