Kei te rongo koe i ētahi wā i te wera o ō ringaringa, o ō waewae rānei, i te ngau kino, i te mamae werowero rānei? Kei te rongo koe i te mamae e kore e taea te whakamanawanui ahakoa te pā o te whāriki moenga ki tō waewae? Ahakoa ki tō whakaaro he mea noa iho ēnei mea, tera pea he take hauora kei muri i tēnei. I tēnei rā ka kōrero tātou mō tētahi āhuatanga e kiia nei ko te Small Fiber Neuropathy (SFN), e puta ai ēnei tohu. Ahakoa he ingoa roa tēnei, kia mārama noa tātou.
He aha te Small Fiber Neuropathy (SFN)?
Ki te whakarapopototanga, ko te Small Fiber Neuropathy (SFN) he mate o te pūnaha io o waho. Āe, he ahua uaua rawa atu tēnā, kāore? Me wehewehe tātou.
Whakaarohia kei te kapi tō tātou tinana i tētahi whatunga io, pērā i te pūnaha waea hiko. He tino angiangi, he ririki ngā muka io, kāore i te matotoru atu i te makawe. Koinei ngā mea e kawe ana i ngā kare ā-roto pērā i te wera, te makariri, me te mamae e pā ana ki tō tātou kiri ki te roro. Ko te SFN te wā e pakaru ai aua muka io ririki mō tētahi take.
Ina pakaru ēnei io, kāore e mahi tika. Ka tīmata rātou ki te tuku i ngā tohu hē ki te roro. Koia te take ka pāngia koe e te mamae wera, te werowero, te ngau rānei i ō ringaringa me ō waewae, kāore he take.
Ehara i te mea ko ngā io o te kiri anake te pānga o tēnei āhuatanga, engari ko ētahi atu io ngawari hoki e whakahaere ana i ngā mahi nui o tō tātou tinana (hei tauira, te toto totoka, te tere o te manawa). Ehara te SFN i te mea morearea ki te ora, engari i ētahi wā he tohu pea nō tētahi atu mate kino.
He aha ngā tohu matua o tēnei?
Ka rerekē ngā tohu o te SFN i ia tangata, i ia tangata. Engari ko te tohu tino kitea, inā koa i ngā wāhanga tōmua, ko te mamae o ngā ringa me ngā waewae. I ētahi wā ka puta mai, ka ngaro atu tēnei mamae, i ētahi wā ka mau tonu. Ka kino haere pea i roto i te wā.
Kia tirohia tātou he aha ngā tohu matua.
| Tohu | He Whakamārama Māmā |
|---|---|
| Te mamae e wera ana, e wera ana rānei | He ahua wera, he koi i roto i ngā ringa me ngā waewae. Koinei te tohu tino kitea. |
| Pōuriuri, ngoikore rānei | Ka pōuri, ka māuiui rānei te mahunga ina tū, ā, ka hemo pea. Tērā pea ka pā tēnei ina tū ake i te tūnga noho. |
| Ngā tere o te manawa | Te tere o te pao o tō ngākau, te tere rānei o te pao o tō ngākau. |
| te ngoikore | Te ngoikore me te ngaro o te kare ā-roto i ētahi wāhi. |
| Te ngaronga o te mamae me te pāmahana | Te ngaronga o te kare o te wera, te makariri, te mamae rānei i ngā wāhi iti o te tinana. Hei tauira, kāore pea koe e rongo i tetahi mea ahakoa ka pā atu koe ki tētahi mea wera. |
| Mamae puku | Te mamae o te puku, te kōroke rānei, kāore he take. |
| Ngā huringa o te werawera | Te werawera nui atu i te mea noa, te kore rānei e werawera katoa. |
He aha i puta ai te Small Fiber Neuropathy (SFN)?
He pātai tino nui tēnei. Mō te haurua o te hunga whai SFN, kāore e kitea he take . Ka karangahia tēnei āhuatanga e ngā tākuta ko te "Idiopathic Small Fiber Neuropathy." Ko tōna tikanga ko te "SFN kāore i te mōhiotia te take."
Heoi anō, he maha ngā āhuatanga ka whai pānga ki te toenga o te haurua.
Nā ētahi atu āhuatanga hauora
He maha ngā wā, ko te SFN he pānga taha o tētahi atu mate.
- Mate huka: Ko te tino take o te SFN ko te mate huka. Ka taea e ngā taumata huka toto kore e whakahaeretia mō te wā roa te kino ki ēnei io ngawari.
- Te kore e manawanui ki te huka toto: He tohu tēnei mō te mate huka. I konei anō hoki, ka pakaru pea ngā io.
- Ngā mate o te pūnaha ārai mate:Ka taea e ngā mate pēnei i te mate Celiac, te mate Sjögren, me te Sarcoidosis te whakaeke i ēnei io e te pūnaha ārai mate o te tinana.
- Ngā Mate Pukupuku: Ka taea hoki e ngā mate pēnei i te Hepatitis C, te HIV rānei te whakaputa i te SFN.
- Te korenga o te huaora B: Ka taea e te korenga o te huaora B12 te kino i ngā io.
- Te mate whakamahi waipiro
- Mate tairoi
- Te mate pāwera
Ngā mate tuku iho
I ētahi wā ka puta pea tēnei mate i ngā āhuatanga ira. Ko te tikanga he mate tēnei kei tētahi o tō whānau, ā, ka taea hoki e koe te pangia. Ko te 'Fabry disease' me te 'Familial amyloidosis' ētahi o aua mate.
Nā ētahi rongoā me ngā paitini
Ka taea hoki te pakaru i ēnei io hei pānga taha o ētahi o ngā rongoā e tangohia ana e tātou.
- Ko ētahi rongoā chemotherapy mō te mate pukupuku
- ētahi paturopi (hei tauira, metronidazole, nitrofurantoin)
- Ngā rongoā pēnei i ngā 'kaitātari ira mate pukupuku'
He aha ngā raruraru o tēnei?
E rua ngā raruraru matua e puta mai ana i te SFN.
1. Te ngaronga o te mamae: Ko tētahi o ngā mōrearea matua o tēnei ko te ngaronga o te mamae. Whakaarohia kei te pā atu koe ki tētahi kohua wera i runga i te oumu, engari ki te kore koe e rongo i te wera, ka wera pea tō ringa. He nui te tūponotanga o ēnei aituā. Nō reira, he mea nui kia tirohia e te tangata whai SFN ōna waewae me ōna waewae mō ngā whara.
2. Te hinganga: Ka piki ake te mōrearea o te hinganga i te whanoke, te uaua ki te hikoi, me te ngaro o te taurite.
Me pēhea te kitenga a te tākuta i tēnei?
Kia oti i a koe te whakaahua i ō tohumate, ka tirotirohia koe e tō tākuta, ka pātai atu hoki ki a koe. Kāore he whakamātautau kotahi hei whakaū i te SFN, nō reira me whai pea koe i ētahi whakamātautau.
- Kohikohi kiri: Koinei te whakamātautau tino nui hei tautuhi i tēnei mate. I konei, ka tangohia he wahi kiri iti rawa (tata ki te 3 mirimita te rahi) ka tirohia i raro i te karu hiko hei tirotiro i te matotoru o ngā muka io angiangi.
- Whakamātautau aro o te axon sudomotor tauanga (QSART): Ka whakamātautau tēnei i te mahi a ngā io e uru ana ki te werawera.
- Te Electromyography (EMG) me ngā rangahau kawe io: Ko te tikanga, ka tirohia e ēnei whakamātautau te mahi a ngā muka io nui. He noa ēnei whakamātautau i roto i te SFN. Heoi, he āwhina ēnei ki te whakakore i ētahi atu mate io.
- Ngā whakamātautau toto: Ka mahia ngā whakamātautau toto hei rapu i ngā tino take, pērā i te mate huka, te korenga o ngā huaora, me ngā raruraru tairoi.
- Ngā whakamātautau ira: Ka taea tēnei whakamātautau mēnā he whakapae kei te pūtake ira.
He aha ngā maimoatanga?
E rua ngā whāinga matua e arotahi ana ngā tākuta i te wā e maimoatanga ana.
1. Whakaorahia te pūtake o te mate: Koinei te mea nui rawa atu. Mena he mate huka te take, kua pai te whakahaere i te mate huka. Mena he ngoikore o te huaora, ka hoatu ngā huaora e tika ana. Ina tika te rongoā i te take, ka taea te whakamutu, te whakaiti rānei i te kino ki ngā io.
2. Te whakahaere i te mamae me ētahi atu tohumate: He rongoā motuhake hei whakahaere i te mamae o ngā io.
He mea nui: Kāore i te tino whai hua ngā rongoā whakamamae mamae noa (pērā i te Paracetamol me te Ibuprofen) mō tēnei momo mamae io. Nō reira, he mea nui kia whakamahia noa te rongoā kua tohua e tō tākuta.
Kua whakarārangihia i raro nei ētahi o ngā momo rongoā matua e whakamahia ana.
| Kāwai Rongoā | Ngā tauira me ngā tuhipoka |
|---|---|
| Ngā rongoā ārai-hōhā | Ahakoa he rongoā ēnei mō te mate haurangi, he tino whai hua anō hoki mō te whakahaere i te mamae o ngā io. Hei tauira: `Gabapentin`, `Pregabalin` |
| Ngā rongoā ārai pouri | Ahakoa he rongoā ēnei mō te pouri, he tino angitu hoki te whakamahinga hei whakahaere i te mamae i puta mai i te kino o te io. Hei tauira: 'Amitriptyline', 'Nortriptyline', 'Desipramine' |
| Ngā rongoā whakangote ā-papa | He kirīmi, he kirikiri, he pāreti rānei e pania ana ki te kiri. Ka whakangāwari ēnei i te wāhi mamae, ka whakaiti hoki i te mamae. Hei tauira: 'Lidocaine', 'Capsaicin' |
Āhea ahau me toro atu ki te tākuta?
Ki te pā mai ētahi o ngā tohu kua whakahuatia i roto i tēnei tuhinga, inā koa te wera, te ngoikore, te ngau rānei o ō ringaringa, kaua e wareware noa iho, engari me toro atu ki te tākuta. Nā te mea he tohu pea tēnei o tētahi mate kino, ka taea te rongoā pērā i te mate huka.
Mena kua tākuta kē koe mō te SFN, me toro atu anō ki tō tākuta mēnā ka kite koe i ngā huringa e whai ake nei:
- A, mehemea ka horapa te mamae o ōku waewae ki ōku ringa?
- Mena ka piki ake te auau, te kaha rānei o te mamae.
- Mena ka puta mai ngā tohu hou, pērā i te whanoke, te uaua rānei ki te hikoi.
Ina kite koe i tō tākuta, ka taea e koe te pātai i ēnei pātai.
- "He aha ahau i pāngia ai e ēnei tohu?"
- "Ka kino haere rānei ēnei tohu?"
- "He aha ngā maimoatanga pai rawa atu ka taea e au te whiwhi?"
- "Ka mau tonu rānei tēnei āhua ki ahau ake tonu atu?"
Karere Tangohia ki te Kāinga
- Ko te Small Fiber Neuropathy (SFN) he mate e puta mai ana i te pakaru o ngā muka io tino angiangi o te kiri.
- Ko ngā tohu matua ko te wera, te ngoikore, me te mamae wero i ngā ringa me ngā waewae.
- He maha ngā wā ko te mate huka kāore i te whakahaeretia te take matua o tēnei mate, nō reira he mea morearea te kore aro ki ēnei tohu.
- Mena kei a koe ēnei tohu, me toro atu ki tō tākuta i te wā e taea ai kia kitea ai te take me te whiwhi maimoatanga tika.
- He mea tino nui te rongoā i te pūtake o te mamae me te whakahaere i te mamae i roto i te maimoatanga.
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