Zomwe muyenera kudziwa zokhudza jakisoni wa Pegvaliase wa PKU

Kodi muli ndi Phenylketonuria, kapena PKU monga momwe tonse tikudziwira, vuto lomwe limayambitsa kuchuluka kwa amino acid phenylalanine m'magazi mwanu? Chifukwa chake, mwina mukudziwa bwino kuti Pegvaliase ndi jakisoni wapadera womwe umaperekedwa kuti ulamulire kuchuluka kumeneku. Mwina muli ndi mafunso ambiri m'maganizo mwanu okhudza mankhwalawa. Musadandaule, lero tikambirana za mankhwalawa, kugwira ntchito kwake, zotsatira zake zoyipa komanso momwe mungagwiritsire ntchito mosamala m'njira yosavuta yomwe mungamvetse.

Mwachidule, kodi mankhwala awa otchedwa Pegvaliase ndi chiyani?

Imeneyi ndi njira yosavuta yofotokozera. Anthu omwe ali ndi PKU ali ndi vuto lomwe matupi awo sangathe kugaya bwino, kapena kugaya, chinthu chotchedwa phenylalanine. Izi zimasonkhana m'magazi ndipo zimatha kuwononga ubongo ndi mitsempha.

Kotero, chimene jakisoni wa Pegvaliase amachita n’chakuti umathandiza thupi lanu. Ndiko kuti, umathandiza thupi lanu kuswa phenylalanine iyi yomwe thupi lanu silingathe kuswa. Kenako imasiya kusonkhana m’magazi anu ndipo milingo imawongoleredwa. Mankhwalawa nthawi zambiri amagulitsidwa pansi pa dzina la Palynziq .

Zinthu zomwe muyenera kuuza dokotala wanu musanagwiritse ntchito mankhwalawa

Chabwino, musanayambe kumwa mankhwalawa, muyenera kulankhula ndi dokotala wanu moona mtima za zinthu izi. Musabise zinthu izi, chifukwa izi ndizofunikira kwambiri pa chitetezo chanu.

• Matenda a ziwengo: Ngati muli ndi ziwengo zilizonse, osati za Pegvaliase zokha, komanso mankhwala ena aliwonse, chakudya, utoto, kapena zosungira, onetsetsani kuti mwauza dokotala wanu za izi.
• Mimba: Ngati muli ndi pakati kapena mukukonzekera kukhala ndi mwana posachedwa, muyenera kuuza dokotala wanu.
• Ngati ndinu mayi woyamwitsa: Ngati ndinu mayi woyamwitsa, onetsetsani kuti mwadziwitsa mwana wanu za zimenezo.

Kutengera ndi izi, dokotala adzasankha ngati mankhwalawa ndi oyenera kwa inu kapena ayi, komanso njira zodzitetezera zomwe ziyenera kuperekedwa.

Kodi mungagwiritse ntchito bwanji mankhwalawa moyenera?

Uwu ndi mtundu wa jakisoni womwe mungajambule pansi pa khungu kunyumba. Koma musadandaule. Dokotala wanu kapena namwino wophunzitsidwa bwino adzakufotokozerani momveka bwino momwe mungaperekere komanso momwe mungakonzekerere mankhwalawo.

• Imwani mlingo wokhawo womwe dokotala wanu wakupatsani: Imwani mlingo womwe dokotala wanu wakupatsani, panthawi yeniyeni yomwe mwapatsidwa. Musasiye kumwa mankhwalawo mpaka dokotala wanu atakuuzani kuti musiye.
• Kutaya singano ndi ma syringe motetezeka: Izi ndizofunikira kwambiri. Musataye singano ndi ma syringe ogwiritsidwa ntchito m'zinyalala.Ziyenera kuyikidwa mu chidebe chapadera chapulasitiki chokhuthala (chidebe cha sharps). Ngati mulibe, funsani dokotala wanu momwe mungapezere chimodzi.
• Malangizo Apadera: Mudzalandira kabuku ka malangizo apadera (MedGuide) mukapatsidwa mankhwala awa. Werengani mosamala nthawi zonse. Musachite manyazi kufunsa dokotala wanu ngati pali chilichonse chomwe simukumvetsa.

Zinthu zofunika kusamala kwambiri mukamamwa mankhwala

Dokotala wanu adzayang'anira vuto lanu nthawi zonse mukamamwa mankhwalawa. Izi zingaphatikizepo ntchito ya magazi.

Chofunika kwambiri: Samalani ndi ziwengo zoopsa!

Chinthu chimodzi chomwe muyenera kusamala nacho kwambiri mukamagwiritsa ntchito mankhwalawa ndi kuthekera kwa ziwengo zazikulu, kapena anaphylaxis. Izi ndi ngozi yowopsa kwambiri.

Chifukwa cha chiopsezo ichi, dokotala wanu adzakupatsani epinephrine auto-injector . Ndi chipangizo chofanana ndi cholembera. Inu ndi wachibale wanu mudzalangizidwa momwe mungagwiritsire ntchito komanso nthawi yogwiritsira ntchito ngati muli ndi vuto la ziwengo.

Komanso, nthawi zonse sungani Khadi la Chikwama cha Odwala lomwe mwapatsidwa ndipo liwonetseni kwa dokotala ndi namwino aliyense amene akukuthandizani.

Kodi zotsatirapo zake zingakhale zotani?

Monga mankhwala ena aliwonse, mankhwalawa akhoza kukhala ndi zotsatirapo zina. Zina zimakhala zachangu, pomwe zina zimakhala zofala. Tiyeni tikambirane mwachidule.

Mndandandawu suli ndi zotsatirapo zonse zomwe zingachitike. Kuphatikiza apo, ngati mukukumana ndi vuto lililonse lachilendo, lankhulani ndi dokotala wanu za vutoli.

Nanga bwanji ngati ndamwa mankhwala ochulukirapo kapena ndaphonya kudya?

Kuchuluka kwa mankhwala

Tangoganizani kuti ngati mukukayikira kuti mwamwa mankhwala ochulukirapo, pali zinthu ziwiri zomwe muyenera kuchita nthawi yomweyo.

1. Pitani ku Chipatala cha Emergency Treatment Unit (ETU) chapafupi.

2. Imbani National Poison Information Center ku Colombo National Hospital.

Ngati mwaphonya mlingo wa mankhwala (Dose Yophonya)

Musadandaule. Musamwe mlingo wowirikiza kawiri kuti mubwezeretse mlingo womwe mwaphonya. Zimenezo zingakhale zoopsa. Chomwe muyenera kuchita ndikungoiwala za mlingo womwe mwaphonya ndikumwa mlingo wotsatira panthawi yomwe mwakonza.

Kodi mungasunge bwanji mankhwala moyenera?

Kuti mankhwala akhale abwino, ndikofunikira kwambiri kuwasunga bwino.

• Njira Yabwino Kwambiri: Kuisunga mufiriji ndikwabwino. Koma musayiike mufiriji. Izi zikutanthauza kuti musayiike mufiriji.
• Kutentha kwa chipinda: Ngati kuli kofunikira, ikhoza kusungidwa kutentha kwa chipinda mpaka madigiri 25 Celsius (madigiri 77 Fahrenheit) kwa masiku 30. Komabe, ngati mutero, zotsala zilizonse patatha masiku 30 ziyenera kutayidwa. Sikoyenera kuziyikanso mufiriji.
• Mfundo zina: Nthawi zonse sungani mankhwala m'mabokosi ake oyambirira. Tetezani ku kuwala. Sungani pamalo omwe ana ndi ziweto sangafikire. Tayani mankhwala otha ntchito.