Kodi Hemangioblastoma ndi chiyani? Tiyeni tikambirane za izi!

Kodi munamvapo mawu oti `Hemangioblastoma`? Angamveke ngati ovuta pang'ono, koma ndi mtundu wa chotupa chaching'ono chomwe chingakule m'thupi lathu, makamaka mu ubongo, msana, kapena mkati mwa diso. Musadandaule, tidzakambirana za izi mosavuta, m'njira yomwe mungamvetse.

Kodi iyi ndi khansa?

Anthu ambiri nthawi yomweyo amachita mantha akamva mawu oti 'chotupa', n’kumaganiza kuti, "O, sindikudziwa ngati ichi ndi khansa." Ndikusangalala kukuuzani, 'Hemangioblastoma' iyi si khansa. Ponena za zamankhwala, izi ndi zotupa zosavulaza kapena "zosavulaza". Izi zikutanthauza kuti sizifalikira ku ziwalo zina za thupi monga khansa.

Komabe, ngakhale izi si khansa, zingayambitse mavuto ang'onoang'ono. Choyamba ndi chakuti nthawi zina zotupa izi zimatha kukhalapo m'thupi. Chifukwa china n'chakuti pamene chotupachi chikukulirakulira pang'onopang'ono, chimayamba kukanikiza minofu ndi mitsempha yozungulira. Pamenepo ndi pomwe zizindikiro zamitundu yonse zimayamba kuwonekera. Zili ngati kukhala ndi chinthu chachikulu m'chipinda chaching'ono ndipo palibe malo okwanira otsalawo.

Ndani amene ali ndi mwayi waukulu wopeza izi?

Tsopano mwina mukudabwa kuti, "Ndani amene ali ndi mwayi waukulu wopeza izi?" Kwenikweni, vuto lotchedwa `Hemangioblastoma` limatha kufalikira mwa aliyense, pa msinkhu uliwonse. Komabe, malinga ndi zomwe madokotala akuwona, vutoli ndi lofala kwambiri pakati pa achinyamata .

Kuphatikiza apo, palinso vuto lina lapadera. Umenewo ndi matenda a majini otchedwa `Von Hippel-Lindau (VHL) disease`. Uwu ndi matenda osowa, obadwa nawo. Anthu omwe ali ndi matenda a `(VHL)` ali ndi mwayi waukulu wopeza zotupa za `Hemangioblastoma` kuposa ena. Tangoganizani, malinga ndi ziwerengero, pafupifupi 60% ya anthu omwe ali ndi matenda a `(VHL)` amatha kupeza zotupa izi mkati mwa diso. Komanso, pafupifupi 80% akuti ali ndi mwayi wopeza zotupa izi mu ubongo kapena msana. Chifukwa chake, pali kulumikizana kwakukulu pakati pa matenda a `(VHL)` ndi `Hemangioblastoma`.

Kodi hemangioblastoma imakhudza bwanji thupi?

Tsopano tiyeni tiwone momwe chotupachi chimakhudzira thupi lathu. Zotsatira zake zimatengera komwe chotupacho chili komanso kukula kwake.

Makamaka, ngati chotupachi chikayamba mu ubongo kapena msana, chingalepheretse kuyenda kwa `Cerebrospinal fluid (CSF)`, komwe ndi kofunikira kwambiri ku ubongo wathu ndi msana. `(CSF)` iyi, mwachidule, ndi madzi oyera, ofanana ndi madzi omwe amazungulira ubongo wathu ndi msana, kuwapatsa chakudya chopatsa thanzi. Ngati kuyenda kwa `(CSF)` kumeneku kwatsekedwa ndi chotupa, kuthamanga kwa magazi mkati mwa ubongo kumatha kuwonjezeka, zomwe zimayambitsa zizindikiro monga mutu waukulu. Komanso, kutengera komwe chotupacho chili, mitsempha m'derali ikhoza kukakamizidwa, zomwe zimapangitsa kuti mitsempha igwire ntchito.

Kodi izi ndizofala bwanji?

Kwenikweni, `Hemangioblastoma` si mtundu wofala kwambiri wa chotupa. Tikatenga chiwerengero chonse cha zotupa zomwe zimayamba mu ubongo, `Hemangioblastoma` imakhala ndi 0.5% ya zotupazo, zomwe ndi chiwerengero chochepa kwambiri, pafupifupi chimodzi mwa mazana awiri. Tikatenga mitundu ya zotupa zomwe zimayamba mu msana, ndi pafupifupi 2%. Tikayang'ana ziwerengero m'dziko ngati America, akuti pafupifupi akuluakulu 24 mwa 100,000 ali ndi mtundu wina wa chotupa mu ubongo kapena dongosolo la mitsempha. Chifukwa chake `Hemangioblastoma` ndi chiwerengero chochepa kwambiri cha zotupazo. Chifukwa chake, iyi si matenda omwe amakhudza aliyense.

Kodi zizindikiro zake ndi ziti?

Zizindikiro za chotupa cha `Hemangioblastoma` ichi zimatha kusiyana pang'ono kutengera komwe chimayambira. Tiyeni tiwone momwe zimagwirira ntchito.

Ngati muli ndi hemangioblastoma ya msana:

Ngati chotupachi chikayamba m'khosi mwanu, womwe ndi mtsempha mkati mwa msana wanu, mungakumane ndi zizindikiro monga izi:

• Kudzimbidwa kapena kusadziletsa kwa ndowe.
• Kuvuta kukodza (kusunga mkodzo) kapena kulephera kulamulira kukodza (kusadziletsa mkodzo).
• Kumva dzanzi kapena kunjenjemera m'miyendo kapena m'zigawo zina za thupi.
• Kufooka kwa minofu , nthawi zina kumavuta kuyenda.

Ngati muli ndi Hemangioblastoma muubongo:

Ngati chotupa chonga ichi chikakula muubongo, chimaonedwa ngati chotupa cha muubongo. Kenako mungaone zizindikiro monga:

• Mavuto okhudzana ndi thanzi labwino , monga munthu woledzera, angachitike.
• Mutu wopweteka pafupipafupi, nthawi zina umakula kwambiri m'mawa.
• Kusanza kapena kusanza , makamaka m'mawa.

Ngati muli ndi hemangioblastoma mu retina:

Ngati chotupa chikayamba mu retina, yomwe ndi minofu kumbuyo kwa diso yomwe imalemba zithunzi zomwe timaona, chimaonedwa kuti ndi chotupa cha maso. Nazi zina zomwe zingachitike:

• Kutha kwa retina, komwe kungayambitse kutayika kwa masomphenya.
• Kutaya pang'onopang'ono kapena kwathunthu kwa masomphenya .
• Kupweteka kwa maso ndi kutupa .

Kodi zifukwa zake ndi ziti?

Nthawi zambiri, zimakhala zovuta kupeza chifukwa chomveka bwino komanso chenicheni chomwe chimayambitsa `Hemangioblastoma`. Izi zikutanthauza kuti, zimatha kuchitika popanda chifukwa chenicheni (chosakhalitsa). Komabe, monga tanenera kale, zapezeka kuti pafupifupi wodwala m'modzi mwa anayi ali ndi vuto la majini lotchedwa `Von Hippel-Lindau (VHL)` lomwe limayambitsa chotupa ichi. Izi zikutanthauza kuti, anthu omwe ali ndi `(VHL)` ali pachiwopsezo chachikulu chotenga chotupa ichi.

Kodi mumazindikira bwanji izi? (Kuzindikira)

Ngati muli ndi chimodzi kapena zingapo mwa zizindikiro zomwe zatchulidwa pamwambapa, mukapita kwa dokotala, iye adzakufunsani kaye za zizindikiro zanu. Iye adzakufunsaninso za matenda ena omwe muli nawo komanso ngati pali wina aliyense m'banja mwanu amene wakhala ndi matenda ofanana (mbiri ya banja). Kenako, mayeso angapo angachitike kuti atsimikizire matendawa ndikupeza malo ndi kukula kwa chotupacho.

• Kujambula kwa CT (Computed Tomography scan): Izi zimagwiritsa ntchito X-rays zingapo ndi kompyuta yapadera kuti ijambule zithunzi za minofu yosiyanasiyana mkati mwa thupi.
• MRI (Magnetic Resonance Imaging): Izi zimagwiritsa ntchito mphamvu ya maginito ndi mafunde a wailesi kuti zipange zithunzi zomveka bwino komanso zatsatanetsatane za ziwalo ndi minofu yofewa mkati mwa thupi. Iyi ndi njira yofunikira kwambiri yodziwira matenda monga hemangioblastoma.
• Angiography: Izi zimaphatikizapo kubaya utoto wapadera mu mtsempha wamagazi kuti zotupa monga hemangioblastoma m'mitsempha yamagazi ziwonekere bwino pa X-ray kapena MRI/CT scan. Chifukwa zotupazi zimakula m'mitsempha yamagazi (zotupa za mitsempha yamagazi), mayesowa angaperekenso lingaliro labwino la momwe magazi awo amayendera.

Kodi chithandizo chake ndi chiyani?

Chabwino, tsopano tiyeni tiwone mankhwala omwe alipo a `Hemangioblastoma.` Njira yochiritsira imatsimikiziridwa ndi zinthu zambiri, monga kukula kwa chotupacho, komwe chili, komanso thanzi lanu lonse.

• Kuchotsa chotupa pa opaleshoni: Iyi ndi njira yomwe madokotala amalangiza kwambiri. Pachifukwa ichi, dokotala kapena namwino amadula khungu ndikugwiritsa ntchito zida zochitira opaleshoni kuchotsa chotupacho. Cholinga chachikulu apa ndikuchotsa chotupacho momwe angathere komanso kuchepetsa kuwonongeka kwa minofu yathanzi yozungulira, makamaka mitsempha.
• Chithandizo cha radiation: Nthawi zina, ngati opaleshoni singathe kuchotsa chotupa chonse, kapena ngati chotupacho chabwerera, chithandizo cha radiation chimagwiritsidwa ntchito. Izi zimaphatikizapo kugwiritsa ntchito kuwala kwamphamvu komanso kolunjika bwino kuti kuwononge maselo a chotupa kapena kuchepetsa chotupacho. Pali njira zapadera za opaleshoni iyi yotchedwa stereotactic radiosurgery. Kutalika ndi kuchuluka kwa chithandizo cha radiation chomwe chimaperekedwa zimadalira zinthu monga komwe chotupacho chili komanso mbiri yanu yachipatala.
• Kuyang'anitsitsa: Nthawi zina, ngati chotupacho ndi chaching'ono kwambiri, palibe zizindikiro, kapena ngati malo a chotupacho amapangitsa kuti chikhale choopsa kwambiri kuchichotsa mwa opaleshoni, madokotala angakulangizeni kuti musachite chilichonse pakadali pano, koma muziyang'anitsitsa ndi MRI scans nthawi zonse komanso maulendo obwerezabwereza. Izi ndizoona ngati chotupacho chikukulirakulira kapena ngati muli ndi zizindikiro zatsopano. Ngati muli ndi zotupa zambiri ndipo zikukula pang'onopang'ono komanso pang'onopang'ono, mungafune kuganizira njira iyi.
• Chithandizo cha mankhwala:Kafukufuku akuchitika tsopano okhudza mankhwala omwe angaletse kukula kwa zotupa izi kapena kuzichepetsa. Makamaka kwa iwo omwe ali ndi matenda a `(VHL), mankhwala otchedwa `(Belzutifan)` akuwonetsa zotsatira zabwino pa zotupa zokhudzana ndi `(VHL)`, kuphatikizapo `Hemangioblastoma`. Komabe, awa akadali mankhwala atsopano, sali oyenera aliyense, ndipo ayenera kumwedwa pokhapokha ngati dokotala walangiza.

Kodi chingachiritsidwe kwathunthu?

Funso ili ndi lofunika kwambiri kwa anthu ambiri. Wodwala aliyense amene ali ndi `Hemangioblastoma` ndi wosiyana, kotero n'kovuta kupereka yankho limodzi kwa aliyense.

Tangoganizirani, ngati munthu ali ndi chotupa chimodzi chokha cha 'Hemangioblastoma', ndipo chingachotsedwe kwathunthu komanso mosamala ndi opaleshoni, mwayi woti chikulenso pamalo omwewo ndi wochepa kwambiri. Izi zikutanthauza kuti pali mwayi waukulu wochira.

Koma anthu ena akhoza kukhala ndi chotupa choposa chimodzi (makamaka omwe ali ndi VHL). Kapena, chotupacho chingakhale mkati mwa ubongo kapena pamalo ovuta kuchotsa. Pazochitika zotere, kukambirana za kuchira kwathunthu kumakhala kovuta pang'ono. Chifukwa chake, ndikofunikira kulankhula ndi gulu lanu lachipatala za zomwe mungayembekezere kutengera momwe mulili.

Kodi pali zinthu zina zomwe zingakubweretsereni mavuto?

Inde, monga tanenera kale kambirimbiri, ngati muli ndi matenda a majini otchedwa `Von Hippel-Lindau (VHL), chiopsezo chanu chotenga `Hemangioblastoma` chimakhala chachikulu kwambiri. Chifukwa chake, ngati dokotala akupeza `Hemangioblastoma`, makamaka ngati muli aang'ono kapena muli ndi zotupa zingapo, angayesenso matenda a `(VHL)`.

Kodi chiyembekezo cha kuchira n'chiyani?

Nthawi zambiri, nthawi zambiri zimakhala bwino ngati gulu lachipatala likhoza kuchotsa chotupacho kwathunthu. Komanso, ngati chotupacho sichinabweretse zizindikiro za nthawi yayitali, monga kuwonongeka kwa mitsempha kosatha, mwayi wochira ndi waukulu.

Ngakhale chotupacho chitachotsedwa, muyenerabe kupita kwa dokotala wanu kuti akakuwoneni nthawi zonse . Kuwunikaku kungaphatikizepo zinthu monga MRI scan. Kuchita izi kudzakuthandizani kuzindikira ndikuchiza kubwereranso kulikonse (makamaka kwa anthu omwe ali ndi VHL) msanga. Chifukwa chake, kutsatira malangizo a dokotala wanu molondola komanso kupita kuzipatala panthawi yake ndikofunikira kwambiri pa thanzi lanu.

Ndi mafunso ati omwe muyenera kufunsa dokotala?

Ngati muli ndi hemangioblastoma, kapena mukuganiza kuti muli nayo, ndi bwino kufunsa dokotala wanu mafunso monga awa:

• "Kodi ndi chiyani chomwe chingayambitse zizindikiro zanga?"
• "Kodi pali mwayi wotani woti ndili ndi vuto lina la matenda (monga matenda a VHL) lomwe linandipangitsa kukhala ndi `Hemangioblastoma`?"
• "Kodi njira zochiritsira za 'Hemangioblastoma' yanga ndi ziti? Kodi ubwino ndi kuipa kwa chithandizo chilichonse ndi ziti?"
• "Ndi zotsatirapo ziti zomwe ndingayembekezere pambuyo pa chithandizochi?"
• "Kodi mwayi woti `Hemangioblastoma` ibwererenso chotupacho chitachotsedwa ndi wotani?"
• "Ndiyenera kubwera kangati kudzayezetsa?"

Zidzakuthandizani kwambiri kuti mumvetse bwino za vuto lanu mwa kufunsa mafunso awa. Musaope kulankhula ndi dokotala wanu za chilichonse chomwe chili m'maganizo mwanu, ngakhale chitakhala chaching'ono bwanji. Pokhapokha mudzatha kupeza chithandizo chabwino kwambiri.

Kumbukirani mwachidule (Uthenga Wopita Nawo Kunyumba)

Chabwino, tiyeni tifotokoze mwachidule zomwe takambirana.

Hemangioblastoma ndi chotupa chosakhala khansa (chosaopsa) chomwe chimapangidwa kuchokera m'mitsempha yamagazi. Chimapezeka kwambiri muubongo wanu, msana, kapena retina .

Pamene chotupachi chikukulirakulira, chimatha kukankhira minofu yozungulira ndikuyambitsa zizindikiro za mitsempha.

Kawirikawiri, madokotala amachotsa chotupacho ndi opaleshoni. Ngati chotupacho chachotsedwa kwathunthu, mwayi woti chibwererenso ndi wochepa . Komabe, anthu omwe ali ndi matenda a majini monga `Von Hippel-Lindau (VHL)` ali pachiwopsezo chachikulu chotenga chotupachi, mwina ngakhale zotupa zingapo, ndipo ali pachiwopsezo chachikulu chobwereranso.

Choncho, ngati muli ndi zizindikiro zilizonse zomwe zatchulidwa m'nkhaniyi, makamaka ngati zikupitirira kapena zikuipiraipira, ndi bwino kupita kwa dokotala mwamsanga kuti akupatseni upangiri. Kumbukirani, matenda akapezeka msanga, chithandizo chimayenda bwino. Musadandaule, ndi chithandizo choyenera chamankhwala ndi chitsogozo, matendawa amatha kuthetsedwa ndikukhala bwino.

` hemangioblastoma, zotupa za muubongo, zotupa za msana, zotupa za maso, Von Hippel-Lindau, zotupa zosavulaza, zotupa za mitsempha yamagazi