Kodi mwana wanu angakhale ndi vuto 'lobisika' ili ndi msana wake? (Msana wa Spina Bifida Occulta) Tiyeni tiphunzire za vutoli.

Eya, ndi zachilendo kumva nkhawa pang'ono tikamaganizira za ana athu aang'ono, tikumadzifunsa ngati zonse zili bwino. Nthawi zina sadziwa nkomwe za izi, ndipo sitingathe kuziona kuchokera kunja. Chimodzi mwa zinthu zimenezo ndi Spina Bifida Occulta . Ngakhale kuti dzinalo limamveka ngati nkhani yaikulu, musadandaule, nthawi zambiri silili lofunika kwambiri. Tiyeni tikambirane za izi mwatsatanetsatane, sichoncho?

Kodi Spina Bifida Occulta ndi chiyani?

Mwachidule, Spina Bifida Occulta ndi vuto lobadwa nalo lomwe limachitika pamene msana sukukula bwino panthawi ya mwana wosabadwayo, pamene mwana akadali m'mimba.

Mawu akuti "occulta" amatanthauza "chobisika." Ichi ndichifukwa chake amatchedwanso "spina bifida yobisika." Izi zili choncho chifukwa chakuti msana uli ndi khungu lochepa, kotero silikuwoneka ndi dziko lakunja. Izi zikutanthauza kuti palibe kusiyana komwe kumawonekera ndi maso. Uwu ndiye mtundu wofatsa komanso wofala kwambiri wa spina bifida.

Ndani ali pachiwopsezo chachikulu chotenga matenda a Spina Bifida Occulta?

Matendawa angakhudze aliyense. Komabe, anthu ena ali pachiwopsezo chachikulu chokhala ndi mwana ndi Spina Bifida Occulta. Tiyeni tiwone chomwe chili:

• Kusowa kwa folate mwa mayi panthawi ya mimba: Folate ndi mtundu wa vitamini B9. Imapezeka muzakudya zambiri, monga ndiwo zamasamba zobiriwira, nyemba, mtedza, ndi tirigu wonse. Ngati mayi wapakati sapeza folate kapena folic acid yokwanira, ali pachiwopsezo.
• Mbiri ya m'banja ya spina bifida (chikoka cha majini): Ngati wina m'banja mwanu adakhalapo ndi vutoli kale, zikutanthauza kuti pakhoza kukhala kulumikizana pang'ono kwa majini .
• Matenda a shuga kapena kunenepa kwambiri kwa mayi woyembekezera: Ngati mayi ali ndi matenda a shuga osalamulirika kapena ali wonenepa kwambiri, zingakhudzenso mwana wosabadwayo.
• Mwanayo ali ndi matenda ena a majini: Nthawi zina chiopsezochi chingachuluke ngati mwana ali ndi matenda ena a majini, monga Down syndrome, Edwards syndrome, kapena Patau's syndrome .
• Mankhwala ena omwe mayi amamwa pa matenda monga khunyu: Mwachitsanzo, ngati akumwa mankhwala oletsa khunyu monga valproate kapena carbamazepine , zimenezo zingakhudzenso thanzi lake.

Ngati mukukonzekera kutenga pakati, ndikofunikira kwambiri kulankhula ndi dokotala za mankhwala aliwonse omwe mukumwa komanso mbiri ya majini a banja lanu.

Kodi vutoli ndi lofala bwanji?

Mtundu wa spina bifida wotchedwa Occulta ndi mtundu wofala kwambiri wa spina bifida. Akuti pakati pa 10% ndi 20% ya anthu aku America ali ndi vutoli. Izi zikutanthauza kuti si zachilendo monga momwe mungaganizire.

Kodi Spina Bifida Occulta imakhudza bwanji thupi langa?

Uwu ndi mtundu wofatsa kwambiri wa spina bifida, kotero sukhala ndi zotsatirapo zoopsa kwambiri pa thupi monga mitundu ina yoopsa. Zizindikiro zomwe zimakhudza zinthu monga kuyenda sizimachitika kawirikawiri, makamaka ali ana. Pafupifupi munthu m'modzi mwa anthu 1000 omwe ali ndi spina bifida occulta amakhala ndi zizindikiro . Nthawi zambiri zimachitika panthawi yokulira ali aang'ono pamene msana umakokedwa . Izi zitha kukhala ndi zotsatirapo zochepa pa zinthu monga mphamvu ya minofu ndi matumbo ndi chikhodzodzo. Komabe, ngakhale zili choncho, zizindikiro zimatha kuchepetsedwa ndi chithandizo choyenera.

Kodi zizindikiro za Spina Bifida Occulta ndi ziti?

Monga tanenera kale, uwu ndi mtundu wofatsa kwambiri wa Spina Bifida, kotero nthawi zambiri palibe zizindikiro . Komabe, ana ena omwe ali ndi Spina Bifida Occulta amatha kukhala ndi khungu kumbuyo kwawo akamabadwa. Izi zitha kukhala:

• Ngati kachidutswa kakang'ono.
• Dothi lofiira kapena lofiirira (hemangioma) .
• Chizindikiro chakuda cha kubadwa.
• Chipolopolo pakhungu .

Koma zizindikiro izi sizimawonekera mwa khanda lililonse.

Nthawi zambiri, zizindikiro zina zimatha kuchitika chifukwa cha kuwonongeka kwa mitsempha (kusowa kwa mitsempha). Izi zikuphatikizapo:

• Mavuto a m'mimba ndi/kapena mkodzo (monga kudzimbidwa, kusadziletsa).
• Kupweteka kwa msana .
• Kufooka kwa minofu ya mwendo .
• Scoliosis .

Kodi zizindikiro zingawonekere munthu akakula?

Zizindikiro nthawi zambiri zimachitika mwa munthu m'modzi pa anthu chikwi, nthawi zambiri paunyamata, pamene msana umatambasulidwa panthawi yomwe munthu akukula mwadzidzidzi. Ana ambiri omwe ali ndi spina bifida occulta alibe zizindikiro zilizonse. Komabe, zizindikiro zachilendozi zimatha kuwonjezeka pamene msana umapitirira kutambasulidwa kumapeto kwa unyamata kapena ukalamba.

Kodi ndi zifukwa ziti za Spina Bifida Occulta?

Choyambitsa chenicheni cha Spina Bifida Occulta sichikudziwikabe , koma kafukufuku akusonyeza kuti mwina chimayambitsidwa ndi kuphatikiza kwa majini, zakudya, komanso zinthu zachilengedwe. Izi zikuphatikizapo:

• Kusowa kwa folate (vitamini B9) mwa mayi panthawi ya mimba.
• Mbiri ya banja la vutoli (majini) .
• Mayi woyembekezera ali ndi matenda a shuga osalamulirika .
• Kunenepa kwambiri kwa mayi woyembekezera.
• Kuyankha mankhwala monga valproate kapena carbamazepine, omwe amagwiritsidwa ntchito pochiza matenda monga khunyu.

Choncho, ngati mukukonzekera kutenga pakati, ndikofunikira kulankhula ndi dokotala wanu kuti mumvetse chiopsezo cha mwana wanu kukhala ndi vuto ngati Spina Bifida Occulta. Iye angakulangizeni ngati mukufunika kuwonjezera folate kapena folic acid muzakudya zanu, kapena ngati mankhwala aliwonse omwe mukumwa pakali pano angayambitse thanzi la mwana wanu pachiwopsezo.

Kodi matenda a Spina Bifida Occulta amawapeza bwanji?

Msana wa Bifida nthawi zambiri umapezeka panthawi ya mimba pogwiritsa ntchito ultrasound scan . Komabe, chifukwa Spina Bifida Occulta ndi vuto lochepa kwambiri, "lobisika", nthawi zambiri silipezeka kapena limapezeka kokha munthu akakula . Izi zili choncho chifukwa vutoli nthawi zambiri silimayambitsa zizindikiro.

Msana wa Bifida Occulta nthawi zambiri umapezeka mwangozi pamene X-ray ya msana imachitika chifukwa cha ngozi ina kapena kuvulala kwina .

Matenda a Spina Bifida Occulta amapezeka kudzera mu mayeso ojambulira zithunzi monga X-ray, MRI scan, kapena CT scan . Mayesowa angapereke chithunzi chomveka bwino cha mafupa a msana omwe sanapangidwe bwino panthawi ya fetal.

Kodi Spina Bifida Occulta imachiritsidwa bwanji?

Nkhani yabwino ndi yakuti matenda ambiri a Spina Bifida Occulta safuna chithandizo chilichonse .

Komabe, nthawi zina pamene zizindikiro zimachitika, chithandizo chimayang'ana kuchepetsa kupanikizika kwa msana. Mankhwala angaphatikizepo:

• Opaleshoni yotseka mpata pakati pa mafupa a msana.
• Kuchiza thupi kapena chithandizo cha ntchito kuti minofu ikhale yolimba.
• Kugwiritsa ntchito zipangizo zothandizira monga chothandizira kumbuyo, choyendera, kapena mpando wa olumala.
• Kupereka mankhwala a mavuto a m'mimba kapena mkodzo.

Kodi mankhwala otani omwe amaperekedwa a Spina Bifida Occulta?

Ngati zizindikiro zikupezeka, mankhwala ngati awa angafunike kuti awachiritse:

• Mankhwala ochepetsa ululu wa msana.
• Kwa mavuto am'mimba monga kudzimbidwaMankhwala oletsa ululu, ma suppositories, ndi/kapena enemas.
• Mankhwala oletsa matenda pambuyo pa opaleshoni.
• Mankhwala enieni opumulitsa chikhodzodzo ndi kuchiza mavuto a mkodzo.

Kodi mungachepetse bwanji chiopsezo cha Spina Bifida Occulta?

Popeza chifukwa chenicheni sichikudziwika, palibe njira yopewera vutoli kwathunthu. Komabe, ngati mukukonzekera kutenga pakati, mutha kuchita izi kuti muchepetse chiopsezo chokhala ndi mwana ndi Spina Bifida Occulta:

• Kumwa Folic Acid: Bungwe la US CDC (Centers for Disease Control and Prevention) limalimbikitsa kumwa folic acid 400 micrograms (400 mcg) tsiku lililonse. Izi zitha kuchepetsa chiopsezo chokhala ndi mwana wokhala ndi Spina Bifida ndi pafupifupi 75%!
• Kulankhula ndi dokotala wanu: Lankhulani ndi dokotala wanu za mankhwala aliwonse, mavitamini, ndi zowonjezera zomwe mukumwa pakadali pano. Mankhwala ena, makamaka a khunyu, angathandize kukulitsa matenda a spina bifida occulta.
• Kusamalira matenda omwe alipo kale: Ngati muli ndi matenda monga matenda a shuga kapena kunenepa kwambiri, gwirani ntchito ndi dokotala wanu kuti muthane ndi matendawo musanayambe kutenga pakati.
• Kuyezetsa majini: Ngati wina m'banja mwanu wakhala ndi matenda a majini, lankhulani ndi dokotala wanu za kuyezetsa majini kuti mumvetse chiopsezo chanu chokhala ndi mwana wokhala ndi matenda a majini.

Kodi chimachitika ndi chiyani ngati ndili ndi Spina Bifida Occulta?

Palibe mankhwala a Spina Bifida Occulta. Komabe, ngakhale mutakhala ndi vutoli, simungadziwe chifukwa zizindikiro zake n'zosowa kwambiri komanso zochepa. Spina Bifida Occulta imakhudza aliyense mosiyana. Ngati muli ndi vuto lililonse kapena zizindikiro chifukwa cha kupsinjika kwa msana, chithandizo chingathandize kuchepetsa.

Kodi ndimadzisamalira bwanji?

Matenda aliwonse a Spina Bifida Occulta ndi osiyana. Nthawi zambiri, sizimakhudza moyo wanu watsiku ndi tsiku kapena ntchito yanu . Ngati mukupeza zizindikiro, tsatirani dongosolo la chithandizo lomwe dokotala wanu wakupatsani.

Kodi ndiyenera kupita kwa dokotala liti?

Kaonaneni ndi dokotala ngati muli ndi zizindikiro za spina bifida occulta, makamaka zomwe zimakhudza kuyenda kwanu . Ngati zizindikiro zanu ndi zazikulu kwambiri moti simungathe kuchita ntchito zanu za tsiku ndi tsiku, kupita kusukulu, kapena kugwira ntchito chifukwa cha ululu kapena kusadziletsa, kaonaneni ndi dokotala kuti akuthandizeni.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

• Kodi ndili pachiwopsezo chokhala ndi mwana wina ndi Spina Bifida Occulta?
• Kodi ndingakhale bwanji wathanzi panthawi ya mimba yanga?
• Kodi zoopsa zomwe zingachitike chifukwa chochitidwa opaleshoni yochiza Spina Bifida Occulta ndi ziti?
• Kodi pali zotsatirapo zilizonse pa mankhwala omwe mwalimbikitsa?

Kodi kusiyana pakati pa Spina Bifida Occulta ndi Spina Bifida Cystica ndi kotani?

Mwachidule, Spina Bifida Occulta ndi mtundu wofatsa komanso wofala kwambiri wa Spina Bifida. Anthu ambiri omwe ali ndi vutoli sakumana ndi zizindikiro kapena zizindikiro zilizonse zomwe zimakhudza kuyenda.

Msana wa Bifida Cystica ndi mtundu woopsa kwambiri. Umadziwika ndi thumba lodzaza ndi madzi lomwe limatuluka pansi pa msana wa mwana. Chikwama ichi ndi chizindikiro cha matenda otchedwa spina bifida meningocele ndi myelomeningocele.

Ngakhale ana omwe ali ndi Spina Bifida Occulta ali ndi mpata pakati pa mafupa a msana, thumba lodzaza madzi (cyst) lomwe limatuluka silikuwoneka kunja kwa msana.

Matenda ambiri a Spina Bifida Occulta sapezeka, ndipo ngakhale atapezeka, safunika chithandizo chifukwa alibe zizindikiro.

Pomaliza, ndiyenera kunena... (Uthenga Wopita Nawo Kunyumba)

Kotero, mwina tsopano mukumvetsa kuti Spina Bifida Occulta si chinthu choopa. Anthu ambiri ali nacho, koma sadziwa nkomwe, ndipo sichimayambitsa mavuto m'miyoyo yawo.

Chofunika kwambiri ndichakuti mayi aliyense woyembekezera ayenera kumwa folic acid yokwanira asanayambe komanso panthawi ya mimba . Ndikofunikanso kwambiri kukambirana momasuka ndi dokotala wanu za thanzi lanu, mankhwala omwe mukumwa, komanso mbiri ya thanzi la banja lanu. Mukatero mudzakhala ndi mwayi wabwino kwambiri wobereka mwana wathanzi.

Ngati muli ndi mafunso ena okhudza izi, musazengereze kufunsa dokotala wanu. Iwo ndi omwe angakupatseni upangiri wabwino kwambiri.

Msana wobisika, msana, zilema zobadwa nazo, folic acid, mimba, kupweteka kwa msana, spina bifida yobisika