Ena a ife tingakhale ndi matenda enaake omwe timabadwa nawo. Ena mwa iwo ndi osowa kwambiri. Koma chifukwa cha sayansi ya zamankhwala yapamwamba masiku ano, tatha kuwongolera matenda ambiriwa ndikukhala moyo wabwinobwino. Carglumic Acid ndi mankhwala apadera omwe madokotala amalangiza munthu amene ali ndi vuto losowa kwambiri, la majini, komwe kuchuluka kwa poizoni wotchedwa ammonia m'magazi kumawonjezeka. Tiyeni tikambirane za izi lero.
Kodi Carglumic Acid ndi mankhwala otani?
Mwachidule, mankhwalawa otchedwa Carglumic Acid amagwiritsidwa ntchito pochiza matenda otchedwa Urea Cycle Disorders (UCDs) .
Taganizirani matupi athu ngati fakitale yayikulu. Thupi likagwiritsa ntchito mapuloteni omwe timadya, chimodzi mwa zinyalala zomwe zatsala ndi ammonia . Ammonia iyi ndi poizoni kwambiri m'thupi lathu, makamaka ubongo. Mwa munthu wathanzi, urea cycle imasintha ammonia yoopsayi kukhala chinthu chopanda vuto chotchedwa urea kenako n’kuitulutsa mu mkodzo.
Komabe, mwa munthu amene ali ndi vuto la urea cycle disorder (UCD), njirayi siichitika bwino. Zotsatira zake, ammonia woopsa amaunjikana m'magazi m'malo mochotsedwa m'thupi. Izi zimatchedwa hyperammonemia . Imeneyi ikhoza kukhala vuto loopsa kwambiri.
Pamenepo ndi pomwe mankhwala otchedwa Carglumic Acid amathandiza. Mankhwalawa amagwira ntchito pothandiza kuzungulira kwa urea komwe sikukugwira ntchito bwino ndikuchepetsa kuchuluka kwa ammonia m'magazi. Izi zimathandiza kuchepetsa mavuto akuluakulu azaumoyo (monga kuwonongeka kwa ubongo) omwe angayambitsidwe ndi kuchuluka kwa ammonia.
Chofunika kwambiri: Iyi si njira yochizira matendawa. Komabe, ndi njira yofunika kwambiri yothandizira kulamulira matendawa ndikuchepetsa zoopsa zomwe zingabwere chifukwa cha matendawa.
Zinthu zoti muuze dokotala wanu musanamwe mankhwala
Dokotala asanakupatseni mankhwala awa, adzakufunsani mafunso angapo. Muyeneranso kumveketsa bwino zinthu izi.
- Ngati muli ndi vuto la Carglumic Acid, mankhwala ena aliwonse, chakudya, utoto wa chakudya, kapena zotetezera .
- Ngati muli ndi pakati kapena mukufuna kutenga mimba .
- Ngati ndinu mayi amene akuyamwitsa mwana wanu .
Ndikofunikira kwambiri kuti mukhale otetezeka kupereka chidziwitsochi kwa dokotala wanu.
Kodi ndimagwiritsa ntchito bwanji mankhwalawa molondola?
Iyi ndi gawo lofunika kwambiri m'nkhaniyi. Njira yogwiritsira ntchito mankhwalawa ndi yapadera kwambiri. Choncho, kumbukirani njira izi mosamala.
| Masitepe | Zoyenera kuchita |
|---|---|
| 1. Kusankha madzi | Madzi oyera okha ndi omwe ayenera kugwiritsidwa ntchito kusungunula piritsi. Ndikoletsedwa kugwiritsa ntchito madzi ena aliwonse (mkaka, chakumwa cha zipatso) kapena chakudya (mpunga, yogurt) pachifukwa ichi. |
| 2. Kukonzekera chidutswacho | Musameze, kutafuna, kapena kuphwanya mapiritsi awa onse . Imwani piritsi limodzi kapena theka monga momwe dokotala wanu wanenera. |
| 3. Kusungunuka | Sungunulani mapiritsi olembedwa (monga piritsi limodzi kapena theka) mu madzi osachepera 2.5 ml (pafupifupi theka la supuni ya tiyi) . Imwani nthawi yomweyo mutasungunuka. |
| 4. Kumwa mlingo wonse | Mapiritsi awa sasungunuka kwathunthu m'madzi. Zidutswa zoyera zimatsala. Chifukwa chake, mutatha kumwa mankhwalawa, onjezerani madzi ena mu kapu yomweyo, mutsuke bwino, ndipo imwaninso madziwo . Pokhapokha mlingo wonse udzalowa m'thupi. |
Akapatsidwa ana
Mankhwalawa akhoza kuperekedwa ndi dokotala pazifukwa zapadera, ngakhale kwa makanda ndi ana. Komabe, popeza ali ndi njira zapadera zodzitetezera, malangizo azachipatala ayenera kutsatiridwa bwino.
Nanga bwanji ngati ndaphonya mlingo wa mankhwala?
Ngati mwaphonya mlingo, imwani mwamsanga mukangokumbukira. Komabe, ngati nthawi yatsala pang'ono yoti mutenge mlingo wotsatira, thawani mlingo womwe mwaphonya ndikumwa mlingo wotsatira panthawi yomwe mwakonza. Musamwe mlingo wowirikiza kawiri.
Nanga bwanji ngati mlingo wa mankhwala ukuwonjezeka?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo kuposa omwe mwapatsidwa, pitani ku Dipatimenti Yoona za Zadzidzidzi (ETU) yapafupi nthawi yomweyo. Kapena, funsani National Poisons Information Centre ku Colombo National Hospital.Imbani foni kuti mupeze upangiri.
Kodi zotsatirapo zake zingakhale zotani?
Monga mankhwala ena aliwonse, Carglumic Acid ingayambitse zotsatirapo zina. Ndikofunikira kudziwa izi.
| Kugawa zotsatira zoyipa | |
|---|---|
| Zotsatirapo zoyipa zomwe ziyenera kufotokozedwa kwa dokotala nthawi yomweyo | |
Matenda Oopsa a Ziwengo: Izi sizichitika kawirikawiri, koma ndizoopsa kwambiri.
| |
| Zotsatirapo zomwe nthawi zambiri sizili zoopsa, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
| Kusanza | Kuwawa kwam'mimba |
| Kutsegula m'mimba | Mutu |
| Chilakolako cha chakudya | |
Ngati mukukumana ndi zizindikiro zina zachilendo zomwe sizili pamndandandawu, lankhulani ndi dokotala wanu za zizindikirozo.
Kodi mungasunge bwanji mankhwala moyenera?
Kugwira ntchito kwa mankhwalawa kumadalira momwe mumasungira, choncho tsatirani malangizo awa molondola.
- Musanatsegule: Ngati botolo la mankhwala silinatsegulidwe, lisungeni mufiriji .
- Mukatsegula: Mukatsegula botolo, sungani kutentha kwa chipinda (pakati pa madigiri 15 ndi 30 Celsius) . Musayikenso mufiriji . Tetezani ku chinyezi. Sungani chivundikiro cha botolocho chitatsekedwa bwino.
- Kutaya: Mwezi umodzi mutatsegula botolo, kapenaTsiku lotha ntchito likatha , tayani mankhwala otsala.
- Chitetezo: Nthawi zonse sungani mankhwala pamalo omwe ana ndi ziweto sangafikire.
Mankhwalawa aperekedwa kwa inu nokha. Mlingo wake watsimikiziridwa kutengera matenda anu. Chifukwa chake, musagawane mankhwalawa ndi wina aliyense pazifukwa zilizonse.
Uthenga Wopita Nawo Kunyumba
- Carglumic Acid ndi mankhwala apadera omwe amaperekedwa kwa anthu omwe ali ndi vuto la urea cycle disorders (UCDs) kuti achepetse kuchuluka kwa ammonia woopsa womwe umasonkhana m'magazi.
- Musameze piritsi lonseli. Nthawi zonse lisungunuleni m'madzi pang'ono ndipo imwani nthawi yomweyo. Tsukani chikho chomwe munamwa mankhwalawo ndi madzi musanamwe.
- Ngati mukukumana ndi zizindikiro zoopsa za ziwengo monga kutupa kwa nkhope, milomo, kapena pakhosi, pitani ku Dipatimenti Yodzidzimutsa ya Chipatala (ETU) nthawi yomweyo.
- Sungani botolo la mankhwala mufiriji musanatsegule komanso kutentha kwa chipinda mutatsegula. Tayani mankhwala otsala mkati mwa mwezi umodzi mutatsegula.
- Musasiye kumwa mankhwala, kusintha mlingo, kapena kupereka kwa wina popanda upangiri wa dokotala wanu. Nthawi zonse pitani kwa dokotala wanu kuti akakuwoneni.
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