Ese wisanga mu mimerere aho n'igisebe gito kigutera kuva amaraso mu buryo butunguranye? Wenda ufite ikibazo cyo kuvura amaraso nka Hemophilia B. Uyu munsi tugiye kuvuga ku muti wihariye ufasha umubiri wacu muri bene ibyo bihe. Ni urukingo rwitwa Factor IX. Ntugatinye ubyumvise. Reka dusobanukirwe byose kuri ibi mu buryo bworoshye.
Factor IX ni iki?
Mu magambo make, Factor IX ni poroteyine ikenewe kugira ngo amaraso yacu agire ubwoya. Ubusanzwe, iyo umuntu yakomeretse, kuva amaraso kurahagarara kuko izi poroteyine (ibintu bigabanya ubwoya) zikorana. Ariko, ku bantu bafite indwara yitwa Hemophilia B, iyi poroteyine yitwa Factor IX ntikorwa mu buryo busanzwe cyangwa ngo ikoreshwe ku rugero ruto cyane.
Rero, uyu muti ukora kugira ngo ukosore icyo kibazo. Factor IX, itangwa nk'urukingo, ifasha amaraso kuzura kandi ikagenzura kuva amaraso iyo yinjiye mu mubiri. Uretse hemophilia B, abaganga bashobora no gutanga uyu muti ku zindi ndwara zimwe na zimwe zibuza amaraso kuzura.
Ibintu ugomba kubwira muganga wawe mbere yo gufata umuti
Noneho hari ibintu bike ugomba kubwira muganga wawe mbere yo gufata uyu muti. Ntugahishe ibi bintu, kuko ni ingenzi cyane ku mutekano wawe.
- Izindi ndwara ufite:
- Indwara y'umwijima
- Ibindi bibazo byo kuvura amaraso
- Indwara ituma amaraso acika mu mitsi (thrombosis)
- Allergie: Ese wigeze ugira allergie ku miti, ibiryo, irangi, cyangwa imiti irinda ubushyuhe? Menya neza ko ubivuze, cyane cyane niba ufite allergie kuri poroteyine y'abantu cyangwa inyamaswa (urugero: imbeba, hamsters).
- Gutwita no konsa: Bwira muganga wawe niba utwite, ugerageza gutwita, cyangwa wonsa.
Mu guha uyu muganga wawe aya makuru, ashobora kugena uburyo bwiza kandi bwizewe bwo kuvura.
Ukoresha uyu muti ute?
Uru ni urushinge mu mutsi (`(urushinge mu mutsi)`). Ubusanzwe rutangwa n'inzobere mu by'ubuzima mu bitaro cyangwa mu ivuriro.
Ariko rimwe na rimwe, ushobora gukenera gukoresha uyu muti mu rugo. Muri icyo gihe, uzahabwa amahugurwa akenewe mu bitaro. Ni ngombwa cyane gukurikiza ayo mabwiriza neza.
Niba uyikoresha mu rugo, zirikana ibi bikurikira:
- Uburyo bwo gutegura: Reka ifu y'umuti n'umuti bigere ku bushyuhe bw'icyumba.
- Kuvanga: Vanga witonze nkuko byavuzwe. Ntukazunguze cyane kugira ngo ukore ifuro. Zunguruza icupa kugira ngo rishonge.
- Ikoreshwa: Fata igipimo cyagenwe, ku gihe cyagenwe, nk'uko muganga wawe yabigutegetse. Shyira ibisigaye byose.
- Guta inshinge: Ibi ni ingenzi cyane. Ntukigere ujugunya inshinge cyangwa seringe zakoreshejwe mu myanda. Zigomba gushyirwa mu kintu cyabigenewe gikoreshwa mu gutwika. Niba udafite, saba muganga wawe.
Ese uyu muti ushobora guhabwa abana?
Yego, mu bihe bimwe na bimwe, uyu muti uhabwa n'abana. Ariko bisaba ingamba zidasanzwe zo kwirinda. Kubwibyo, niba uha umwana wawe uyu muti, ganira n'umuganga w'abana witonze kuri ibi.
Wakora iki niba ufashe imiti myinshi?
Niba ubona ko wafashe uyu muti urenze urugero rw'umuti watanzwe, hamagara ikigo cy'igihugu gishinzwe amakuru ku burozi mu bitaro by'igihugu bya Colombo . Cyangwa ujye mu ishami ryita ku bibazo byihutirwa (ETU) ry'ibitaro biri hafi yawe. Ntutinde.
Ibindi bintu bishobora kugira ingaruka ku muti
Imiti imwe ishobora kugira ingaruka ku gice cya mbere cya mbere. Urugero:
- aside aminocaproic
- Factor VIIa (factor VIIa)
- aside Tranexamic
Uru rutonde ntirwuzuye. Kubwibyo, bwira muganga wawe imiti yose ufata (yaba iyanditswe n'abandi baganga cyangwa iyaguzwe muri farumasi), vitamine, imiti ikomoka ku bimera ukoresha, kandi niba unywa itabi, unywa inzoga, cyangwa ukoresha indi miti .
Ibintu ugomba kwitondera mu gihe ukoresha umuti
- Ingaruka za virusi: Bimwe mu bicuruzwa bya Factor IX bikozwe mu maraso y'umuntu. Rero, hari ibyago bike cyane byo kwanduzanya ibintu nka virusi. Ariko ntugahangayike, uburyo bugezweho cyane bukoreshwa mu kwica virusi nyinshi na bagiteri iyo uyu muti ukozwe. Niba ufite ikibazo kuri ibi, vugana na muganga wawe. Niba uherutse gufatwa na hemophilia, ni ngombwa cyane gukingirwa Hepatite A na B.
- ID: Niba ufite hemophilia, buri gihe ujye witwaza ikarita y'indangamuntu iriho amakuru yawe. Igomba kuba irimo izina ryawe, izina n'ingano y'imiti ufata, izina na nimero ya terefone bya muganga wawe, hamwe n'amakuru y'umuntu ushobora kuvugana nawe mu gihe cy'impanuka. Ibi bishobora kurokora ubuzima.
Ingaruka mbi zishobora guterwa n'umuti
Kimwe n'indi miti yose, iyi ishobora gutera ingaruka mbi kuri bamwe. Reka turebere hamwe ibyo ari byo.
| Gushyira mu byiciro ingaruka mbi | |
|---|---|
| Ibintu ugomba kubwira muganga wawe cyangwa Ishami rishinzwe ibibazo byihutirwa (ETU) byihuse: | |
| Ubushobozi bwo kugira ubwivumbure | Uruhu rushyushye, kuribwa, kubyimba mu maso, ku minwa cyangwa ku rurimi. |
| Ibibazo by'umutima | Kubabara mu gituza, umutima utera vuba cyangwa utari umeze neza. |
| Ingorane zo guhumeka | Guhumeka bigoranye, urusaku rwo guhumeka ruturuka mu gituza. |
| Umuriro cyangwa ubukonje | Umuriro cyangwa ubukonje nta mpamvu. |
| Ibibazo aho bateye inshinge | Ububabare, gutukura, cyangwa kubyimba aho hantu hakorewe. |
| Ibintu ubusanzwe bitari bikomeye, ariko bigomba kumenyeshwa muganga mu gihe bikomeje: | |
| Gusukura amazi | Kumva umutuku n'ubushyuhe mu maso cyangwa ku mubiri. |
| Umutwe | Kuribwa umutwe muri rusange. |
| Isesemi no kuruka | Kubabara mu nda no kuruka. |
| Umunaniro | Kumva unaniwe. |
Ubutumwa bwo kujyana mu rugo
- Factor IX ni urushinge rwa poroteyine rwihariye rufasha amaraso kuvura indwara nka hemophilia B.
- Mbere yo gufata uyu muti, bwira muganga wawe indwara zawe zose, ubwivumbure bwawe, n'indi miti ufata.
- Niba ufata umuti mu rugo, kurikiza amabwiriza neza. Shyira inshinge zakoreshejwe mu buryo bwizewe.
- Niba ugize ibimenyetso nko kubabara mu gatuza, kugorwa no guhumeka, cyangwa kugira ubwivumbure bukomeye, shaka ubufasha kwa muganga byihutirwa.
- Niba ufite hemophilia, buri gihe ujye witwaza ikarita y'indangamuntu iriho amakuru yawe.
- Uyu muti ni uwawe gusa. Ntukigere uwusangira n'undi muntu uwo ari we wese.
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