Kodi inuyo kapena munthu wina amene mumamudziwa adapatsidwa mankhwala otchedwa cysteamine ndi dokotala? Ngati ndi choncho, ndikofunikira kuphunzira pang'ono za mankhwalawa. Mungamve zachilendo kumva dzinalo, koma musadandaule. Tiyeni tikambirane mwachidule, ngati kuti mukulankhula ndi mnzanu.

Kodi cysteamine ndi mankhwala otani?

Mwachidule, cysteamine ndi mankhwala omwe amathandiza kuswa chinthu chotchedwa cystine m'thupi lathu. Makamaka, amagwiritsidwa ntchito pochiza matenda otchedwa nephropathic cystinosis . Uwu ndi matenda omwe angakhudze ana aang'ono ndi akuluakulu.

Taganizirani izi, zinthu zina zikapanda kugwira ntchito bwino m'thupi lathu, zimatha kudziunjikira mopitirira muyeso. Mwachitsanzo, mwa munthu amene ali ndi matenda a nephropathic cystinosis, amino acid yotchedwa cystine imasonkhana m'thupi, makamaka m'impso. Izi zitha kuwononga impso. Cysteamine imathandiza kuchepetsa kuchuluka kwa cystine.

Chofunika kukumbukira: Mankhwalawa si mankhwala athunthu a matendawa. Komabe, angathandize kuwongolera matendawa ndikuchepetsa kuwonongeka kwake. Chifukwa chake, ndikofunikira kuwagwiritsa ntchito monga momwe dokotala wanu wanenera.

Mankhwalawa nthawi zina angakupatseni madokotala pa matenda ena. Ngati muli ndi mafunso okhudza mankhwalawa, funsani dokotala wanu kapena wamankhwala. Mankhwalawa amapezekanso pansi pa dzina lodziwika bwino la Cystagon .

Kodi ndiyenera kuuza chiyani gulu lachipatala ndisanagwiritse ntchito mankhwalawa?

Musanayambe kugwiritsa ntchito cysteamine, onetsetsani kuti mwauza dokotala wanu kapena gulu lachipatala za:

• Ngati muli ndi chilichonse mwa izi:
• Mavuto a mafupa (monga mafupa ofooka, kusweka mosavuta)
• Kuvutika maganizo kapena mavuto ena a mitsempha
• Ngati muli ndi mbiri ya matenda a magazi
• Ngati mudayamba mwatuluka magazi m'mimba kale (mbiri ya kutuluka magazi m'mimba)
• Matenda a chiwindi - chifukwa mankhwala ambiri amakonzedwa ndi chiwindi.
• Matenda a khunyu, monga khunyu
• Matenda a khungu kapena kukhudzidwa ndi khungu
• Mavuto a m'mimba kapena m'matumbo
• Ngati muli ndi vuto la ziwengo ndi izi:
• Kwa cysteamine
• Mankhwala a Penicillamine
• Mankhwala ena aliwonse, chakudya, utoto kapena zosungira
• Ngati muli ndi pakati kapena mukufuna kutenga mimba.
• Ngati ndinu mayi woyamwitsa.

Ndikofunikira kwambiri kuuza dokotala wanu zonse izi, chifukwa pokhapokha ndi pomwe adzatha kusankha ngati mankhwalawa ndi oyenera kwa inu kapena ngati muyenera kusamala kwambiri.

Kodi ndiyenera kugwiritsa ntchito bwanji mankhwalawa?

Mankhwalawa amabwera ngati kapisozi yomwe mumamwa. Imwani ndi kapu yamadzi. Tsatirani malangizo omwe ali pa chizindikiro cha mankhwala monga momwe dokotala wanu wanenera.

• Nthawi zina mungatsegule kapisozi ndikusakaniza mankhwalawo kukhala chakudya cha ufa. Koma funsani dokotala wanu kapena wamankhwala musanachite zimenezo.
• Imwani mankhwalawo panthawi yoyenera, muyeso woyenera . Musamwe mankhwalawo mopitirira muyeso kapena mopitirira muyeso kuposa momwe dokotala wanu wanenera.

Ngati mupatsa ana mankhwalawa:

Mankhwalawa amaperekedwanso kwa ana m'malo enaake. Komabe, onetsetsani kuti mwakambirana izi ndi dokotala wa ana ndikutsatira malangizo ake. Pakhoza kukhala njira zapadera zodzitetezera popereka mankhwala kwa ana.

Kodi mungachite chiyani ngati mwamwa mankhwala ochulukirapo? (Kumwa mankhwala ochulukirapo):

Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo, imbani malo owongolera poizoni kapena chipinda chadzidzidzi chapafupi nthawi yomweyo. Musataye nthawi.

Chofunika: Mankhwalawa aperekedwa kwa inu nokha. Musagawane ndi ena, ngakhale atakhala ndi zizindikiro zomwezo zomwe muli nazo.

Kodi mumatani ngati mwaphonya mlingo wa mankhwala?

Ngati mwaiwala kumwa mlingo, imwani mwamsanga mukangokumbukira. Komabe, ngati patatha maola osakwana awiri kuti mutenge mlingo wotsatira, dumphani mlingo womwe mwaphonya ndikumwa mlingo wotsatira panthawi yomwe mwakonza. Musamwe mlingo wowirikiza kawiri kapena wowonjezera.

Ndi zinthu zina ziti zomwe zingagwirizane ndi mankhwalawa?

Mankhwalawa sakuyembekezeka kuyambitsa kuyanjana kwakukulu. Komabe, mndandanda uwu sungakhale ndi kuyanjana konse.

Choncho, uzani dokotala wanu za mankhwala ena onse omwe mukumwa (omwe amalembedwa ndi dokotala kapena omwe amagulitsidwa pamtengo wotsika), zitsamba, ndi zowonjezera zakudya. Komanso, uzani dokotala wanu ngati mumasuta fodya, mumamwa mowa, kapena mumagwiritsa ntchito mankhwala osokoneza bongo. Zinthu zina zingasokoneze mankhwala anu.

Ndi zinthu ziti zomwe muyenera kusamala nazo mukamagwiritsa ntchito mankhwalawa?

• Pitani kwa dokotala wanu kuti akakupimeni nthawi zonse. Muyenera kuyesedwa magazi nthawi zonse kuti muwone kuchuluka kwa magazi anu mukumwa mankhwalawa.
• Mumamva tulo kapena chizungulire.Mungakhale ndi chizungulire. Pewani kuyendetsa galimoto, kugwiritsa ntchito makina, kapena kuchita chilichonse chomwe chimafuna kukhala maso mpaka mutadziwa bwino momwe mankhwalawa amakukhudzirani.
• Musaime kapena kukhala pansi mwadzidzidzi, makamaka ngati ndinu okalamba. Izi zingathandize kuchepetsa chizungulire ndi kugwa.

Kodi zotsatirapo zake zingakhale zotani chifukwa cha mankhwalawa?

Monga mankhwala ena aliwonse, cysteamine ingayambitse zotsatira zina zoyipa. Zina zimakhala zoopsa, pomwe zina nthawi zambiri sizimakhala zoopsa.

Zotsatirapo zoyipa zomwe ziyenera kufotokozedwa kwa dokotala kapena katswiri wa zaumoyo nthawi yomweyo:

• Matenda a ziwengo: kutupa pakhungu, kuyabwa kapena ziphuphu, kutupa kwa nkhope, milomo, kapena lilime.
• Kupweteka kwa mafupa kapena kusweka kwa mafupa.
• Mavuto opuma.
• Kusintha kwa masomphenya.
• Kusokonezeka maganizo, kuvutika maganizo, kapena kusintha kwina kwa maganizo.
• Mkodzo wakuda.
• Kupweteka kwa maso.
• Kumva kufooka kapena mutu wopepuka, kugwa.
• Zizindikiro monga malungo kapena kuzizira, pakhosi lopweteka.
• Kumva kudwala kapena zizindikiro zofanana ndi chimfine.
• Kusanza, kusanza.
• Zilonda za pakhungu lofiirira.
• Kulira m'makutu.
• Kugwidwa ndi khunyu.
• Kuvutika kutulutsa mkodzo kapena kusintha kuchuluka kwa mkodzo.
• Kutuluka magazi kapena mabala osazolowereka.
• Kumva kufooka kwambiri kapena kutopa.
• Kuoneka kwachikasu kwa maso kapena khungu - Izi zitha kukhala vuto la chiwindi.

Ngati mukuona chinthu chonga ichi, funsani upangiri wa dokotala mwamsanga.

Zotsatirapo zomwe nthawi zambiri sizifuna chithandizo chamankhwala (koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira kapena zikuvutitsa):

• Kudzimbidwa kapena kutsegula m'mimba.
• Kugona tulo.
• Mutu .
• Kusowa chilakolako.
• Kusokonezeka m'mimba.
• Mpweya wosasangalatsa.

Mndandandawu sungakhale ndi zotsatirapo zonse zoyipa. Ngati muwona china chake chachilendo, uzani dokotala wanu. Ngati mukufuna, muthanso kunena za zotsatirapo zoyipa ku FDA (Food and Drug Administration) pa 1-800-FDA-1088.

Kodi ndiyenera kusunga bwanji mankhwala anga?

• Sungani pamalo omwe ana sangafikire. Izi ndizofunikira kwambiri.
• Sungani kutentha kwa chipinda (pakati pa madigiri 20 ndi 25 Celsius, kapena pakati pa madigiri 68 ndi 77 Fahrenheit).
• Sungani pamalo ouma, kutali ndi kuwala kwachindunji .
• Tayani mankhwala omwe atha ntchito popanda kuwagwiritsa ntchito.

Pomaliza, zinthu zoti muzikumbukira (Uthenga Wopita Nawo Kunyumba)

Chabwino, takambirana zambiri za cysteamine. Kumbukirani, iyi ndi mankhwala ofunikira omwe amathandiza kuchiza matenda otchedwa nephropathic cystinosis.

Chofunika kwambiri ndikumwa mankhwala awa monga momwe dokotala wanu wanenera, mu mlingo woyenera, panthawi yoyenera. Musasinthe mlingo kapena kusiya kumwa mankhwala nokha.

• Ngati muli ndi mafunso kapena nkhawa, musazengereze kufunsa dokotala wanu, wamankhwala, kapena wopereka chithandizo chamankhwala.
• Dziwani zotsatirapo zake, makamaka ngati muwona zotsatirapo zake zazikulu zomwe takambirana, ndipo funsani upangiri wa dokotala nthawi yomweyo.
• Pitani kukayezetsa kuchipatala nthawi zonse.

Tsamba lazidziwitso ili ndi chidule chabe. Silingathe kufotokoza chilichonse. Dokotala wanu ndiye munthu wabwino kwambiri wokupatsani upangiri woyenera pa vuto lanu. Chifukwa chake, lankhulani naye za chilichonse ndipo chithetseni. Ndikukufunirani kuti muchire mwachangu!

Cysteamine , Nephropathic cystinosis, Cystine, Cystagon, Mankhwala, Matenda a Impso