Kodi dokotala wanu wakuuzani kapena wina m'banja mwanu ali ndi matenda osowa otchedwa matenda a Pompe? Ngati ndi choncho, tikambirana za mankhwala ake lero. Dzina la mankhwala awa ndi Avalglucosidase Alfa. Mwina mumadziwa ndi dzina loti Nexviazyme. Dzinali ndi lovuta pang'ono, kotero mungakhale ndi mafunso ambiri okhudza matendawa. Musadandaule, tikambirana zonsezi m'njira yosavuta yomwe mungamvetse.
Mwachidule, kodi mankhwala amenewa ndi amtundu wanji?
Tangoganizani kuti thupi lathu lili ngati fakitale yayikulu. Kuti chilichonse chigwire ntchito bwino mufakitale iyi, payenera kukhala antchito omwe akuchita ntchito zosiyanasiyana. Timatcha antchito awa mu ma enzymes a thupi lathu.
Anthu omwe ali ndi matenda a Pompe amabadwa ndi kusowa kwa enzyme inayake. Ntchito ya enzyme iyi ndikuphwanya ndikuwongolera shuga wotchedwa glycogen m'minofu ndi maselo athu. Pamene enzyme iyi ikusowa, shuga wotchedwa glycogen umayamba kusonkhana m'minofu yathu. Zili ngati zinyalala m'fakitale. Izi zikasonkhana, minofu imafooka, imavutika kupuma, ndipo mtima umakhudzidwa.
Kotero, chomwe mankhwala otchedwa Avalglucosidase Alfa amachita ndikusintha ntchito ya enzyme yosowa, yochepetsedwa. Izi zikutanthauza kuti, zili ngati kubweretsa munthu wochokera kunja kuti achite ntchito yomweyo m'malo mwa wantchito wochepetsedwa. Mankhwalawa akalowa m'thupi kudzera mumtsempha, amayamba kuswa glycogen yomwe yasonkhanitsidwa ndikuichotsa. Kenako zizindikiro zimachepa pang'onopang'ono, ndipo mumayamba kumva mpumulo.
Zinthu zomwe muyenera kuuza dokotala wanu musanamwe mankhwalawa
Musanayambe kumwa mankhwalawa, ndikofunikira kwambiri kuti dokotala wanu adziwe za thanzi lanu lonse. Izi ndizotheka kuti mulandire chithandizo chabwino kwambiri. Onetsetsani kuti mwawauza za izi makamaka.
- Ngati muli ndi matenda a mtima .
- Ngati muli ndi matenda a m'mapapo .
- Ngati mudakumanapo ndi vuto la mankhwala a Avalglucosidase Alfa, mankhwala ena aliwonse, chakudya, utoto, kapena chosungira.
- Ngati muli ndi pakati kapena mukufuna kutenga mimba.
- Ngati ndinu mayi woyamwitsa.
Ndikofunikira kwambiri kuti mukhale otetezeka kuuza dokotala wanu izi popanda kuzibisa.
Kodi mankhwalawa angagwiritsidwe ntchito bwanji?
Mankhwala awa si omwe mungagwiritse ntchito kunyumba. Amaperekedwa moyang'aniridwa ndi dokotala kuchipatala kapena ku chipatala.
- Mankhwala operekedwa kudzera mu mtsempha:Mankhwalawa amaperekedwa mumtsempha, monga saline. Timatcha njira imeneyi kuti ndi infusion .
- Mankhwalawa amaperekedwa ndi gulu lachipatala: Mankhwalawa amaperekedwa kwa inu ndi dokotala wophunzitsidwa bwino kapena namwino, kotero palibe chodetsa nkhawa.
Kodi mankhwalawa angaperekedwe kwa ana aang'ono?
Inde, nthawi zina, mankhwalawa amaperekedwa kwa ana aang'ono ngati chaka chimodzi. Koma amaperekedwa motsatira upangiri wapadera wachipatala komanso njira zodzitetezera. Ngati mukupereka mankhwalawa kwa mwana wanu, lankhulani ndi gulu lanu lachipatala mosamala ndipo fotokozani zonse.
Kodi mumatani ngati mlingo ukuwonjezeka?
Popeza iyi ndi mankhwala operekedwa kuchipatala, mwayi woti munthu agwiritse ntchito mopitirira muyeso ndi wochepa kwambiri. Koma ngati mukuganiza kuti mwina mwagwiritsa ntchito mopitirira muyeso, musachite mantha. Pali zinthu ziwiri zomwe muyenera kuchita nthawi yomweyo.
1. Pitani ku Chipatala cha Emergency Treatment Unit (ETU) nthawi yomweyo.
2. Kapena, imbani National Poison Information Centre ku Colombo National Hospital .
Izi ndi nkhani yofunika kwambiri, choncho ndikofunikira kuchitapo kanthu mwachangu.
Nanga bwanji ngati ndaphonya mlingo wa mankhwala?
Kumwa mankhwalawa pa nthawi yake komanso pa tsiku lolembedwa n'kofunika kwambiri kuti chithandizo chipambane. Ngati simungathe kupita kuchipatala pa tsiku lolembedwa, musaphonye. Imbani gulu lanu lachipatala nthawi yomweyo ndipo muwadziwitse. Adzakuuzani choti muchite kenako.
Mfundo zapadera zomwe muyenera kuzidziwa
- Kupimidwa kuchipatala: Musaphonye kupimidwa nthawi zonse kuzipatala. Lankhulani ndi dokotala wanu ngati zizindikiro zanu zikuchepa, zikuipiraipira, kapena ngati muli ndi mavuto atsopano.
- Matenda a Ziwengo: Anthu ena akhoza kukhala ndi vuto lalikulu la ziwengo ndi mankhwala awa kapena atangopatsidwa kumene. Pofuna kuchepetsa chiopsezochi, gulu lanu lazachipatala lingakupatseni mankhwala ena (monga piritan) musanayambe kumwa. Choncho tsatirani malangizo awo molondola.
Kodi zotsatirapo zake zingakhale zotani chifukwa cha mankhwalawa?
Monga mankhwala ena aliwonse, izi zingayambitse mavuto ena mwa anthu ena. Koma si aliyense amene amakumana nazo. Chofunika ndikudziwa zomwe zimayambitsa mavutowo komanso choti achite ngati zitachitika.
| Mtundu wa zotsatira zoyipa | Zizindikiro |
|---|---|
| 🚨 Zotsatirapo zoyipa zomwe ziyenera kufotokozedwa kwa gulu lanu lachipatala nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kufiira, kutupa kwa nkhope, milomo, lilime kapena pakhosi. |
| Machitidwe a kulowetsedwa | Kupweteka pachifuwa, kuvutika kupuma, kukomoka, kumva chizungulire. |
| 🙂 Zotsatirapo zomwe ziyenera kufotokozedwa kwa dokotala ngati zikupitirira kapena zikuvutitsa | |
| Zotsatira zoyipa zofala |
|
Chofunika kwambiri ndichakuti, ngati mukumva china chake chachilendo, ngakhale chitakhala chaching'ono, musaope kuuza gulu lachipatala.
Kodi pangakhale mavuto ndi mankhwala ena?
Malinga ndi zomwe zanenedwa pano, mankhwalawa sananenedwe kuti amayambitsa mavuto akulu ndi mankhwala ena. Komabe, perekani dokotala wanu mndandanda wathunthu wa mankhwala onse omwe mukumwa (kuphatikizapo mavitamini, mankhwala azitsamba, ndi zowonjezera). Komanso, uzani dokotala wanu ngati mumasuta kapena kumwa mowa. Izi zingathandize kupewa mavuto osafunikira.
Uthenga Wopita Nawo Kunyumba
- Avalglucosidase Alfa ndi mankhwala omwe amalowa m'malo mwa enzyme yosowa m'thupi la anthu omwe ali ndi matenda a Pompe.
- Mankhwalawa amaperekedwa kuchipatala, kudzera mu mtsempha (kulowetsedwa). Choncho simudzapatsidwa mankhwala oti mutengere kunyumba.
- Musanayambe chithandizo, uzani dokotala wanu zonse zokhudza matenda anu onse komanso ziwengo zanu.
- Ngati mukukumana ndi zizindikiro zoopsa monga kupuma movutikira, kupweteka pachifuwa, kapena kutupa pakhungu panthawi ya mankhwala kapena pambuyo pake, dziwitsani gulu lachipatala nthawi yomweyo.
- Onetsetsani kuti mwamwa mankhwala anu ndipo mukupita kuzipatala pa masiku omwe akonzedwa. Musaphonye nthawi iliyonse yokumana ndi dokotala.
- Ngati muli ndi mafunso ena okhudza mankhwalawa, musazengereze kukambirana ndi dokotala wanu.
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