Twese tuzi ko indwara zimwe na zimwe zishobora kuvurwa muri farumasi. Ariko hari indwara zidasanzwe zivurirwa mu bitaro, zigenzurwa n'abaganga. Hemin ni umwe mu miti nk'iyo, ikoreshwa mu bihe bidasanzwe cyane, kandi igatangwa mu mitsi. None rero uyu munsi, reka tuganire muri make kuri uru rukingo rwa Hemin, icyo rukora, abo ruhabwa, n'ibintu ukeneye kumenya kuri rwo.
Hemin ni ubwoko ki bw'umuti?
Uyu muti witwa Hemin ukoreshwa mu kuvura indwara idakunze kugaragara yitwa `Acute Intermittent Porphyria`. Iri ni izina rigoye, reka tubisobanure mu buryo bworoshye.
Iyi ni indwara iterwa n’uturemangingo. Mu by’ukuri, iterwa n’ikosa mu gukora igice cy’amaraso yacu cyitwa 'Heme'. Iyi 'Heme' ni ingenzi ku itunganywa rya hemoglobin mu turemangingo dutukura tw’amaraso yacu. Iyo iyi nzira ihungabanye, imiti mibi irakora mu mubiri, bigatera ibimenyetso bitandukanye nko kubabara mu gifu cyane n’ibibazo by’imitsi.
Rero, uyu muti witwa Hemin (izina ry’umuti rishobora kuba `Panhematin`) ugenzura ibura ry’umusaruro wa `Heme` kandi ugagabanya ibimenyetso. Mu yandi magambo, uyu ni umuti ugira ingaruka ku mikorere y’ibanze itera indwara.
Ibintu ugomba kubwira muganga wawe mbere yo gukoresha uyu muti
Kubera ko uyu ari umuti wihariye cyane, ni ngombwa cyane kumenyesha muganga wawe amateka y’ubuzima bwawe mbere yo gutangira kuvurwa. Menya neza ko umubwiye ibi bikurikira by’umwihariko:
- Ibibazo byo kuvura amaraso: Niba ufite ikibazo cyo kuvura amaraso (urugero, kuva amaraso bidahagarara vuba), tubwire ibyacyo.
- Allergie: Niba ufite allergie iyo ari yo yose, atari kuri uyu muti witwa Hemin gusa, ahubwo no kuri latex, indi miti, ibiryo, ndetse n'amabara amwe n'amwe, menya neza ko ubitubwira.
- Gutwita: Niba utwite cyangwa ugerageza gutwita, ni ngombwa kubimenyesha muganga wawe.
- Niba uri umubyeyi wonsa: Niba uri umubyeyi wonsa, ugomba no kubimenyesha muganga mbere yo gutangira kuvurwa.
Urukingo rwa Hemin rutangwa gute?
Uyu si umuti ushobora kujyana mu rugo. Ni umuti utangwa nk'umuti wa saline mu mitsi (infusion) n'umuganga wabihuguriwe mu bitaro cyangwa ivuriro. Abakozi bo kwa muganga bazahora bakurikirana ikibazo cyawe mu gihe urimo guhabwa ubu buvuzi.
Ese uyu muti muwuha abana?
Uyu muti ubusanzwe ushobora kwandikirwa abana bato barengeje imyaka 16 mu bihe bimwe na bimwe byihariye. Ariko ukorwa witonze cyane kandi ku mpamvu zidasanzwe. Kubwibyo, niba uha umwana wawe uyu muti, ni ngombwa kuganira neza na muganga w'abana no gusobanukirwa byose neza.
Bigenda bite iyo ufashe imiti myinshi?
Kubera ko uyu muti utangwa uyobowe na muganga, amahirwe yo 'kurenga urugero' ni make cyane. Ariko, niba ukeka ko warenze urugero, hamagara Ikigo cy'Igihugu gishinzwe Amakuru ku Burozi mu Bitaro by'Igihugu bya Colombo cyangwa Ishami ry'Ubuvuzi bwihutirwa (ETU) ry'ibitaro.
Uyu muti wanditswe kuri wewe gusa. Ntuwusangire n'undi muntu uwo ari we wese ku mpamvu iyo ari yo yose.
Ese hari ibibazo bishobora kubaho mu yindi miti? (Imikoranire)
Yego, ibi bishobora guteza ibibazo ku miti imwe n'imwe. Ibi ni ingenzi cyane cyane niba ufata imiti ibuza amaraso kuzura, nka warfarin.
Uru rutonde ntabwo rurambuye. Kubwibyo, menya neza ko wabwiye muganga wawe imiti yose ufata (harimo imiti yanditswe na muganga n'iyishyurwa mu gihe kitazwi, vitamine, imiti y'ibimera, n'inyongeramusaruro), ndetse no kumenya niba unywa itabi, unywa inzoga, cyangwa ukoresha indi miti. Icyo gihe ni bwo ushobora kuvurwa mu buryo butekanye.
Ingaruka mbi zishobora kubaho mu gihe cyo kuvurwa
Kimwe n'indi miti yose, urukingo rwa Hemin rushobora gutera ingaruka zimwe na zimwe. Zimwe muri zo zisaba kwitabwaho byihuse, mu gihe izindi akenshi ziba zitari zikomeye. Reka tubirebe mu mbonerahamwe.
| Ingaruka mbi z'urukingo rwa Hemin | |
|---|---|
| Ibintu ugomba kubwira muganga wawe cyangwa abakozi b'abaganga ako kanya | |
| Indwara zo kwangirika kw'umubiri | Kuryarya uruhu, kuribwa cyangwa gucika uduheri, kubyimba mu maso, iminwa cyangwa ururimi. |
| Impinduka mu kunyara | Kugabanuka cyangwa izindi mpinduka mu mubare w'inkari zisohoka. |
| Kuva amaraso ku buryo budasanzwe | Gukomereka cyangwa kuva amaraso byoroshye kandi bitazahagarara. |
| Umunaniro udasanzwe | Kumva unaniwe cyane cyangwa ufite intege nke. |
| Ibintu ubusanzwe bitari bikomeye, ariko bigomba kuvugwa niba bikomeje | |
| Umuriro uciriritse | Kumva ushyushye gato mu mubiri. |
| Ububabare aho umuntu atewe urushinge | Ububabare cyangwa ububyimbirwe hafi y'aho inshinge zatewe. |
Uru rutonde rushobora kuba rudakubiyemo ingaruka mbi zose zishobora kubaho, bityo rero niba uhuye n'ikintu kidasanzwe, ntutinye kubibwira muganga wawe.
Ubutumwa bwo kujyana mu rugo
- Hemin ni umuti wihariye utangwa mu bitaro kugira ngo uvure indwara idakunze kugaragara, ikwirakwizwa mu muryango witwa 'Acute Intermittent Porphyria'.
- Mbere yo gutangira kuvurwa, ni ngombwa ko ubwira muganga wawe indwara zawe zose, aleriji, n'imiti yose ufata.
- Uyu muti utangwa binyuze mu mitsi (IV infusion) n'umuganga wabyigiye. Uyu si umuti wo kujyana mu rugo.
- Menya ingaruka mbi zikomeye nko kugira ubwivumbure no kuva amaraso mu buryo budasanzwe. Nubona ikintu nk'iki, menyesha abakozi b'ibitaro ako kanya.
- Niba ufite ikibazo icyo ari cyo cyose kuri uyu muti, nubwo waba uto, nyamuneka ubaze muganga wawe.
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