Kodi mbali imodzi yokha ya thupi lanu ndi yofiira ndipo imatulutsa thukuta? Kodi iyi ndi Harlequin Syndrome? Tiyeni tikambirane!

Kodi munayamba mwawonapo, kapena kuonapo, mbali imodzi ya nkhope yanu ikufiira mwadzidzidzi ndi kutuluka thukuta, pomwe mbali inayo ndi yachibadwa? Kwa ena, izi zitha kukhala zachilendo, mwinanso zosasangalatsa. Ichi ndi chomwe timachitcha Harlequin Syndrome m'mawu azachipatala. Ngakhale dzinalo lingamveke ngati nkhani yayikulu, sichoyenera kuopa, koma ndikofunikira kudziwa za izi.

Kodi ichi ndi chiyani kwenikweni (Harlequin Syndrome)?

Mwachidule, Harlequin Syndrome ndi vuto lomwe mbali imodzi yokha ya nkhope yanu, khosi, ndi nthawi zina pachifuwa chanu imakhala yofiira ndikutuluka thukuta . Chodabwitsa n'chakuti, palibe chilichonse mwa izi chomwe chimachitika mbali ina ya thupi lanu, zomwe zimakhalabe zachilendo.

Vutoli limachitika chifukwa cha kusintha kwa magwiridwe antchito a dongosolo la mitsempha la thupi lathu. Tsopano mwina mukudabwa kuti dongosolo la mitsempha la sympathetic ndi chiyani. Thupi lathu lili ndi dongosolo lolamulira lodabwitsa kwambiri, lotchedwa autonomic nervous system . Ichi ndi chomwe chimalamulira zinthu zambiri zomwe zimachitika "zokha" popanda ife kuganizira za izo, monga kugunda kwa mtima wathu, kuthamanga kwa magazi, kupuma, ndi kugaya chakudya.

Gawo la dongosolo la mitsempha lodziyimira palokha ndi dongosolo la mitsempha lothandiza anthu. Lili ngati dongosolo la 'tcheru' la thupi lathu. Dongosololi limagwira ntchito tikamathamanga, tikakhala ndi mantha, kapena tikamamva chisoni chachikulu monga chisangalalo chachikulu kapena chisoni. Izi zimatchedwa yankho la 'nkhondo-kapena-kuthawa' . Dongosolo la mitsempha lothandiza anthu ndi lomwe limasonyeza thupi lathu kuti lituluke thukuta kuti lilamulire kutentha kwa thupi lathu, monga momwe timachitira masewera olimbitsa thupi kuti tizizire. (Harlequin Syndrome) Zizindikiro zimawonekera dongosolo la mitsempha lothandiza anthu ili likagwira ntchito.

Kodi (Harlequin Syndrome) ndi (Harlequin Sign) ndi zinthu zosiyana?

Inde, pali kusiyana pang'ono. (Harlequin Syndrome) ikutanthauza matenda amitsempha omwe ndatchula kale. (Harlequin Sign) ikutanthauza chizindikiro chachikulu cha matendawa. Ndiko kuti, mtundu wa khungu kumbali imodzi ya thupi umasintha (kufiira kapena mdima) ndipo khungu kumbali inayo limakhalabe loyera kapena labwinobwino. Ichi (Harlequin Sign) sichingawonekere mu (Harlequin Syndrome) yokha komanso ngati chizindikiro cha matenda ena.

Kodi vutoli ndi lofala kwambiri? Kodi likhoza kupha munthu?

Matenda a Harlequin Syndrome ndi matenda osowa kwambiri . Amanenedwa m'matenda ochepa chabe padziko lonse lapansi. Choncho sizodabwitsa ngati simunamvepo za matendawa kale.

Chofunika kwambiri ndichakuti vutoli silikuika moyo pachiswe . Ndipo silidzakhudza moyo wanu wonse. Choncho palibe chifukwa choopera mosayenera.

Kodi zizindikiro za izi ndi ziti?

Mu Harlequin Syndrome, zizindikiro zomwe mumamva mbali zonse ziwiri za thupi lanu zimakhala zosiyana.

Zizindikiro zomwe zingawonekere kumbali yokhudzidwa:

• Khungu limakhala lofiira kapena lakuda kuposa mtundu wa khungu lanu wamba.
• Kutuluka thukuta kwambiri.
• Khungu lomwe lili pamalopo limamva kutentha likakhudzidwa.

Zizindikiro zomwe zimawonedwa mbali yosakhudzidwa:

• Khungu lotumbululuka.
• Osatuluka thukuta konse.
• Khungu lomwe lili pamalopo limamveka lozizira likakhudzidwa.

Mwanjira imeneyi, zinthuzi zimawoneka ngati mbali za thupi zagawika pakati. Tangoganizirani mzere woyima womwe watengedwa kuchokera pakati pa mphumi panu, pansi pa mphuno yanu, ndikutsika mpaka pachifuwa panu.

Kuwonjezera pa zizindikiro zazikulu izi, zizindikiro zina zosazolowereka zitha kuwonekanso:

• M'malo ena, khungu limakhala louma ndipo limatuluka ngati mamba.
• Mutu.
• Mphuno yotuluka madzi .
• Misozi ikutuluka m'maso.
• Kupindika kwa chikope mbali imodzi ndi/kapena kusintha kwa kukula kwa maso (komwe kumatchedwanso Horner Syndrome , komwe kungagwirizane ndi vuto lina).

Kodi zizindikiro zimenezi zimawonekera liti?

Mukhoza kukhala ndi zizindikiro izi za Harlequin Syndrome, makamaka pazochitika izi:

• Mukamachita masewera olimbitsa thupi: Mukathamanga, kulumpha, kusewera, kapena kuchita masewera olimbitsa thupi ku malo ochitira masewera olimbitsa thupi.
• Mukakhala ndi malingaliro amphamvu kapena kupsinjika maganizo: mukakhala okondwa kwambiri, achisoni, amantha, kapena muli pamavuto musanachite mayeso kapena kuyankhulana.
• Mu nyengo yotentha: mukatuluka padzuwa, mukakhala m'chipinda chotentha.
• Mukadya chakudya chokometsera: Mukadya chakudya chopangidwa ndi tsabola wambiri.

Tangoganizani kuti mukusewera cricket ndi anzanu ndipo mukutuluka thukuta kwambiri, ndipo mbali yakumanja yokha ya nkhope yanu ndi yofiira komanso yotuluka thukuta, koma mbali yakumanzere ili bwino, monga mwachizolowezi. Ndicho chimene chimachitika mu izi.

Kodi ndi zifukwa ziti zomwe zimayambitsa Harlequin Syndrome?

Nthawi zambiri, zimakhala zovuta kupeza chifukwa chenicheni cha Harlequin Syndrome. Izi zikutanthauza kuti chifukwa chake sichikudziwika bwino. Komabe, kafukufuku wapeza kuti mwina chimachitika chifukwa cha kulephera kulumikizana pakati pa maselo omwe ali mbali yakumanja ndi yakumanzere ya dongosolo lathu la mitsempha lodziyimira pawokha.

Nthawi zina, pangakhale kusokonezeka kwa njira yolankhulirana iyi. Uthengawu umachoka ku hypothalamus muubongo wathu kupita ku thoracic spinal cord yomwe ili pachifuwa chapamwamba. Apa ndi pomwe mitsempha ya sympathetic imapereka nkhope ndi thupi lapamwamba. Njirayi imalamulira thukuta ndi mitsempha yamagazi.

Pali zifukwa zingapo zomwe kusokoneza kumeneku kungachitikire:

• Ndi chotupa chomwe chimapangika m'njira ya mitsempha.
• Chilonda kapena kuwonongeka komwe kumachitika chifukwa cha matenda kapena kutupa.
• Ngozi yomwe imachitika chifukwa cha opaleshoni pachifuwa chapamwamba, monga opaleshoni ya msana.

Ndani amene ali ndi mwayi waukulu wopeza izi? (Zinthu zomwe zingakubweretsereni chiopsezo)

Matendawa, otchedwa Harlequin Syndrome, angakhudze aliyense wa msinkhu uliwonse, kuphatikizapo makanda, ana, ndi akuluakulu . Komabe, mungakhale ndi mwayi waukulu wopeza matendawa ngati:

• Ngati mwachitidwa opaleshoni ya endoscopic thoracic sympathectomy (njira yochitira opaleshoni yomwe imagwiritsidwa ntchito pochiza thukuta lochuluka).
• Ngati mwalandira mankhwala oletsa ululu.
• Ngati mwachita ngozi yomwe inakhudza dongosolo lanu la mitsempha ya sympathetic.
• Ngati pali vuto lina lachipatala monga Horner Syndrome .

Kodi izi zingayambitse mavuto otani?

Ngakhale izi sizichitika kawirikawiri, mavuto ena amatha kuchitika chifukwa cha Harlequin Syndrome. Izi ndi izi:

• Kuvuta kulamulira kutentha kwa thupi.
• Kusintha kosatha kwa mtundu wa nkhope (mbali imodzi).
• Kuvutika maganizo, nkhawa, kapena kudziona kuti ndi wosafunika kwenikweni chifukwa choganizira za maonekedwe a munthu. Chifukwa, ena akaona izi m'gulu la anthu, zimakhala zochititsa manyazi pang'ono kwa anthu ena.

Kodi mungazindikire bwanji matenda a Harlequin? (Kuzindikira)

Dokotala adzadziwa ngati muli ndi Harlequin Syndrome pofufuza zizindikiro zanu. Gawo loyamba ndi kufufuza thupi . Kenako, mayeso osiyanasiyana amachitidwa kuti athetse matenda ena omwe angayambitse zizindikiro zofanana ndi kudziwa ngati pali chifukwa chenicheni.

Pali mayeso angapo omwe angagwiritsidwe ntchito pozindikira Harlequin Syndrome:

• Mayeso a kupsinjika maganizo: Mu mayeso awa, dokotala adzakupangitsani kuchita masewera olimbitsa thupi ndikukuyang'anirani kuti awone ngati kuchita masewera olimbitsa thupi kumayambitsa zizindikiro. Zizindikiro za Harlequin Syndrome zimatha kuonekera kwambiri panthawi yochita masewera olimbitsa thupi.
• Mayeso ojambulira zithunzi: Mayeso awa amalola dokotala wanu kuwona mkati mwa thupi lanu. Awa ndi mayeso osapweteka. Zitsanzo zikuphatikizapo X-ray pachifuwa, CT scan (Computed Tomography), ndi MRI (Magnetic Resonance Imaging) .

Kodi mankhwala ochizira izi ndi otani?

Nkhani yabwino ndi yakuti Harlequin Syndrome si nthawi zonse imafuna chithandizo . Nthawi zina vutoli limatha kuchira lokha. Kaya dokotala akulangiza chithandizo kutengera zomwe zikukuyambitsani zizindikiro. Njira zina zochiritsira zimaphatikizapo:

• Chithandizo kapena uphungu zingathandize kuchepetsa kusasangalala ndi anthu komanso kupsinjika maganizo komwe kumachitika chifukwa cha vutoli.
• Katemera woperekedwa kuti achepetse kufiira kwa nkhope kapena kusintha kwa mtundu wa khungu`(chotchinga cha ganglion)` .
• Lamulirani thukuta ndi zizindikiro zina pogwiritsa ntchito jakisoni wa poizoni wa botulinum .
• Ngati chifukwa chake ndi chotupa kapena chilonda, opaleshoni kapena chithandizo cha radiation chidzafunika kuti chichotsedwe.

Kodi mungayembekezere chiyani ngati muli ndi Harlequin Syndrome?

Harlequin Syndrome nthawi zambiri siimayambitsa vuto lalikulu pathupi lanu. Zizindikiro zanu zimatha zokha pakapita nthawi. Kapena, mungakumane ndi zizindikiro pokhapokha mukamachita masewera olimbitsa thupi kapena kudya chakudya chokometsera. Si aliyense amene amafunikira chithandizo. Dokotala wanu adzakuuzani zambiri za matenda anu ndi zomwe mungayembekezere mtsogolo.

Kodi zizindikirozi zimatenga nthawi yayitali bwanji?

Zizindikiro nthawi zambiri zimakhala mphindi zochepa mpaka maola ochepa . Izi zikutanthauza kuti mukasiya kuchita zomwe zimayambitsa zizindikirozo, khungu lidzabwerera mwakale pakapita nthawi yochepa. Mwachitsanzo, ngati zizindikirozo zikuwonekera mukuchita masewera olimbitsa thupi, mukasiya kuchita masewera olimbitsa thupi, kuziziritsa, ndikupumula, khungu lidzabwerera mwakale.

Kodi Harlequin Syndrome ingapewedwe?

Malinga ndi zomwe zapezeka mpaka pano, palibe njira yopewera Harlequin Syndrome.

Kodi muyenera kupita kwa dokotala liti?

Ngati mukumva zizindikiro za Harlequin Syndrome, monga kutuluka thukuta mbali imodzi yokha ya thupi ndi kusintha kwa mtundu wa khungu, ndikofunikira kukaonana ndi dokotala . Harlequin Syndrome nthawi zambiri si chinthu chodetsa nkhawa nacho. Komabe, nthawi zina, ikhoza kukhala chizindikiro cha vuto linalake lachipatala, monga chotupa, kotero ndikofunikira kukaonana ndi dokotala kuti mudziwe chomwe chimayambitsa.

Ndi mafunso ati omwe muyenera kufunsa dokotala?

Mukapita kwa dokotala, ndi bwino kufunsa mafunso awa:

• Kodi n’chiyani chikuchititsa zizindikiro zanga?
• Kodi ndikufunika chithandizo kapena opaleshoni?
• Kodi pali zotsatirapo zilizonse za mankhwalawa?
• Ngati ndikuchita manyazi kapena kusasangalala chifukwa cha zizindikiro zanga, ndi njira ziti zochiritsira zomwe zilipo?

Kodi (Harlequin Syndrome) ndi (Harlequin Ichthyosis) ndi chinthu chimodzi?

Ayi, izi ndi zinthu ziwiri zosiyana kwambiri. Izi ndi zinthu zomwe zingasokoneze anthu ambiri, choncho ndi bwino kufotokoza bwino.

Harlequin Syndrome ndi matenda omwe amayambitsa thukuta ndi kusintha kwa khungu mbali imodzi ya thupi. Sichiwopseza moyo, ndipo si matenda a majini (koma nthawi zina amatha kubadwa nawo).

Kumbali ina, Harlequin Ichthyosis ndi matenda a pakhungu omwe amabadwa nawo omwe amatha kupha anthu.Mwana amene ali ndi vutoli amabadwa ndi khungu lokhuthala kwambiri komanso lolimba. Ana omwe ali ndi Harlequin Ichthyosis amakhala ndi mawanga a khungu ooneka ngati diamondi omwe amalekanitsidwa ndi ming'alu yakuya. Nthawi zina madokotala amatcha vutoli kuti "Harlequin Baby Syndrome." Ngakhale kuti lingamveke ngati "Harlequin Syndrome," awa ndi matenda awiri osiyana kwambiri.

Uthenga Wopita Nawo Kunyumba

Harlequin Syndrome (vuto lomwe limayambitsa thukuta kwakanthawi komanso kusintha mtundu wa khungu mbali imodzi ya thupi lanu) limakhudza mbali imodzi yokha ya thupi lanu. Ndizachibadwa kumva kusasangalala khungu lanu likawoneka mosiyana ndi masiku onse. Koma kumbukirani, iyi si vuto loopsa.

Chofunika kwambiri ndikuonana ndi dokotala ngati muli ndi zizindikirozi ndikupeza chomwe chimayambitsa . Nthawi zina, chomwe chimayambitsa sichingadziwike bwino. Ngakhale mutanena kuti simukufunika chithandizo, ngati mukukumana ndi vuto lililonse la maganizo chifukwa cha kusintha kwa mawonekedwe, mutha kulankhula ndi mlangizi wa zaumoyo wamaganizo za izi ndikukambirana za njira zodzipangira kudzidalira komanso kukhala ndi chithunzi chabwino. Simuli nokha, ndipo musazengereze kupeza thandizo.

Harlequin Syndrome, dongosolo lamanjenje, thukuta, kusamba, dongosolo lamanjenje lodziyimira palokha, Horner Syndrome, matenda osowa