Kodi inu kapena mwana wanu muli ndi thalassemia? Tiyeni tikambirane za Beta Thalassemia

Kodi nthawi zonse mumamva kutopa komanso kutopa? Nthawi zina timaganiza kuti zinthuzi ndi zachilendo, koma kumbuyo kwake kungakhale matenda okhudzana ndi magazi. Beta Thalassemia ndi matenda omwe amapatsiridwa kuchokera ku mibadwomibadwo m'majini athu, koma amatha kuchiritsidwa. Anthu ambiri ali ndi mantha komanso kukayikira za izi. Chifukwa chake lero, tiyeni tikambirane za izi momveka bwino komanso mosavuta.

Mwachidule, kodi beta thalassemia ndi chiyani?

Ndi zophweka kwambiri. Tili ndi maselo m'magazi mwathu otchedwa maselo ofiira a magazi. Maselo amenewa ndi omwe amachititsa kuti mpweya upite ku ziwalo zonse za thupi lathu. Pali puloteni yapadera yomwe imathandiza maselo ofiira a magazi kuchita bwino ntchitoyi, yotchedwa hemoglobin .

Tsopano, mwa munthu amene ali ndi beta thalassemia, thupi silipanga mapuloteni okwanira otchedwa hemoglobin. Ndiye chimachitika n’chiyani? Maselo ofiira a m’magazi sangathe kugwira ntchito yawo bwino, ndipo amawonongeka msanga.

Ngati palibe maselo ofiira athanzi okwanira, thupi sililandira mpweya womwe limafunikira. Matendawa timawatcha kuti anemia . Kuchepa kwa magazi kungakupangitseni kumva kutopa, kufooka, komanso kupuma movutikira. Ngati vutoli lipitirira, likhozanso kuwononga ziwalo zofunika m'thupi lathu.

Kodi mitundu ikuluikulu ya beta thalassemia ndi iti?

Pali mitundu itatu ikuluikulu ya beta thalassemia, kutengera kuopsa kwake. Ndikofunikira kwambiri kumvetsetsa izi molondola.

Kodi zizindikiro za matendawa ndi ziti?

Zizindikiro zimatha kusiyana malinga ndi mtundu wa thalassemia womwe muli nawo komanso momwe ulili woopsa.

• Munthu amene ali ndi thalassemia minor sangakhale ndi zizindikiro zilizonse.
• Anthu omwe ali ndi thalassemia intermedia ndi major akhoza kukhala ndi chimodzi kapena zingapo mwa zizindikiro izi:
• Khungu lotumbuluka: Khungu limaoneka lotumbuluka komanso losasintha mtundu chifukwa cha kusowa kwa magazi.
• Kutopa kwambiri ndi kufooka: Kumva kutopa, kutopa nthawi zonse.
• Kutupa m'mimba: Mimba imatuluka patsogolo chifukwa cha kukula kwa ziwalo monga chiwindi ndi ndulu.
• Mkodzo wakuda: Mkodzo umakhala wakuda.
• Kuchedwa kukula: Kukula kwa ana kumachitika pang'onopang'ono kuposa ana ena.
• Kufooka kwa mafupa a nkhope: Nthawi zina, kusintha kwa mawonekedwe a mafupa a nkhope.
• Jaundice: Kuoneka kwachikasu pakhungu ndi maso oyera.

Kodi mungazindikire bwanji matendawa?

Matendawa nthawi zambiri amapezeka pakati pa zaka 6 ndi 12. Amapezeka mwangozi mukapita kwa dokotala chifukwa cha zizindikiro za kuchepa kwa magazi m'thupi, kapena mukayezetsa magazi nthawi zonse pazifukwa zina.

Nthawi zina, mukaona kuchepa kwa magazi m'thupi, mungaganize molakwika kuti chifukwa chake ndi kusowa kwa chitsulo. Ngati mupatsa mapiritsi achitsulo panthawi yoteroyo, zingakhale zoopsa kwa wodwala wa thalassemia. Chifukwa chake, ndikofunikira kwambiri kuwonana ndi dokotala wa matenda a magazi kuti adziwe matendawa molondola.

Popeza matendawa amapezeka m'mabanja, pakhoza kukhala anthu omwe ali ndi thalassemia m'banja mwanu kapena achibale anu. Komanso, matendawa amapezeka kwambiri mwa anthu ochokera kumayiko monga Asia, Middle East, Italy, ndi Greece.

Zina mwa mayeso akuluakulu omwe amagwiritsidwa ntchito pozindikira matendawa ndi awa:

• Kuwerengera Magazi Konse (CBC): Izi zimayang'ana kuchuluka, kukula, ndi kukhwima kwa maselo ofiira a magazi, maselo oyera a magazi, ndi ma platelet m'magazi anu.
• Hemoglobin electrophoresis: Izi zimagwiritsidwa ntchito kudziwa mitundu yeniyeni ya hemoglobin yomwe ili m'magazi anu komanso kuchuluka kwake.
• Mayeso a amayi apakati: Ngati mayi wapakati ali ndi vuto la thalassemia, mayeso monga Chorionic villus sampling (CVS) kapena Amniocentesis atha kuchitidwa kuti adziwe ngati mwana amene ali m'mimba nayenso wakhudzidwa.

Kodi mankhwala ake ndi otani?

Chithandizo chomwe mudzalandire chidzadalira mtundu wa thalassemia yanu komanso kuopsa kwake.

• Kwa iwo omwe ali ndi matenda ofooka (ochepa): Palibe chithandizo chomwe chingafunike.
• Kwa anthu omwe ali ndi vuto lapakati: Nthawi zina, monga matenda kapena matenda akachitika, kuikidwa magazi kungakhale kofunikira.
• Kwa omwe ali ndi vuto lalikulu (Loopsa): Popeza anthuwa ali ndi vuto la kuchepa kwa magazi m'thupi, kuikidwa magazi nthawi zonse n'kofunika.

Kupereka magazi pafupipafupi kungayambitse kudzikundikira kwa chitsulo m'thupi kosafunikira. Izi zimatchedwa "Kuchuluka kwa chitsulo." Chitsulo chochulukirapochi chingadzikundikira m'ziwalo monga mtima ndi chiwindi ndikuziwononga. Pofuna kupewa izi, chithandizo chimachitidwa kuti chichotse chitsulo chochulukirapo m'thupi. Chimatchedwa chithandizo cha iron chelation . Izi zimaperekedwa ngati piritsi kapena jakisoni.

Kuphatikiza apo, mankhwala otsatirawa angagwiritsidwe ntchito monga momwe dokotala wanu wanenera:

• Opaleshoni yochotsa bandeji.
• Kusamutsa mafupa .
• Mankhwala amakono monga chithandizo cha majini .

Kodi mungakhale bwanji ndi thanzi labwino ndi thalassemia?

Ngakhale kukhala ndi thalassemia kungakhale kovuta, pali zinthu zambiri zomwe mungachite kuti mudzisamalire.

Zinthu zomwe mungachite

• Zakudya Zopatsa Thanzi: Idyani zipatso ndi ndiwo zamasamba zambiri. Komabe, funsani dokotala wanu ngati muyenera kuchepetsa zakudya zokhala ndi ayodini wambiri (nyama, nsomba, ndiwo zamasamba zina, ndi chimanga chowonjezera ayodini) .
• Kuchita masewera olimbitsa thupi nthawi zonse: Chitani masewera olimbitsa thupi pang'onopang'ono monga kuyenda ndi kukwera njinga.
• Tsatirani malangizo a dokotala wanu: Tsatirani masiku anu operekera magazi ndi nthawi yogwiritsira ntchito mankhwala moyenera. Onani dokotala wanu pa masiku omwe akonzedwa.
• Dzitetezeni ku matenda: Sambani m'manja nthawi zambiri. Pewani anthu odwala.
• Katemera: Pezani katemera wonse womwe dokotala wanu wakupatsani, monga katemera wa chimfine, pa nthawi yake.
• Ganizirani za thanzi lanu la maganizo: N'zovuta kuyenda ulendowu nokha. Lankhulani ndi banja lanu ndi anzanu. Ngati kuli kofunikira, funani thandizo kwa dokotala wa matenda amisala kapena katswiri wa zamaganizo.

Malangizo kwa osamalira odwala

Ngati ndinu wosamalira mwana kapena wachibale amene ali ndi matenda a thalassemia, udindo wanu ndi wofunika kwambiri.