Kodi Susac Syndrome ndi chiyani? Tiyeni tikambirane mwachidule.

Kodi mwadzidzidzi mutu umapweteka, kuiwala, komanso kusintha pang'ono kwa maso ndi kumva kwanu? Mwina zinthuzi zimatha kuchitika nthawi imodzi. Ndizachibadwa kuti tizichita mantha zizindikiro zotere zikaonekera mwadzidzidzi. Lero tikambirana za vuto losowa lomwe lingayambitse zizindikiro zotere, koma silidziwika bwino m'dziko lathu. Imeneyo ndi Susac Syndrome.

Kodi Susac Syndrome ndi chiyani kwenikweni?

Mwachidule, Susac Syndrome ndi matenda omwe amabwera chifukwa cha chitetezo chamthupi. Taganizirani za chitetezo chamthupi chathu ngati gulu lankhondo la dziko lathu. Ntchito yake yayikulu ndikutiteteza ku majeremusi omwe amayambitsa matenda. Koma nthawi zina dongosololi limapanga cholakwika chaching'ono. Kenako, m'malo moukira adani ochokera kunja, limayamba kuukira maselo abwino a thupi lathu. Izi ndi zomwe timatcha matenda a autoimmune.

Mu matenda a Susac Syndrome, chitetezo chathu chamthupi chimaukira mitsempha yaing'ono yamagazi muubongo, retina, ndi cochlea . Kuukira kumeneku kumapangitsa mitsempha yamagaziyo kutupa, kuchepetsa kapena kutsekereza kwathunthu kuyenda kwa magazi kudzera mwa iyo. Ndicho chimene chimayambitsa zizindikiro za matendawa.

Kodi matendawa amakhudzidwa kwambiri ndi kuti?

Matendawa amakhudza makamaka ziwalo zitatu za thupi: ubongo, maso, ndi makutu.

Vutoli ndi losowa kwambiri. Chifukwa chake, n'zovuta kunena kuti ndi anthu angati omwe ali ndi vutoli. Nthawi zina, zizindikiro zake zimakhala zofanana ndi matenda ena otchedwa Multiple Sclerosis (MS), kotero ngakhale madokotala nthawi zina amatha kusokoneza matenda awiriwa. Chifukwa chake, nthawi zina zimatenga nthawi kuti adziwe matenda molondola.

Kodi zizindikiro za Susac Syndrome ndi ziti?

Zizindikiro zimatha kusiyana malinga ndi munthu, koma zimagwirizana ndi zigawo zitatu zazikulu zomwe zatchulidwa kale. Tiyeni tiwone zomwe zili.

Kodi makhalidwe amenewa amakukhudzani bwanji?

Zizindikiro zimenezi sizimachitika mofanana kwa aliyense. Anthu ena amadwala izi kamodzi kokha m'moyo wawo. Kwa ena, zizindikiro zimabwera ndikutha, kenako zimabwereranso ... ndi zina zotero. Nthawi zambiri, zizindikirozo zimatha kuzizira kwa zaka zingapo. Ndi anthu ochepa okha omwe ali ndi zizindikiro zonse zitatu nthawi imodzi matendawa akapezeka.

Nchifukwa chiyani matenda a Susac amachitika?

Chifukwa chenicheni cha izi sichinadziwikebe. Koma tikudziwa kuti ndi vuto la autoimmune. Monga tanenera kale, chitetezo chathu chamthupi chimaukira maselo omwe ali mkati mwa mitsempha yaing'ono yamagazi muubongo wathu, retina, ndi khutu lamkati. Kuukira kumeneku kumapangitsa maselowo kutupa. Kenako mitsempha yamagaziyo imatha kutsekeka pang'ono kapena kwathunthu. Izi zikachitika, ziwalo za thupi sizilandira mpweya ndi michere yomwe zimafunikira. Ndicho chimayambitsa zizindikiro zonse zomwe zatchulidwa kale.

Kodi iyi ndi matenda obadwa nawo? Ndani ali pachiwopsezo chachikulu?

Ayi, palibe umboni woti matendawa ndi matenda obadwa nawo. Komabe , akazi ali ndi mwayi wochuluka wopeza matendawa katatu kuposa amuna. Zizindikiro nthawi zambiri zimayamba pakati pa zaka 20 ndi 40.

Kodi ndi mavuto otani omwe angayambitse matendawa?

Kuwonongeka kwa maso ndi makutu komwe kumachitika chifukwa cha kutsekeka kwa mitsempha yamagazi nthawi zina kumakhala kosatha.Izi zikutanthauza kuti pali kuthekera kwa kutayika kwa masomphenya ndi kumva kwamuyaya. Ndipo, ngakhale kuti ndi zachilendo kwambiri, vuto lotchedwa dementia, lomwe limatayika kukumbukira konse, limathanso kuchitika.

Kodi dokotala amazindikira bwanji matendawa? (Kuzindikira)

Dokotala wanu adzachita mayeso angapo kuti adziwe matendawa.

• Kuyezetsa thupi
• Kuyezetsa ubongo
• Kuyezetsa maso

Kuphatikiza apo, mutha kuchita mayeso ngati awa kuti mudziwe zambiri za zizindikiro zanu:

• Kujambula Magnetic Resonance Imaging (MRI) ya ubongo: Izi zimathandiza dokotala kufufuza malo oyera otchedwa 'snowball lesions' m'dera lomwe zigawo ziwiri za ubongo zimalumikizana (corpus callosum). Izi ndi chizindikiro chapadera cha Susac Syndrome.
• Fluorescein Angiography: Iyi ndi njira yapadera yoyezera mitsempha yamagazi mu retina ya diso. Imatha kuzindikira kutsekeka kulikonse m'mitsempha yamagazi.
• Audiogram: Iyi ndi njira yoyesera kumva. Imayang'ana ngati mungamve mawu otsika komanso ngati mukuvutika kumvetsetsa mawu.

Kodi mankhwala ochizira izi ndi otani?

Cholinga chachikulu cha chithandizo ndikuwongolera chitetezo chathu cha mthupi, chomwe chikulephera kugwira ntchito bwino. Mankhwala oletsa chitetezo chamthupi amagwiritsidwa ntchito pa izi. Zitsanzo zina ndi izi:

• Corticosteroids (monga prednisone)
• Immunoglobulin ya m'mitsempha (IVIG)
• Mycophenolate
• Azathioprine
• Cyclophosphamide
• Rituximab

Mankhwalawa angaperekedwe m'thupi m'njira zosiyanasiyana. Ena amatengedwa ngati mapiritsi kapena makapisozi. Ena amaperekedwa ngati jakisoni. Ena amaperekedwa kudzera m'mitsempha (IV) kudzera mu saline. Mankhwalawa amagwira ntchito pochepetsa chitetezo chamthupi chomwe chimagwira ntchito mopitirira muyeso.

Dziwani zambiri za chithandizo, kuchira, ndi malingaliro

Kodi pali zotsatirapo zilizonse za mankhwalawa?

Inde, monga mankhwala ena onse, mankhwalawa akhoza kukhala ndi zotsatirapo zosiyanasiyana. Choncho, kambiranani ndi dokotala wanu za izi musanayambe kulandira chithandizo. Ngati mukukumana ndi zotsatirapo zilizonse, dziwitsani dokotala wanu za izo.

Kodi zimatenga nthawi yayitali bwanji kuti munthu achire pambuyo pa chithandizo?

Ngati izi zadziwika msanga ndipo chithandizo chikayamba msanga, zizindikiro zimatha kuchira msanga. Anthu ena amadwala kamodzi kokha. Ena amatha kukhala ndi zochitika zina mobwerezabwereza pakapita nthawi. Komabe , ndi chithandizo choyenera cha chitetezo chamthupi, chiopsezo chobwereranso chimachepa kwambiri.

Kodi moyo udzakhala bwanji ndi matendawa? (Outlook)

Chiyembekezo cha anthu omwe amalandira chithandizo mwamsanga zizindikiro zikaonekera n'chabwino kwambiri. Izi zitha kupewa kuwonongeka kosatha kwa ubongo, maso, ndi makutu. Mavuto osatha monga kulephera kuwona ndi kumva ndi osowa. Imeneyi si matenda oopsa, kupatulapo nthawi zina. Ngakhale ingakhudze moyo wanu, sizikhudza mwachindunji moyo wanu.

Kodi mungapewe bwanji matendawa komanso nthawi yoti muwone dokotala?

Palibe njira yeniyeni yopewera matenda a Susac Syndrome. Komabe, potsatira ndondomeko ya chithandizo yomwe dokotala wanu wakupatsani, mutha kuchepetsa kubwereranso kwa zizindikiro (flare-ups).

Ngati mukukumana ndi kusintha kulikonse mwa izi, pitani kwa dokotala nthawi yomweyo:

• Kusintha kwa masomphenya
• Kutaya kumva
• Kusintha kwa luso loganiza kapena kukumbukira
• Kusintha kwa khalidwe kapena umunthu

Matendawa akadziwika msanga, zimakhala bwino kuti mukhale ndi thanzi labwino komanso kupewa kuwonongeka kosatha.

Mafunso oti mufunse dokotala wanu

• "Kodi ndingabwererenso zizindikiro zanga zitayamba bwino?"
• "Mukundilangiza chithandizo chamtundu wanji?"
• "Ndiyenera kugwiritsa ntchito mankhwalawa kwa nthawi yayitali bwanji ndipo ndiyenera kugwiritsa ntchito bwanji?"
• "Kodi zotsatirapo zake za mankhwalawa ndi ziti?"
• "Kodi ndikufunika zothandizira kumva kapena choyikamo cha cochlear?"

Matenda a Susac Syndrome angakhudze moyo wanu watsiku ndi tsiku. Ndizachibadwa kukhala ndi mantha komanso nkhawa pamene zinthu zomwe mumakhulupirira nthawi zonse, monga masomphenya kapena kumva kwanu, zasintha mwadzidzidzi. Nthawi zina kulankhula ndi mlangizi wa zaumoyo wamaganizo kungakhale mpumulo waukulu. Kumbukirani, ndi bwino kuuza dokotala mwamsanga mukangoona zizindikiro, chifukwa mavuto angabwere. Chithandizo chachangu chingalepheretse kuwonongeka kosatha.