Hari igihe iyo umuganga aguhaye umuti ugoye tutarigeze twumva, duhangayika gato kandi tugatinya, si byo se? Ibibazo byinshi nka "Uyu ni umuti ki? Bizagenda bite kuri uyu muti? Ese hazabaho ingaruka mbi?" biza mu mutwe. Uyu munsi, tugiye kuvuga ku rukingo rwa Elapegademase, abantu benshi batari barumva, ariko ni umuti w'ingenzi cyane, mu buryo bworoshye ushobora gusobanukirwa.
Elapegademase ni iki?
Muri make, Elapegademase ni urukingo ruvura indwara idakunze kugaragara cyane mu ngirabuzimafatizo. Iyi ndwara yitwa Adenosine Deaminase (ADA Deficiency) . Izina riragoye gato, reka tubirebe mu buryo bworoshye.
Tekereza ko umubiri wacu ari uruganda runini. Kugira ngo ibintu byose bikore neza muri uru ruganda, hagomba kuba hari ubwoko butandukanye bw'abakozi. Enzymes ni abakozi bato bakora mu mubiri wacu. Buri enzyme ifite akazi kayo.
Adenosine Deaminase ni imwe muri enzyme zidasanzwe. Akazi kayo ni ugusenya ikintu kidakenewe (deoxyadenosine) gikorerwa mu turemangingo twacu no kukivana mu mubiri.
Ubu, hari abantu bavuka bafite ikibazo cyo kubura iyi enzyme yitwa adenosine deaminase, cyangwa bakayikoraho bike cyane. Ibyo ni byo twita kubura kwa ADA. Iyo iyi enzyme ibuze, iyo enzyme idakenewe itangira kwirundanya mu mubiri. Iyi enzyme ni uburozi bukomeye ku turemangingo turwanya (lymphocytes) mu budahangarwa bwacu bw'umubiri . Ingaruka zabyo ni uko utwo turemangingo turimbuka, kandi ubudahangarwa bw'umubiri bugacika intege cyane.
Ubu buryo bw'umubiri bworoshye cyane bwitwa Severe Combined Immunodeficiency (SCID) . Umuntu ufite iyi ndwara ashobora kwandura indwara za bagiteri.
Rero, icyo urukingo rwa Elapegademase rukora ni ugutanga enzyme ibura yitwa adenosine deaminase iturutse hanze y'umubiri. Ibi byitwa Enzyme Replacement Therapy . Iyo uru rukingo rutanzwe, ibintu by'uburozi byirundanya mu mubiri birashwanyagurika, kwangirika kw'uturemangingo tw'ubudahangarwa bw'umubiri birahagarara, kandi ubudahangarwa bw'umubiri butangira kongera gukomera. Ibi bituma umubiri ushobora kurwanya indwara.
Ibintu ugomba kubwira muganga wawe mbere yo gufata uyu muti
Mbere yo gutangira uyu muti, ni ngombwa cyane guha muganga wawe ibisobanuro byuzuye ku buzima bwawe. Cyane cyane ibi bikurikira bigomba kuvugwa.
| Ikibazo ugomba gutangaza | Kuki ibyo ari ingenzi? |
|---|---|
| Indwara yandura ubu (nk'umuriro, inkorora, ibicurane) | Bishobora kuba ngombwa kugenzura ubwandu buriho mbere yo gutangira imiti. |
| Kugabanuka k'urugero rw'imitsi yo mu bwoko bwa platelet | Uyu muti ushobora kugira ingaruka ku bipimo by'amaraso, bityo muganga agomba kumenya indwara iyo ari yo yose ihari. |
| Allergie kuri elapegamide cyangwa indi miti, ibiryo, cyangwa amarangi | Ibi ni ingenzi kugira ngo hamenyekane ingaruka zikomeye zo kugira ubwivumbure ku muti. |
| Niba utwite cyangwa ugerageza gutwita | Ugomba kuganira na muganga wawe ku ngaruka zishobora kuzagira ku mwana uri mu nda. |
| Niba umwana yonsa | Muganga wawe azakugira inama niba umuti ugera ku mwana binyuze mu mashereka ndetse niba uzagira ingaruka. |
Ni gute ukoresha uyu muti neza?
Uyu muti utangwa nk'urushinge rwo mu mitsi . Ubusanzwe uyu muti utangwa n'itsinda ry'abaganga mu bitaro cyangwa mu ivuriro. Ariko, hari ubwo, kugira ngo umurwayi yoroherezwe, birashoboka no guhabwa uru rushinge mu rugo.
Niba ugomba gukingirwa mu rugo...
Wihangayika. Abaforomo bahuguwe bo mu bitaro bazakwereka neza, intambwe ku yindi, uko wabikora mu rugo.
- Uburyo bwo gutegura umuti.
- Ni ahantu heza ho gukingirwa.
- Ni uburyo bwiza cyane bwo gukingirwa.
- Uburyo bwo kujugunya inshinge n'inshinge byakoreshejwe mu buryo bwizewe.
Icy'ingenzi cyane: Ntukigere ujugunya inshinge n'inshinge zakoreshejwe mu myanda isanzwe. Zigomba gushyirwa mu gikoresho cya pulasitiki cyihariye kandi kinini (agasanduku k'inkoni karimo ibyuma bityaye)**. Niba udafite, baza muganga wawe cyangwa ibitaro ibyerekeye kimwe.
Ese uyu muti muwuha abana?
Yego, uyu muti uhabwa abana kuko ikibazo cyo kubura ADA gikunze kugaragara bakiri bato. Ariko, ni ngombwa gukurikiza amabwiriza y'abaganga witonze cyane, kuko hari ibintu byihariye bigomba kwitabwaho mu gihe uha abana bato uyu muti.
Wakora iki niba ufashe imiti myinshi?
Niba ubona ko wafashe ibirenze urugero rwatanzwe, hamagara ako kanya Ikigo cy’Igihugu gishinzwe gutanga amakuru ku burozi mu bitaro by’igihugu bya Colombo , cyangwa ujye mu ishami ryita ku bibazo byihutirwa (ETU) ry’ibitaro biri hafi yawe.
Wakora iki niba wabuze dose y'umuti?
- Niba ugiye gufata imiti yawe mu bitaro cyangwa ku ivuriro: Ni ngombwa cyane kutibagirwa gahunda yawe. Niba ku mpamvu runaka udashobora kujyayo ku munsi wagenwe, hamagara ibitaro ako kanya ubibwire.
- Niba ufata umuti mu rugo: Niba wabuze dose, fata vuba ubyibuka. Ariko, niba igihe cyo gufata dose ikurikira kigeze, rekeraho dose ibura hanyuma ufate dose ikurikira ku gihe cyagenwe. Ntukigere ufata dose ebyiri.
Ese uyu muti ukorana n'ibindi bintu? (Imikoranire)
Ntabwo birakorwa ubushakashatsi bwimbitse ku buryo indi miti, ibikomoka ku bimera, cyangwa inyongeramusaruro bigira ingaruka kuri uyu muti.
Kubwibyo, ni ngombwa guha muganga wawe urutonde rwuzuye rw'imiti yose ufata (harimo imiti y'izindi ndwara, vitamine, imiti y'ibimera, n'inyongeramusaruro). Ni ngombwa kandi kubibwira muganga wawe niba unywa itabi cyangwa unywa inzoga.
Ibintu ugomba kwitondera mu gihe ukoresha umuti
Muganga wawe azagusuzuma buri gihe mu gihe uri guhabwa ubu buvuzi.
- Jya mu mavuriro yagenwe: Ibi ni ingenzi kugira ngo urebe uburyo imiti igira ingaruka ku mubiri wawe ndetse niba ibimenyetso byawe birimo kugabanuka.
- Gukora amaraso: Muganga wawe ashobora gutegeka ko upimwa amaraso buri gihe kugira ngo apime imikorere y'ubudahangarwa bw'umubiri wawe n'imikorere y'imiti yawe. Ntukabireke.
- Menya ibimenyetso: Niba hari impinduka mu bimenyetso byawe (byaba byiza cyangwa bibi), bwira muganga wawe ibyabyo.
Ni izihe ngaruka mbi zishobora kubaho?
Kimwe n'indi miti yose, uyu muti ushobora gutera ingaruka mbi ku bantu bamwe, ariko si buri wese uzibona.
| Ubwoko bw'ingaruka mbi | Ibiranga |
|---|---|
| Niba ufite ibi bimenyetso, bimenyeshe muganga wawe ako kanya. | |
| Indwara zikomeye z'ubwivumbure |
|
| Bwira muganga wawe niba ubonye kimwe muri ibi bimenyetso bikurikira, bikunze kugaragara, bihoraho, cyangwa bikubangamiye: | |
| Inkorora | Inkorora nshya idakira. |
| Kuruka | Kunyara cyangwa kuruka nyuma yo gufata umuti. |
| Ibisubizo by'aho umuntu atewe inshinge | Ugutukura, ububabare, cyangwa kubyimba aho bateye inshinge. |
Uru rutonde ntirukubiyemo ingaruka zose zishobora kubaho. Niba ubonye ikintu kidasanzwe uretse ibi, vugana na muganga wawe kuri ibyo.
Ni gute wabika umuti?
- Bika muri firigo: Bika uyu muti mu gice gisanzwe cya firigo. Ntukigere uwubika muri firigo.
- Bika kure y'abana: Bika kure y'abana bato n'amatungo.
- Bika mu ipaki y'umwimerere: Ni byiza kubika umuti mu ipaki yawo y'umwimerere kugira ngo uwurinde urumuri.
- Kuraho imiti yarengeje igihe: Ntugakoreshe imiti nyuma y'itariki izarangiriraho. Baza muganga wawe inama z'uburyo wakoresha imiti yarengeje igihe cyangwa itagikenewe mu buryo bwizewe.
Ubutumwa bwo kujyana mu rugo
- Elapegademase ni uburyo bwo gusimbuza imisemburo bukomeza ubudahangarwa bw'umubiri, bugacika intege bitewe n'indwara idakunze kugaragara mu ngirabuzimafatizo yitwa ADA deficiency.
- Mbere yo gutangira ubu buvuzi, bwira muganga wawe neza indwara zawe zose, ubwivumbure, n'indi miti ufata.
- Kurikiza gahunda yagenwe yo gufata umuti neza. Niba wabuze dose, ntuzigere ufata dose ebyiri icyarimwe.
- Niba ugize ibimenyetso bikomeye by’ubwivumbure nko kubyimba mu maso cyangwa ku minwa, kubyimba uruhu, cyangwa guhumeka nabi, shaka ubufasha kwa muganga byihutirwa.
- Bika umuti neza muri firigo (atari muri firigo) kure y'abana.
- Niba ufite ikibazo cyangwa impungenge kuri uyu muti, ntutinye kubibwira muganga wawe.
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Kwipimisha kanseri y'ibere, kwisuzuma no kwirinda byakozwe byoroshye. Kanseri y'ibihaha
Ishyirireho intego ya calorie hanyuma ubare itariki yo kugabanya ibiro.