Kodi mwana wanu kapena wachibale wanu ali ndi Spinal Muscular Atrophy, kapena SMA mwachidule? Ngati ndi choncho, dokotala wanu mwina anakuuzani za mankhwala otchedwa Risdiplam. Mukamva dzinali, mungakhale ndi mantha pang'ono. Mungakhale ndi mafunso ambiri m'maganizo mwanu, monga, "Ndi mankhwala amtundu wanji awa, amaperekedwa bwanji, chidzachitike ndi chiyani?" Tiyankha mafunso onsewa m'njira yosavuta yomwe mungamvetse. Tiyeni tidziwe bwino lomwe kuti mankhwalawa ndi chiyani.
Mwachidule, kodi Risdiplam ndi chiyani?
Risdiplam (dzina lodziwika bwino la Evrysdi) ndi mankhwala omwe amagwiritsidwa ntchito pochiza matenda otchedwa Spinal Muscular Atrophy (SMA). Amabwera ngati yankho.
Tsopano tiyeni tiwone tanthauzo lenileni la izi. Tangoganizani kuti minofu yathu imafunika mtundu wapadera wa mapuloteni kuti igwire ntchito bwino ndikuisunga yolimba. Mwa munthu yemwe ali ndi SMA, chifukwa cha majini, thupi limapanga mapuloteni ochepa kwambiri awa. Ichi ndichifukwa chake minofu imafooka pang'onopang'ono ndikufooka.
Kotero mankhwala a Risdiplam awa amagwira ntchito yabwino kwambiri . Amathandiza thupi lathu kupanga mapuloteni apadera omwe akusowa. Zili ngati munthu amene akuthandiza fakitale kuti iyambenso kugwira ntchito bwino ikachedwa pang'ono. Pamene mapuloteniwa amapangidwa mopitirira muyeso m'thupi, amathandiza kuchepetsa kufooka kwa minofu ndikuletsa kuipiraipira kwa zizindikiro.
Zinthu zomwe muyenera kuuza dokotala wanu musanayambe kumwa mankhwala
Ndikofunikira kwambiri kulankhula ndi dokotala wanu momasuka musanapereke mankhwala awa kwa inu kapena mwana wanu. Ngati chilichonse mwa izi chikukukhudzani, onetsetsani kuti mwatchula.
| Zimene muyenera kudziwa | N’chifukwa chiyani zimenezo n’zofunika? |
|---|---|
| Matenda a ziwengo | Uzani dokotala wanu ngati muli ndi vuto la ziwengo (allergy) ku Risdiplam kapena mankhwala ena aliwonse, chakudya, kapena utoto. |
| Mimba kapena kuyesa kutenga mimba | Mankhwalawa angayambitse mavuto aakulu kwa mwana wobadwa naye ngati atamwedwa panthawi ya mimba. Choncho ndikofunikira kwambiri kukambirana za izi.. |
| Kuyamwitsa | Ngati ndinu mayi woyamwitsa, dziwitsani dokotala wanu. |
Kodi ndimagwiritsa ntchito bwanji mankhwalawa molondola?
Ichi ndi chinthu chodalirika kuchita. Koma musadandaule, mudzazolowera pakapita nthawi. Ndi bwino kupereka mankhwala nthawi yomweyo tsiku lililonse, monga momwe dokotala wanenera.
- Kukonzekera: Sambani m'manja mwanu bwino ndi sopo musanakonze mankhwalawo komanso mutapereka.
- Muyeso wolondola: Mudzalandira syringe yapadera yokamwa ndi mankhwala awa. Gwiritsani ntchito syringe kuti muyese kuchuluka komwe dokotala wanu wakuuzani kuti mumwe. Musagwiritse ntchito supuni kapena kapu ina iliyonse poyeza.
- Kupereka mankhwala nthawi yomweyo: Mukamaliza kukoka mankhwalawo mu sirinji, ayenera kuperekedwa kwa wodwalayo mkati mwa mphindi 5. Musamusiye kwa nthawi yayitali kuposa pamenepo.
- Musanadye kapena mutadya?: Izi zitha kuperekedwa ndi chakudya kapena ayi. Ngati zikuwoneka ngati m'mimba mukuvutika, ndi bwino kuzipereka mutadya. Ngati mukuyamwitsa, mutha kuzipereka musanayambe kapena mutadya.
- Musasakanize: Musasakanize mankhwalawa ndi mkaka wa mkaka kapena mtundu wina uliwonse wa mkaka.
- Perekani madzi pang'ono: Mukamaliza kupatsa munthuyo mankhwala, mupatseni madzi kuti amwe. Izi zitithandiza kuonetsetsa kuti mankhwala onse ameza.
- Ngati yalowa pakhungu kapena m'maso mwanu: Ngati mwangozi mwalowa mankhwalawo pakhungu mwanu, sambitsani malowo bwino ndi sopo ndi madzi. Ngati yalowa m'maso mwanu, sambitsani bwino ndi madzi okha.
Pitirizani kumwa mankhwalawa mpaka dokotala wanu atakuuzani kuti musiye. Musasiye kapena kusintha mlingo nokha.
Akapatsidwa ana aang'ono
Mankhwalawa nthawi zina amalimbikitsidwa ngakhale kwa makanda obadwa kumene. Komabe, dokotala wanu yekha ndi amene angasankhe izi. Chifukwa chake, muyenera kusamala kwambiri mukamapatsa ana aang'ono.
Kodi mungachite chiyani ngati mwaphonya mlingo wa mankhwala?
Sitikumbukira chilichonse nthawi zonse. Choncho n'zotheka kuiwala kupereka mlingo wa mankhwala. Ngati zimenezo zitachitika, musadandaule.
Tangoganizani kuti mukuyenera kupereka mankhwala nthawi ya 8 koloko m'mawa. Mwayiwala.
- Ngati simunachedwe ndi kumwa mankhwala kwa maola oposa 6: Ngati mukukumbukira nthawi isanafike 2 koloko madzulo (ndiko kuti, mkati mwa maola 6 kuchokera nthawi yomwe mwakonza), imwani mlingo womwe mwaphonya mwamsanga mukangokumbukira.
- Ngati kwachedwa ndi maola oposa 6: Ngati mukukumbukira pambuyo pa 2 koloko masana, musapite nthawi imeneyo.Siyani zonse ndipo mupereke nthawi ina monga momwe munakonzera nthawi ya 8 koloko m'mawa tsiku lotsatira.
Chofunika kwambiri: Musapereke mankhwala awiri nthawi imodzi kapena kuwirikiza kawiri mlingo chifukwa choti mwaiwala kumwa pazifukwa zilizonse. Ngati mwana wasanza atamwa mankhwalawo kapena akuganiza kuti sanamezedwe kwathunthu, musamupatsenso mankhwalawo nthawi yomweyo. Perekani mlingo wotsatira pa nthawi yomwe yakonzedwa tsiku lotsatira.
Kodi pangakhale kuyanjana ndi mankhwala ena?
Inde, mankhwala ena amatha kusokonezana ndi Risdiplam. Mankhwala akuluakulu omwe apezeka mpaka pano ndi Metformin .
Koma mndandandawu sunathe. Choncho mukapita kukaonana ndi dokotala wanu, muuzeni za mankhwala onse omwe inu kapena mwana wanu mukumwa. Izi zikutanthauza kuti,
- Mankhwala operekedwa ndi madokotala
- Mankhwala osaperekedwa ndi dokotala omwe angagulidwe ku pharmacy
- Mavitamini, zakudya zowonjezera
- Mankhwala a Chisinhala, mankhwala a Ayurvedic
- Ngati mumasuta kapena kumwa mowa, auzeninso za mowawo.
Kenako dokotala wanu akhoza kukonzekera bwino chithandizo chanu.
Zinthu zapadera zomwe muyenera kuzidziwa mukamamwa mankhwala
Mimba ndi njira zolerera
Izi ndizofunikira kwambiri . Pali chiopsezo chachikulu cha mwana kukhala ndi zilema zazikulu zobadwa nazo ngati mutenga pakati mukumwa mankhwalawa.
- Musanayambe kumwa mankhwala, muyenera kutenga mayeso a mimba kuti mutsimikizire kuti simuli ndi pakati.
- Muyenera kugwiritsa ntchito njira yothandiza kwambiri yolerera panthawi yonse yomwe mukumwa mapiritsi komanso kwa mwezi umodzi mutasiya kumwa mapiritsi.
- Kambiranani momasuka ndi dokotala wanu za njira yolerera yomwe ili yoyenera kwa inu.
Kubereka
Pali nkhawa ina yoti mankhwalawa akhoza kukhudza kubereka. Ngati muli ndi nkhawa iliyonse yokhudza kukhala ndi ana mtsogolo, musazengereze kulankhula ndi dokotala wanu za izi.
Kodi zotsatirapo zake zingakhale zotani chifukwa cha mankhwalawo?
Monga mankhwala ena aliwonse, mankhwalawa angayambitse zotsatira zina zoyipa. Komabe, si aliyense amene amalandira. Gome ili pansipa likuwonetsa momveka bwino zomwe izi ndi.
| Mtundu wa zotsatira zoyipa | Zinthu zomwe zikuyembekezeredwa |
|---|---|
| Zinthu zoti mudziwitse dokotala wanu nthawi yomweyo | |
| Matenda Oopsa a Thupi | Kutupa pakhungu, kuyabwa kwambiri, kutupa kwa nkhope, milomo, lilime kapena pakhosi (kungayambitse kupuma movutikira). |
| Ngati zikupitirira kapena zikukuvutitsani, uzani dokotala wanu. | |
| Zotsatira zoyipa zofala |
|
Mndandandawu sungakhale ndi zotsatirapo zonse zoyipa. Ngati muwona china chake chachilendo kuwonjezera pa izi, uzani dokotala wanu.
Kodi mankhwalawo angasungidwe bwanji?
Ndikofunikanso kwambiri kusunga mankhwala awa moyenera.
- Njira yabwino kwambiri: Kuisunga mufiriji ndi bwino. Koma musaisunge mufiriji. Musailole kuti izizire. Isungeni mu botolo loyambirira lomwe munabwera nalo, kutali ndi kuwala.
- Nthawi Yosungira: Mankhwalawa ayenera kugwiritsidwa ntchito mkati mwa masiku 64 kuyambira tsiku lomwe asakanizidwa ndikuperekedwa ndi pharmacy. Pambuyo pake, tayani mankhwala otsalawo.
- Kutentha kwa chipinda: Pakagwa mwadzidzidzi, monga paulendo, mutha kuisunga kutentha kwa chipinda (pansi pa madigiri Celsius 40) kwa masiku 5. Masiku 5 amenewo sayenera kukhala otsatizana. Mwachitsanzo, mwaisiya tsiku limodzi lero, kuiyikanso mufiriji, kuisiya tsiku lina patatha sabata imodzi... Masiku 5 akatha, simungathe kuisiyanso.
- Sungani kutali ndi ana: Monga mankhwala ena onse, sungani iyi kutali ndi ana aang'ono ndi ziweto.
Kodi mumataya bwanji mankhwala otsala?
Musangotaya mankhwala otha ntchito kapena osafunikira m'zinyalala kapena kuwataya m'chimbudzi. Funsani dokotala wanu kuti akupatseni upangiri.
Uthenga Wopita Nawo Kunyumba
- Risdiplam ndi mankhwala apadera omwe amagwiritsidwa ntchito poletsa kufooka kwa minofu komwe kumachitika chifukwa cha Spinal Muscular Atrophy (SMA).
- Nthawi zonse gwiritsani ntchito sirinji yapadera yomwe imabwera ndi mankhwala ndipo perekani kuchuluka komwe dokotala wakuuzani.
- Ngati mwaphonya mlingo, musaugwiritse ntchito ngati wachedwa kwa maola opitilira 6 ndipo mumwe mlingo wotsatira panthawi yomwe mwakonza. Musawonjezere kawiri mlingo.
- Uzani dokotala wanu za mankhwala ena onse, mavitamini, komanso mankhwala a ku Sinhala omwe mukumwa.
- Pewani kutenga pakati mukumwa mankhwalawa komanso kwa mwezi umodzi mutasiya kumwa. Ndikofunikira kugwiritsa ntchito njira yoyenera yolerera.
- Ngati mukukayikira kuti mwamwa mankhwala ochulukirapo mwangozi, imbani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital , kapena pitani ku Emergency Treatment Unit (ETU) ya chipatala chapafupi.
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