Inyigisho Yoroshye ku Bibyimba Bidasanzwe ku Maboko no ku Maguru: Icyo Ukwiye Kumenya kuri Clear Cell Sarcoma | Nirogi Lanka

Ese wabonye ikibyimba cyangwa ikibyimba kidasanzwe munsi y'uruhu ku kuboko cyangwa ku kuguru kwawe kidashira? Ushobora gusanga kidatera ububabare iyo ukikozeho, ariko niba wumva ko kirimo gukura buhoro buhoro, ni ngombwa kucyitondera cyane. Uyu munsi, muri Nirogi Lanka , turashaka kuganira ku bwoko bwa kanseri idasanzwe ariko ikomeye ishobora kugaragaza ibimenyetso nk'ibi. Ni indwara izwi nka Clear Cell Sarcoma , kandi twizera ko ari ngombwa ko uyimenya neza.

Sarcoma ya Clear Cell ni iki?

Muri make, Clear Cell Sarcoma ni ubwoko budasanzwe bwa kanseri buturuka mu ngingo zoroshye z'umubiri wawe. Ni ubwo mu muryango wa sarcoma . Izi kanseri zikunze kugaragara mu maguru yawe, cyane cyane hafi y'imitsi —imitsi ikomeye ihuza imitsi yawe n'amagufwa yawe—no mu ngingo zoroshye zikikije imitsi yawe.

Kimwe n'ubundi bwoko bwinshi bwa kanseri, kuyimenya hakiri kare ni ingenzi kugira ngo ivurwe neza mbere yuko ikwirakwira mu bindi bice by'umubiri wawe. Abaganga basanzwe bavura iyi ndwara bakoresheje kubaga , akenshi bakanayivura hakoreshejwe imirasire , ndetse rimwe na rimwe bakayivura hakoreshejwe imiti ya chimiotherapie . Ikibabaje ni uko iyi kanseri ifite amahirwe menshi yo kongera kugaruka ndetse na nyuma yo kuyivura. Kubera iyo mpamvu, abashakashatsi mu by'ubuvuzi bo muri Nirogi Lanka no hirya no hino ku isi bakomeje gukora ibishoboka byose kugira ngo bavumbure uburyo bwiza bwo kuvura.

Ni gute Clear Cell Sarcoma igira ingaruka ku mubiri wawe?

Indwara ya Clear Cell Sarcoma akenshi itangirira mu bice byoroshye biri hafi y'imitsi yawe, imitsi, cyangwa fascia —urugingo rworoshye kandi rukomeye rukora nk'agasanduku gashyigikira imitsi yawe n'imiterere yayo.

Mu ntangiriro, ushobora kutabona ibimenyetso. Ariko, uko ikibyimba kigenda gikura, ushobora kumva ikibyimba gikomeye kiri munsi y'uruhu ku kuguru cyangwa ku kirenge cyawe. Nubwo ibi bishobora kumvikana nk'igisebe cyatewe n'igikomere cya kera, itandukaniro rikomeye ni uko iki kibyimba kidashira uko igihe kigenda gihita . Indwara ya Clear Cell Sarcoma ikunda gukura buhoro buhoro, ariko iyo itangiye kugaragara munsi y'uruhu rwawe, ishobora kuba yaratangiye gukwirakwira mu bindi bice by'umubiri.

Niba ubonye ikibyimba ku kuguru kwawe ukibwira uti "Birashoboka ko ari imvune gusa," nyamuneka witondere. Niba icyo kibyimba kimaze ibyumweru cyangwa amezi—cyangwa gitangiye gukura—ntutegereze. Shaka inama z'abaganga ako kanya.

Ni hehe Clear Cell Sarcoma ishobora gukwirakwira?

Sarcoma ya Clear Cell Sarcoma ishobora kwaguka ikagera no mu bindi bice by'umubiri, cyane cyane:

• Uburyo bwawe bwo gutera igifu
• Ibihaha byawe
• Sisitemu yawe ya limfu , harimo n'uturemangingo twa limfu n'imiyoboro ya limfu.

Ese iki ni ikibazo gisanzwe?

Oya, ni gake cyane. Ndetse na sarcomas mu itsinda ntizikunze kugaragara. Urugero, muri Leta Zunze Ubumwe za Amerika, hari abantu bashya bagera ku 1.600 banduye sarcoma yoroshye ipimwa buri mwaka, ikaba ari 1% gusa by'abantu bakuru barwaye kanseri. Clear Cell Sarcoma igaragara gusa muri 1% by'abantu barwaye iyo kanseri idakunze kugaragara. Ibi bigaragaza uburyo iyi ndwara idakunze kugaragara.

Ni nde uri mu kaga gakomeye kurusha abandi?

Nubwo Clear Cell Sarcoma ishobora kugaragara mu myaka iyo ari yo yose, ikunze kugaragara cyane mu rubyiruko ruri hagati y'imyaka 15 na 40 , aho ikwirakwira cyane mu myaka ya za 20 na 30.

Ibimenyetso ni ibihe?

Nkuko byavuzwe, ikimenyetso gikunze kugaragara ni ikibyimba gikomeye kandi gihoraho munsi y'uruhu rw'ukuguru cyangwa ikirenge cyaweIki kibyimba gishobora kuba kibabaza cyangwa kitababaza. Ariko, niba kigumye aho kandi kikagaragara nk'aho kirimo gukura, icyo ni cyo kimenyetso cy'ibanze cy'umuburo.

Mu ntambwe za nyuma, ushobora kandi guhura n'ibi bikurikira:

• Umunaniro udashira kandi udasobanutse
• Kugabanya ibiro mu buryo budasanzwe
• Kubira ibyuya nijoro

Ni iki gitera icyorezo cya Clear Cell Sarcoma?

Impamvu nyayo ni igoye. Ubushakashatsi mu by'ubuvuzi bwagaragaje ko Clear Cell Sarcoma iterwa n'ikosa rya genetiki aho ibice bibiri bya chromosomes bihinduranya imyanya, bigatuma habaho gene ivanze .

Mu by’ukuri, mu gihe cyo kwigabanyamo ibice by’uturemangingo, chromosomes zishobora gucika no guhinduranya ibice. By’umwihariko, ibice birimo gene za EWSR1 na ATF1 birasimbuzwa. gene ya EWSR1 ikunze kugira uruhare mu mikorere y’uturemangingo, mu gihe ATF1 ifasha kugenzura imikurire y’uturemangingo. Iyo izi chromosomes zongeye gufatana, imiterere y’uturemangingo ishyirwa mu buryo butari bwo. Abaganga babyita translocation isubiranamo . Impamvu iri kosa ribaho mu buryo butunguranye iracyari ingingo y’ubushakashatsi bwa siyansi.

Iyo iyi mpinduka ijya kuri chromosome nshya ibaye, gene zasubiwemo zihurira hamwe zigakora gene ivanze izwi nka EWSR1 / ATF1 . Abashakashatsi bemeza ko iyi gene yihariye ivanze ari yo itera imbere kwa sarcoma y’uturemangingo dusobanutse.

Ni gute abaganga basuzuma indwara ya sarcoma isanzwe?

Iyo ugiye kwa muganga ufite ikibyimba kigaragara, azakora isuzuma ry’umubiri kugira ngo arebe aho giherereye, ingano yacyo n’imiterere yacyo. Bashobora kandi gusaba ko bagupima MRI (Magnetic Resonance Imaging) kugira ngo barebe neza.

Ariko, gusuzuma neza kwa sarcoma y’uturemangingo tw’umubiri byemezwa binyuze mu gupima , aho icyitegererezo gito cy’uturemangingo gifatwa mu kibyimba. Abahanga mu ndwara—inzobere mu gusuzuma uturemangingo muri laboratwari—bazasesengura iki cyitegererezo bakoresheje mikorosikopi bashaka cyane cyane gene ya EWSR1/ATF1 twavuze mbere.

Ni gute sarcoma y’uturemangingo ivurwa?

Intego y'ibanze y'ikipe y'abaganga ni ukurinda kanseri gukwirakwira mu bindi bice by'umubiri wawe. Akenshi, intambwe ya mbere ni ukubaga gukuraho ikibyimba cyose . Iyo hari ibimenyetso bigaragaza ko kanseri yageze mu tunyangingo tw'amaraso twegereye, na two turakurwaho. Ibi bikunze gukurikirwa n'ubuvuzi bw'inyongera , akenshi bukoreshwa mu kuvura hakoreshejwe imirasire , kugira ngo hasenywe uturemangingo twa kanseri dusigaye.

Abashakashatsi bo muri Nirogi Lanka n'ahandi barimo gushakisha uburyo bushya bwo kuvura. Urugero, barimo gusuzuma akamaro k'ubuvuzi bw'ubudahangarwa bw'umubiri.mu kuvura sarcoma y’uturemangingo duto. Byongeye kandi, igeragezwa ry’ubuvuzi ririmo gukora iperereza niba imiti ikoreshwa ubu ku bundi bwoko bwa kanseri ishobora gufasha guhagarika gukomeza kwandura iyi ndwara.

Ni ngombwa gusobanukirwa ko sarcoma y’uturemangingo duto ikunze kugaruka. Ibi bibaye, bishobora kuba ngombwa ko ubagwa cyangwa kuvurwa hakoreshejwe imirasire. Kubera ko ubu bwoko bwa kanseri bushobora gukwirakwira vuba, abaganga bawe bazagukorera gahunda yo kugukurikirana buri gihe kugira ngo bakurikirane neza niba hari ikibyimba gishya cyakuze.

Ese nshobora kugabanya ibyago byo kurwara sarcoma y’uturemangingo duto?

Ikibabaje ni uko nta buryo buzwi bwo kugabanya ibyago byo kurwara iyi ndwara. Kugeza ubu, abashakashatsi ntibarabasha kumenya ibintu byihariye bishobora gutera iyi ndwara —ingeso cyangwa indwara zishobora kongera ibyago byo kurwara iyi ndwara—ku ndwara ya clear cell sarcoma.

Ese sarcoma y’uturemangingo ishobora gukira burundu?

Nubwo abaganga bashobora kuvura kanseri ya kanseri isanzwe binyuze mu gukuraho ibibyimba no kugenzura ikwirakwira ryabyo, ubu ntabwo ifatwa nk'indwara ishobora gukira neza . Akenshi, iyo kanseri imaze kumenyekana, ishobora kuba yamaze gukwirakwira mu bindi bice by'umubiri, bigatuma ubuvuzi burushaho kugorana. Byongeye kandi, amahirwe menshi yo kongera kugaragara kwa kanseri aracyari ikibazo gikomeye.

Ni iki cyizere cy'ubuzima ku muntu ufite sarcoma y'uturemangingo duto (clear cell sarcoma)?

Icyizere cy'ubuzima ni igipimo rusange gishingiye ku mibare y'abaturage, ukurikije ubuzima bwawe muri rusange n'imimerere y'umuntu ku giti cye. Isuzuma ryakozwe mu 2018 na US National Cancer Database ryagaragaje ko 50% by'abantu banduye clear cell sarcoma bakiriho nyuma y'imyaka itanu , naho 38% baracyariho nyuma y'imyaka icumi .

Nubwo tuganira ku mibare y’abazaba bakiriho, ni ngombwa kwibuka ko ibi ari ibigereranyo gusa, atari ibiteganyijwe ku muntu runaka. Igipimo cy’abazaba bakiriho gishingiye ku matsinda menshi y’abantu; hari ibintu byinshi bigira ingaruka ku musaruro w’umuntu ku giti cye. Niba waranduye clear cell sarcoma, muganga wawe ni we soko ryiza cyane ry’amakuru ajyanye n’uko indwara yawe ihagaze n’ibyo witeze.

Ese sarcoma y’uturemangingo ishobora kwica?

Yego, ishobora kwica. Muri rusange, abantu bafite kanseri yakwirakwiriye mu bindi bice by'umubiri bahura n'ikibazo gikomeye cyo kurwara kurusha abavurwa mbere yuko kanseri ikwirakwira.

Ni ryari ngomba kubonana na muganga wanjye?

Kubera ko Clear Cell Sarcoma ishobora kongera kugaragara ndetse na nyuma yo kuvurwa, muganga wawe ashobora kugusaba kujyayo buri mezi atatu mu myaka ibiri ya mbere nyuma y’uko uvurwa bwa mbere, bitewe n’uko urwaye. Ni ngombwa ko ukomeza ibi bihe byo kwisuzumisha byagenwe ndetse na nyuma y’icyo gihe.

Ni ibihe bibazo ngomba kubaza muganga wanjye?

Clear Cell Sarcoma ni indwara idakunze kugaragara ishobora gushyira ubuzima mu kaga. Niba warasanzwe ufite iyi ndwara, dore ibibazo bimwe na bimwe ushobora kubaza umuganga wawe:

• Ikibyimba kiri he, kandi kingana iki?
• Ese ikibyimba cyarakwirakwiriye mu bindi bice by'umubiri wanjye?
• Ni iyihe gahunda yo kuvura ungira inama?
• Ni izihe ngaruka mbi zishobora guterwa n'ubuvuzi bwatanzwe?
• Ni izihe ngaruka mbi zishobora gutuma ikibyimba kigaruka?
• Ese hari igeragezwa ry'ubuvuzi ngomba gusuzuma?

Incamake n'ubutumwa bwo kujyana mu rugo

Indwara ya Clear Cell Sarcoma ni indwara igoye kandi idakunze kugaragara, ifata abantu bake cyane buri mwaka. Ikunze gukura buhoro buhoro, ibi bikaba bishobora gutuma kanseri iba yamaze gukwirakwira mu gihe ubonye impinduka ku mubiri.

Ariko, wibuke ko abahanga mu by'ubuvuzi bashyizeho amabwiriza yo kuvura no kuvura Clear Cell Sarcoma, akenshi ikubiyemo kubagwa kugira ngo ikibyimba gikureho hanyuma hagakurikiraho imiti y'inyongera kugira ngo hakorwe uturemangingo twa kanseri dusigaye. Ikibabaje ni uko hari ibyago byo kongera kugaruka. Kubwibyo, kwitabira gahunda zawe zo gukurikirana no gukomeza kuba maso ku mpinduka zose mu mubiri wawe ni ingenzi cyane.

Abashakashatsi bahora bakora ibishoboka byose kugira ngo bategure uburyo bushya kandi bwiza bwo kuvura. Niba usanzwe urwaye Clear Cell Sarcoma kandi ukaba ushishikajwe no kumenya igeragezwa rishya ry’ubuvuzi , nyamuneka gisha inama muganga wawe kugira ngo akuyobore. Ntukigere utakaza icyizere.Ukoresheje inama z’abaganga zikwiye, ubufasha bw’inzobere, n’uburyo bwo gukora ibishoboka byose, ushobora guhangana n’iki kibazo neza. Niba uhuye n’ikibazo cyihutirwa, nyamuneka hamagara 911 cyangwa usure ishami rishinzwe ubutabazi bw’ibanze riri hafi yawe ako kanya.

Nirogi Lanka: sarcoma y'uturemangingo duto, kanseri y'imitsi yoroshye, ibibyimba by'amaguru, ibibyimba by'ibirenge, sarcoma, ibimenyetso bya kanseri, uburyo bwo kuvura kanseri