Kodi khansa ya mu ubongo ya Choroid Plexus ndi chiyani? Tiyeni tikambirane za khansa ya mu ubongo yoopsa koma yosowa kwambiri!

Nthawi zina, tikamaganizira za matenda omwe okondedwa athu, makamaka ana athu, amadwala, timamva kulemedwa kwakukulu ndi mantha, sichoncho? Lero tikambirana za khansa ya muubongo yoopsa pang'ono, koma yosachitika kawirikawiri . Musachite mantha nthawi yomweyo mukamva dzina lake. Chifukwa, kudziwa matenda aliwonse ndi mphamvu yayikulu yolimbana nawo. Chifukwa chake, tiyeni tikambirane mwatsatanetsatane za "Choroid Plexus Carcinoma" iyi.

Kodi Choroid Plexus Carcinoma ndi chiyani?

Mwachidule, `Choroid Plexus Carcinoma` iyi ndi khansa yomwe imayamba mu minofu yapadera yotchedwa `choroid plexus`` mkati mwa ubongo wathu. Tangoganizani, pali ziwalo zosiyanasiyana ndi mitundu yosiyanasiyana ya minofu mkati mwa ubongo wathu. Minofu ya `choroid plexus`` iyi ili m'mabowo (``ventricles``) mkati mwa ubongo. Monga baluni yamadzi, ndi minofu ya `choroid plexus`` iyi yomwe imathandiza kwambiri kupanga `cerebrospinal fluid`` (``CSF``) yomwe imateteza ndikudyetsa ubongo wathu ndi msana womwe umadutsa msana.

Ichi ndi chotupa choipa . Izi zikutanthauza kuti maselo omwe ali mmenemo amakula mosalamulirika, mwachangu kwambiri, ndipo amatha kufalikira kwina. Madokotala amatchanso kuti "choroid plexus tumor ya giredi 3." Izi zimakula mofulumira kwambiri ndipo zimayesa kufalikira mu "central nervous system" ('CNS') kudzera mu madzi a "CSF". Ichi ndichifukwa chake nthawi zina kuchiza matendawa kungakhale kovuta pang'ono.

Kodi matendawa ndi ofala bwanji?

Mungadabwe kumva izi, koma matenda awa otchedwa `choroid plexus carcinoma` ndi matenda osowa kwambiri . Tangoganizani, mwa mitundu yonse 100 ya zotupa za muubongo, zosakwana 1% ndi `choroid plexus tumors`. Pali mitundu itatu ya zotupa za `choroid plexus`. Pakati pawo, `choroid plexus carcinoma` iyi ndi mtundu wosowa kwambiri komanso wokhawo wa khansa, kutanthauza mtundu wa `malignant` . Mwatsoka, vutoli limakhudza kwambiri makanda ndi ana aang'ono .

Kodi zizindikiro za matendawa ndi ziti? Kodi timazizindikira bwanji?

Kodi zizindikiro za vutoli ndi ziti? Izi zimatha kusiyana malinga ndi kukula kwa chotupacho, komwe chili muubongo, komanso zaka za mwana. Koma, kawirikawiri, pali zizindikiro zingapo zoti muziyang'ane:

• Kumva kutopa kwambiri komanso kutopa nthawi zonse: Zili ngati kuti mwanayo sali moyo, sathamangathamanga ndi kusewera monga kale. Amawoneka ngati akugona nthawi zonse.
• Mutu: Mwana wamng'ono sangamvetse bwino izi, koma tingathe kuzindikira zinthu monga kugwira mitu yawo, kulira pafupipafupi, komanso kukana kudya.
• Kukwiya kapena kukwiya: Mwana wamng'ono akhoza kukhala wokwiya komanso wovuta kumutonthoza. Angakhale wouma mtima kwambiri kuposa kale.
• Kusanza ndi kusanza: Izi zitha kukhala zoipitsitsa, makamaka m'mawa.
• Kusanza kapena kufooka m'mbali zina za thupi: Dzanja kapena mwendo ungamveke ngati wachita dzanzi kwathunthu.
• Kukomoka: Kukomoka mwadzidzidzi ndi kutaya chidziwitso.
• Mavuto a maso: Mutha kuwona zinthu zosawoneka bwino kapena kuona zithunzi ziwiri nthawi imodzi (diplopia). Mwana wamng'ono akhoza kukanda maso ake pafupipafupi kapena kukhala ndi vuto loyang'ana bwino.
• Kukula kwa mutu: Mwa ana aang'ono, mutu ukhoza kukulirakulira pamene kupanikizika mkati mwa ubongo kukukulirakulira chifukwa mafupa a chigaza sali ogwirizana mokwanira.

Musaope kukhala ndi matendawa chifukwa chakuti muli ndi chimodzi kapena ziwiri mwa zizindikirozi. Komabe, ngati zizindikirozi zikupitirira, ndi bwino kupita kwa dokotala .

N’chifukwa chiyani matenda amtunduwu amapezeka? Kodi chifukwa chake n’chiyani?

Ndipotu, n'zovuta kwa madokotala kunena chifukwa chake anthu ena amadwala khansa ya m'mimba yotchedwa choroid plexus carcinoma. Nthawi zambiri, khansa iliyonse imayamba pakachitika kusintha kwa majini m'thupi lathu, komwe timatcha kusintha kwa majini. Kusintha kwa majini kumeneku kumapangitsa maselo athanzi kukhala maselo a khansa ndikuchulukana mosalamulirika, kukula kukhala chotupa, ndipo nthawi zina kufalikira m'thupi lonse.

Kodi pali zinthu zilizonse zoopsa zomwe zimakhudza izi?

Aliyense akhoza kukhala ndi vutoli lotchedwa `choroid plexus carcinoma`. Komabe, zapezeka kuti zinthu zina (zomwe timazitcha kuti `ziopsezo`) zimatha kuwonjezera mwayi woti matendawa ayambe. Tiyeni tiwone zomwe zili:

• Matenda a Aicardi: Uwu ndi matenda osowa kwambiri m'majini. Ana obadwa ndi vutoli amakhala ndi zolakwika zina pakukula kwa ubongo, zomwe zimapangitsa kuti azikhala ndi zotupa za choroid plexus. Izi nthawi zambiri sizimatengera cholowa.
• Matenda a Li-Fraumeni: Ichi ndi matenda osowa kwambiri a majini. Anthu omwe ali ndi matendawa amakhala ndi mwayi waukulu wopeza mitundu yosiyanasiyana ya khansa. Izi nthawi zambiri zimachitika chifukwa cha kusintha kwa majini komwe kumaperekedwa kuchokera kwa kholo limodzi kupita kwa mwana.
• Kugonana kwachilengedwe: Ngakhale kuti chifukwa chenicheni sichikudziwika bwino, ziwerengero zikusonyeza kuti akazi ali ndi mwayi wochuluka wopeza matendawa.

Kodi madokotala amazindikira bwanji matendawa? (Kuzindikira)

Ndiye, kodi madokotala amatsimikiza bwanji ngati muli ndi choroid plexus carcinoma? Amachita izi mwa kumvetsera mosamala zizindikiro zanu, kuchita mayeso akuthupi, kenako kuchita mayeso osiyanasiyana. Mayesowa amatha kusiyana malinga ndi zaka zanu, kapena zaka za mwana wanu:

• Kuyesa kwa chidziwitso: Izi zimayesa momwe mukugwira ntchito bwino, monga kukumbukira, kusamala, ndi luso lophunzira.
• Kuyezetsa kwathunthu kwa mitsempha: Izi zidzayang'ana masomphenya, kumva, mavuto a kulinganiza, kusinthasintha kwa thupi, ndi kugwirizana kwa ziwalo zosiyanasiyana za thupi.
• Kujambula ubongo pogwiritsa ntchito MRI (Magnetic Resonance Imaging) kapena mayeso ena ojambulira (monga CT scan): Iyi nthawi zambiri ndiyo njira yofunika kwambiri yoyezera. Ikhoza kusonyeza ngati pali zotupa mu ubongo, kukula kwake, komwe zili, komanso ngati pali vuto lililonse lotchedwa hydrocephalus (kuchuluka kwa madzi a m'mitsempha ya ubongo (CSF) m'mabowo a ubongo, zomwe zimapangitsa kuti munthu ayambe kupanikizika).
• Kuyesa kwa DNA (mayeso a majini): Kuyesa kumeneku kungachitike kuti muwone ngati pali kusintha kulikonse kwa majini komwe kumakhudzana ndi matenda monga matenda a Li-Fraumeni kapena matenda a Aicardi omwe atchulidwa kale.
• Kuboola msana (kuboola lumbar): Izi zimaphatikizapo kulowetsa singano yopyapyala kumbuyo ndikutenga chitsanzo cha CSF. Kenako imatumizidwa ku labotale kuti ikayesedwe ngati ili ndi maselo a khansa.

Kodi mankhwala ochizira izi ndi otani?

Ngati zatsimikizika kuti muli ndi chotupa chonga ichi, kodi muchita chiyani kenako? Pali njira zingapo zochiritsira. Chithandizo chachikulu ndi opaleshoni .

• Opaleshoni: Madokotala a opaleshoni ya ubongo amachita opaleshoni ya ubongo kuti achotse chotupacho mokwanira momwe angathere. Iyi ndi opaleshoni yovuta kwambiri. Kachidutswa kakang'ono ka chotupa chochotsedwa (biopsy) kamatengedwa ndikutumizidwa ku labotale kuti akatsimikizire ngati ndi choroid plexus carcinoma kapena mtundu wina.

Ngati biopsy iyi ikutsimikizira kuti pali choroid plexus carcinoma, ndipo chotupacho sichingathe kuchotsedwa kwathunthu, kapena ngati khansayo yafalikira, inu kapena mwana wanu mungafunike chithandizo china. Izi zikuphatikizapo:

• Chemotherapy: Izi zimaphatikizapo kupatsa thupi mitundu yosiyanasiyana ya mankhwala ophera maselo a khansa. Mankhwalawa amapha maselo a khansa omwe amagawikana mofulumira.
• Chithandizo cha radiation: Izi zimagwiritsa ntchito ma radiation amphamvu kwambiri (monga ma X-ray) kuti awononge maselo a khansa.

Chithandizo chimodzi kapena zingapo mwa izi chingagwiritsidwe ntchito pamodzi. Izi zimasankhidwa ndi gulu la madokotala apadera, poganizira zinthu zambiri monga momwe wodwalayo alili komanso mtundu wa chotupacho.

Kodi ndi mavuto otani omwe angabwere pambuyo pa opaleshoni?

Monga momwe zimakhalira ndi opaleshoni iliyonse, pali mwayi wochepa wa mavuto pambuyo pa opaleshoni ya ubongo. Ngakhale kuti si zachilendo, zina mwa zinthu zomwe nthawi zina zimaoneka ndi izi:

• Kutuluka magazi kapena kutupa mu ubongo.
• Kuvutika kuganiza, kusokonezeka kapena kusokonezeka maganizo.
• Mutu wopweteka nthawi zonse.
• Matenda opatsirana pamalo ochitira opaleshoni.
• Kulephera kukumbukira kapena kuvutika kulankhula.

Madokotala adzakudziwitsani za izi pasadakhale.

Kodi mankhwala atsopano a matendawa akupangidwa?

Inde! Sayansi ya zamankhwala ikupita patsogolo tsiku ndi tsiku. Chifukwa chake, kafukufuku akupitiliza kupeza njira zatsopano komanso zothandiza kwambiri zochizira matendawa, "choroid plexus carcinoma." Zina mwa izi zitha kukhalabe mu gawo lofufuza (''mayeso azachipatala''). Nazi zitsanzo zingapo:

• Chithandizo cha Immunotherapy: Iyi ndi njira yosangalatsa kwambiri. Ikuphatikizapo kulimbikitsa chitetezo chathu chamthupi (dongosolo lomwe limatiteteza ku matenda) ndikuchipatsa mankhwala omwe amathandiza kupeza ndikuwononga maselo a khansa.
• Chithandizo cholunjika: Izi zimaphatikizapo kupereka mankhwala omwe amayang'ana kusintha kwa majini komwe kumayambitsa khansa ndipo kumakhudza kusinthako kokha. Izi zimapangitsa kuti maselo athanzi asawonongeke kwambiri.

Mukhoza kuphunzira zambiri za mankhwala atsopanowa polankhula ndi dokotala wanu.

Kodi kuchira kumakhala bwanji pambuyo pa chithandizo?

Nthawi yomwe imatenga kuti munthu achire pambuyo pa chithandizo, kuphatikizapo nthawi yomwe mungabwerere kuntchito kapena kusukulu, imadalira zinthu zingapo. Nazi zina mwa izo:

• Zaka zanu ndi thanzi lanu lonse.
• Malo a chotupacho, kukula kwake, ndi kuchuluka kwa zotupa zomwe zilipo.
• Ngati munalandira chithandizo china monga chemotherapy kapena radiation therapy, zotsatira zake.

Choncho, ndikofunikira kutsatira malangizo a dokotala wanu molondola . Kuti muwone ngati njira yochiritsira ikuyenda bwino, madokotala nthawi zambiri amakupemphani kuti muyesedwe `imaging` ya ubongo (monga `MRI scans`). Kuchita chilichonse molondola ndikofunikira kwambiri kuti muchiritse mwachangu.

Kodi chiyembekezo cha matendawa ndi chiyani?

Funso ili ndi lolemetsa lalikulu m'maganizo mwa anthu ambiri. Chiyembekezo cha khansa ya choroid plexus, kutanthauza mwayi wochira komanso nthawi yoti munthu akhale ndi moyo, chimasiyana kwambiri kuchokera kwa munthu ndi munthu. Pali zinthu zingapo zofunika zomwe zimakhudza izi:

• Zaka za wodwalayo (zotsatira zake zimatha kusiyana kwa ana aang'ono).
• Thanzi la wodwalayo.
• Kaya chotupa chonsecho chinachotsedwa panthawi ya opaleshoni, kapena gawo lake lokha. (Ngati chotupacho chingachotsedwe kwathunthu, ndiye kuti chiyembekezo chake chili bwino.)

Komanso, zinthu izi zimakhudzanso mawonekedwe a thupi:

• Ngati chotupacho chabwerera pambuyo pa opaleshoni kapena mankhwala ena (`recurrence`).
• Ngati khansayo yafalikira (yomwe imafalikira) kuchokera pamalo ake oyambirira kupita ku ziwalo zina za thupi, mwachitsanzo, msana.

Si onse omwe ali ofanana, kotero ndi bwino komanso molondola kufunsa gulu lanu lachipatala zomwe mungayembekezere kutengera matenda anu.

Malinga ndi ziwerengero, kuchuluka kwa anthu omwe ali ndi khansa ya choroid plexus kwa zaka zisanu kuli pakati pa 40% ndi 60%. Izi zikutanthauza kuti mwa anthu 10 omwe apezeka ndi matendawa, 4 mpaka 6 amakhala ndi moyo kwa zaka zisanu kapena kuposerapo. Komabe, kwa munthu amene ali ndi matenda a majini omwe atchulidwa kale a Li-Fraumeni syndrome, chiwerengerochi chimanenedwa kuti ndi chotsika kufika pa 30 %.

Musachite mantha ndi ziwerengerozi. Izi ndi ziwerengero chabe. Mkhalidwe wa aliyense, momwe amachitira chithandizo, komanso nkhondo yake ndi zosiyana. Ndi kupita patsogolo kwa sayansi ya zamankhwala, mavutowa akukulirakulira tsiku ndi tsiku.

Kodi ndi liti pamene tiyenera kupita kwa dokotala?

Ngati inu kapena mwana wanu mukupitiriza kukhala ndi chimodzi kapena zingapo mwa zizindikiro zomwe tatchula pamwambapa, makamaka ngati muwona chimodzi mwa izi, muyenera kuwona dokotala woyenerera popanda kuwononga nthawi iliyonse :

• Kusintha koonekeratu kwa khalidwe. Mwachitsanzo, kusokonezeka mwadzidzidzi, kukwiya kwambiri, kusokonezeka maganizo.
• Kuvuta kupuma.
• Kuyenda movutikira, kutayika kwa mphamvu.
• Kugwidwa ndi khunyu mwadzidzidzi (`Kugwidwa ndi khunyu`).
• Mutu wopweteka kwambiri, wosapiririka.
• Kusintha kwadzidzidzi kwa masomphenya kapena kulankhula.

Kodi ndi mafunso otani ofunika kufunsa dokotala?

Mukapita kwa dokotala wanu, mutha kufunsa mafunso ngati awa kuti mumvetse bwino za matenda anu. Musaope kufunsa chilichonse chomwe chili m'maganizo mwanu:

• "Dokotala, kodi ndi mtundu wanji wa chotupa cha muubongo chomwe ine/mwana wanga muli nacho?"
• "Ndi mankhwala ati abwino kwambiri pa izi? Ndi ati mwa iwo omwe ndi oyenera ine/mwana wanga?"
• "Kodi zotsatirapo zake zingakhale zotani mutalandira chithandizo?"
• "Kodi ine/mwana wanga ndiyenera kuchita mayeso ngati `imaging` scans kangati?"
• "Kodi maganizo a mwana wanga/wanga ndi otani ndi vutoli?"

Mawu kwa banja, makamaka kwa makolo...

Mwana wanu akapezeka ndi choroid plexus carcinoma, ndi zachilendo kumva ngati dziko lanu lonse lagwa. Chilichonse chimayamba kuchitika mwachangu kwambiri. Mudzakumana ndi gulu lalikulu la madokotala, kuphatikizapo madokotala atsopano a mitsempha ndi oncologists. Kalendala yanu idzakhala yodzaza ndi mayeso, nthawi yokumana ndi dokotala, ndi opaleshoni. Pambuyo pa chisangalalo choyamba, muyenera kudikira nthawi yayitali kuti zotsatira zibwerere, kuti mupeze njira zina. Nthawi yodikira iyi ikhoza kukhala yovuta kwambiri komanso yovuta.

Koma, mphindi iliyonse yomwe mungakhale ndi mwana wanu panthawiyo ndi yamtengo wapatali. Phunzirani nyimbo yatsopano yomutonthoza kuti agone, kuonera zojambula kapena makanema omwe amakonda pamodzi, yesani kupeza china chatsopano chomwe mungachite limodzi chomwe chingakubweretsereni chimwemwe.

N'zovuta kukhala ndi moyo munthawi ino, kudera nkhawa za scan yotsatira, lipoti lotsatira la mayeso. Koma zivute zitani zomwe scan kapena lipotilo likuwonetsa, nthawi zonse mutha kusiya nkhawa zanu ndi mantha anu ndikusangalala ndi nthawi yamtengo wapatali yomwe mudagwiritsa ntchito ndi mwana wanu. Simuli nokha. Pali anthu ambiri omwe angakuthandizeni ndikukumverani.

Pomaliza, zinthu zofunika kwambiri kukumbukira (Uthenga Wopita Nawo Kunyumba)

Chabwino, tiyeni tifotokoze mwachidule zinthu zofunika kwambiri zomwe muyenera kukumbukira zokhudza `Choroid Plexus Carcinoma' yomwe yakhala ikukambidwa kwa nthawi yayitali?

• Choroid Plexus Carcinoma ndi khansa yosowa koma yomwe ikukula mofulumira yomwe imayamba mu minofu ya ubongo yotchedwa choroid plexus. Imakhudza makamaka ana aang'ono ndi makanda .
• Ngati muli ndi chizindikiro chimodzi kapena zingapo monga kugona tulo topitirira muyeso, mutu wopitirira, kusanza pafupipafupi, khunyu, kapena mavuto a maso chifukwa cha zifukwa zomwe sizinadziwike, musataye nthawi ndipo funsani upangiri wa dokotala nthawi yomweyo .
• Mankhwala akuluakulu omwe amagwiritsidwa ntchito ndi opaleshoni, chemotherapy, ndi radiation therapy . Nthawi zina mankhwala opitilira amodzi mwa awa angagwiritsidwe ntchito.
• Ngakhale ulendowu ndi wovuta komanso wovuta, ngati inu kapena wina m'banja mwanu mukukumana ndi vutoli, kumbukirani kuti simuli nokha . Pitirizani ndi chithandizo cha gulu lanu lachipatala, banja lanu, ndi anzanu. Kukhala ndi chiyembekezo komanso kulimba mtima ndikofunikira kwambiri pankhondoyi.

Tikukhulupirira kuti izi zikuthandizani. Thanzi labwino kwa onse!

` Choroid Plexus Carcinoma, khansa ya muubongo, khansa ya ubwana, madzi a m'mitsempha ya ubongo, zizindikiro za khansa, chithandizo cha khansa, chotupa cha muubongo, khansa ya ubwana