Kodi muli ndi hATTR (herditary transthyretin-mediated amyloidosis), matenda osowa kwambiri m'majini? Kodi mwatopa ndi ululu wosalekeza, dzanzi, kapena kutaya kumva m'manja ndi mapazi anu? Ngati ndi choncho, dokotala wanu mwina anakuuzani za katemera wotchedwa Inotersen. Lero, tiyeni tikambirane mwachidule za mankhwala awa, zomwe amachita, komanso zomwe muyenera kusamala nazo mukamawagwiritsa ntchito.
Kodi Inotersen ndi mankhwala amtundu wanji?
Mwachidule, Inotersen ndi katemera amene amaperekedwa kuti athetse mavuto a mitsempha mwa anthu omwe ali ndi vuto lotchedwa hATTR . Mu matenda a hATTR awa, puloteni yopangidwa m'thupi lathu imasonkhanitsa zinthu zambiri kuposa momwe zimafunikira ndipo imawononga mitsempha. Mankhwalawa amagwira ntchito pochepetsa kuchuluka kwa mapuloteni amenewo m'thupi . Kenako zizindikiro zomwe mumamva, monga kupweteka, dzanzi, ndi kutaya kumva m'miyendo yanu, zimayamba kuchepa pang'onopang'ono. Mankhwalawa amapezeka pamsika pansi pa dzina lakuti `(Tegsedi)`.
Zinthu zomwe muyenera kuuza dokotala wanu musanamwe mankhwalawa
Musanayambe kumwa mankhwalawa, pali zinthu zina zomwe muyenera kukambirana ndi dokotala wanu. Izi ndizofunikira kwambiri pa chitetezo chanu.
- Ngati muli ndi matenda a impso: Tiuzeni za vuto lililonse la impso.
- Ngati muli ndi maselo ochepa m'magazi: Mwachitsanzo, ngati munapezekapo kale ndi maselo oyera, maselo ofiira, kapena ma platelet ochepa m'magazi, dziwitsani dokotala wanu.
- Ngati muli ndi vuto lililonse la ziwengo: Tiuzeni ngati muli ndi vuto la ziwengo ku mankhwala ena, chakudya, kapena utoto, osati Inotersen yokha.
- Ngati muli ndi pakati kapena mukukonzekera kutenga pakati: Ndikofunikira kuuza dokotala wanu za izi, chifukwa muyenera kusamala kwambiri ndi mankhwala panthawiyi.
- Ngati ndinu mayi woyamwitsa: Ndikofunikira kudziwa izi ngakhale mukamayamwitsa.
Kodi katemerayu angagwiritsidwe ntchito bwanji?
Iyi ndi jakisoni wopangidwa pansi pa khungu . Musadandaule, dokotala wanu kapena namwino adzakuwonetsani momwe mungadzibayire nokha. Ndikofunikira kwambiri kumwa jakisoni monga momwe dokotala wanu wanenera, patsiku loyenera, komanso muyeso woyenera. Pitirizani kugwiritsa ntchito mpaka atakuuzani kuti musiye.
Chofunika kwambiri: Musataye singano ndi ma syringe ogwiritsidwa ntchito kale m'zinyalala. Ziyenera kuyikidwa mu chidebe chapadera cha sharping. Ngati mulibe, funsani dokotala wanu momwe mungapezere imodzi.
Mudzalandira kabuku ka malangizo apadera ka ``(MedGuide)`` kokhala ndi mankhwala awa. Kumbukirani kuwawerenga mosamala nthawi zonse.
Kodi mungachite chiyani ngati mwamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo, pitani ku Dipatimenti Yoona za Zadzidzidzi (ETU) yapafupi nthawi yomweyo . Kapena imbani National Poisons Information Centre ku Colombo National Hospital .
Nanga bwanji ngati ndaphonya mlingo wa mankhwala?
Imwani mlingo wosowa mwamsanga mukangokumbukira. Komabe, ngati mlingo wanu wotsatira uli pasanathe masiku awiri, dumphani mlingo wosowa ndi kumwa mlingo wanu wotsatira panthawi yomwe yakonzedwa. Musamwe mlingo umodzi nthawi imodzi, kutanthauza kuti kawiri.
Zinthu zina zomwe zingagwirizane ndi mankhwalawa
Muyenera kusamala kwambiri ngati mukumwa mankhwala ena pamene mukumwa mankhwalawa, chifukwa amatha kusokonezana. Uzani dokotala wanu za mankhwala onse, mavitamini, ndi mankhwala azitsamba omwe mukumwa.
Pansipa pali mankhwala ena omwe angagwirizane ndi mankhwalawa.
| Gulu la mankhwala | Zitsanzo |
|---|---|
| Mankhwala ochepetsa magazi | Warfarin, Enoxaparin, Aspirin, Clopidogrel, Apixaban, Rivaroxaban |
| Mankhwala Ochepetsa Ululu (NSAIDs) | Mankhwala monga Ibuprofen ndi Naproxen |
| Maantibayotiki ndi mankhwala ena a matenda ena | Acyclovir, Gentamicin, Vancomycin, Amphotericin B |
| Mankhwala ochepetsa mphamvu ya mkodzo | Mankhwala monga Furosemide |
| Mankhwala ena | Cisplatin, Cyclosporine, Zoledronic acid, Pamidronate |
Mndandanda uwu si wokwanira, choncho ndi bwino kuuza dokotala wanu zonse zomwe mumamwa.
Zinthu zoti muzisamala nazo mukamamwa mankhwala
- Pitani kwa dokotala wanu nthawi zonse: Pitani kwa dokotala wanu nthawi zonse kuti mudziwe momwe zinthu zilili komanso ngati mankhwala akugwira ntchito. Muuzeni ngati zizindikiro zanu zikukulirakulira kapena ayi.
- Samalani ndi vitamini A: Dokotala wanu angakuuzeni kuti mumwe mavitamini A mukamamwa mankhwalawa. Izi zili choncho chifukwa mankhwalawa amatha kuchepetsa kuchuluka kwa vitamini A m'thupi. Imwani mavitamini A monga momwe dokotala wanu akukulangizirani. Komanso, kambiranani naye za zakudya zanu.
Kodi zotsatirapo zake zingakhale zotani?
Monga mankhwala ena aliwonse, mankhwalawa angayambitse zotsatirapo zina mwa anthu ena. Zina zimakhala zoopsa, zina zimakhala zofala. Ndikofunikira kudziwa izi.
| Zotsatira zoyipa | Kufotokozera |
|---|---|
| Zinthu zoti muuze dokotala wanu nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo, lilime kapena pakhosi. |
| Kuvulala kwa impso | Kuchepa kwa mkodzo wotuluka, kutupa kwa akakolo, manja, kapena mapazi. |
| Kuvulala kwa chiwindi | Kupweteka m'mimba kumanja, kusowa chilakolako cha chakudya, nseru, khungu kapena maso kukhala achikasu, mkodzo wakuda wachikasu/bulauni. |
| Kutuluka magazi kosazolowereka kapena kuvulala | Khungu lomwe limatupa mosavuta, kutuluka magazi m'mphuno, komanso kutuluka magazi m'kamwa. |
| Stroke | Kusanza/kuzizira mwadzidzidzi mbali imodzi ya nkhope, mkono, kapena mwendo, kuvutika kulankhula, kuvutika kuyenda, mutu waukulu. |
| Ngati zikupitirira kapena zikukuvutitsani, uzani dokotala wanu. | |
| Ululu ndi kufiira pamalo omwe jakisoni amaperekedwa | Kachitidwe ka malo obayira jakisoni |
| Mutu | |
| Kusanza | |
| Malungo | |
| Kutopa | |
Kodi mumasunga bwanji mankhwalawo?
Ndikofunikira kwambiri kusunga mankhwala awa moyenera.
- Njira yabwino: Sungani mufiriji. Koma musazizire. Sungani mu phukusi loyambirira mpaka mutakonzeka kugwiritsa ntchito.
- Njira ina: Mutha kusunga mankhwalawa kutentha kwa chipinda (pakati pa 20-25 Celsius) kwa milungu 6. Komabe, ngati mutero, muyenera kuwateteza ku kuwala ndi kutentha. Tayani zotsala zilizonse patatha milungu 6.
- Onetsetsani kuti mwasunga pamalo omwe ana ndi ziweto sangafikire.
Musataye mankhwala otha ntchito kapena osagwiritsidwa ntchito m'zinyalala kapena m'chimbudzi. Funsani dokotala wanu momwe mungawatayire mosamala.Iye adzakuuzani njira yabwino kwambiri yochitira izi.
Uthenga Wopita Nawo Kunyumba
- Inotersen ndi katemera wa matenda amitsempha omwe amayamba chifukwa cha matenda otchedwa hATTR.
- Musanayambe kumwa mankhwala, uzani dokotala wanu za matenda ena aliwonse omwe muli nawo komanso mankhwala onse omwe mukumwa.
- Phunzirani momwe mungabayire katemera moyenera. Tayani singano zomwe mwagwiritsa ntchito mosamala.
- Ngati mukukumana ndi mavuto ena aakulu, monga ziwengo, mavuto a impso kapena chiwindi, kapena kufooka kwa ziwalo, uzani dokotala wanu nthawi yomweyo.
- Sungani mankhwalawo mufiriji kapena monga momwe dokotala wanu wanenera.
- Ngati muli ndi mafunso okhudza mankhwalawa, musaope kufunsa dokotala wanu.
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