Kodi Cystic Fibrosis ndi chiyani? Tiyeni timvetse mosavuta!

Mwina mwamvapo kuti anthu ena amabadwa ndi matenda a majini, sichoncho? Cystic Fibrosis (CF) ndi matenda a majini. Anthu ambiri amaganiza kuti uwu ndi matenda omwe amakhudza mapapo okha, chifukwa kupuma movutikira komanso matenda opatsirana m'mapapo nthawi zambiri ndi ofala ndi matendawa. Koma nkhaniyi ndi yovuta kwambiri kuposa pamenepo. Tiyeni tiwone chomwe chili.

Kodi cystic fibrosis (CF) kwenikweni ndi chiyani?

Mwachidule, cystic fibrosis (CF) ndi matenda a majini omwe amachititsa kuti mamina ambiri okhuthala komanso omata azisonkhana mkati mwa ziwalo zina m'thupi lathu. Mamina okhuthala amenewa amatha kuwononga ziwalozo ndikusokoneza ntchito yawo.

Kawirikawiri, mamina m'mapapo ndi m'mphuno mwathu amakhala ndi madzi pang'ono komanso opyapyala. Amasunga malo amenewo onyowa ndipo amasunga dothi ndi zinyalala. Koma mwa anthu omwe ali ndi CF, kusintha kwa majini kumasintha momwe maminawa amapangira. Puloteni yomwe imayambitsa izi imasoweka kapena siyigwira ntchito bwino. Zotsatira zake, mchere wochepetsa mamina umalowa mkati mwa maselo, zomwe zimapangitsa mamina kukhala okhuthala komanso omata.

Ngakhale anthu ambiri amaona kuti ndi matenda a m'mapapo, CF imatchedwanso chifukwa imayambitsa ziphuphu ndi zipsera (fibrosis) mu kapamba. Kuwonongeka kumeneku, pamodzi ndi kukhuthala kwa denga, kumatha kutseka njira zomwe zimatulutsa ma enzymes ogaya chakudya omwe amathandiza kugaya chakudya chomwe timadya. Izi zitha kulepheretsa thupi kuyamwa michere kuchokera muzakudya moyenera. Kuwonjezera pa mapapo ndi kapamba, zimathanso kukhudza chiwindi, sinuses, matumbo, ndi ziwalo zoberekera.

Matenda a CF ndi matenda omwe munthu amabadwa nawo. Izi zikutanthauza kuti ndi matenda omwe munthu amakhala nawo kwa moyo wake wonse omwe amatha kuipiraipira pakapita nthawi. Anthu omwe ali ndi matenda a CF amakhala ndi moyo wautali kuposa anthu omwe alibe matenda a CF.

Kodi pali mitundu ikuluikulu ya cystic fibrosis (CF)?

Inde, mitundu iwiri ikuluikulu ya `CF` ingathe kuzindikirika:

1. Matenda a cystic fibrosis: Izi nthawi zambiri zimakhudza ziwalo zingapo m'thupi. Matendawa nthawi zambiri amapezeka m'zaka zoyambirira za moyo.

2. Matenda achilendo a cystic fibrosis: Uwu ndi mtundu wa CF wosaopsa kwambiri komanso wofatsa. Ungakhudze chiwalo chimodzi chokha, kapena zizindikiro zingabwere ndi kutha. Nthawi zambiri amapezeka mwa ana okalamba kapena achinyamata.

Kodi zizindikiro za cystic fibrosis (CF) ndi ziti?

Munthu amene ali ndi CF angakumane ndi zizindikiro monga:

• Matenda opatsirana m'mapapo nthawi zambiri (monga chibayo kapena bronchitis)). Tangoganizirani, ana ena aang'ono nthawi zonse amakhala ndi mphuno yotuluka madzi, chifuwa, ndi kupuma movutikira pachifuwa pawo, ndipo ngakhale atalandira mankhwala, amabwereranso mobwerezabwereza popanda mpumulo uliwonse. Umu ndi momwe zilili.
• Kutulutsa ndowe zotayirira kapena zonenepa.
• Kuvuta kupuma.
• Kupuma movutikira ndi phokoso lofala, lomveka ngati phokoso lochokera pachifuwa.
• Matenda opatsirana pafupipafupi a sinus.
• Chifuwa chosalekeza.
• Kukula kumachepa.
• Kulephera kukula bwino, ngakhale mutadya bwino ndikupeza ma calories omwe thupi lanu limafuna, ndi vuto lomwe simukulemera kapena kuonda.

Zizindikiro za atypical cystic fibrosis (CF yosazolowereka)

Anthu omwe ali ndi CF yosazolowereka akhoza kukhala ndi zizindikiro zina zomwe zatchulidwa pamwambapa. Pakapita nthawi, amathanso kukumana ndi zinthu monga:

• Matenda a sinusitis osatha.
• Ma polyps a m'mphuno.
• Kuchuluka kwa ma electrolyte m'thupi kungayambitse kutaya madzi m'thupi kapena kutentha thupi.
• Kutsegula m'mimba.
• Pancreatitis.
• Kuchepetsa thupi mosadziwa.

Kodi n’chiyani chimayambitsa matenda a cystic fibrosis (CF)?

Chifukwa chachikulu cha CF ndi kusintha kwa majini (variant kapena mutation) mu jini yotchedwa CFTR. Jini ya CFTR imapanga puloteni yomwe imagwira ntchito ngati njira ya ayoni pamwamba pa maselo. Taganizirani ngati chipata chaching'ono mu nembanemba ya selo. Zipata izi zimalola tinthu tina kuti tidutse.

Puloteni yopangidwa ndi jini ya `CFTR` nthawi zambiri imagwira ntchito ngati chipata cha ma chloride ions (mtundu wa mchere wokhala ndi mphamvu yamagetsi yoipa). Ma chloride ions akatuluka mu selo, madzi amakokedwanso. Apa ndi pamene mamina amakhala opyapyala komanso oterera. Koma mwa anthu omwe ali ndi `CF`, njirayi siichitika bwino chifukwa cha kusintha kwa majini a `CFTR`. Ma chloride ions amatsekeredwa mkati mwa maselo, zomwe zimasiya maminawo ali okhuthala komanso omata.

Pali mitundu yosiyanasiyana ya kusintha kwa majini a CFTR (magulu I mpaka VI). Kusintha kwina sikupanga mapuloteni aliwonse, ena amapanga mapuloteni ochepa okha, ndipo ena sapanga mapuloteni omwe amapanga.

Kodi cystic fibrosis (CF) ndi matenda obadwa nawo?

Inde, `CF` ndi matenda a majini omwe amabadwa nawo. Munthu amene ali ndi `CF` amalandira makope awiri a jini ya `CFTR` yosinthidwa iyi - imodzi kuchokera kwa amayi, ndi imodzi kuchokera kwa abambo (izi zimatchedwa `autosomal recessive` inheritance).

Makolo anu safunika kukhala ndi CF kuti inu mukhale ndi CF. Ndipotu, mabanja ambiri alibe mbiri ya banja la CF. Munthu amene ali ndi kopi imodzi yokha ya jini yosinthika amatchedwa chonyamulira . Chonyamulira sichisonyeza zizindikiro za CF.

Kodi akuluakulu nawonso angathe kukhala ndi cystic fibrosis (CF)?

Ayi, mumabadwa ndi kusintha kwa majini komwe kumayambitsa matenda a CF. Komabe, ngati zizindikirozo zili zochepa kwambiri, kapena zikabwera ndi kutha, anthu ena sangadziwike mpaka atakula, mwina mpaka atakula.

Kodi mavuto omwe angakhalepo chifukwa cha CF ndi ati?

Matenda a CF angayambitse mavuto monga:

• Matenda: Mafinya okhuthala amasunga mabakiteriya m'mapapo ndi m'njira zopumira, zomwe zimapangitsa kuti zikhale zovuta kuti atuluke. Izi zingayambitse matenda opatsirana pafupipafupi.
• Kusakhalapo kwa vas deferens (CBAVD) mwachibadwa: Pa vutoli, amuna alibe vas deferens, chubu chomwe chimanyamula umuna. Chifukwa chake, amafunika thandizo pa chithandizo cha kubereka ngati akufuna kukhala ndi ana.
• Matenda a shuga: Matenda a shuga okhudzana ndi cystic fibrosis amatha kuchitika chifukwa cha kuwonongeka kwa kapamba.
• Kusadya bwino: Kusowa kwa mamina okhuthala m'mimba ndi ma enzyme a kapamba omwe amathandiza kugaya chakudya kumawonjezera chiopsezo cha kusowa zakudya m'thupi.
• Matenda a Osteopenia ndi Matenda a Osteoporosis: Matenda ofooketsa mafupa amatha kuchitika chifukwa cholephera kuyamwa bwino michere m'mimba.
• Mavuto a mimba: Matenda a CF angakhudze m'mimba ndipo amayambitsa kusowa zakudya m'thupi. Izi zimawonjezera chiopsezo cha mavuto a mimba. Kubereka mwana asanakwane nthawi yake ndiye vuto lofala kwambiri.

Kodi matenda a cystic fibrosis (CF) amapezedwa bwanji?

Madokotala nthawi zambiri amaunika makanda obadwa kumene kuti awone ngati ali ndi CF panthawi yowunika makanda obadwa kumene. Izi zimachitika potenga madontho ochepa a magazi kuchokera pachidendene cha mwana. Mu labu, chitsanzo cha magazichi chimayesedwa kuti chipeze mankhwala otchedwa immunoreactive trypsinogen (IRT) . Izi zimapangidwa ndi kapamba. Anthu omwe ali ndi CF amakhala ndi IRT yambiri m'magazi awo. Makanda amaunikanso IRT akangobadwa ndipo patatha milungu ingapo.

Komabe, matenda ena, monga kubadwa msanga, angayambitsenso kuchuluka kwa IRT. Chifukwa chake, mayeso abwino a IRT satanthauza kuti mwana ali ndi CF. Ngati kuchuluka kwa IRT kwa mwana kuli kokwera kuposa momwe amayembekezera, dokotala adzalamula mayeso ena kuti adziwe matenda omaliza.

Nthawi zina (pafupifupi 5% ya milandu), kuyezetsa makanda obadwa kumene sikungazindikire kuchuluka kwa IRT mwa munthu amene ali ndi CF. Kapena, mwina simunayesedwe CF nthawi zonse pobadwa. Ngati inu kapena mwana wanu muli ndi zizindikiro za CF, dokotala adzachita mayeso a thukuta ndipo, ngati pakufunika, mayeso ena.

Mayeso a cystic fibrosis (CF)

• Kuyesa thukuta:Izi zimayesa kuchuluka kwa chloride mu thukuta lanu. Anthu omwe ali ndi CF ali ndi chloride yambiri mu thukuta lawo. Iyi ndi njira yeniyeni yodziwira matenda a CF. Komabe, zingakhale zachilendo kwa anthu omwe ali ndi CF yosazolowereka.
• Kuyezetsa majini: Zitsanzo za magazi zimatengedwa kuti ziwone ngati pali kusintha kwa majini komwe kumayambitsa CF.
• Mayeso ojambulira: Zinthu monga X-ray ya m'mphuno ndi pachifuwa zimagwiritsidwa ntchito kutsimikizira kapena kuthandizira kupezeka kwa CF. Mayeso ojambulira awa okha sangathe kuzindikira CF.
• Mayeso a ntchito ya m'mapapo (PFTs): Izi zimayesa momwe mapapu anu akugwirira ntchito.
• Kumera kwa ziphuphu: Dokotala wanu adzatenga chitsanzo cha mamina omwe amatuluka m'mapapo mwanu mukamatsokomola ndikuyesa mabakiteriya. Mitundu ina ya mabakiteriya, monga Pseudomonas, imapezeka kwambiri mwa anthu omwe ali ndi CF.
• Kuyeza magazi m'thupi: Izi zimathandiza dokotala wanu kuona ngati pali ma cysts kapena zilonda mu kapamba wanu.
• Kusiyana kwa mphamvu ya mphuno (NPD): Izi zimayesa mphamvu yamagetsi yaying'ono yomwe nthawi zambiri imakhalapo m'kati mwa mphuno. Mphamvu iyi imapangidwa ndi kuyenda kwa ma ayoni. Anthu omwe ali ndi CF amakhala ndi kayendedwe kochepa ka ma ayoni chifukwa cha momwe CF imakhudzira njira za ma ayoni.
• Muyeso wa mphamvu ya m'mimba (ICM): Kuti achite mayesowa, dokotala amatenga chitsanzo cha minofu ya m'matumbo. Labotale imayesa kuchuluka kwa kloridi komwe kumachokera mu chitsanzochi.

Kodi matenda a cystic fibrosis (CF) amachiritsidwa bwanji?

Mwatsoka, palibe mankhwala a CF. Komabe, mothandizidwa ndi katswiri wa CF ndi ena omwe ali m'gulu lanu lazachipatala, mutha kuthana ndi matendawa ndi zizindikiro zake. Kasamalidwe kameneka kakuphatikizapo:

• Kusunga njira zopumira mpweya zoyera komanso zotseguka pogwiritsa ntchito njira zopumira ndi zida zosungunula mafinya.
• Mankhwala omwe amathandiza kuthetsa mavuto ndi puloteni ya `CFTR` (`CFTR modulators`).
• Mankhwala omwe amachepetsa zizindikiro zinazake.
• Onetsetsani kuti mwapeza ma calories okwanira komanso oyenera kuchokera ku chakudya.
• Opaleshoni.

Njira zochotsera mpweya

Ngati muli ndi CF, pali njira zingapo zosungira mpweya wanu kuti ukhale wabwino:

• Njira zopumira ndi chifuwa: Katswiri wa zamaganizo yemwe ndi katswiri wa matenda a CF angakuphunzitseni njira zotsegula njira zanu zopumira komanso kumasula mamina.
• Zipangizo zopumira mpweya (PEP):Zipangizo za `PEP` izi zitha kuvalidwa pakamwa kapena ngati `mask` pankhope. Zimapereka mphamvu, kotero muyenera kugwira ntchito molimbika kuti mutuluke. Izi zimatsegula njira zopumira mpweya ndikutulutsa mamina. Zipangizo za `PEP` zogwedezeka (monga `Flutter®`, `Acapella®`, `AerobikA®`, `RC-Cornet®` ) ndi mitundu yapadera ya `PEP` yomwe imaphatikiza kugwedezeka ndi kuthekera komasula mamina.
• Ma vesti ochotsera mpweya: Amatchedwanso chipangizo chozungulira khoma la chifuwa chapamwamba, ichi ndi vesti yopumira yolumikizidwa ndi makina. Vestiyo imanjenjemera ndikuswa mamina.
• Kutulutsa madzi m'thupi ndi kugwedeza: Iyi ndi njira yochiritsira thupi. Mumapita kumalo omwe amathandiza kuchotsa mamina m'mapapo mwanu. Munthu wina amakukhudzani pachifuwa ndi/kapena kumbuyo kuti athandize kumasula mamina. Izi zitha kuchitika limodzi ndi njira zoyambitsa chifuwa.

Ma modulators a CFTR a cystic fibrosis

Ma modulators a CFTR ndi gulu la mankhwala omwe amathandiza kukonza mavuto a mapuloteni opangidwa ndi jini ya CFTR yosinthika ndikuwonjezera kuchuluka kwa mapuloteni omwe amagwira ntchito bwino pamwamba pa maselo. Sachiritsa CF. Koma anthu ena asintha kwambiri zizindikiro zawo komanso nthawi yomwe amakhala ndi moyo. Komabe, ma modulators awa sali oyenera aliyense amene ali ndi CF, ndipo ena sangawalole.

Zitsanzo zina za `CFTR modulators`:

• `Kalydeco® (ivacaftor)`
• ``Orkambi® (ivacaftor/lumacaftor)''
• `Symdeko® (ivacaftor/tezacaftor)`
• `Trikafta® (ivacaftor/tezacaftor/elexacaftor)`

Mankhwala ena a cystic fibrosis

Dokotala wanu angaperekenso mankhwala ena ochepetsa kutupa, kuchiza matenda, kapena kuthana ndi zizindikiro. Izi zikuphatikizapo:

• Mankhwala Opha Majeremusi: Dokotala wanu angakupatseni mankhwala opha majeremusi kuti athetse kapena kuletsa matenda.
• Mankhwala opumira a bronchodilator: Mankhwala opumira a bronchodilator amatsegula ndi kumasula njira zopumira, zomwe zimapangitsa kuti kupuma kukhale kosavuta.
• Mankhwala opatsa mphamvu kwambiri: Mchere womwe uli mu saline umakopa madzi, zomwe zimapangitsa kuti mamina asamatuluke mosavuta komanso kuti kutsokomola kukhale kosavuta.
• Mankhwala oletsa kutupa: Mankhwalawa amachepetsa kutupa. Izi zikuphatikizapo corticosteroids ndi mankhwala oletsa kutupa omwe si a steroidal (NSAIDS) .
• Ma enzyme a Pancreatic: Izi zimathandiza kugaya chakudya ndi kuyamwa michere kuchokera mmenemo.
• Zofewetsa ndowe: Izi zimathandiza pa matenda monga kudzimbidwa ndipo zimapangitsa kuti ndowe zisamavute.

Zakudya za cystic fibrosis (CF)

Ngati muli ndi matenda a CF, zakudya zomwe mukufuna zimakhala zosiyana ndi za munthu wopanda matenda a CF. Chifukwa cha matenda a CF, kapamba wanu sangathe kupanga kapena kutulutsa ma enzyme omwe amakuthandizani kugaya chakudya. Izi zikutanthauza kuti matumbo anu sangathe kuyamwa bwino michere ndi mafuta omwe ali mu chakudya chanu.

Katswiri wanu wa CF kapena katswiri wodziwika bwino wazakudya adzakulangizani dongosolo la zakudya. Lingaphatikizepo:

• Zakudya za kalori tsiku lililonse. Izi zitha kuwirikiza kawiri kuposa munthu wopanda CF.
• Kudya zakudya zokhala ndi mafuta ambiri. Izi ndizofunikira kuti mupeze mavitamini ambiri osungunuka mafuta.
• Kusunga thupi lanu kukhala lolemera kuposa lachibadwa kuyambira muli ana. Izi zingakuthandizeni kukula ndikukula kwa mapapo anu. Izi zingathandize kuchepetsa zizindikiro pamene mukukula.
• Kumwa makapisozi othandizira ma enzyme. Ma enzyme othandizira amathandiza kugaya chakudya.
• Kuwonjezera mchere wambiri muzakudya zanu. Izi zimathandiza m'malo mwa mchere wowonjezera womwe thupi lanu limataya chifukwa cha thukuta. Izi ndizofunikira kwambiri nthawi yotentha komanso yachinyezi komanso mukamachita masewera olimbitsa thupi. Funsani dokotala wanu za kuchuluka kwa mchere womwe mumafunikira patsiku.

Opaleshoni ya cystic fibrosis (CF)

Mungafunike opaleshoni ya CF kapena vuto la CF. Izi zingaphatikizepo:

• Maopaleshoni okhudzana ndi mphuno kapena sinuses.
• Opaleshoni yochotsa zotsekereza m'mimba.
• Kusamutsa mapapo.
• Kusamutsa chiwindi.

Kodi matenda a cystic fibrosis (CF) ndi matenda omwe angawononge moyo?

Inde, matenda a CF ndi matenda oopsa kwambiri. Chifukwa chachikulu cha imfa ndi kuwonongeka kwa mapapo komwe kumachitika chifukwa cha ntchofu yokhuthala komanso matenda opatsirana m'mapapo pafupipafupi.

Kodi munthu amene ali ndi cystic fibrosis (CF) amakhala ndi moyo wautali bwanji?

Malinga ndi akatswiri, m'zaka zaposachedwapa, nthawi ya moyo wa munthu wobadwa ndi CF yakhala pafupifupi zaka 50. Zaka zingapo zapitazo, nthawi ya moyo inali pakati pa zaka 30 ndi 40, koma izi zawonjezeka m'zaka zaposachedwa chifukwa cha kupita patsogolo kwa njira zochiritsira.

Anthu omwe ali ndi matenda a CF osazolowereka amakhala ndi moyo wautali kuposa omwe ali ndi matenda a CF akale.

Kodi ndiyenera kuyembekezera chiyani ngati ndili ndi CF?

Palibe mankhwala a CF. Inu kapena mwana wanu mudzafunika chithandizo cha moyo wonse kuti muthane nacho. Izi zikuphatikizapo kuchiza matenda, kudya zakudya zoyenera, komanso kuonana ndi katswiri wa CF nthawi zonse. Komabe, mankhwala atsopano athandiza ana omwe ali ndi CF kukhala ndi moyo wabwino mpaka atakula komanso kukhala ndi moyo wabwino.

Chithandizo chimagwira ntchito bwino kwambiri ngati matenda a CF apezeka msanga. Ichi ndichifukwa chake kuyezetsa ana akhanda ndikofunikira kwambiri. Kuyamba chithandizo monga ma CFTR modulators ali aang'ono kungathandize kukhala ndi thanzi labwino kwa nthawi yayitali ndikuwonjezera nthawi yoyembekezera kukhala ndi moyo.

Kodi matenda a CF angapewedwe?

Popeza matenda a CF ndi chinthu chomwe mumabadwa nacho, palibe njira yopewera. Ngati ndinu amene mumanyamula kusintha kwa majini a CFTR, mutha kufunsa dokotala wanu za kuyezetsa majini a mwana asanabadwe komanso mwayi woti ana anu adzadwala matenda a CF.

Kodi ndingadzisamalire bwanji?

Kudzisamalira nokha ndi matenda a CF kumatanthauza kugwira ntchito ndi gulu lanu lachipatala kuti mupange dongosolo la chithandizo. Kuti mukhale ndi thanzi labwino, muyenera kutsatira dongosololi mosamala kwambiri. Likuphatikizapo:

• Tsatirani mosamala njira yanu yoyeretsera mpweya.
• Kumwa mankhwala monga mwalangizidwira.
• Pitirizani kupita kuzipatala ndi gulu lanu lachipatala la CF.

Pezani malangizo kuchokera kwa madokotala anu okhudza dongosolo lodyera bwino komanso masewera olimbitsa thupi otetezeka omwe ali oyenera kwa inu. Funsani dokotala wanu ngati kukonzanso mapapo anu ndi lingaliro labwino kwa inu.

Mukhoza kuchepetsa chiopsezo chanu chotenga matenda mwa kupewa anthu odwala, kugwiritsa ntchito njira zabwino zosamba m'manja, komanso kulandira katemera woyenera.

Mukhozanso kutenga nawo mbali mu mayeso azachipatala omwe amayesa mankhwala atsopano a CF. Funsani dokotala wanu ngati pali ena omwe ali oyenera kwa inu. Onetsetsani kuti mwapeza zambiri zokhudzana ndi ubwino ndi zoopsa za mayeso azachipatala.

Ndiyenera kupita liti kwa dokotala wanga?

Pitani kuzipatala zonse zomwe zakonzedwa pamodzi ndi mamembala a gulu lanu lazaumoyo. Lankhulani ndi dokotala wanu ngati muli ndi mafunso okhudza dongosolo lanu la chithandizo kapena zizindikiro zanu. Mufunseni choti achite ngati muli ndi zizindikiro za matenda. Muthanso kuwauza ngati mukufuna thandizo pa mavuto a anthu kapena amalingaliro.

Kodi ndiyenera kupita ku Dipatimenti Yothandiza Anthu Odwala Pangozi (ETU) liti?

Ngati muli ndi zizindikiro zoopsa izi, pitani kuchipatala mwamsanga:

• Malungo aakulu (oposa madigiri 103 Fahrenheit/40 madigiri Celsius).
• Kuvuta kupuma.
• Palibe kapena mkodzo wotuluka pang'ono kwambiri.
• Kupweteka kosalekeza pachifuwa kapena m'mimba.
• Chizungulire.
• Chisokonezo.
• Kupweteka kwambiri kwa minofu kapena kufooka.
• Kugwidwa ndi khunyu.
• Mtundu wabuluu wa khungu, milomo, kapena misomali (`cyanosis` - ichi chingakhale chizindikiro cha mpweya wochepa m'magazi kapena minofu yanu).
• Ngati malungo kapena chifuwa chachepa kapena chatha, ndiye kuti chikuipiraipiranso.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

Mungathe kufunsa dokotala wanu mafunso monga awa:

• Kodi ndi njira ziti zochiritsira zomwe ndili nazo?
• Kodi ndi dongosolo liti lodyera zakudya zabwino lomwe ndingathe kutsatira?
• Kodi ndingachite chiyani kuti ndithetse zizindikiro zanga?
• Ndi zizindikiro ziti za matenda zomwe ndiyenera kuyang'anitsitsa?
• Ndiyenera kukuonaninso liti?
• Ndi zizindikiro ziti zomwe ndiyenera kupita kuchipinda chodzidzimutsa?
• Kodi mukufuna kuwona abale ena?

N’chifukwa chiyani anthu omwe ali ndi matenda a CF sayenera kukhudzana?

Akatswiri azaumoyo nthawi zambiri amalimbikitsa anthu omwe ali ndi cystic fibrosis (CF) kuti apewe kukhudzana ndi ena. Izi zili choncho chifukwa anthu omwe ali ndi CF amatha kutenga matenda omwe ena angathe kuwaletsa mosavuta. Amakhalanso ndi mwayi wofalitsa majeremusi kwa ena omwe ali ndi CF (omwe ali ndi matenda omwe ndi ovuta kuwaletsa). Anthu omwe ali ndi CF ayeneranso kupewa aliyense amene akudwala.

Pomaliza, china chake (Uthenga Wopita Nawo Kunyumba)

Ndizachilendo kumva kutopa pang'ono mukapezeka ndi matenda omwe simunakumanepo nawo moyo wanu wonse. Komabe, njira zatsopano zochiritsira komanso kumvetsetsa bwino za cystic fibrosis zikutanthauza kuti muli ndi nthawi yochulukirapo yochitira zinthu tsiku ndi tsiku. Anthu ambiri omwe ali ndi CF tsopano angayembekezere kukhala ndi moyo wathunthu mpaka atakula. Mwana amene wapezeka ndi CF masiku ano mwina ali ndi njira zambiri zochiritsira mtsogolo.

Sonkhanitsani gulu la okondedwa ndi akatswiri azachipatala omwe mumawadalira kuti amvetse zomwe mungayembekezere, kuti akuthandizeni kuthana ndi mavuto a moyo watsiku ndi tsiku. Ndipo, musaope kupeza lingaliro lachiwiri nthawi iliyonse. Simuli nokha, ndipo pali anthu ambiri omwe angakuthandizeni paulendowu.

Matenda a cystic fibrosis, matenda a majini, matenda a m'mapapo, mamina, jini ya CFTR, thanzi la ana, mavuto a kupuma