Ese iyi ni yo mpamvu ituma umubiri wawe ubabara kandi ugahinduka uruhu? Reka tuvuge kuri Eosinophilia-Myalgia Syndrome (EMS)!

Hari igihe bigoye gusobanukirwa indwara duhura na zo, si byo se? Mu buryo butunguranye, twumva ububabare mu mubiri wacu, utuntu duto tugaragara ku ruhu rwacu, kandi twumva bigoye guhumeka. Uyu munsi tugiye kuvuga ku ndwara idasanzwe ariko iteye impungenge iza hamwe n'ibi bimenyetso bisa nkaho bitajyanye. Iyi yitwa 'Eosinophilia-Myalgia Syndrome' (EMS). Nubwo izina rishobora gusa nkaho ari rirerure, reka tubisobanukirwe mu buryo bworoshye.

Eosinophilia-Myalgia Syndrome (EMS) ni iki?

Muri make, `Eosinophilia-Myalgia Syndrome` (EMS) ni indwara idakunze kugaragara ifata imitsi yawe, uruhu, n'ibihaha . Ikiba muri ibi ni uko ubwoko bw'uturemangingo tw'amaraso tw'umweru twitwa `eosinophils` , tuboneka mu maraso yacu, twirundanya cyane kandi tukishyira mu ngingo zacu. Tekereza muri ubu buryo, izi `eosinophils` zimeze nk'abarinzi b'umubiri wacu. Ariko iyo aba basirikare babaye benshi cyane, batangira guteza ibibazo ku mibiri yacu.

Iyi ndwara ishobora gutera ububabare bukomeye bw'imitsi (myalgia) , uduheri ku ruhu cyangwa izindi mpinduka, ndetse no kugorwa no guhumeka . Hari igihe ibi bimenyetso bishobora gushyira ubuzima mu kaga cyangwa bigatera ububabare bukomeye butuma bigorana gukora imirimo ya buri munsi.

Iyi ndwara yitwa `EMS` ni ubwoko bw'indi ndwara yitwa `eosinophilia`. `Eosinophilia` ni ukwiyongera gusa k'umubare wa `eosinophilia` mu maraso cyangwa mu ngingo.

Impamvu ikunze gutera EMS ni ikoreshwa ry’inyongeramusaruro zirimo imiti yitwa L-tryptophan cyangwa 5-hydroxytryptophan (5-HTP), nk’uko ushobora kuba wabyumvise. Ariko kandi, byagaragaye ko hari abantu bashobora kugira iyo ndwara batabikoresheje.

Ni gute indwara ya Eosinophilia-Myalgia yahindutse icyorezo?

Iyi nkuru ni ishaje gato. Mu 1989, indwara nshya yagaragaye mu buryo butunguranye muri Amerika. Abashakashatsi bayise `Eosinophilia-Myalgia Syndrome`. Icyo gihe, yakwirakwiriye nk'icyorezo. Abenshi mu bantu barwaye muri ubwo buryo ni abakoreshaga inyongeramusaruro zirimo `L-tryptophan` y'ubukorano . Ibi byatumye `eosinophils` zirundanya mu maraso yazo, zitera ububabare bw'imitsi. Bivugwa ko abantu bagera kuri 37 bapfuye icyo gihe.

Nyuma y’iki kibazo, Ikigo gishinzwe ibiribwa n’imiti muri Amerika (FDA) cyakuye ku isoko ibicuruzwa byinshi birimo L-tryptophan. Nyuma y’ibyo, umubare w’abarwayi ba EMS wagabanutse cyane.

Ariko, nyuma ayo masosiyete y’inyongeramusaruro yasimbuye `L-tryptophan` hamwe na `5-hydroxytryptophan (5-HTP)` isa cyane.Natangiye gukoresha ibyo bavuga. Izi 'nyunganizi' bivuze ibintu nko kunoza ibitotsi, kunoza ibyiyumvo, nibindi. Ushobora kuba warabonye ibi bintu nk'ibicuruzwa byongera ubuzima bwiza bw'umubiri, bikagabanya ibiro, cyangwa bikagufasha gusinzira. Rero, hari amahirwe ko 'EMS' ishobora kubaho nk'ingaruka mbi z'ibi.

Ikibabaje ni uko mu gihe habayeho impinduka mu mategeko agenga inyongeramusaruro muri Leta Zunze Ubumwe za Amerika mu 1994, inyongeramusaruro zirimo L-tryptophan na 5-HTP zongeye kugaragara ku isoko.

Ni nde ugerwaho n'iki kibazo cyane?

Mu gihe cy'icyorezo cyo mu 1989, abantu benshi barwaye iyi ndwara ya 'EMS' ni abafataga 'inyongeramusaruro' irimo 'L-tryptophan' cyangwa '5-HTP'. Muri abo, abenshi muri bo bivugwa ko bari abagore .

Muri iki gihe, iyi ndwara ni gake cyane. Ariko, nk'uko byavuzwe mbere, abantu batakoresheje imiti irimo `L-tryptophan` cyangwa `5-HTP` nabo bashobora gufatwa n'iyi ndwara ya `EMS`.

Ibi ni ibisanzwe gute?

Nta mibare nyayo igaragaza uburyo ibi bikunze kugaragara. Bivugwa ko mu gihe cy'icyorezo cyo mu 1989, muri Leta Zunze Ubumwe za Amerika honyine hagaragaye abarwayi bari hagati ya 5.000 na 10.000. Muri icyo gihe, hagaragaye abarwayi baturutse mu bihugu nka Ubudage, Kanada n'Ubwongereza.

Ni ibihe bimenyetso bya Eosinophilia-Myalgia Syndrome (EMS)?

Ibimenyetso bya EMS bishobora gutandukana bitewe n'umuntu ku wundi, kandi bishobora gutandukana mu bukana. Ibi bimenyetso akenshi bitangira mu buryo butunguranye. Ibi bimenyetso biterwa no kwirundanya kwa eosinofili mu maraso no mu ngingo, bigatera ububyimbirwe. Bishobora kugira ingaruka ku bice byinshi by'umubiri.

Ibimenyetso bikunze kugaragara ni ibi bikurikira:

• Umunaniro .
• Umuriro .
• Kubyimba amaboko n'ibirenge (edema) .
• Kubura ibinya mu biganza no mu birenge .
• Kugorwa no kwibuka cyangwa kwibanda ku kintu runaka .
• Impinduka mu byiyumvo cyangwa mu myitwarire .
• Isesemi cyangwa kuruka .
• Impiswi .

Byongeye kandi, ibimenyetso byihariye bishobora no kugaragara mu mitsi, uruhu, umutima, n'ibihaha.

Ibimenyetso bifitanye isano n'imitsi n'ingingo

Kimwe mu bintu by'ingenzi biranga `EMS` ni ingaruka zikurikira ku mitsi n'ingingo:

• Ububabare (`myalgia` cyangwa `arthralgia`) : Iki ni cyo kintu cy'ingenzi. Umubiri urababara, ingingo zirababara.
• Kubabara umubiri .
• Gukomera kw'imitsi no kubabara mu buryo butunguranye .
• Intege nke .
• Kudakora neza kw'imitsi cyangwa ingingo .

Ububabare wumva bushobora kuva ku bworoheje kugeza ku bukomeye. Bushobora no kwiyongera mu byumweru bike.

Ibimenyetso by'uruhu

Ibimenyetso by'uruhu bishobora kumara amezi agera kuri atatu kugeza kuri atandatu. Birimo:

• Uduheri ku ruhu: Ahari umutuku n'ibisebe.
• Uruhu ruryana .
• Uduce tw'uruhu tugenda dutakaza umusatsi .
• Uduce twinshi tw'uruhu : Ibi byitwa `eosinophilic fasciitis` mu buvuzi.

Ibimenyetso by'umutima n'ibihaha

Ibimenyetso bigira ingaruka ku bihaha bishobora kuba bito nk'inkorora, cyangwa bikaba bikomeye kurushaho. Niba ufite kimwe muri ibi bimenyetso bikurikira, ugomba guhita ujya kwa muganga wihutirwa :

• Kugorwa no guhumeka .
• Guhumeka nabi .
• Kubabara mu gituza .
• Umutima utera nabi (arrhythmia) .
• Kubyimba imitsi y'umutima (`myocarditis`) .

Icy'ingenzi: Niba uhura n'ingorane zo guhumeka, ububabare mu gituza, cyangwa umutima utera nabi, ntukine. Shaka inama kwa muganga ako kanya.

Ni iki gitera Eosinophilia-Myalgia Syndrome (EMS)?

Ubwo EMS yavumburwaga bwa mbere mu 1989, byakekwaga ko iterwa n'inyongeramusaruro y'ubuzima irimo L-tryptophan y'ubukorano . L-tryptophan ni aside amine isanzwe iboneka mu biribwa bimwe na bimwe, nka turukiya. Ariko, iyo ikozwe mu buryo bw'ubukorano, byagaragaye ko itera ububabare bw'imitsi no kwiyongera k'urugero rwa eosinophil.

Nubwo ibicuruzwa birimo L-tryptophan ikoze mu buryo bwa sintetike bikiri ku isoko kugeza ubu, EMS ishobora no guterwa n'ikindi kintu cy'ubukorikori gisa na L-tryptophan, cyitwa 5-HTP .

Ariko, hari abarwayi ba EMS batakoresheje ikintu kirimo L-tryptophan cyangwa 5-HTP. Ibi bivuze ko hashobora kuba hari izindi mpamvu zitaramenyekana zitera iyi ndwara. Ubushakashatsi buracyakomeje.

Ni gute indwara ya Eosinophilia-Myalgia Syndrome (EMS) ipimwa?

Umuganga azagusuzuma EMS agusuzuma kandi agukorere ibizamini bikenewe. Ibintu by'ingenzi muganga azareba muri iki kizamini ni ibi bikurikira:

• Ikizamini cy'amaraso yawe kizasuzumwa niba hari eosinofili nyinshi.
• Ndimo ndeba niba ufite ububabare bw'imitsi.

Hari ibindi bipimo byinshi by'amaraso bishobora gukorwa kugira ngo hamenyekane iyi ndwara. Ibi ni ukugira ngo hamenyekane izindi ndwara zifite ibimenyetso bisa. Muganga azabaza kandi amateka y'ubuzima bwawe n'inyongeramusaruro ufata . By'umwihariko, menya neza ko zirimo 'L-tryptophan' cyangwa '5-HTP'.

Ese indwara ya Eosinophilia-Myalgia Syndrome (EMS) ivurwa ite?

Nta buryo bwihariye bwo kuvura EMS. Muganga wawe azagutegurira gahunda yo kugufasha guhangana n'ibimenyetso byawe. Ibi bishobora kuba birimo imiti ikurikira:

• Imiti iruhura imitsi .
• Imiti igabanya ububabare (`imiti igabanya ububabare`) .
• Imiti ikura amazi menshi mu mubiri (diuretics) - iyo hari kubyimba.
• Corticosteroids - Iyi ni ubwoko bw'imiti itangwa kugira ngo igabanye ububyimbirwe.

Igikuru ni ugusoma witonze ku kirango cy'inyongeramusaruro ufata. Kandi uganire na muganga wawe ku bintu bigize iyi nyongeramusaruro. Niba irimo 'L-tryptophan' cyangwa '5-HTP', ugomba guhagarika kuyifata ako kanya.

Bitewe n'ubukana bw'ububabare bw'imitsi yawe, muganga wawe ashobora kukubwira kugabanya imyitozo ngororamubiri kugira ngo wirinde ko ububabare burushaho kwiyongera. Ariko, hari abantu basanze gukora imyitozo ngororamubiri yoroheje buri gihe mu gihe cyo kuvurwa bishobora kugabanya ububabare.

Ese indwara ya Eosinophilia-Myalgia Syndrome (EMS) ishobora kwirindwa?

Kubera ko impamvu zose zitera EMS zitazwi neza, nta buryo bumwe bwo kuyirinda. Ariko, ushobora kugabanya ibyago byawe wirinda inyongeramusaruro zirimo L-tryptophan cyangwa 5-HTP.

Niba mfite Eosinophilia-Myalgia Syndrome (EMS), ni iki nkwiye kwitega?

Eosinophilia-Myalgia Syndrome (EMS) ni indwara idakira , bivuze ko idashobora gukira kandi imara igihe kirekire. Ibimenyetso byawe bishobora kuza no kugenda mu buzima bwawe bwose. Nubwo ibimenyetso byashyiraga ubuzima mu kaga mu gihe cy'icyorezo cyo mu 1989, hamwe n'imiti iboneka muri iki gihe, ushobora kwihanganira ibimenyetso byawe no kwirinda ingorane zikomeye. Abashakashatsi baracyari kwiga niba iyi ndwara izagira ingaruka ku buzima bwawe.

Kuri bamwe, uretse gufata imiti, gukora imyitozo ngororamubiri yoroheje buri munsi bishobora kugabanya ububabare no kumererwa nabi. Muganga wawe azakubwira impinduka mu mibereho yawe ugomba gukora mu gihe cy'ubuvuzi bwawe.

Ni ryari ngomba kujya kwa muganga?

Niba ufite ububabare bukomeye bw'imitsi ku buryo bukabije ku buryo udashobora gukora imirimo yawe ya buri munsi, cyangwa se no gukora imirimo isanzwe, nta kabuza ugomba kujya kwa muganga.

Nanone, niba ufite kimwe mu bimenyetso bikomeye bikurikira bigira ingaruka ku mutima cyangwa ibihaha, jya mu cyumba cy’ubutabazi bwihuse:

• Kugorwa no guhumeka .
• Kubabara mu gituza .
• Indwara y'umutima .

Ni ibihe bibazo ngomba kubaza muganga wanjye?

Iyo ugiye kwa muganga, ushobora kubaza ibibazo nk'ibi:

• Ese mfite Eosinophilia-Myalgia Syndrome (EMS) cyangwa indi ndwara isa nayo?
• Ese iyi ndwara ya `EMS` iterwa n'inyongeramusaruro mfata?
• Ingaruka mbi z'ubu buryo bwo kuvura ni izihe?
• Nkwiye gukora siporo ingana iki?
• Ese ngomba guhindura imibereho yanjye?

Amaherezo, ibuka ibi (Ubutumwa bwo kujyana mu rugo)

Eosinophilia-Myalgia Syndrome (EMS) ni indwara idakira ishobora gufata ibice byinshi by'umubiri wawe. Uburyo bwiza bwo kugabanya ibyago byawe ni ukwirinda gufata inyongeramusaruro zirimo L-tryptophan cyangwa 5-HTP. L-tryptophan, iboneka mu biribwa nk'inkoko n'amafi yo mu macupa, ni nziza kuyirya, ariko ibintu byakozwe mu nganda bishobora kwangiza umubiri wawe.

Nubwo ubuvuzi bugamije ahanini gucunga ibimenyetso byawe, ushobora no gukenera kongeramo ibintu mu mibereho yawe, nko gukora imyitozo ngororamubiri yoroheje ya buri munsi, kugira ngo urusheho kumva umeze neza. Wibuke buri gihe ko niba ugize ibimenyetso bidasanzwe, cyane cyane nyuma yo gutangira imiti mishya, shaka ubufasha bwa muganga ako kanya.

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