Iyo umuganga wawe akubwiye cyangwa uwo ukunda ko afite indwara ya cystic fibrosis (CF), ushobora kuba ufite ibibazo byinshi ku bijyanye n'imiti azakwandikira. Kubera ko ari indwara igoye, ni ngombwa kumenya neza imiti azakwandikira. Uyu munsi tugiye kuvuga ku wundi muti wihariye. Ni ikinini cy'ubwoko bumwe cyitwa ORKAMBI, kikaba ari uruvange rw'imiti ibiri yitwa Lumacaftor na Ivacaftor.
Uyu ni ubwoko ki bw'umuti? Uyu muti ukora iki mu by'ukuri?
Mu magambo make, indwara ya cystic fibrosis (CF) ni indwara iterwa n’inenge iri muri poroteyine mu mubiri wacu. Ibi bituma ibintu biva mu bihaha byacu n’ingingo zacu, cyane cyane ibicurane, bikomera cyane kandi bigafatana. Tekereza nawe, ubusanzwe ibicurane mu bihaha byacu biba bitose gato, bityo bigasohoka byoroshye. Ariko ibicurane mu muntu urwaye CF mu by’ukuri biba bikomeye, nk’uko bimeze kuri kole. Ibi bicurane bikomeye bifatana mu bihaha, bigatera kugorwa no guhumeka, gukorora, no kwandura indwara kenshi.
Lumacaftor; Uyu muti witwa Ivacaftor ukora ukoresheje iyo poroteyine navuze itari nziza hanyuma ukayikosora ku rugero runaka. Ni nko gusana irembo ryangiritse. Iyo iyi poroteyine itangiye gukora neza, uburyo umunyu n'amazi binyura mu turemangingo tw'umubiri birangana. Hanyuma iyo mitsi miremire kandi ifata iragabanuka gato kandi itangira koroha kuyikura mu bihaha. Ibi bishobora kugenzura ibimenyetso byinshi bya CF.
Ariko ikintu kimwe ugomba kwibuka ni uko uyu atari umuti wa cystic fibrosis (CF). Ni uburyo bwo kuvura bufasha kugenzura ibimenyetso no koroshya ubuzima.
Ibintu ugomba kubwira muganga wawe mbere yo gufata umuti
Mbere yo gutangira uyu muti, ni ngombwa cyane kumenyesha muganga wawe amateka y’ubuzima bwawe bwose. Kubera ko hari indwara zimwe na zimwe zisaba kwitabwaho by’umwihariko mu gihe ukoresha uyu muti. Niba ufite imwe muri izi ndwara zikurikira, menya neza ko wabibwiye muganga wawe.
| Indwara cyangwa amahirwe | Kuki ugomba kubibwira muganga? |
|---|---|
| Indwara y'umwijima | Uyu muti ushobora kugira ingaruka ku mwijima. Niba usanzwe ufite ibibazo by'umwijima, igipimo cyawe gishobora gukenerwa guhindurwa cyangwa se ushobora gukenera gusuzumwa kenshi. |
| Indwara y'impyiko | Ni ngombwa kandi kwita ku mikorere y'impyiko. |
| Umuvuduko ukabije w'amaraso | Uwo muti ushobora gutuma umuvuduko w'amaraso wiyongera cyane, bityo rero ni ngombwa kubimenya. |
| Niba utwite cyangwa ugerageza gutwita | Ugomba kuvugana na muganga wawe ku bijyanye n'umutekano w'uyu muti mu gihe utwite. |
| Niba umwana yonsa | Ganira na muganga wawe niba umuti ugera ku mwana binyuze mu mashereka n'ingaruka zawo. |
| Allergie ku yindi miti, ibiryo, cyangwa amarangi | Aya makuru ni ingenzi kumenya niba ufite ubwivumbure kuri uyu muti cyangwa ikindi kintu cyose kiwugize. |
Ukoresha uyu muti ute?
Iki ni cyo gice cy'ingenzi cyane. Iyo udakoresheje uyu muti neza, ibisubizo bishobora kugabanuka.
- Ufata ukoresheje ifunguro rifite ibinure: Iri ni ryo tegeko ry'ingenzi cyane . Kugira ngo uyu muti unyurwe neza n'umubiri, ugomba gufata ukoresheje ifunguro rifite ibinure. Urugero, ufata ukoresheje amagi, amavuta, foromaje, ubunyobwa, avoka. Niba uwuhaye umwana muto, ushobora kuwumuha hamwe n'amata y'ibere, amata y'ifu cyangwa amata yuzuye ibinure nka yawurute, foromaje.
- Fata neza neza nk'uko muganga wawe yabigutegetse: fata igipimo gikwiye, mu gihe gikwiye. Komeza kuyikoresha kugeza igihe muganga wawe azakubwiriye kubihagarika.
- Ntugafate umutobe w'imbuto z'umuhondo: Irinde kunywa umutobe w'imbuto z'umuhondo cyangwa imbuto z'umuhondo mu gihe ufata uyu muti.
- Iyo abana bahawe uyu muti: Uyu muti ushobora kwandikirwa abana barengeje imyaka 6. Ariko, muganga wawe azaguha amabwiriza yihariye kuri ibi.
Bite ho iyo mfashe imiti myinshi?
Niba utekereza ko wafashe imiti irenze urugero rw’umuti wagenwe, hamagara ako kanya Ikigo cy’Igihugu gishinzwe gutanga amakuru ku burozi mu bitaro by’igihugu bya Colombo, cyangwa ujye mu ishami ryita ku bibazo byihutirwa (ETU) ry’ibitaro biri hafi yawe.
Bite ho niba nibagiwe dose?
Niba wibagiwe gufata dose, fata ako kanya wibuka. Ariko, niba hasigaye amasaha atarenze 6 ngo dose yawe ikurikiraho igere, ntufate dose yabuze. Simbuka ufate dose ikurikiraho ku gihe cyagenwe. Ntukigere ufata dose ebyiri icyarimwe.
Indi miti ishobora kugira ingaruka kuri uyu muti
Iki ni ikintu cyo kwitondera cyane. ORKAMBI ishobora kugira ingaruka ku yindi miti myinshi. Ibi bivuze ko kuyifata hamwe n'indi miti bishobora guhindura ingaruka za ORKAMBI, guhindura ingaruka z'indi miti, cyangwa bigatera ingaruka mbi zikomeye.
Kubwibyo, ugomba kubwira muganga wawe imiti yose ufata (imiti ivura izindi ndwara, vitamine, imiti y'ibimera, imiti ya Ayurvedic, inyongeramusaruro mu mirire).
Dore imwe mu miti ishobora kugira ingaruka kuri uyu muti. Uru rutonde ntirwuzuye.
| Ntugafate uyu muti hamwe n'undi muti uwo ari wo wose. | |
|---|---|
| Artemether, lumefantrine | Ranolazine |
| Lurasidone | Imiti imwe itangwa ku barwayi ba VIH na virusi ya Hepatite C |
| Nyamuneka menyesha muganga wawe kuko ibi bishobora kugira ingaruka ku miti yawe. | |
| Amwe mu ma antibiyotike (urugero: Clarithromycin, Erythromycin) | Imiti irwanya fungal (urugero: Fluconazole, Ketoconazole) |
| Imiti ivura igicuri (ikwirakwira) (urugero: Carbamazepine, Phenytoin) | Umuti wo kuvura ihungabana cyangwa imihangayiko |
| Imiti igabanya ubudahangarwa bw'umubiri (urugero: Cyclosporine, Tacrolimus) | Ubwoko bwa steroid (urugero: Prednisone) |
| Ibinini byo kuboneza urubyaro (imisemburo ya Estrogen/Progestin) | Warfarin (umuti ugabanya amaraso) |
| Imiti igabanya ububabare nka ibuprofen | Umuti wa Mutagatifu Yohani (umuti w'ibimera) |
Ibindi bintu ugomba kuzirikana mu gihe ufata umuti
- Gusuzumwa kwa muganga buri gihe: Muganga wawe azakubwira kujya kwa muganga buri gihe. Jya ku gihe gikwiye kandi upime amaraso. Niba ibimenyetso byawe bitarangiye, babwire ibyawe.
- Itondere amaso yawe: Uyu muti ufite ibyago bike byo gutera indwara ya cataract, cyane cyane ku bana. Kubwibyo, ugomba gusuzumwa amaso yawe na muganga w'amaso buri gihe mu gihe ufata umuti. Niba ubonye impinduka mu maso yawe, bwira muganga wawe vuba.
- Witondere uburyo bwo kuboneza urubyaro: Ibi ni ingenzi cyane niba ukoresha ibinini byo kuboneza urubyaro bigizwe n'imisemburo. ORKAMBI ishobora gutuma bidakora neza. Kubwibyo, menya neza ko wavuganye na muganga wawe ku bijyanye no gukoresha ubundi buryo bwo kuboneza urubyaro, nk'agakingirizo cyangwa diaphragm .
Ingaruka mbi zishobora guterwa n'umuti
Kimwe n'indi miti yose, iyi ishobora gutera ingaruka mbi kuri bamwe. Imwe ni ikomeye, indi ni yoroheje.
| Ingaruka mbi zikomeye zigomba kumenyeshwa muganga ako kanya | |
|---|---|
| Ubushobozi bwo kugira ubwivumbure | Uruhu rushyushye, kuribwa, kubyimba mu maso, ku minwa, ku rurimi cyangwa mu muhogo. |
| Kugorwa no guhumeka cyangwa kubabara mu gatuza | Niba ufite ikibazo cyo guhumeka cyangwa wumva igituza cyawe gifunganye. |
| Ibimenyetso by'indwara y'umwijima | Kubabara mu gice cyo hejuru cy'iburyo cy'igifu, kubura ubushake bwo kurya, isesemi, amacandwe y'umuhondo wijimye cyangwa umukara, amaso cyangwa uruhu bihinduka umuhondo, ndetse n'umunaniro ukabije. |
| Ubwiyongere bw'umuvuduko w'amaraso | Muganga azabisuzuma. |
| Impinduka mu bushobozi bwo kubona | Niba ubona nabi. |
| Ingaruka mbi akenshi zidakunze kuba zihutirwa, ariko zigomba kumenyeshwa muganga mu gihe zikomeje | |
| Kubabara mu nda | Gazi |
| Impiswi | Isesemi |
| Umutwe | Umunaniro |
| Ukwezi kw'abagore kutumvikana neza | |
Ni gute ubibika kandi ukajugunya umuti?
- Kubika: Bika ibinini ahantu abana n'amatungo batagera . Bika ahantu hari ubushyuhe bw'icyumba (hagati ya dogere selisiyusi 20-25). Ntugakoreshe umuti warengeje igihe.
- Guta imiti: Uburyo bwiza bwo kujugunya imiti yarangije igihe cyangwa itakikenewe ni ukuvana ibinini mu gikoresho, ukavanga n'ikawa yakoreshejwe, itaka, cyangwa umwanda w'injangwe, ukabishyira mu gikapu gifunze neza, hanyuma ukajugunya mu myanda. Ntukajye usuka imiti mu musarani keretse muganga wawe abikubwiye.
Ubutumwa bwo kujyana mu rugo
- Buri gihe fata ORKAMBI (Lumacaftor; Ivacaftor) hamwe n'ibiryo birimo ibinure nk'amavuta, foromaje, cyangwa amagi.
- Uyu muti ni uwawe gusa. Ntuwusangire n'undi muntu uwo ari we wese.
- Menyesha muganga wawe indi miti yose, vitamine, n'imiti y'ibimera urimo gufata.
- Shaka ubufasha bwihuse kwa muganga niba ugize ingaruka mbi zikomeye nko guhindura icyerekezo, guhumeka bigoranye, cyangwa kubabara mu gice cyo hejuru cy'iburyo cy'igifu cyawe.
- Bika amatariki yagenwe yo kwa muganga n'ibizamini byawe hamwe na muganga wawe.
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