Kodi chingachitike n’chiyani ngati magazi ataundana mkati mwa mitsempha yaing’ono ya magazi mu impso zanu, zomwe zingalepheretse magazi kuyenda kupita ku impso zanu? N’zoopsa kuganizira, sichoncho? Ndicho chimene tikukamba lero. Izi zimatchedwa Atypical Hemolytic Uremic Syndrome, kapena aHUS mwachidule. Ngakhale kuti sizingachiritsidwe, zimatha kuchiritsidwa bwino ndi chithandizo choyenera . Choncho tiyeni tiphunzire zambiri za izo.
Kodi pali kusiyana kotani pakati pa HUS yachizolowezi ndi yachizolowezi?
Mwina munamvapo za matenda otchedwa HUS. Timawatcha kuti "HUS wamba." Nthawi zambiri amayamba chifukwa cha matenda a bakiteriya monga E. coli, omwe amayambitsa kutsegula m'mimba. Koma matenda omwe tikukamba lero, aHUS, ndi osiyana.
Matendawa, otchedwa aHUS, amatha kuchitika pa msinkhu uliwonse. Mwa ana aang'ono, amakhudza anyamata ndi atsikana mofanana. Komabe, akamakula, akazi amakhala ndi mwayi waukulu wopeza matendawa. Izi zili choncho chifukwa mimba ikhoza kukhala chifukwa chachikulu cha matendawa. Ndizosowa kwambiri kotero kuti kafukufuku wina akusonyeza kuti anthu awiri okha pa anthu miliyoni imodzi ndi omwe ali ndi matendawa.
Nchifukwa chiyani aHUS imayamba?
Mwachidule, anthu ambiri omwe ali ndi aHUS amakhala ndi kusintha kwa majini, kapena kusintha kwa majini, m'matupi awo. Taganizirani ngati pali 'batani' m'thupi lanu lomwe lingayambitse matendawa. Koma kungoyika batani limenelo sikumayambitsa matendawa okha. Limafunika china chake chakunja kuti 'liyatsidwe', kapena kuyatsidwa. Timatcha izi 'zoyambitsa'.
Zinthu zazikulu zomwe zimayambitsa vutoli ndi izi:
- Mimba
- Matenda ena opatsirana
- Khansa
- Mankhwala ena
- Kusamutsa chiwalo
- Matenda ena a nthawi yayitali (monga matenda a sclerosis kapena matenda oopsa oopsa)
Chodabwitsa n'chakuti, pafupifupi theka la odwala aHUS, madokotala alibe kusintha kwa majini komwe angapeze. Timatcha milandu yotereyi kuti "idiopathic," kutanthauza kuti chomwe chimayambitsa matendawa sichikudziwika. Ofufuza amakhulupirira kuti vutoli limayamba chifukwa cha kusintha kwa majini komwe sikunadziwikebe.
Kodi zizindikiro zake ndi ziti?
Zizindikiro za aHUS nthawi zambiri zimawonekera mwadzidzidzi pambuyo poti chinthu chayambitsa matenda chachitika. Kutupa kumatha kukhala kofatsa kapena koopsa. Pakakhala kofatsa, impso sizingakhudzidwe kwambiri, koma pakakhala koopsa, zimatha kupangitsa kuti impso zilephere kugwira ntchito .
Zizindikiro zomwe mungakumane nazo pachiyambi:
- Kupweteka kwa thupi ndi kutopa kwambiri
- Kumva kuti simukudwala
Imeneyi ndi matenda opitirira muyeso. Izi zikutanthauza kuti zizindikiro zimakula pakapita nthawi, makamaka ngati sizipezeka msanga. aHUS imakhudza kwambiri impso zanu. Komabe, ziwalo zina, monga ubongo, chiwindi, mapapo, ndi mtima, zingakhudzidwenso ndi kutsekeka kwa mitsempha yamagazi.
| Mfundo zofunika kuziganizira pozindikira matenda | Mayeso ndi zomwe akuyang'ana |
|---|---|
| Zizindikiro zitatu zomwe dokotala akufuna | 1. Kuchepa kwa magazi m'thupi: Maselo ofiira a magazi amawonongeka mofulumira kuposa momwe amapangidwira. 2. Kuchepa kwa ma platelet: Kuchepa kwa chiwerengero cha maselo omwe amathandiza magazi kuundana. 3. Mavuto a impso: Kuchepa kwa ntchito ya impso. |
| Mayeso |
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Kodi mungazindikire bwanji matendawa?
Ngati palibe m'banja mwanu amene adadwalapo matendawa, zingakhale zovuta kuzindikira matenda a HUS. Kawirikawiri, katswiri wa matenda a mitsempha kapena matenda a magazi ndiye munthu wabwino kwambiri wodziwa za izi. Adzayang'anitsitsa zinthu zomwe zatchulidwa patebulo pamwambapa ndikukutumizirani kuti mukayesedwe.
Kodi njira zochiritsira ndi ziti?
Mwamwayi, pali mankhwala awiri ovomerezeka a aHUS.
- `Eculizumab (Soliris)`
- `Ravulizumab-cwcz (Ultomiris)`
Zonsezi zili m'gulu la mankhwala otchedwa `monoclonal antibodies`. Mwachidule, awa ndi mapuloteni opangidwa mwaluso omwe amagwira ntchito ngati ma antibodies achilengedwe a thupi lathu. Amalamulira gawo la chitetezo cha mthupi la thupi ndikuletsa magazi kuundana.
Mankhwala otchedwa ``Eculizumab`` amatha kuwonjezera kuchuluka kwa ma platelet ndi maselo ofiira m'magazi anu. Ngati chithandizo chiyamba msanga , mankhwalawa amathanso kubwezeretsa kuwonongeka kwina kwa impso.
Mankhwala onsewa amaperekedwa kudzera mu jakisoni. Angayambitse mavuto ang'onoang'ono, monga mutu, zizindikiro zofanana ndi chimfine, kusokonezeka m'mimba, ndi kupweteka kwa thupi. Chofunika kwambiri, pali chiopsezo cha matenda aakulu, monga meningitis (matenda a meningococcal), mukamwa mankhwalawa. Choncho dokotala wanu adzakuuzani kuti mulandire jakisoni wa zimenezo, ndipo angakupatseninso maantibayotiki kuti mupewe matendawa.
Kuwonjezera pa mankhwala amenewa, chithandizo cha plasma chingagwiritsidwenso ntchito. Izi zimaphatikizapo kupatsa wodwalayo plasma (gawo lamadzimadzi la magazi) lotengedwa kuchokera kwa munthu wathanzi (plasma infusion) kapena kuchotsa plasma ya wodwalayo ndikuyiyika m'malo mwake ndi plasma yathanzi (plasma exchange).
Ngati impso sizikuyankha ku chithandizo chilichonse mwa izi, njira yomaliza ndiyo dialysis ya impso kapena kuyika impso zina .
Mavuto ndi zadzidzidzi zomwe zingachitike
Kuwonjezera pa kulephera kwa impso, aHUS ingayambitse mavuto ena.
| Mavuto omwe angakhalepo a HUS | |
|---|---|
| |
| Nthawi yoti mupite ku ETU (Emergency Treatment Unit) ya chipatala nthawi yomweyo | |
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Kukhala ndi matendawa komanso thanzi la maganizo
Ndizachibadwa kumva kupsinjika maganizo ndi nkhawa mukakhala ndi matenda ngati amenewa kwa nthawi yayitali. Si vuto lanu. Ndicho chifukwa chake ndikofunikira kusamalira thanzi lanu la maganizo komanso thanzi lanu lakuthupi .
- Funsani gulu lanu lachipatala kuti likuthandizeni: Madokotala, anamwino, ndi ogwira ntchito zachitukuko angakutsogolereni kumalo komwe mungapeze thandizo la maganizo lomwe mukufuna.
- Onani mlangizi: Kulankhula ndi mlangizi wovomerezeka kungakuthandizeni kuchepetsa nkhawa zanu ndikukulimbitsani maganizo anu kuti muthane ndi vutoli.
- Dzisamalireni: Gonani mokwanira. Pezani njira zochepetsera nkhawa. Idyani zakudya zabwino zomwe zingathandize impso. Chitani masewera olimbitsa thupi ambiri momwe mungathere. Zinthuzi zitha kukhudza kwambiri thanzi lanu lonse.
- Lankhulani ndi okondedwa anu: Kukambirana izi ndi achibale ndi abwenzi kudzakupatsani mpumulo waukulu.
Uthenga Wopita Nawo Kunyumba
- aHUS ndi matenda osowa koma oopsa omwe amayamba chifukwa cha majini ndi zinthu zina monga mimba ndi matenda.
- Izi zimachitika makamaka pamene magazi amaundana m'mitsempha yaying'ono ya impso ndi ziwalo zina.
- Zizindikiro zazikulu ndi kuchepa kwa magazi m'thupi, kuchepa kwa ma platelet m'magazi, komanso kulephera kugwira ntchito bwino kwa impso.
- Ngakhale kuti matendawa sangachiritsidwe kwathunthu, ndi matenda oyamba komanso chithandizo choyenera, amatha kulamulidwa bwino, mavuto amatha kupewedwa, ndipo moyo wabwinobwino ukhoza kuyendetsedwa.
- Ngati muli ndi zizindikiro izi kapena mukukayikira chilichonse pa izi, pitani kwa dokotala nthawi yomweyo kuti akupatseni upangiri.
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